Hi Everyone,
I have been reading (lots) and sometimes posting on these message boards for the past 1 1/2 years. I just wanted to write and share my daughter's experience with the brace treatment and where she is with her scoliosis as of the last xray.
At diagnosis she was 11 1/2 years old. She was a risser 0 and no menses. Her curves were 36 thoracic and 34 lumbar. She began wearing a TLSO for 16 to 18 hours per day. The first year she usually was in it for a good 18 but this last year it has been more in the 16 hour range.
As of today (she is now 13 as of Jan) and has grown in height about 3 1/2 inches since diagnosis. Menses began last month. Her risser is 4 1/2 and her curves are 33 thoracic and 38 lumbar after being out of the brace for 5 days. Her physician is saying that her growth plates look like a woman who has had her period for almost a year which she has only had it for 2 months. He is going to recheck her in 4 months. He thinks she will probably be out out her brace in 4 to 6 months. We are so thankful and relieved that her curve has remained relatively stable over the last year and a half. Now here is the gray area..... According to our physician there is a good possibility that her lumbar curve could increase in adulthood because of its location. He said that this is somewhat anecdotal and that there is no way to know which curves will hold and which ones don't. Do any of you have any experience or knowledge of this. He said that the data is not there to quantify those curves in her range that do end up progressing in later years.
I just wanted to share her experience with bracing. I have read so much over the last year and sometimes I just think scoliosis is a big mystery.
Thanks for listening and sharing,
Kim
I have been reading (lots) and sometimes posting on these message boards for the past 1 1/2 years. I just wanted to write and share my daughter's experience with the brace treatment and where she is with her scoliosis as of the last xray.
At diagnosis she was 11 1/2 years old. She was a risser 0 and no menses. Her curves were 36 thoracic and 34 lumbar. She began wearing a TLSO for 16 to 18 hours per day. The first year she usually was in it for a good 18 but this last year it has been more in the 16 hour range.
As of today (she is now 13 as of Jan) and has grown in height about 3 1/2 inches since diagnosis. Menses began last month. Her risser is 4 1/2 and her curves are 33 thoracic and 38 lumbar after being out of the brace for 5 days. Her physician is saying that her growth plates look like a woman who has had her period for almost a year which she has only had it for 2 months. He is going to recheck her in 4 months. He thinks she will probably be out out her brace in 4 to 6 months. We are so thankful and relieved that her curve has remained relatively stable over the last year and a half. Now here is the gray area..... According to our physician there is a good possibility that her lumbar curve could increase in adulthood because of its location. He said that this is somewhat anecdotal and that there is no way to know which curves will hold and which ones don't. Do any of you have any experience or knowledge of this. He said that the data is not there to quantify those curves in her range that do end up progressing in later years.
I just wanted to share her experience with bracing. I have read so much over the last year and sometimes I just think scoliosis is a big mystery.
Thanks for listening and sharing,
Kim
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