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Lanna
03-06-2005, 11:14 PM
Hello everyone, I just found out that my 12 yr old has Scoliosis. Our Chiropractor said she got it from a sports injury from a month ago. She was swinging her bat at a batting cage and she heard something snap in her back. She was in escrushiating pain. Sorry cant spell LOL...She said it hurt to breath. So I took her to the doctors that night and they told her it was a pulled muscle. I noticed that night she was walking crooked but just thought it was from her muscle being pulled. Well the pain finally went away after a week but then slowly started getting worse again. She had been complaining for the past week that she couldnt breath. I thought it was because she was conjested from a cold. Then she started saying her back was hurting really bad and she couldnt get up out of bed. So I let her stay home on Friday. Well I finally told her to let me see her back and I looked at it and noticed her spine was curved. I didnt really think much about it being scoliosis I was just thinking she must have something else wrong. So we went to this same doctor and this time they actually didnt do the xrays like they did the first time they asked her to bend over and touch her toes. She could only been over half way and right away the doctor goes "shes got scoliosis" I freaked! So I said ok and called my husband right away to let him know and told him to call our Chiropractor and tell him immediately so we could come in. So he called and they said bring her in right away. When we saw the Chiro my husband said the look on his face said it all! He even told me that my daughters back did NOT look like this the last time we saw him. It has been a few months since we last went. So he is also worried because he said their are two types of curves I guess one that goes to the left and one that goes to the right, he said hers goes to the right. He said the right one is the worse one!!! So now my husband and I are both freaking out now! He did an adjusment on her on Friday and he wants us back in on Monday. He also wants us to get more xrays so he can see where he needs to fix. Im assuming he will be seeing us at least 3 times a week. I know its not about money with him because he knows we wont have insurance for a few months so he is seeing us for FREE! This place is awesome. Any thoughts or suggestions I would really appreciate. Thanks so much :) Also, my daughter would love to hear from any children her age so she isnt so worried. She is really worried she wont be able to play softball again. Thanks so much!

Mom of Lanna

nikyergen
03-07-2005, 02:12 AM
Mom of Lana,
You need to get your daughter into an Pediatric Orthopedists right away. I don't know where your nearest Shriner's Hospital is, but I recommend them. We didn't have insurance when all three of our daughters were diagnosed. Our oldest is having surgery (she's 16) on the 15th of March and the Shriner's Hospital, at no cost to us other than transportation. Our youngest daughter has a brace that was no cost to us. They are a wonderful hospital and come highly recommended. They don't just jump to surgery. They do alternative therapy. They will measure your daughters curves, etc. This is so important to know all of this and not just jump in with the Chiropractor. I've been that route too. Wish we would of seen the Orthopedist first. Would of saved a lot of time and possibly my 16 year old wouldn't be having surgery. It would help if you chiropractor would do a referral to Shriner's Hospital for you. You can download an application off the internet. Don't hesitate on getting this done. Your daughter is young enough that chiropractic care and a brace may stop her curves from getting worse. Chiropractic work cannot correct the problem, but can slow down the rate of the curves.

As far as baseball goes, she will play again. All three of my girls play basketball in school. They all play post positions, which are probably the roughest position to play. They haven't been told to stop and the doctor expects that our 16 year old will be back on the court next winter playing basketball. So, tell her chin up. Keep her active. Don't put bubble wrap around her. Let her lead a normal child's life.

Please see a Pediatric Orthopedist. Shriner's Hospital is free services. There are no hidden costs. A lot of people worry about that stuff.

Been there, done that. Let us know what you do.

'til later,
Nikki

Alison
03-07-2005, 03:47 AM
Hi

I would tread with much caution with going down the chiropractor route alone with scoliosis. A chiropractor can help with pain, and relax muscles, but can't fix scoliosis.

"Our Chiropractor said she got it from a sports injury from a month ago. She was swinging her bat at a batting cage and she heard something snap in her back"

If you believe that it has come from the sports trauma, one of the first things which I would suggest finding out (from a paediatric orthapaedist or your own doctor) is whether it is functional scoliosis; which is a structurally normal spine which appears curved, and is a temporary curve, which can result from things such as muscle spasms, trauma or injury, difference in leg length etc. Or whether it is structural scoliosis, which is where the vertebrae (the spine) itself is actually curved. The treatment path that needs to be taken for each is very different; functional scoliosis, the underlying cause needs to be fixed, whereas for structural scoliosis the path includes bracing, surgery etc.

I hope i've given you some food for thought on some things, and I wish you the best of luck.

Alison

Alison
03-07-2005, 03:51 AM
One thing I forgot to add, is that if it is structural scoliosis, it wouldn't have come from the sports trauma, but may have become more visible to you, because you were focusing on her shoulders/back from trying to releive her discomfort.

Alison

Mary Lou
03-07-2005, 07:59 AM
Mom of Lana,

It doesn't surprise me that your chiropractor didn't notice your daughter's Scoliosis and "suddenly" it was there. A number of things could have contributed to that: has she had a growth spurt in that time? has she recently started her period? Those are just a few things that come to mind. My daughter was checked on a regular basis, but we never picked up her Scoliosis until after she started her period and had a major growth spurt at the same time. I honestly think she had Scoliosis for sometime, but it had really progressed once she starte puberty.

I agree with the others that have responded to you--get her to a Pediatric Orthopedic doctor. Don't settle on what that one doctor tells you--get at least two or three opinions. Keep asking questions. You've come to the right place for support. You'll find everyone on this forum are great and very supportive.

Mary Lou

Lanna
03-07-2005, 12:39 PM
The only thing I noticed with our daughter for a while now is her shoulder blades stick way out because she has poor posture. She is extrememly thin. I will see if I can add her photos on here so you can see what she looks like now. She didnt look like this until after her sports injury just a month ago. I am going to find a orthopedic surgeon to go to. I will look for one as soon as I get off this computer. I told her not to be carrying her backpack on her back anymore to roll it. I will keep you all updated..Oh and no she hasnt started her period. I heard girls usually dont start until they are at least 100 lbs? I dont know how true that is but she is 5'3 93 lbs...She is really thin.

Mom to Lanna

Lanna
03-07-2005, 12:43 PM
I forgot to ask about back braces. The only one we have seen online is the one that goes all the way up the back and under the chin. Is that the only on their is? She is freaking out and so am I. I would hate for her to have to wear that 23 hours a day!


Mom To Lanna

Carmell
03-07-2005, 12:54 PM
Hi mom to Lanna,

Welcome to the board.

I, too, question the cause of the scoliosis. A pediatric orthopedist will be able to tell you more details about the curve of her spine, and whether or not she needs treatment. Scoliosis is a long term deal - rarely an emergency situation, which means you have plenty of time to research and find out what is the best medical/treatment option for her.

Most adolescent scoliosis cases are idiopathic, meaning there is no known cause. The bone structure in the spine is normal, but curved. There also could be underlying soft tissue causes (i.e., spinal cord issues, etc.). Only a ped. ortho. can give you the specific answers you need. Like someone else said, chiropractic care may help with the soft tissue pain, but it won't cure the scoliosis.

Being active and having healthy/strong abs and back muscles is probably the best way to maintain good health and support her spine. My daughter used to dance. When she was diagnosed with adolescent idiopathic scoliosis at age 13, she continued to be active with her dance. Once she stopped dancing, her back pain/discomfort increased. She could see a very distinct difference between being physically fit and not physically fit. She no longer dances, but does Pilates regularly. Otherwise, her back is the focal point of her day. She'd rather not have it be that way.

I also have a 9yr old son who was born with severe congenital scoliosis. You'd think "I" would know what to watch for in my other children. I missed the diagnosis of my daughter's scoliosis. It was after a pediatrician's hunch that she was diagnosed. Scoliosis can sneak up on you and your child. It's not something to dwell on or be worried about (the missing the diagnosis part). Your focus now should be on finding out what exactly is going on with her; if there are any structural problems with the bones of the spine; if she has a spinal cord problem (has she had a recent growth spurt?); and if the injury needs to continue to heal... things like that.

I wish you the best. Keep us posted.

Lanna
03-07-2005, 03:36 PM
I made an appointment with her Pediatrician so I can get the referral to go to a Ortho doc..I hate having to go to one doc to get to see another doc. I think they love to make our lives a living hell lol...Im going to pick up the xrays of her back from Jan 20th of this year and Im taking them to my Chiropractor tonight. He wanted to see how her bones looked after the accident. I cant wait until I get an appointment with the Ortho doc to see what he/she says! I will keep ya updated! Oh did anyone happen to see my daughters pics I posted? To me she doesnt look all that bad compared to the pictures ive seen on the internet. What do you think?

Mom To Lanna

nikyergen
03-07-2005, 04:18 PM
Mom to Lanna,
Glad that you are going to see your Pediatrician for a referral. You can thank our health care system/insurance for having to go to one doctor to see another. We had to do the same. It just seems so time consuming, especially when you know where you need to be. We started our process the middle of August and got in to see the Pediatric Orthopedic specialist on October 13, 2004, and our oldest is having surgery on March 15, 2005. That is why time is of the essence, sometimes it takes time to get through the process. But, our loss of time was wasting a year and a half before that with the Chiropractor. It wasn't a total waste of time, as she got some pain relief from it, but we could of been treating the problem before surgery became the issue. She went into the Chiro Mon, Wed, Fri, and got special appts. before and after every basketball game she played, just to keep her playing.

I did look at the pictures of your daughter. She does need to be seen by a Pediatric Orthopedist. I am still not convinced that this is from an accident. I think the pulled muscle, or whatever it may have been, just drew your attention to it. You say that she didn't look that bad compared to others. My 16 year old that is scheduled for surgery doesn't look bad either, but she is scheduled for surgery on Tuesday of next week. She has a lot of pain resulting from her problem. The docs are also hoping that by straightening her back it will help with her severe asthma.

Does your Chiro have xrays of before she pulled her back? If he doesnt, he has nothing to compare them to. You need to take these xrays to the appointment for the pediatrician also. I can't express how important it is that you keep those xrays for every appointment with every doctor. The almighty comparison is really the degree of the curves, and those curves need to be measured by someone that knows how. You can't just look at the xrays and decide what needs to be done, that is a specialists job. That's why you need to see the Pediatric Orthopedist. I am just concerned because you are doing the same thing I did. And, I wasted valuable time. My daughter didn't even get the chance at a brace because we went to the Chiro first. I am not saying that I don't believe in Chiro's. Because, at our house we use one on a regular basis. But, there are somethings they can't fix, and this is one of them. The Chiro can relieve the pain by making an adjustment, but can't fix the problem.

You asked about back braces. There all different types. You can't even tell my youngest daughter (13 years old) has hers on. Other than, she stands up so nice and tall. So don't be bummed out about braces. And, if she is put in one, it is so important for her to wear it. It can prevent a possible surgery. Everyonce in a while I ask my youngest were her brace is, because it doesn't look like she has it on. She raises her shirt and laughs at me to show me she has it on.

I am so sorry for being on my soap box, but I don't want you to loose valuable time like I did by messing around with other things. The specialist may even recommend chiro treatment for her, in addition to other things.

Let us know how your appointment goes.

'til later,
Nikki

ANIMAL LOVER12
03-07-2005, 07:27 PM
Mom to Lanna,
I am 13 years old and I have worn a brace and now I am having surgery. When you asked about braces, not all braces are like that. I am assuming that you probably saw a milwaukee brace. There are several different kinds.(a few I think of right away are boston braces, milwaukee braces and charleston braces)

You said that your daughter would love to hear form any children her age so I will offer her some advice so she isn't worried.

Alanna,
Try not to be to scared! It isn't going to be to bad! A brace may seem like the end of the world right now, but trust me, form the words of someone who wore a brace, it isn't that bad! It may hurt at first but you WILL get used to it! It took me about a month to get used to the brace and then sometimes I even forgot I was wearing it! You WILL be able to play softball again. Don't worry about that! You would take the brace off for it but you could still play it! My docotr actually encouraged me to take part in more sports because it would keep my back nice and flexible (which is true, my back is very flexible) and the muscles would be strong. I was very surprised by this. All you have to do when you play soem sports that include twisting and things like that is you take the brace off. If you have any questions just ask! Good luck and keep smiling!

Lanna
03-07-2005, 08:17 PM
Well we went to the Chiro and he said he doesnt think she will need a back brace. I told him I was still going to go see the Ortho doc and get some xrays from them also. The xrays that I showed him was from Jan 20th when she got hurt swinging a bat. But whoever said that he didnt have any xrays before to compare her to you were right. The only thing he has is this machine that he takes and puts these little plastic knobs on each side of your spine and steps on a button and he does this all the way up your spine. It tells you how far out of line each lumbar is. Ive never seen one before until we met him. So now I have to wait until Wednesday to see the family doc to get the referral and hopefully they will do xrays again. He has adjusted her twice since we found out about the scoliosis this past Friday. I see a little bit of a difference. The hump on the back is still their but her hips arent as crooked as they were. I will keep you updated :)

Mom To Lanna

nikyergen
03-07-2005, 11:37 PM
Mom to Lanna
Glad to see you going to the specialist. Like I said, I do believe in Chiro's, we use one on a regular basis. But, if he can't give you degrees of curvature, he hasn't done his homework on your child. Did he tell you if your daughter has one curve, or two curves. You can't just look at the xray and say this or that. This stuff can progress, and very well could as she get older. On the other hand, it may be as bad as it's going to get too. This could be functional and not structural. But, the specialist will get to the bottom of it, and if it is functional, get to the source of the problem.

Let us know how your appointments go. Keep in mind that the treatments for this can get expensive and Shriner's Hospital does all the services, from start to finish, for free. Keep this in mind since you don't have insurance. I don't want you daughter to miss out on treatment because of its expense and you don't have insurance yet. Even when you do get insurance, Shriner's still provides it services to you and does not bill your insurance for them. My daughter's surgery is going to cost somewhere between $175,000-250,000. My insurance doesn't get billed for this and I don't pay a dime for it. Next time you see a parade and you see a bunch of men in Red Fezz Hat's, tell them thank you for the work they do. They raise money all year long to support the Shriner's Hospitals.

Please keep us posted as you go down the road. Don't get upset over anything you find out. These things happen. All three of my daughters have to deal with this. We don't slow down, we just pick up the pieces as we go along and go on with life. I know it is easier said than done. I am going down that same road with a surgery on next Tuesday.

I will keep you in my prayers.

'til later,
Nikki

krystal
03-07-2005, 11:52 PM
Lanna
I have 2 daughters that have scoliosis. I have had it since 11 1/2. I want to let you know first that being scared is o.k. But to your daughter this is the most horrible thing she can imagine. By all means downplay it. It will consume everything she does or doesn't do. I remember my mom telling me no p.e. The only thing I loved. Let her be normal.

Secondly even though the Chiropractor that you see may seem like his intensions are legit second guess his actions. As with the doctors. Never be totally in there hands. If that was the case my 7year old would not have been diagnosed. My 9 year old would have been treated for a pinched nerve.

I saw the pictures and wanted to remark that she has a curve about like my 7 year olds. It is starting out. By no means did that bat swinging cause it, maybe from the swinging it caused a slight shift that would feel like burning. I did that way after I knew I had scoliosis. There are many treatments out there. I have a left curve and if I am not mistaken the left is the worst due to the pressure on the rib cage near the heart. So dont let them scare you like that whichever way. It is no where near the terrible sickness children go through with say cancer. This is a mild to sever deformatey it can be fixed and she will live a great life. she can have kids work whatever she wants to do.

Tell her for me to stay in school and have a nice cushy job LOL. I opted to go a different route and now another surgery is inevitable. I give my girls a massage to ease the stresses on there backs. I go to a chiropractor my self BUT he is not into telling you he can fix it all. Pain management has been wonderful. I am now off all pain meds and dont need stomach meds now. i was never good a taking meds anyway.lol. Stay calm for her sake. Tell her it is all good.
Krystal

krystal
03-07-2005, 11:57 PM
Also just letting you know that there is a Shriners Hospital in Jacksonvile Fl. If you need the number I will look it up. It is worth the trip they help you with staying during surgeries the whole nine yards.

Mary Lou
03-08-2005, 08:59 AM
I saw the pictures of your daughter. If you look closely at the picture of her standing up straight, I noticed that one side dips in. I am by no means a professional but it just doesn't look the same to me. As for her not starting her period-and not weighing 100#-I've never heard that before, but I don't think that is true. My daughter is 13 1/2 y.o. and hasn't reached 100# yet and she started her period two years ago. Hang in there and keep us posted. We're all here for you.

Mary Lou

Lanna
03-08-2005, 12:56 PM
But, if he can't give you degrees of curvature, he hasn't done his homework on your child. Did he tell you if your daughter has one curve, or two curves.

I showed him the xrays but he says they arent the TYPE he is looking for. He wants from her shoulders down to her hips. So I told him I would get more xrays when I take her to her regular doctor Wednesday. Im sure they will want to take more their too.

You can't just look at the xray and say this or that. This stuff can progress, and very well could as she get older. On the other hand, it may be as bad as it's going to get too. This could be functional and not structural. But, the specialist will get to the bottom of it, and if it is functional, get to the source of the problem.

Keep in mind that the treatments for this can get expensive and Shriner's Hospital does all the services, from start to finish, for free. Keep this in mind since you don't have insurance.


Actually I have Medicaid until my husbands insurance kicks in and we will have Blue Cross Blue Shield. But that is great to know about the Shriners :)


Next time you see a parade and you see a bunch of men in Red Fezz Hat's, tell them thank you for the work they do. They raise money all year long to support the Shriner's Hospitals.

We see them all the time around here standing on corners asking for money. My husband really like them :)

Please keep us posted as you go down the road.

Oh I will. I need all the info, help and support I need and so does my daughter. I really appreciate how great everyone is on here! :D


Don't get upset over anything you find out. These things happen.


I know what youre saying but I am the biggest worry wart as they would say LOL..She has already made up a thing on the computer all about scoliosis and copied pictures and made out like a whole report on it, shes really into finding out more information on it.


I will keep you in my prayers. I really do appreciate that. Thank you so much! Good luck with your children also! I might as well tell you all my name since Im the one that posts more than my daughter, I am Tammy.


'til later,
Nikki

For some reason it says my message is too short I have to add 10 characters so hopefully this last sentence will help LOL

Lanna
03-08-2005, 01:09 PM
I have 2 daughters that have scoliosis. I have had it since 11 1/2. I want to let you know first that being scared is o.k. But to your daughter this is the most horrible thing she can imagine. By all means downplay it. It will consume everything she does or doesn't do. I remember my mom telling me no p.e. The only thing I loved. Let her be normal.

I actually did say that to her. I thought playing around, jumping, bending, twisting would make it worse.


I saw the pictures and wanted to remark that she has a curve about like my 7 year olds. It is starting out. By no means did that bat swinging cause it, maybe from the swinging it caused a slight shift that would feel like burning.

Some people think it was from the swinging some people dont. Im so confused right now. But I do know that I have been telling her for over a year now that her shoulder blades were sticking out really bad and it looked horrible. I was trying to get her to stand up straight thats why I told her that it looked bad hopeing she would stand up straight. Now Im wondering if it was the scoliosis? Oh and she said that it hurt really bad to breath in right after she hurt her back that night at the batting cage.


I did that way after I knew I had scoliosis. There are many treatments out there. I have a left curve and if I am not mistaken the left is the worst due to the pressure on the rib cage near the heart.

Unless my husband got it wrong he said the Chiropractor said the curve was to the right and that was the worse one because it was going towards the heart. Maybe it was to the left since he said something about the heart.

So dont let them scare you like that whichever way. It is no where near the terrible sickness children go through with say cancer. This is a mild to sever deformatey it can be fixed and she will live a great life. she can have kids work whatever she wants to do.

I asked the Chiropractor last night will she have to wear a back brace? He said "No she wont" He thinks he can fix it. :confused:


Tell her for me to stay in school and have a nice cushy job LOL. I opted to go a different route and now another surgery is inevitable.

I will and sorry to hear you have to have the surgery now :(

I give my girls a massage to ease the stresses on there backs.

I have thought about that too. I actually did rub her back the other night hoping it would help some.


Stay calm for her sake. Tell her it is all good. I will try my best :o Tammy


Krystal

Lanna
03-08-2005, 01:25 PM
I saw the pictures of your daughter. If you look closely at the picture of her standing up straight, I noticed that one side dips in. I am by no means a professional but it just doesn't look the same to me.

No its not just you. Her right side in the picture does sink in more than the left. It looks like she has no hips on the left side. But I do have to say since we have gone to our Chiropractor twice since Friday it HAS improved. I will take some more pictures as soon as I get some batteries for my camera.

As for her not starting her period-and not weighing 100#-I've never heard that before, but I don't think that is true. My daughter is 13 1/2 y.o. and hasn't reached 100# yet and she started her period two years ago. Hang in there and keep us posted. We're all here for you.

She shows all the typical signs of her period coming soon. She is majorly cranky in the morning, and her body is changing if you know what I mean ;) She would kill me if she knew I was posting this about her LOL....Tammy

Mary Lou

nikyergen
03-08-2005, 02:23 PM
Tammy,
It is so nice to have a first name for you. I don't know about you, but I get tired of being someone's mom or someone's wife. I like having an identity.

It is okay to get the adjustments at the chiro, because it does releave some discomfort. That is the only way my daughter gets through basketball season. It keeps her lined up enough to play. However, scoli isn't something a chiro can fix.

We have Blue Cross/Blue Shield for insurance too. But, there is a portion they won't pay, some of the treatment the insurance considers experimental and won't pay for, and I can't afford that. So, before you have any treatment find out what your insurance will pay, so you aren't surprised.

I am glad your husband likes the Shriner guys. My husband is one of them. And, I am so thankful for the work they do. Never thought we'd have to use them though. But, we are and that is that. I even argued that my children weren't crippled. Someone looked at me and said "If you don't get them treated, they will be crippled." That was all it took for me. I have also had a great support team here from all the Shriner guys. But, you have to really enjoy a bunch of old grey haired guys. They are a lot of fun to be around. Our Shriners here host a huge football game in August. It is all graduating seniors that are nominated to the teams. We call them the East/West games. There are numerous East/West Shrine Games all over the nation. All the proceeds go to support the hospitals. My 16 year old daughter will be the East Queen for the 2006 year.

Keep your chin up. Keep you faith in God.

'til later,
Nikki

Lanna
03-08-2005, 10:35 PM
Thanks for all the comments. I just checked my daughters back tonight and since she has been going to the Chiropractor her back doesnt have that hump anymore and her hips are almost normal again. I do think it is helping. I am still keeping my appointment tomorrow morning with the pediatrician. I am hoping they will do xrays so I can see for myself if anything is wrong. Ive looked at enough xray pics online to know what to look for LOL...I will keep you all updated.



Tammy

Lanna
03-09-2005, 11:02 AM
This is what the doctor told me. She obviously wants me to take her to a orthopedic surgeon tomorrow morning at 9:00 am. She says she does have scoliosis and I told her what the Chiropractor said and before I could tell her that he said he could fix her she goes " I bet he said he could fix her back" I said, yeah he did. She goes, "you cant fix scoliosis" She also said with my daughter having back pain she thinks she may have something wrong with one of her disks. She seems to think that she had scoliosis before the back injury that we just didnt notice it until now. I will let you know what the Ortho says tomorrow..Man this is getting aggervating!

Tammy

nikyergen
03-09-2005, 11:28 AM
Tammy,
I know how frustrating this can get, remember I have three daughters with it. I am sorry that the doctor confirmed your fears. I am so glad you are going to the Orthopedists tomorrow. It's just, that I've went your route and, today, I really regret it. Reading your threads was like walking in my shoes all over again. My heart really goes out to you and I am keeping you in my daily prayers.

I will tell you a little story about our chiro. When we asked him about our oldest daughter, he told us it was just lazy posture, so we believed him. He said he could fix it. She asked him numerous times about a brace to correct her posture, he said there wasn't such a thing. Believe me, after we got done at the Ped.Ortho, he got an e-mail from me. I was nice about it, but also let him know that he should of been referring us on to a specialists, since this was so far out of his league.

I know on the other board you were upset that all anyone talked about was having surgeries. That is the worst case scenario. Remember, I have three girls with this. One is a wait & watch, one is in a brace, and one is having surgery next Tuesday. We have from the best case scenario to the worst case scenario. Actual symptoms, other than the posture aren't clear. The doctors will sometimes tell you that there is no pain with scoliosis. Well, I can tell you there is with my oldest daughter. But, what it actually is, is muscle spasms from her spine pulling so bad. Ask the Ortho tomorrow about putting her on Aleve, it really seemed to work for my daughter.

Hang in there. You will get more comfortable with dealing with this. You have to pick up the pieces and go on with life as normal. If your daughter wants to play softball, or do other sports let her. Mine do basketball, track, volleyball, plus all the stuff on the ranch that they are into. Be normal and do normal things. Keep her active. Don't turn her into a couch potatoe. Don't feel anyone was ganging up on you. We were all just telling you our personal feelings and we knew what the chiropractor would tell you.

Anyhow, let us know how your appointment goes tomorrow. See if your husband, another family member, or friend can go with you. You will have a lot to remember. Take a note pad to take notes. Make a list of questions tonight. And ask them. If you thought of them to ask, they are worth asking. There is never a silly question.

Keep strong. And we will all have you in our prayers.

'til later,
Nikki

Mary Lou
03-09-2005, 01:29 PM
Tammy,

Please don't think that all Scoliosis patients end up having surgery. Surgery is the VERY last resort. My daughter had surgery three months ago. We saw five doctors in three different hospitals; we tried a Milwaukee brace and also a Boston brace in addition to doing physical therapy and still ended up with surgery. Why did Jamie need surgery? Several reasons: 1) she wouldn't wear either of her braces; 2) she has not only Scoliosis but also Kyphosis; 3) her numbers were pretty high when she was diagnosed; 4) she has reached skeletal maturity and her curves still continued to progress. So, yes, surgery was necessary.

It seems that a lot of people are having surgery on this forum. I know there a lot of people out there dealing with wearing a brace, but once you get over the initial shock of the diagnosis and get past the start of wearing a brace, you don't really need as much reassurance as we parents do when our children are facing surgery. Have you ever checked out Spinekids? You'll find a lot of pre-teen and teens on that forum who wear braces and do very well. Most kids do very well with their brace but my daughter was just not one of them.

Good luck tomorrow. Let us know how you make out.

Mary Lou

nikyergen
03-10-2005, 11:15 AM
Tammy,
I woke up with you on my mind this morning. How was your appointment at the Orthopedic surgeons. I want you to know that we are really trying to support you. I've been dealing with this since the middle of August, 2004. Some have dealt with it for years, some less time than I. It is no easy task. There is no simple answer or no simple way to fix the problem. But, it is something that can be treated and everyone go on with life.

Oh shoot, we all feel guilty about it. We wonder why we didn't notice it and what did we do wrong to let it happen. There is no answer for any of that. A friend of mine that has a daughter in a brace for scoliosis is the one that saw it in Crystal. She was getting ready to show her show ram and was looking at the ram. She saw Crystal bend over to pick up a brush and noticed the hump in her back. She told me which pediatrician to see in town and to have all of my girls checked. Boy, was I shocked. Her daughter is like our daughters are. Very active and needs to go on with life. I have another close friend that I hadn't talked to since in a while. I found out that during our absence of contacting each other her daughter had to have scoliosis surgery, which explained our absence of visiting. Our high schools play in the same league, so when they played each other at a basketball game, we sat together and she reassured me that everything, with all my girls, would be okay. You will find that now that you have child with scoliosis, you will really start looking at other people, young and old, male or female. You will notice a lot of uneven shoulders and actual curvatures in the spine that go undetected or untreated.

I spent a lot of time on the internet searching for information and answers. I finally quit, not that you should. You need to be comfortable with your information. I had finally decided that God was going to take care of my precious girls and I just had to trust him. That is the only thing that is going to get me through Crystal's surgery on Tuesday.

Oh, sure, I have an incredible family support system. But, sometimes I feel alone, like you do. My husband has been the best, while he usuall doesn't say much. He has been reassuring this past week, while I have been my most uptight. We talked last night and he reminded me that we have one of the best doctors in the world taking care of our daughters and that God will always be on their shoulders watching over them.

Did we ever slow down with our girls? No, not one bit. We have treated them as life goes on as normal. We never told them they couldn't play their favorite sports or do their favorite things on the ranch. We have encouraged them to stay active.

I know I am getting long winded. But, I am hoping that I will say something to help you feel better. I hate seeing you so distraught over this.

Let us know how you appointment went today. You are in our prayers.

'til later,
Nikki

krystal
03-10-2005, 01:28 PM
Hey All,
I wanted to tell you all that don't think of surgery being so bad. It is dreaded by us as parents because we don't like to see our children like that. I had back surgery when I was 16 and I don't remember the pain. I felt 100% better after the surgery. I recovered quickly. If I had not had it my spinal cord would have never grown anumore than it did. I would have been paralyzed and never would have been able to have children. I wish I had never had to work hard so I would not have to have surgery again. That will place a huge burden on my 7&9 year old. They hate to be disrupted on schedules so months of recovery for me will be hard on them too. I can't wait to get better though. I want to go back to working and living comfortable again.
I had a sleepover for my 7 year old and the little girls were playing puppy on the floor. One of them stayed farther back away from them all. I then noticed a scar on her back. I immediately went to her and asked if she was able to play and she looked at me like I was nuts. I was thinking she had a big problem or something. I took her took her to the side to ask her if her back was why she wasnt playing (because they would have played something else fast), she said no I just don't want to be a puppy. My back never hurts. I asked what happened. She said when I was a baby I had a tumor on my spine and it had cancer in it. I almost fainted hearing it. I thought at least with scoliosis I would never run a risk of losing my child due to cancer. I thank God everyday for my girls. I almost wasn't able to have them. They both have the back problem like I do and it made me crazy to think it was my genes that did it. But they too will find there strength through trials like this. It can always be worst. Chin up. Take care.
Krystal

Lanna
03-10-2005, 03:11 PM
Yes its good so far :D She went this morning and they said she does have scoliosis but its not like what you think. If you look at her spine from straight on it looks like a straight line. But somewhere in the middle the vertebra's are twisted instead of curved. Does that make sense? He said if he had to measure anything it would be less than 5% :) He said he sees no need for a back brace or anything. But he would like to see her again in 6 months since she hasnt started her period yet. He also said that he thinks the reason her back has straightend out since we have been going to the Chiropractor she probably just had some muscle strained and they were pulling. He did have us make an appointment to go get a MRI done on her lower back stomach area. She is still complaining of pain their. He said with scoliosis their is no pain. I know one of you said your daughter does have some pain. As far as me being mad because I was only hearing about the surgeries that wasnt the case ;) I just wanted to hear more of the before things like how did they look and how did the kids feel before they found out. No biggie :) So I guess so far everything is really great!!! :D

Tammy

nikyergen
03-10-2005, 03:54 PM
Tammy,
We are all so glad for you. Do be sure to get your appointment for six months. Like I told you I have one that sees the Ped Ortho every three months and one that sees him every six months. Every case, varies. There is no set pattern to any of this. All three of my kids show different signs and have different levels of problems. I think what some of us were trying to get through to you is that, every single case is very different. I am glad she had a pulled muscle, and that the sports injury didn't cause the scoliosis. As far as a lot of the before things. Some of us never had a chance at the before things. Surgery was the treatment. By the time you get to there, bracing, etc., doesn't help. That's why we went straight to the surgery option.

Take care. And go on with life as normal.

Nikki

krystal
03-10-2005, 05:34 PM
Hey Tammy,
I had a twist like your daughters too. Maybe when you go to do the M.R.I. you will see if it is pinching a nerve. I really hate when people say people with scoliosis doesn't have pain. It is like a man telling you child birth doesnt hurt. LOL. Everyone is affected differently. If you have a twisted spine the nerves are pressed on can hurt. So for them to say someone with scoliosis, that they aren't feeling pain from it, is just plain ignorant. My younger daughter has a 5 degree curve also and she complains alot of back pain. She points to the same place. All the muscles spasm to try to keep the spine straighten. My chiro has a site I think I gave it earlier but I will give it again. It helps to understand all of the back.
www.DrRacine.com

www.uppercervical.org (I swear by this technique) pill free for 4 months. :)

KRYSTAL :D

LindaRacine
03-10-2005, 05:55 PM
I believe that the reason some doctors say that scoliosis doesn't cause pain is because many people with scoliosis, even some with severe curves, do not have pain. (I had scoliosis most of my life, but didn't have back pain until I was in my 30's.) If scoliosis caused pain, than everyone would have it. Instead, I believe that what happens is that the curving and rotating of the spine can cause other problems like facet joint dysfunction, which can cause pain.

One way or the other, I think medical professionals need to understand that when they tell their patients that "scoliosis doesn't cause pain," many patients feel that the doctor thinks they're exaggerating their pain.

--Linda

Lanna
03-10-2005, 10:07 PM
I never heard of this type of twist of scoliosis until now. I forgot what he even called it. I go for the MRI tomorrow so Im wondering if she does have some type of pinched nerve or a herniated disk. I know what you mean by docs saying it doesnt hurt but how do they know when most of them dont even have it LOL..I will definately go back in 6 months with her to see how her back is and make sure it hasnt gotten worse. Thanks again for all the advice. I will keep you all updated.

Tammy

P.S. I will go check out those sites you mentioned. Ive been so busy I havent had a chance to go look at them yet.

krystal
03-10-2005, 11:50 PM
Hi Linda,
What I was referring to was the comment the doctor made that her scoliosis would not cause the pain. Scoliosis has the "ability" to do alot of harm to a spine including pain. Scoliosis can contort a spine and cause nerves to be pinched. So to say that it never has anything to do with it is simply cause and effect.

I have had doctors tell me my pain isnt from the scoliosis many times. I didnt have any pain after surgery until it started to progress again. I have muscle spasms so strong I cant breathe. Also when I was pre op I had pain from the stress of the spasms on my ribs and shoulders.

I would not have pain if I didn't have scoliosis. I mentioned everyone is different. Some people do not have pain from it, but at some point I am pretty positive they have some kind of painful reaction to having scoliosis. If there are people that have none, it is a minority.

You said you had no pain from it until in your 30's? Did I read you were fused at a young age? It may have been some one else. Maybe your fusions did allow nerve flow anyway? I would imagine in this case, scoliosis having to do alot with compromising of nerves and stimulation of nerves, would seem to be the reason.

The child in this case being one where she has a twist in her spine that would cause a disc to be turn and push on a nerve. Hopefully this child is in access of modern treatments that are miniumally evasive to solve her problem. Take care.
krystal

LindaRacine
03-11-2005, 12:04 AM
Krystal...

You're preaching to the choir. I agree that doctors should not be telling patients that scoliosis doesn't cause pain. Put aside the argument about whether scoliosis actually does or doesn't cause pain. When a doctor tells someone that scoliosis doesn't cause pain, s/he's risking the patient actually feeling like a hypochondriac.

While most kids I know with scoliosis don't have pain, that doesn't diminish the pain for those that do. And, while I've known more than a few adults with severe curves that claim not to have pain, I definitely think they're in the minority.

I did not have spinal fusion until I was 42.

--Linda

krystal
03-11-2005, 12:12 AM
Hey Tammy,
I am so impressed to hear how fast you are able to get these appt. No need to make her suffer too long without an answer. It will be better to know so you can get the ball rolling. Both of my daughters go through alot with there backs and I have gotten used to alot of the complaints, but you know which ones are the "real" complaints. They have begun to have the major muscle spasms. They are lucky that I know how to massage them out and have strong hands.

My chiro gave me some interesting materials this week and when I read and do some researching on it I will direct you to the sites. It was released this week that scoliosis study shows a direct link to brain stem dysfunction. So that is my research goal this week.

The doctor that wrote the article is Dr. John J. Regan with Cedars-Sinai Hospital in Los Angeles, CA. He is a researcher.

Also Yekutiel M. Robin. His quote is this:
"Disturbance of postural equilibrium have been found in idiopathic scoliosis, and several researchers have suggested that this is a result of brain stem disturbances. It also has been shown experimenatally that stress on posterior nerve roots can cause spinal deviation.

Well let us know what happens. Take care.
Krystal

krystal
03-11-2005, 12:37 AM
Hi Linda,
I am glad you see both side with pain and scoliosis. It makes you feel terrible to hear someone tell you that when your in pain yourself.
I have been pursuing a surgeon that can address all of the scoliosis issues, so I have seen alot of ortho's and they look at you like you are an alien when you tell them your in pain.
The one doctor I just gave up on is supposed to be one of the best here in the Orlando area. His Nurse Practioner assessed me and would only take care of either or of my problems until i saw the doctor. So when I went into see the ortho he said well seeing you dont need any help with your scoliosis i want to see you back in 6 months. :eek: I said "How do you know that the scoliosis is ok? You didn't do x-rays! I then found out the nurse didn't even have the date of my surgery wrote down correctly. So I give as much credit to the doctors as they are worth. He never blinked an eye he kept the appt at 6 months. He also said something outrageous he said he did some research on my back and he said "I contacted a fellow doctor that does alot of research and he said your pain comes from the fusions." LOL. He then says "They have found something new about fusions. It puts stress above and below the fusion." Well golly jeepers really doc. did you go to oldnews.com? :rolleyes: I don't have college to back me up, but good grief I was not born yesterday, nor did I fall from the turnip truck. Wasn't impressed. Well nice hearing from you. Take care.
Krystal

Lanna
03-11-2005, 10:25 AM
I made a mistake, its not a MRI its a CAT scan LOL...DUH! I have too much going on these days I cant remember crap HEHE... :rolleyes:

Tammy

krystal
03-14-2005, 12:28 PM
Hey All,
Just checking to see how everyone is getting along. Hope all is well.

Krystal

Lanna
03-15-2005, 05:57 AM
Everything is going great! :D Her back looks normal again and she is feeling a lot better. She is back to playing softball again and it didnt cause her any pain thank god! I find out on Wednesday what the Ortho Doc has to say about the films of the CT scan. I will let you all know what he says. He is checking to see why she has lower back pain.

Tammy

krystal
03-15-2005, 08:32 AM
Glad to hear everything has settles down and not so stressful. Good Luck.

Joe's Mom
03-23-2005, 09:17 PM
My 15 year old son has scoliosis and kyphosis . . . we did see a chiropractor once.

That chiropractor isn't going to "fix" the scoliosis, but, the chiropractic treatment may help straighten the spine for a while and I did read an article or two that said with mild curves, chiropractic treatment may be somewhat effective.

I know with my son, his spine changes over the day. We have always kept track of his height on a door jamb in the laundry room. Before I knew he had scoliosis I was finding that sometimes his height was changing. At first I thought I had just marked it wrong, but then as I watched more carefully, he was different heights on different days! If I measure his height AFTER he swims or works out he is taller than if I measure his height after sitting!

So, the chriopractor can manipulate the spine and get some movement in it, but the changes won't likely last. At least that is my take on it!

I did read a post from a man in his 30's whose mother was an MD. He had never had surgery (yet) and his routine included seeing a chiroprator, using an inversion machine, keeping active and fit. He stated that this combination kept his spine limber and he felt it kept him from needing to have surgery.

krystal
03-24-2005, 11:19 PM
Hi Joe's Mom,
I totally agree with your stance on Chiropractic care not being a "fix" and surely nothing including surgery, isn't going to prevent the scoliosis from perhaps causing other problems. I go routinely to avoid taking medication that causes more problems with my stomach. My chiropractor is more modern than the others he doesnt do the "cracking" and "popping" that so many others do. I am trying to avoid the enivitable as long as I can. The girls are in school and need me. So maybe the summer will be my surgery date.

Today is a day when I trluy feel the effects from the scoliosis. The effect it has on my joints, tendons and ligaments. I am truly in the worst pain with my back hurting the way it is today and yesterday.

I wanted to suggest maybe getting your sons legs measured to see how big of a difference there is. If he was standing "straight" ,( i don't know if there is such a thing with scoliosis) he might be shifting his weight to one side and making a difference in his height. I have a difference of 1 inch form the right to the left leg. the girls have 1/4 inch on one side. This is seen alot with other fellow scoli's. Just a thought. Let me know if there is, it has sparked my curiousity to know. Krystal