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View Full Version : setting realistic expectations for life after scoliosis surgery



richardis
09-26-2016, 04:02 PM
- having a job that demands a large amount of travelling ( like switching cities and home)
- having a lifestyle or job that demands use of light/moderate force for endurance or casual lifting.
- have kids

Let's be real.
I would like to hear real stories or opinions of those who have endured the surgery in their early 20's or so.

tae_tap
09-26-2016, 07:17 PM
It is hard to gear your results to someone else's due to surgical complications or recovery. Some have absolutely no problems with travel and some can't take being in a care for more than thirty minutes. Some of us have kids requiring much attention (I have four) and some have nine or that are fully grown. I was blessed to have a great support system each and every time I was having surgery or a bad day. I drive 45 minutes to work and 45 minutes home. My job takes a lot of mental and physical strength for I work in medical.

My realistic advice is to not compare your situation with anyone else and to make sure you take the necessary precautions, recovery time, and support system that you need. The more you put into recovery and the slower you handle the healing the stronger you will become. Your case will be different than every member in the forum because not one case is alike. So only you can set realistic expectations for life after surgery.

Tamena

jackieg412
09-26-2016, 07:42 PM
I agree with Tam. But realistically you can do most anything but maybe just a little different or maybe it will take you a little longer, after you are healed approach everything with the attitude that allows you to figure out how to accomplish it, You will be fine and find your limitations are few.

LindaRacine
09-26-2016, 08:02 PM
- having a job that demands a large amount of travelling ( like switching cities and home)
- having a lifestyle or job that demands use of light/moderate force for endurance or casual lifting.
- have kids

Let's be real.
I would like to hear real stories or opinions of those who have endured the surgery in their early 20's or so.

If you were a patient at UCSF, you would likely have been released to do all of the above by now. If you can't do it, you might want to start questioning why.

--Linda

Irina
09-26-2016, 11:53 PM
I can't comment on a large amount of traveling, but we just came from a vacation in Japan. We stayed in Japanese style accommodations, ryokans, for 11 nights plus 2 nights in western style hotels. Ryokans are different from western hotels in a sense that there are no chairs in the room, only pillows, and you sleep on tatami mats, which are a few thin mattresses, not even close to those cushy western style mattresses. I wouldn't do it again because I like more comfort, but I didn't have any back pain from substantially sleeping on the floor.

Flight was a breath, I just always take a small pillow with me. We visited six cities and moved by trains, so there was a lot of running between train stations with luggage. My legs were tired, but back was absolutely fine.

I am one of the fortunate ones though. I try to be sensitive of people who are not as lucky, but happy to share if someone asks questions. Every time I come back from a vacation, I am thinking of my dear doctor Serena Hu, who gave me the ability to do the things I love.

Pooka1
09-27-2016, 06:07 AM
I can't recall too many 30 yos posting about their life after fusion but I would be surprised if you didn't group with the adolescents. That is, I agree with Linda that I think your surgeon would have released you to do everything you mention. My kids have no restrictions (except for bungee jumping) nor do they feel restricted.

You have a fusion that ends above the lumbar, your lumbar appears completely straight, and you appear to be hyper-corrected to the point that you no longer technically have scoliosis (residual curve <10*). Given that people don't bend too much anyway in the area where you are fused, I can only report that my twins report feeling normal. My one daughter has a slightly longer T fusion than you but was hyper-corrected like you. The surgeon told her surgery was one-stop shopping for her. I suspect if you asked your surgeon he might say something similar or at least there is no reason to suspect at this time that you would need any more surgery in your lifetime.

My twins resumed their lives less than a year after their fusions and never looked back. They have no reason to look back because they feel normal.