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Masha
04-11-2016, 08:51 PM
Despite the mixed reviews, I got three giant needles in my spine this morning and I only cried when they asked me to lay on my stomach. I feel maybe some of you can relate to that.

Trying it, hoping it works and I can burn them. Not a lot of other options for me.

Thanks for the support!

Masha

38 degree idiopathic lumbar curve
Two bulging disc on the curve.
Spondylosis, spinal stenosis, arthritis in the hip joints and knee
Sciatica
33 year old librarian living life like an old lady! Thinking about dying my hair blue and calling it good.

spitfire
04-15-2016, 01:37 PM
How do you feel? You should get immediate relief if your issue was disc related. Just don't overdo. Just because you feel better doesn't mean you should carry heavy things, bend at the waist, or reach too far. (I learned this the hard way when I reached for my purse on the floor after my last set of injections.). Give the discs time to heal!

I'm anxious to know if anyone else experiences major hair loss. It started 3 months after the shots. Come back in a few months and let me know!

LindaRacine
04-15-2016, 11:27 PM
How do you feel? You should get immediate relief if your issue was disc related. Just don't overdo. Just because you feel better doesn't mean you should carry heavy things, bend at the waist, or reach too far. (I learned this the hard way when I reached for my purse on the floor after my last set of injections.). Give the discs time to heal!

I'm anxious to know if anyone else experiences major hair loss. It started 3 months after the shots. Come back in a few months and let me know!

Hi spitfire..

The injections can affect your cortisol level, which is why I think you may have hair loss, though the fact that it was 3 months after the injection after the shots seems a bit strange. You should report it to your doctor.

Also, facet injections actually shouldn't have any affect on the discs. The facet joints do have a disc like soft tissue, but I think you're probably thinking of epidural injections.

http://www.spineuniverse.com/sites/default/files/legacy-images/facetjoint9-BB.jpg

--Linda

spitfire
04-16-2016, 12:41 AM
Yes, I'm thinking of an epidural injection (nerve block). Do both shots use the same corticosteroids? It was definitely nice to be able to sit, stand, walk, and sleep again, but I had the same side effects each time. Apparently my system doesn't like one or more ingredients in a nerve block!

A dermatologist told me that the horrible face-peeling acne was a somewhat common side effect.

My doctor doesn't think the hair loss is related, but I took no other medications and had no lifestyle or diet changes. It wasn't a little hair loss; it was a significant amount (squirrels in the shower drain for months). It occurred 3 months after each nerve block. My hairdresser would have to stop several times during haircuts to untangle her fingers. She told me later she was terrified that all my hair might fall out in her hands. I've googled "epidural injection hair loss" and I'm definitely not the only person to report this problem even if doctors don't acknowledge it. (I was relieved that it was probably connected to the shot and that I wasn't going bald!)

It would also be super nice if doctors warned their pre-menopause female patients that these injections can affect menstrual cycles. Surprise!

burdle
04-25-2016, 07:16 AM
How do you feel? You should get immediate relief if your issue was disc related. Just don't overdo. Just because you feel better doesn't mean you should carry heavy things, bend at the waist, or reach too far. (I learned this the hard way when I reached for my purse on the floor after my last set of injections.). Give the discs time to heal!

I'm anxious to know if anyone else experiences major hair loss. It started 3 months after the shots. Come back in a few months and let me know!

As of last Monday my hair started falling out in massive amounts.

I had steroid injections in my neck last November. I have very thick hair normally and so far no bald patches but it is very sudden.

I am going to the doctor today- Could it be menopausal?

LindaRacine
04-25-2016, 09:07 PM
Hi Burdle...

You'd have to ask your doctor, but I seriously doubt that the injections had anything to do with your hair loss (since there's at least 5 months in between).

I started having my hair fall out the same month that I started menopause. I started what normally would be considered very thick and dense hair. While my hair is still thick (that is, each strand is broad), I have very little of it left. I've been having a significant number of hot flashes every day for at least 14 years now, and the hair loss has continued the entire time (though slowed somewhat when I started using Rogaine).

Spitfire.... I think most doctors use the same concoctions for epidural and facet injections, but you might want to check with your doctor.

--Linda

burdle
04-26-2016, 01:48 AM
Hi Burdle...

You'd have to ask your doctor, but I seriously doubt that the injections had anything to do with your hair loss (since there's at least 5 months in between).

I started having my hair fall out the same month that I started menopause. I started what normally would be considered very thick and dense hair. While my hair is still thick (that is, each strand is broad), I have very little of it left. I've been having a significant number of hot flashes every day for at least 14 years now, and the hair loss has continued the entire time (though slowed somewhat when I started using Rogaine).

Spitfire.... I think most doctors use the same concoctions for epidural and facet injections, but you might want to check with your doctor.

--Linda


The Doctor said unlikely to be the injections- not enough steroid. He thinks it might be lack of iron. I started the menopause a couple of years ago but the hair loss just last week.

Sorry to hear yours is still thining.

rohrer01
04-26-2016, 03:49 AM
I've had several epidural and SI joint injections and never experienced hair loss. I never had it mess with my menstrual cycle, either. I'm trying facet joint injections next month. The SI injections seem to work wonders for the sciatica but don't help the lower back pain. I have a bad L5/S1 disc, but the doctor wants to try the facet joints around the L5. That's FOUR injections! Of course, he will spread out the same dose of steroid. I get thrush after steroids.

How bad to the facet joint injections hurt, may I ask? The SI injections are a nightmare.

YES, I relate to the pain of laying on the table. I can't lay on my stomach. They do use a pillow for support, but it's still hard to get into that position!

Rohrer01

burdle
04-26-2016, 06:56 AM
I've had several epidural and SI joint injections and never experienced hair loss. I never had it mess with my menstrual cycle, either. I'm trying facet joint injections next month. The SI injections seem to work wonders for the sciatica but don't help the lower back pain. I have a bad L5/S1 disc, but the doctor wants to try the facet joints around the L5. That's FOUR injections! Of course, he will spread out the same dose of steroid. I get thrush after steroids.

How bad to the facet joint injections hurt, may I ask? The SI injections are a nightmare.

YES, I relate to the pain of laying on the table. I can't lay on my stomach. They do use a pillow for support, but it's still hard to get into that position!

Rohrer01

Mine did not hurt at all - mind you they did not help either. If you are having l4-l5 then that's 2 injections because the facets are between the vertebra ? Is he doing l5-s1 also?

LindaRacine
04-26-2016, 03:23 PM
Mine did not hurt at all - mind you they did not help either. If you are having l4-l5 then that's 2 injections because the facets are between the vertebra ? Is he doing l5-s1 also?

Nope, it's one injection (assuming they're only doing one side). If they do both right and left, it would be two separate injections. Here's a drawing of a facet:

http://apmspineandsports.com/wp-content/uploads/2011/08/LUMBAR-facet-JOINT_rev-2011-09-01.jpg

burdle
04-27-2016, 05:24 AM
That's why I thought 2 - they normally do both sides for facet injections- or so I was told in UK

burdle
05-05-2016, 12:28 PM
My hair is still falling out- blood tests have shown nothing - will it stop and will it come back?

spitfire
05-05-2016, 04:21 PM
Your hair loss sounds EXACTLY like my experience - sudden and all over (no bald patches). It may not be the steroid in the shot but something else in the cocktail. I've read about people losing their hair after surgery bc of the anesthesia. Don't these shots usually have a local anesthetic mixed with the steroid?

My hair started falling out exactly 3 months to the day of my first injection. The second injection took longer. I passed the 3 month mark and breathed a sigh of relief. Somewhere between 3.5-4 months the massive hair loss started again.

It's maddening, right?


Mine did grow back, eventually. I can't remember how long the "falling out" phase lasted. It seemed like it would never end. It usually takes a year for my hair to re-grow enough to somewhat match my leftover hair. (I wear my hair past my shoulders but in layers.). Last time time the short hair on top would blow in the wind and make me look like a lion. I swore I would cut the entire mess off if I ever get another injection.

I'm somewhat glad that I'm not alone but very sorry that you are dealing with this!

rohrer01
05-06-2016, 02:27 AM
I've never heard of hair loss from steroid injections. I, too, have hair loss. But in my case is a little bit if a blessing because my hair is too thick to do anything with. It seems to go in phases and I thought it was age related because, well it is... even in women. But now that I think of it, it may have started around the time I started getting injections. Right now I'm going through a phase of mild hair loss and I'm a little past three months out. I'm getting injections again on Monday. Mine grew back and I wear my hair LONG. The new growth just blends in with the rest as we do have a naturally occurring hair cycle where hair falls out naturally and grows back. That is why some people can grow their hair really long and others can't. It depends on how long your hair cycle is. One of my sisters can't grow her hair out past her shoulders. It just won't grow longer than that even if she never gets a haircut. It just starts looking scraggly if she doesn't keep it trimmed. I think I could grow my hair to the floor if I wanted (never tried), but have had it just below my bottom a couple of times. But whether it's falling out or not I see little new hairs always growing in. I just have more of them when my hair is falling out. But with long hair a little loss looks like a LOT.

I was playing "electron" with my grandson the other day. We both had balloons and one of my hairs got on mine and I was showing him how static electricity worked. He wanted one, so I ran my fingers through my hair thinking I'd get one or two and I got a pretty good handful (concerned). It wasn't because it was long. I had them all together at the same length in my hand! I put some aside and we played electrons and molecules (the hair being the electrons and the balloons being the atoms). We made a "molecule" by twirling the balloons around in close proximity without hitting and watching my hair (electrons) pass back and forth between the balloons. I thought it was a cool way to explain basic chemistry to a seven year old. I made use of my hair loss.

But now I'm concerned after hearing you all say that it's the steroids that cause the hair loss. I'm getting injections more frequently now and am afraid I'll lose too much. I tend to lose it on the top of my head. At its worst you could actually see my scalp! Fortunately it's very thick again but I don't want to have to cut it off again. (sad worried face).

Anyone NOT have hair loss after steroids? I honestly don't know what caused my worst bout of hair loss because I can't be 100% sure it was around the first steroid injection. It may have been before...(sad worried face again). I've had several episodes. It has always mostly grown back. It's not as thick as it was when I was younger.

I KNOW hormones can play a role in hair loss. I experienced extremely rapid hair growth when I was pregnant. After my kids were born I lost a LOT of hair, too. I guess I'm just lucky that I have very thick hair.

I'm going to ask my doctor on Monday.

Rohrer01

burdle
05-06-2016, 04:21 AM
Hi,

I had a lot cut off yesterday to help with the condition. I wear my hair long also. I t doesn't cover my hump any more which I am upset about.

I had facet injection in l3-4 October 14 and had no hair loss ( that I was aware of) I had cervical ones last November and only noticed the hair loss on the DAY of my next last injections which were lower back nerve block ( April 18) - before I had them. This was steroid nerve block. I can't put it down to the last lot BUT obviously I am concerned that these might cause something again in 3 months time.

What advice did you get from the doctors?

I have cancelled my next lot (cervical). partly because they did not really do any good and partly because my consultant said that resources did not allow me to have more than 1 cervical injection and they were really for diagnostic purposes- but he would bend the rules and get me one more. I think I am supposed to be sooooo grateful!!!


Well they can stuff it- Having to manage this bloody scoliosis mostly completely on my own ( sorry bit of a rant). I am going to at least try to keep my hair.

Pooka1
05-06-2016, 07:28 AM
I was playing "electron" with my grandson the other day. We both had balloons and one of my hairs got on mine and I was showing him how static electricity worked. He wanted one, so I ran my fingers through my hair thinking I'd get one or two and I got a pretty good handful (concerned). It wasn't because it was long. I had them all together at the same length in my hand! I put some aside and we played electrons and molecules (the hair being the electrons and the balloons being the atoms). We made a "molecule" by twirling the balloons around in close proximity without hitting and watching my hair (electrons) pass back and forth between the balloons. I thought it was a cool way to explain basic chemistry to a seven year old. I made use of my hair loss.

Rohrer01

This is very clever! All kids are natural scientists. I have thrown science at my girls their entire life.

When we lived in Puerto Rico, my girls were tending to a "pond" they made in the back yard with an ecosystem and a small though discernible food web. They saw what ate what and kept track of how long the tadpoles took to become frogs and such. They were in third grade.

Now they are biology majors in college. If there is something more interesting than science I don't know what it is. :-)

burdle
05-06-2016, 08:17 AM
Literature :)

Pooka1
05-08-2016, 09:40 AM
Literature is very compelling and is an imperishable component of a fully lived life.

But I would argue science has an ultimate edge because it is the only way of knowing what is real. Reality is more compelling to me. Brain science is the ultimate subject. The rest is commentary. :-)

burdle
05-09-2016, 10:19 AM
Just seen a consultant about my hair.

He says the shock of having pneumonia and being in hospital has driven my a lot of my hair follicles hair into the shedding phase. He says it will stop shedding in 2 - 3 months

burdle
06-06-2016, 06:32 AM
My hair loss has slowed considerably - Consultant says it will shed again in about a year as the cycle of growth has been disturbed. However it won't be as bad.

rohrer01
06-14-2016, 01:17 AM
Burdle,
I'm glad your hair will come back. My sister started losing hers in her 30's and it never came back. You can see her scalp, so she bleached it a lighter color so it isn't so obvious. My hair is no longer falling out. It was just that one incident this time and it was a huge lock of hair...50 or more.

Sharon,

Kids are born scientists. All of them. It's what you do with that curiosity that counts. My sister made fun of me after several years had passed since we'd seen each other and our kids were still pretty little, like three to seven years old (I have three). She started cackling at me and said, "Only YOUR kids would talk that way!" I'm like what??? She said they were using scientific terms her kids couldn't understand... and they were the same ages. LOL

burdle
06-14-2016, 06:30 AM
[QUOTE=rohrer01;166406]Burdle,
I'm glad your hair will come back. My sister started losing hers in her 30's and it never came back. You can see her scalp, so she bleached it a lighter color so it isn't so obvious. My hair is no longer falling out. It was just that one incident this time and it was a huge lock of hair...50 or more.

Thank You

I was shocked at how badly it affected me- shocked and slightly ashamed as I 'knew' that people with cancer could loses all their hair.

I think it was the complete lack of control that was affecting me so badly. I could not go out and no matter how much I told myself off I was finding everything difficult.

Anyway the consultant diagnosed it as telogen effluvium and it can happen as a result of shock or severe illness. What happens is that at the time of the shock or illness a larger than normal amount of hair falls into the telogen phase which means it stops growing ( because the body does not have the resource to look after it) . This is a normal part of the hair cycle and about 2 months later it falls out. This is why people often think the cause is something different because it happens a while after the initial incident. Normally 10% of hair is in the telogen phase but with this a much larger amount- in my case 50% or more. It often does grow back ( from scratch). However because the 'normal cycle is disturbed, although the body tries to get it all back in a normal cycle, a lot of hair is still in a different cycle from normal so will fall out again in a big way when it enters its next telogen phase.

The good news is that it is nothing to do with steroid injections as I was told the amount is no-where big enough to have an effect. Nevertheless I cancelled my next ones as I was told stress affects the regrowth and I am trying to avoid any stress.

My insurance company refused to pay as they said it was 'cosmetic' I had to get my consultant to write and explain. That caused stress also.

rohrer01
06-18-2016, 02:53 AM
My sister that lost a lot of hair has a short hair cycle. She could never grow it past shoulder length. I lost about 50% of my hair once. I don't know why. It gradually grew back. My hair is too thick and hard to work with so I rather enjoyed having less because I could work with it. The part I didn't like is much more was lost on the top front portion of my hair. I tried cutting my bangs and wearing them curled and a little fluffed, but it didn't look any better. If anything it just made my scalp more visible. So I grew them back out. Then my natural hair cycle must have come back because I'm back to having too thick of hair again. The thing is, I'm blonde. So my hairs should be smaller around making my hair appear thinner. But I have thick hair. My daughter went to cosmetology school and they said it was rare that blondes have thick hair shafts. My grandson's hair is thick and course like mine and he's blonde, too. His is the same color as mine. He was also born with light red hair, as was I.

Hair is a funny thing. It seems we have too little or too much. But, at least with my thick hair I know it goes to good use when I donate it. I will wear it very long for awhile then get a shorter cut and donate it to "Locks-of-Love" for cancer kids. Hopefully I've made some kids happy in their time of distress. :-)