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diznee25
01-31-2017, 03:59 PM
Hi everyone!

My name is Michelle, I'm 37 years old, and I was diagnosed with scoliosis at the age of 21. However, I knew I had scoliosis when I was 9 years old, thanks to Judy Blume's book 'Deenie'. As I read the book, my heart sank because I realized that my body looked the same as Deenies' did. Even so, I grew up in a very religious home, and my dad didn't believe in doctors. So my condition was ignored my entire childhood, even though many of my Aunts and Uncles tried to change my dad's mind. I went on with life, and didn't think about it again until I was 21.

age 21 (diagnosis) 2001 - 28 degrees lumbar, and 32 thoracic.
age 30 (recheck) 2010 - 40*lumbar, 51*main thoracic, and 33* upper thoracic.

My diagnosis and recheck were done by 2 different doctors, because I lived in different states. The doc from my original diagnosis said I was borderline for needing surgery, and that if my curves progressed at all, then I'd need surgery down the road. The other specialist I saw in 2010, said he didn't recommend surgery at all, even though my curves had progressed. He recommended PT, which I ended up not doing because my insurance wasn't great, and I couldn't afford out of pocket costs. This is currently the last recheck I've had.

Fast forward to the present: The past month, just shortly after Christmas, I've been having constant nerve pain, and tingling in my back and neck. Add that to the moderate pain I've always had from my scoliosis, and I'd say this is the worst pain I've felt. My husband has taken over household chores, and cooking because I can't do those right now.

So I've scheduled an appointment with Washington University in St Louis MO. (We live in southern IL, just 30 mins away.) At first, the receptionist was going to schedule me with a surgical consult with Dr Buchowski. I was like, no, no.....I don't want to waste his time, at least right now. I just need a recheck of my curvature, and want to see if PT is the way to go first. So I was transferred to the Orthopedic Physiatry dept. They'll do X-rays and whatever other tests are needed, and then see if PT is an option. If I do PT, and it doesn't help any of my symptoms, then they will have me do a surgical consult. I have great insurance now, so I'm looking forward to trying PT. Only downfall is my appointment isn't until April. Sigh! That's a long wait.

Sorry for the long post! I look forward to getting to know all of you.

Michelle

flerc
01-31-2017, 04:15 PM
51ļ and not recommending surgery? And even thoracic? Is difficult to believe for me, in my country, I may say in all South America and some countries of Europe as Spain, surely is not possible to find a surgeon not recommending surgery with a thoracic curve > 50ļ. I may say you that you are lucky, may I ask you the name of your surgeon? You may send me a PM.
About non surgical treatments I would recommend you Gpr if you are in pain or want to achieve flexibility, but of course you have a lot of options in your country.

jackieg412
01-31-2017, 04:18 PM
Michelle it is hard t wait when we make up our minds to seek help. A surgical consult can lead to other treatment than surgery. I do think that Dr can give you good advice so don't be afraid of his opinion. Actually seek several.
Exercise can keep things in check for awhile but remember PT ends but you need to keep it up.

flerc
01-31-2017, 04:53 PM
If you have 51 or more, except you see again the same surgeon, you may be sure that he will recommend you fusion, except if he is a Vbt surgeon and proabably also one doing Vbt in adults. If you are decided to have fusion, there will not be any problem to see a surgeon.. Remember that fusion is for ever and ALWAYS have a negative side regardless the surgeon doing it.

Pooka1
01-31-2017, 06:45 PM
Remember that fusion is for ever and ALWAYS have a negative side regardless the surgeon doing it.

You sound like a chiropracter.

burdle
02-01-2017, 04:41 AM
Hi Michelle,

I am a similar case to you. (59T,49L , 49UT) However I am a bit older. It looks as if your curves, although technically at surgical levels, are balanced. Like me you have 3 curves and I expect that your head is more on less on top of your pelvis ( balance wise). This is part of what surgeons consider.

50% degrees is a threshold for surgery but unlike what Flerc asserts - it is not a simple cut-off. Other things figure as I am sure you will find out. This puts you in a difficult position. You have significant pain which surgery is not guaranteed to reduce. If you progress significantly I expect surgery may well be offered. I do a lot of PT to keep on top of the pain. It obviously does not affect progression or rotation in any significant way but it keeps me going.

Let us know how you get on

Pooka1
02-01-2017, 07:34 AM
Hi Michelle. Burdle is in your shoes and is very knowledgeable.

Please ignore flerc. He has no experience with this and is giving you incorrect information. This has been going on for years.

flerc
02-01-2017, 09:41 AM
Michelle, if you read some of her thousands of posts here you will realize (as tons of people leaving this forum for ever because her attacks), that she wants everyone having surgery .. and as it seems lastly, only fusion. She is very much dishonest as I have proved many times. Don't heard her, is the worst you may do.

flerc
02-01-2017, 09:48 AM
And to heard Burdle is the same to heard Pooka1.. the only difference is that one says to be a man and the other to be a woman..

burdle
02-01-2017, 10:09 AM
And to heard Burdle is the same to heard Pooka1.. the only difference is that one says to be a man and the other to be a woman..

hi Michelle,

Not sure what Flerc is on about - I am a woman and have not had surgery. I have been offered it long ago and although it is an option now it is not 'recommended' due to having 3 curves.

For the record I am delighted to hear about VB and its advances. I believe people will be offered it IF it is a valid treatment option. I do not believe in an conspiracy amongst surgeons.
I cannot speak for Pooka1 but she has been of great help to me and others. She has always made her thoughts and advice very clear and has backed everything she says up with source references.

feel free to message me

Pooka1
02-01-2017, 10:12 AM
Flerc was wrong about Burdle being a man. He is similarly wrong about many other things. This perfectly illustrates my point that he doesn't know what he is talking about and can't follow the reasoning presented here.

flerc
02-01-2017, 10:16 AM
hi Michelle,

Not sure what Flerc is on about - I am a woman



Oh sorry.. it seems I wanted to imagine some significant difference.. they sounds exactly the same, says the same.. I needed a way to don't think they are not the same person..

diznee25
02-01-2017, 04:02 PM
Thanks to everyone for chiming in! Ironically, the orthopedic doctor who advised against surgery back in 2010, is from John Hopkins. I lived in Maryland at the time, and had gone to JH for an undiagnosed muscular disease I have, and while I was there they sent me over to the Orthopedics Dept to recheck my spine. I lived in Colorado in 2001, so an Orthopedic surgeon there originally diagnosed me, and did my first measurements. It was the guy in Colorado who said I'd eventually need surgery down the road.

So back to John Hopkins -- I agree with the Orthopedic Surgeon's assessment. At that time I wasn't experiencing a lot of pain, and he said that while my scoliosis is severe, he didn't recommend surgery. He told me that if I was in more severe pain, then he could see recommending surgery. So I guess sometimes it's not just about how small/big the curves are. I guess they take pain into account as well. Or, at least he does. All Orthopedic Surgeons are different. Or maybe he was also taking my muscle disease into account as well. As much as all Orthopedic Surgeons might give all of us different opinions, we have to remember that we are all different from each other as well. Each of us might have other main, or secondary medical issues that need to be taken into account when deciding how to treat for scoliosis. Treatment is not a 'one size fits all'.

Update on current situation - So I mentioned nerve pain (in my back and neck) in my original post. I'm not going to wait 9 weeks for my appointment at Washington University. The pain is just too much....I'm seeing my Primary Care Physician tomorrow, and see what's going on.

burdle - Thanks for sharing! Really inspiring to see someone with similar curvature doing well with PT. Yep, I've been told as well that my curvatures are balanced and how lucky I am that it turned out that way.

Nice to meet all of you, and lets keep talking!

Michelle

titaniumed
02-01-2017, 10:29 PM
Michelle

It had been decades before I finally relented and saw my GPís PA back in 2002. I had done the scoliosis tour in the 70ís when I was diagnosed and I could see that he was young and wanted to do a prostate check. I told him, Iím no doctor, but its my back. Lets just focus on the spine ok? He he (There is more to this story and its hilarious......Medically related humor, where would we be without it?)

Anyway........I did get my hands on some Celebrex, and Bextra and that was a life saver......Combined with hot water soaks, that held me for 6 years with twin 65 degree curves. The referral to a ďregularĒ non-scoli trained orthopedic didnít accomplish much to be truthful. A spinal tap and a unnecessary CT that diagnosed 4 lumbar herniationís. Visits to the doctor can be fun, or heartbreaking.

PT is a good thing....IF you can find someone with some knowledge of scoliosis. Usually therapists donít look at x-rays so thatís a bit blind....Massages are heaven (with the right masseuse)

If youíre a candidate for surgery, its good to communicate and become prepared in advance. It was something I thought of for quite a few years. I supposed that helped, but then emergencies happen with resulting surgery and bam, boom, its done without the worry that scoliosis surgery offers.

Welcome to the forum

Ed

diznee25
02-02-2017, 03:45 PM
Ed,

Thanks for sharing and for the warm welcome. So glad to hear you're doing better after all you have been through. Yeah, I do agree with everyone here who've mentioned that I should see an Orthopedic Surgeon who specializes in scoliosis. Come to think of it, I'm not sure why the receptionist for the surgeon transferred me to the 'rehab' sub dept of Orthopedics. I really need an evaluation before PT can even be suggested. I guess maybe the receptionist could hear the hesitation in my voice when she said surgical consult. But it really does make sense to me now. Thanks to everyone who suggested that!

Interesting you mentioned massages. Ten years ago, I got a deep tissue massage at a local Spa, and I walked away in so much pain!! I even told her I had scoliosis, and she had me draw my spine on a piece of paper for her to reference, but that didn't help. You really have to trained in scoliosis (and probably reference x-rays) to give good massages! My husband gives me massages at home, he offers all the time because of my back pain, but I still come away with pain than relief. Ed, do you use a regular masseuse who is knowledgable about scoliosis, or a PT. Does a PT even do massages?

So, I saw my primary care doctor this morning, and she is actually sending me to a neurologist for the nerve pain in my neck, back, arms and legs....feeling it everywhere now. She suggested Washington University, so I was pleased with that. Doc also said more than likely the neurologist would refer me to an Orthopedic Surgeon, so it looks like I'll have come full circle. Now I need to cancel that appointment I have in April with the Ortho Sub Dept.

Michelle

titaniumed
02-02-2017, 10:23 PM
Michelle, If you have scoliosis, you really should consult with a scoliosis surgeon....... They have the best chance of catching things the others will miss....after a little chat discussing scoliosis related stuff, chances are you can move on. The surgeon might just have a few connections with knowledgeable PT people or otherwise......A major scoliosis center is best. I posted recently about a lady (age 54) who had some back pain, she thought it was a pulled muscle and had devastating news about metastasized cancer (uterine) wrapped around her spine with resulting emergency spine surgery. I know, it is very scary since we are all used to pain, many of us brush it off. One can continue to take massive amounts of medications for scoliosis related pains that mask cancer, and end up in a whole bunch of trouble.

One of the things about massage is that no leverage moves should be used. I had this done once and I was DONE. So, yes its not easy finding the right person, I was active at the famous Steamboat Springs at the base of Virginia City, Nv. Mark Twain used to go there back during the 1860ís. If it was good enough for him, it was good enough for me! (smiley face) I found out that BOILING in a deep hot tub before a massage was the ticket. I would then have a 2 hour massage immediately after and walk out in heaven. That was an expensive habit, and did those 2 times a week for 6 years. About $85K worth. After my surgeries, I didnít need massage, I donít have the pain. My masseuse was devastated since I was a heavy tipper and wanted priority scheduling.

I did Chiro for multiple decades. Thousands of adjustments.....they kept me going...They also had a Chinese accupressure girl there, trained in China, and she worked miracles....Half of her therapy was painful and the other half felt ok. On the painful pressure points she would say ďEd, it is necessaryĒ...... She wanted to get married, but I was afraid she would give me the finger.....(thatís my accupressure joke) Ha ha

You say your having neck, back, arm, and leg pain? I wonder what this could be?......Sounds like the neurologist visit will be worth trying, I never saw one myself. What can be common with elder scolis with decent lumbar curves is resulting sciatica which is devastating hip and lower leg and ankle pain. When discs herniate they push against the spinal cord and create major nerve pain. It becomes a new much higher level or class of scoliosis related pain, with the switch setting on full. It drove me into A/P scoliosis surgery. I am 9 years post now.....

You need x-rays shot. Request a copy burned to disc from the radiology dept. I had a doctor throw out my diagnosticís upon retirement and was NOT pleased, so donít let them give you any guff about this. I get copies of all my expensive diagnostics, I paid for them. Surgeons like seeing dated x-rays and history. It helps them with their decision. You can also tell them you might move and not having them is not an option.....When you get your full digitals, you can zoom in on them. Mine in my link are digitals, you should be able to zoom in.

Also, always double check your co-pays on diagnostics......If the co-pays are out of control, get the order and shop your own diagnostics with a cash payment. There are radiology companies all over and they like cash.

Be sure to let us know how it goes....

Ed

diznee25
02-03-2017, 04:00 PM
Ed,

I enjoy reading your posts and insight to things I would have never thought of, like requesting a copy of x-rays. Thanks. Yeah, I have nerve pain and tingling near my right shoulder blade, where my thoracic curve is. The nerve pain then radiates up my neck, and down my right arm. I also have nerve pain and tingling in my lower left back, where my lumbar curve is. That nerve pain shoots down my left arm, and left leg. All of these symptoms have been going on 24/7 for the past 2 weeks. I really thought maybe I just sprained something and things would settle down after awhile. So my husband took over everything I do at home; chores, cooking, etc., so I could just sit and not move around! The shooting nerve pain stayed active when sleeping at night, so I'd spend all nights tossing and turning. The only thing that's helped is hot baths! Only, the nerve pain and tingling always came back within minutes of getting out of the bath.

My PCP started me on Gabapentin yesterday for the nerve pain. I slept pain free last night....it was so great! Today I've still been experiencing nerve pain in my back, (in the areas I mentioned above), but only intermittently. However, the tingling in my back never went away. It's still constant 24/7 tingling. The medication is just to get me through the pain until my neurology consult. My PCP said the neurologist would probably order an x-ray and extensive MRI. So hopefully if there's something crazy going on, it'll show up on the MRI. If I get worse, or if I feel the neurology consult is scheduled too far out, then I'll go to the ER.

I dislike how long the referral process takes. My PCP has until next Monday to schedule my neuro consult. I'm now questioning why she didn't just send me to an imaging place to get the tests done quicker, seeing the severity of my pain and how long I've had it (2 weeks now).

Oh wow, I'm so sorry to hear about the woman who found out she had a cancerous tumor wrapped around her spine. That's just awful! Yeah, I don't like taking medications for the reason you mention. I was hesitant to get on the medication for my nerve pain, but my PCP said it's just to give me temporary relief until my neuro consult.

I have Cigna Open Access Plus coverage. Their website is great and has a cost estimation calculator that I've been using to gather costs for x-rays and MRIs. My annual deductible needs to be 100% paid before Cigna coverage starts. So that'll be a big cost out of my pocket, but I'll probably max out my deductible on this neuro consult.

Michelle

flerc
02-03-2017, 04:17 PM
I think is very much reasonable and important really to see a surgeon but there is a risk!. What you would do if he recommends you fusion? I think that 99,99999999% has fusion.

diznee25
02-10-2017, 04:35 PM
I think is very much reasonable and important really to see a surgeon but there is a risk!. What you would do if he recommends you fusion? I think that 99,99999999% has fusion.

To be honest, I'm not sure what I'd do if surgery was recommended! Having been through open heart surgery at just 20 years old, I understand the investment going that route....I always put my health first. As much as I'd want to avoid back surgery, if a really valued surgeon in the field says I need it, then I'd definitely do it. In fact, I've been reading the Surgical part of this forum to gain knowledge and understanding of every aspect of this decision. So if I'm faced with it down the road, then I'll be prepared to make a decision. A decision not just based on an Orthopedic Surgeon telling me I need it, but also based on my research too.

Today I called back Washington University Orthopedics Dept. to see if I could get an Orthopedic Surgeon elvaluation, but they want me to keep my appointment with their Physiatry sub dept. They said Physiatry will do x-rays, evaluate my spine, and see if PT is an option. They don't want to consider a surgical consult unless the Physiatry dept. recommends it.

On a side note, I went to the ER this morning. The sharp back pain, and nerve pain was just getting hard to manage. I was diagnosed with Cervical Radiculopathy. A CT scan showed degenerative disease at C-5-6, and C-6-7. This area is also bulging. They did not do a CT of my entire spine, just the Cervical portion. They also prescribed PT for this. I *think* it's PT for just 1 day, and just for the Cervical Radiculopathy Weird. I go to PT next week. I'm on Orphenadrine (muscle relaxant), so we'll see how that helps.

Doe anyone here have Cervical Radiculopathy? The ER doc told me it's common in those with scoliosis.

Michelle

titaniumed
02-10-2017, 07:58 PM
Doe anyone here have Cervical Radiculopathy? The ER doc told me it's common in those with scoliosis.

Michelle

Yes, many of us. Myself included...

Michelle, Your close, but I would INSIST to see Dr Gupta.
http://www.ortho.wustl.edu/content/Patient-Care/3719/Find-a-Physician/Physician-Directory/Munish-Gupta-MD/Bio.aspx

This guy is no hack.

Hang in there

Ed

LindaRacine
02-10-2017, 10:58 PM
I *think* it's PT for just 1 day, and just for the Cervical Radiculopathy Weird. I go to PT next week. I'm on Orphenadrine (muscle relaxant), so we'll see how that helps.

Doe anyone here have Cervical Radiculopathy? The ER doc told me it's common in those with scoliosis.

Michelle
Hi Michelle...

We often write prescriptions for PT with 1 visit, and the PT evaluates the patient and decides how many visits and how often they're needed.

Cervical radiculopathy is fairly common in people with scoliosis. I have it, but keep it at bay with daily exercise.

Best of luck getting your pain under control.

--Linda

richardis
02-11-2017, 01:21 AM
Remember that fusion is for ever and ALWAYS have a negative side regardless the surgeon doing it.
is it forever? if you cut the bones they will be mobile again.
Spinal cord and nerves being intact you can add some mobility again. researchers just need to think a little bit more. if you cut a fusion of course it will be mobile again. there is even pseudoarthrodesis.

don t believe a doctor that says " forever" . forever is when you are death. As we are still breathing we can find a better solution.

susancook
02-11-2017, 07:13 PM
Hi there, Michelle
Uncertain what Richard means above.
I started my "journey" like you probably will from what I have read of what you are planning.....with physiatry. Not a bad place to start. When I originally called, the receptionist asked if I wanted conservative or surgical care and I said "conservative", so off I went to the alternative to surgery, pain management. The PM MD sent me immediately to an orthopedic scoliosis spinal surgeon. He explained surgery [then had my husband come for an appointment the next week when he explained surgical option again] and I said that I wanted to continue with PT, etc to avoid surgery. I do recommend seeing a surgeon early one because you can start the relationship, maybe then get another surgical opinion because if you do need surgery down the road, the last thing that you want is to be desperate in severe pain and take the first surgeon that come along [bad idea].

Best of luck with your journey. My guess is that pain will be the factor that tips whether or not you are offered and agree on surgery. I recommend trying everything possible before agreeing to surgery. When your life is so compromised that surgery is your only option, that's a good time to have surgery. And yes, I have had numerous setbacks with surgery, but for me in severe pain and disability, it was a good option.

Susan

richardis
02-12-2017, 05:51 AM
is it forever? if you cut the bones they will be mobile again.
Spinal cord and nerves being intact you can add some mobility again. researchers just need to think a little bit more. if you cut a fusion of course it will be mobile again. there is even pseudoarthrodesis.

don t believe a doctor that says " forever" . forever is when you are death. As we are still breathing we can find a better solution.

As of now, it is irreversible to almost 99% of the population, unless you know some super specialized top surgeon in the field who has the knowledge and hard-work mentality to crack the solution. Spinal fusions have already been unfused with success. Fact.

Science has no limits and so as the human progress as long as you keep working and researching. It will be possible in the future, not sure if in our lifetimes but it will. Every problem has a solution. We know the problems so it is about time to find solutions.

kennedy
02-13-2017, 01:42 AM
Hi Michelle I'm Kara welcome.

diznee25
02-16-2017, 05:37 PM
Hi Michelle...

We often write prescriptions for PT with 1 visit, and the PT evaluates the patient and decides how many visits and how often they're needed.

Cervical radiculopathy is fairly common in people with scoliosis. I have it, but keep it at bay with daily exercise.

Best of luck getting your pain under control.

--Linda
Thanks Linda. Yesterday marked my first PT visit, and at the end of my session I was told to schedule 2 or 3 appts per week, and when I asked how long PT would last for me, they said it depends on how responsive my body is to the therapy. Due to the sevarity of my pain, it was decided that I would not exercise on my first visit. Instead my therapist did manual decompression on my neck, and then did an electroshock thing on my shoulders and neck area to loosen up the muscles. Tomorrow I'll be doing posture exercises.


Yes, many of us. Myself included...

Michelle, Your close, but I would INSIST to see Dr Gupta.
http://www.ortho.wustl.edu/content/Patient-Care/3719/Find-a-Physician/Physician-Directory/Munish-Gupta-MD/Bio.aspx

This guy is no hack.

Hang in there

Ed

Thanks for the info on Dr. Gupta, Ed. I do plan on a surgical consult...soon. My husband has a lot on his plate right now with his mother's health. She has cancer, and just started hospice care yesterday. We live out of state from family, so we'll be flying to Colorado a couple times in the next few months. Sadly she isn't expected to make it past April/May.



Hi there, Michelle
Uncertain what Richard means above.
I started my "journey" like you probably will from what I have read of what you are planning.....with physiatry. Not a bad place to start. When I originally called, the receptionist asked if I wanted conservative or surgical care and I said "conservative", so off I went to the alternative to surgery, pain management. The PM MD sent me immediately to an orthopedic scoliosis spinal surgeon. He explained surgery [then had my husband come for an appointment the next week when he explained surgical option again] and I said that I wanted to continue with PT, etc to avoid surgery. I do recommend seeing a surgeon early one because you can start the relationship, maybe then get another surgical opinion because if you do need surgery down the road, the last thing that you want is to be desperate in severe pain and take the first surgeon that come along [bad idea].

Best of luck with your journey. My guess is that pain will be the factor that tips whether or not you are offered and agree on surgery. I recommend trying everything possible before agreeing to surgery. When your life is so compromised that surgery is your only option, that's a good time to have surgery. And yes, I have had numerous setbacks with surgery, but for me in severe pain and disability, it was a good option.

Susan

Hi Susan,

Thanks for sharing your experience. Interesting, so you tried physiatry and they immediately sent you for a surgical consult. That's great to know that physiatry won't push PT, or prolong alternative treatment if surgery is really warranted. Yeah, I'm just trying to start from the ground up, meaning I don't even have current x-rays or MRIs of my spine. All that info is 7 years old. The receptionist said the Physiatry dept is where evaluations, and tests are done. At this point, they won't schedule a surgical consult until I get evaluated. Once I have that appointment, I'll definitely follow up with this thread, and share how my recheck goes.


Hi Michelle I'm Kara welcome.

Hi Kara! Nice to meet you.

titaniumed
02-16-2017, 09:45 PM
Thanks for the info on Dr. Gupta, Ed. I do plan on a surgical consult...soon. My husband has a lot on his plate right now with his mother's health. She has cancer, and just started hospice care yesterday. We live out of state from family, so we'll be flying to Colorado a couple times in the next few months. Sadly she isn't expected to make it past April/May.



So sorry to hear this.....

I had a good friend give me his words of wisdom while he was alive. Once your parents are gone, they are gone. Spend more time with them now.

I think about my parents every single day. Every single day.....You can avoid thinking about your back, but this never ends.

Ed

TXMom
02-17-2017, 12:24 AM
Hi everyone!

My name is Michelle, I'm 37 years old, and I was diagnosed with scoliosis at the age of 21. However, I knew I had scoliosis when I was 9 years old, thanks to Judy Blume's book 'Deenie'. As I read the book, my heart sank because I realized that my body looked the same as Deenies' did. Even so, I grew up in a very religious home, and my dad didn't believe in doctors. So my condition was ignored my entire childhood, even though many of my Aunts and Uncles tried to change my dad's mind. I went on with life, and didn't think about it again until I was 21.

age 21 (diagnosis) 2001 - 28 degrees lumbar, and 32 thoracic.
age 30 (recheck) 2010 - 40*lumbar, 51*main thoracic, and 33* upper thoracic.

My diagnosis and recheck were done by 2 different doctors, because I lived in different states. The doc from my original diagnosis said I was borderline for needing surgery, and that if my curves progressed at all, then I'd need surgery down the road. The other specialist I saw in 2010, said he didn't recommend surgery at all, even though my curves had progressed. He recommended PT, which I ended up not doing because my insurance wasn't great, and I couldn't afford out of pocket costs. This is currently the last recheck I've had.

Fast forward to the present: The past month, just shortly after Christmas, I've been having constant nerve pain, and tingling in my back and neck. Add that to the moderate pain I've always had from my scoliosis, and I'd say this is the worst pain I've felt. My husband has taken over household chores, and cooking because I can't do those right now.

So I've scheduled an appointment with Washington University in St Louis MO. (We live in southern IL, just 30 mins away.) At first, the receptionist was going to schedule me with a surgical consult with Dr Buchowski. I was like, no, no.....I don't want to waste his time, at least right now. I just need a recheck of my curvature, and want to see if PT is the way to go first. So I was transferred to the Orthopedic Physiatry dept. They'll do X-rays and whatever other tests are needed, and then see if PT is an option. If I do PT, and it doesn't help any of my symptoms, then they will have me do a surgical consult. I have great insurance now, so I'm looking forward to trying PT. Only downfall is my appointment isn't until April. Sigh! That's a long wait.

Sorry for the long post! I look forward to getting to know all of you.

Michelle


Thank you for posting about your health and scoliosis issues. I am so sorry that you have constant nerve pain. I do too, and for the life of me, couldn't go on like this for long. I hope that you get all the help that you need. I'll keep you in my prayers.

susancook
02-17-2017, 06:33 PM
Michelle, If you ever just want to talk, send me a PM and I will send you my phone number and email. I am on the forum irregularly. I am still dealing with some back problems, but such is life.
Take care,
Susan

flerc
06-13-2017, 06:54 PM
Instead my therapist did manual decompression on my neck, and then did an electroshock thing on my shoulders and neck area to loosen up the muscles.

Michelle, how is this? What do you think?