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tae_tap
10-13-2014, 08:25 PM
I recently found out that the nerve issues I have been having is a result of bmp growing a small bone at the L4/L5 nerve. We did a selective nerve block to that nerve to pin point that it was the only issue. It has numbed the area temporarily but we are looking at having surgery to remove the bone and decompress the damaged nerve. Has anyone else experienced this or grown bone in an in-needed area?

Tamena

KathK
10-13-2014, 09:08 PM
Tamena,

Wow! I'm not sure I remember reading that one on the risk list!

I am very curious about your symptoms as I have been struggling with left foot/left leg nerve issues myself for the past several months. Mine seem to point to the S1 nerve root (3 smallest toes, bottom of foot, back of leg), but Dr. Lenke does not see any area of concern on my CT scan or MRI.

Can I ask what your symptoms are/were and how the unwanted bone growth was diagnosed? Was the bone growth visible on a CT scan? Or did they use the injections to diagnose the problem?

I hope that any surgical correction you might need would not be a large surgery!

Thinking of you,
Kathy

tae_tap
10-14-2014, 06:24 AM
Kathy,

They diagnosed the bone from a mylegram ct scan. my symptoms made me feel slightly crazy but they began with weakness in my left leg. I could be standing there putting weight on that leg and fall on the ground. Then the pain path was quite odd to me but it started in the lower back, traveled down my thigh, went through my knee and down to the inside of my foot and ending with an unbearable pain in my great toe. I really though I was crazy! But the bone showed up clear as day on the imaging. I am 11 months post op and have been having these issues for at least six months. It started with my great toe being sensitive within a couple weeks after surgery but we masked the symptoms with Gaba and just assumed it was swelling and a reaction to the BMP and the cage. I hope they get you figured out. That pain is no fun!
Tamena

golfnut
10-14-2014, 11:51 AM
Kathy and Tamena,
It sure sounds like you have similar issues. I never thought about the possibility of BMP causing a problem like Tamena described. I am hoping that you both find relief.

babyboomer16
10-16-2014, 10:56 AM
Tam & Kathy,
I read your posts and have been wondering about myself. I am having trouble with two big bumps
that are above my "buttock" (left & right side). I think they are iliac bones, where they put those screws.
Except they are huge and stick out above my butt a lot, plus they are too far up above my "buttock" and to where my waist used to be. Does this make any sense? I know that I pull on a pair of slacks, jeans or whatever and they have to of course go above those bumps where my waist is. But everytime my pants I'm wearing won't stay up,, as there isn't a dip there anymore where my waist was. Sorry this is so long. But I am wondering if this doesn't have something to do with bone overgrowth? I am having problems with low back pain and middle thoracic pain. My legs get weak and real tired fast and (painful hips and legs) when I walk. I have had these bumps since about six months out. And they seem to have grown in size.
Disn't mean to hijack your thread Tamena. I am sending an X-ray to Dr. Lenke. Will see what happens. I wish you both the best, and please update as it helps to know what's going on with you. I didn't want to say much, until I saw your post Tam. I don't want to wine about everything, as I am thankful (so far) that I'm standing up. Sincerely, Linda. P.S my X-rays were lost and another set was sent. Hope they make it to Dr. Lenke.(10/21/14) this time.!!

green m&m
10-16-2014, 04:27 PM
I've wondered the 'wrong way' growth as a possible complications as fusion takes place -- guessing this is more of an issue with BMP since it can probably get into spaces where bone growth normally won't take place.

I wonder if this can happen without BMP as well...

tae_tap
10-16-2014, 05:41 PM
Linda,
Nothing was seen great on the plan ct scan due to the metal causing the picture to be distorted by artifacts. It showed up clear as day on the myelogram ct scan. Hopefully Lenke will figure out what is causing your issues.

The nerve block only lasted about four days. But it was wonderful while it did. Now to get surgery scheduled to remove the bone and hopefully all will be good.

Tamena

golfnut
10-16-2014, 09:01 PM
Linda, Tamena, & Kathy,
I hope all three of you find relief. We've all four had one of the best surgeons, so it is disheartening when things go wrong, especially a long period after the surgery.

fifa
10-18-2014, 11:14 PM
I recently found out that the nerve issues I have been having is a result of bmp growing a small bone at the L4/L5 nerve. We did a selective nerve block to that nerve to pin point that it was the only issue. It has numbed the area temporarily but we are looking at having surgery to remove the bone and decompress the damaged nerve. Has anyone else experienced this or grown bone in an in-needed area?

Tamena


Hi, Tamena -

How many kits of BMP did they use (if you remember)? I hadn't heard of this before (I haven't had the "risks and benefits" meeting yet - am scheduled to do that next Wednesday). You can bet I'll be asking about this one! Thank you for posting this. Hope you are well.

Fifa

tae_tap
10-19-2014, 06:53 AM
Fifa,

I am not sure about the number of kits. It was never a discussion on the amount used and I didn't have to go through the process of filling out financial paperwork. My insurance company did not approve the use and it was just an unspoken that it would be written off. I never actually talked to BJC about it. Dr. Kelly took care of all that. As far as my side effect happening, it is very rare. I was just one of the lucky ones, hehe! The plus side is the spinal fusion itself is strong and looks good which I don't think would've happen without the aide of the BMP. So please don't let my freak outcome discourage you in any way. My mother always told me I was unique.

Tamena

PeggyS
11-17-2014, 05:51 PM
Fifa,

I am not sure about the number of kits. It was never a discussion on the amount used and I didn't have to go through the process of filling out financial paperwork. My insurance company did not approve the use and it was just an unspoken that it would be written off. I never actually talked to BJC about it. Dr. Kelly took care of all that. As far as my side effect happening, it is very rare. I was just one of the lucky ones, hehe! The plus side is the spinal fusion itself is strong and looks good which I don't think would've happen without the aide of the BMP. So please don't let my freak outcome discourage you in any way. My mother always told me I was unique.

Tamena

Hi Tamena!

Thinking about you & sending prayers that this surgery will eliminate the bone growths!

I agreed to pay for 2 (instead of 6) kits of BMP & the rest would come from my hips. I asked Dr. b's nurse about it today b/c I didn't have any incisions on my hips. She said sometimes the surgeon can reach the illiac crest without a new incision. Hmmmm....

tae_tap
11-17-2014, 05:55 PM
Thanks Peg! I am here at the Parkway and have pre-op tomorrow. I'm sure it will all go smoothly. So, did he have to use bone from your iliac crest? I was hoping that the two units of BMP would be enough.

Tamena

titaniumed
11-17-2014, 09:00 PM
Tam

What do you do in pre-op, I forget? (smiley face)

Thursday is you day right? If not you can hit me later....

Its going to be good to get this repaired.... you have had a hard 2 years.....

Ed

jrnyc
11-18-2014, 12:06 AM
i hope all is resolved and people have no further problems.

if you look up "BMP and bone growth in other places"
you can find a lot of information.

jess...& Sparky

PeggyS
11-18-2014, 07:44 AM
Thanks Peg! I am here at the Parkway and have pre-op tomorrow. I'm sure it will all go smoothly. So, did he have to use bone from your iliac crest? I was hoping that the two units of BMP would be enough.

Tamena

Hi Tamena! Yes, bone was used from iliac crest. I met with nurse, yesterday. I thought BMP might have been used all the way down the spine b/c I didn't have an additional incision. Nurse said sometimes dr can reach the iliac crest from the main incision. I'm confused b/c the literature says BJH hasn't used iliac crest bone for the past 10 (?) years! Huh?!

Prayers for a great revision & fast/easy recovery!

LindaRacine
11-18-2014, 11:13 AM
Hi Tamena! Yes, bone was used from iliac crest. I met with nurse, yesterday. I thought BMP might have been used all the way down the spine b/c I didn't have an additional incision. Nurse said sometimes dr can reach the iliac crest from the main incision. I'm confused b/c the literature says BJH hasn't used iliac crest bone for the past 10 (?) years! Huh?!

As I think you've probably figured out, the iliac cress bone graft is taken from the iliac crest and not from the hip. I'm guessing that surgeons think people are too dense to know or look up what the iliac crest is. And, while surgeons used to make a separate incision, they now take it from the midline incision if the spine incision has to go all the way down to the sacrum anyway. In regard to "the literature says BJH hasn't used iliac crest bone for the past 10 (?) years!", ICBG is used a lot less than it was in the past, but I hadn't heard of anyone giving it up completely. Nothing is quite as successful at promoting bone graft as much as a patient's own bone, so in cases where the patient has a high risk of non-fusion, it's the lesser of 2 evils.

--Linda

tae_tap
11-20-2014, 04:28 PM
Surgery went well! Dr. Kelly was surprised by the size of bone and excited that once removed the nerve plumped up and was relieved. He also told me that due to my case he has made the decision not to but the BMP in the cages anymore. I absolutely love this doctor because not only is he good at what he does, but you can see how much he cares for his patients. He is very personable and I love that about him. My nurses this time are outstanding as well. All in all, today has been very good.
Tamena

golfnut
11-20-2014, 04:53 PM
Tamena,
I am glad to hear everything went well for you. I know what you mean about Dr. Kelly. He assisted Dr. Lenke with my surgery and met with me at my 3 month check up. I hope you have a swift recovery.

PeggyS
11-20-2014, 06:46 PM
Surgery went well! Dr. Kelly was surprised by the size of bone and excited that once removed the nerve plumped up and was relieved. He also told me that due to my case he has made the decision not to but the BMP in the cages anymore. I absolutely love this doctor because not only is he good at what he does, but you can see how much he cares for his patients. He is very personable and I love that about him. My nurses this time are outstanding as well. All in all, today has been very good.
Tamena

Yea, Tamena! Congrats! Now, you're on your way to healing!

PeggyS
11-20-2014, 06:48 PM
As I think you've probably figured out, the iliac cress bone graft is taken from the iliac crest and not from the hip. I'm guessing that surgeons think people are too dense to know or look up what the iliac crest is. And, while surgeons used to make a separate incision, they now take it from the midline incision if the spine incision has to go all the way down to the sacrum anyway. In regard to "the literature says BJH hasn't used iliac crest bone for the past 10 (?) years!", ICBG is used a lot less than it was in the past, but I hadn't heard of anyone giving it up completely. Nothing is quite as successful at promoting bone graft as much as a patient's own bone, so in cases where the patient has a high risk of non-fusion, it's the lesser of 2 evils.

--Linda

Thank you for the explanation, Linda. That clears things up!

tae_tap
11-26-2014, 06:22 PM
Hello everyone! I am home and have been for a few days. I am doing amazing especially for six days post-op. I am off all narcotics and have been for 24 hours. Only Tylenol and IBU prn. I have not even needed a muscle relaxer. It's so wonderful! I am dealing with the constipation monster and drinking my magnesium citrate cocktail as I type and it is the worst stuff alive but maybe the bowels will awaken when I'm done. This is the first time in I don't know how many years that I can walk, lay, and sit without pain. I pray it continues and isn't a sick trick my body is playing on me. I feel well enough to go back to work on Monday but my husband is making me take more time so I don't over do it. I guess he knows me a little to well!

Hope everyone has a great Thanksgiving and I am praying for FIFA and Peggy as they are still early in their healing!

Tamena

PeggyS
11-26-2014, 07:08 PM
Wow, Tamena! I'm so happy to hear you're doing well! Hubby is right, take your time going back to work; heal!
I tried to reduce pain meds to fight the constipation monster. Yesterday was good, but today wasn't so great. I need to take my own advice to be patient and heal!
Happy Thanksgiving!

LindaRacine
11-26-2014, 11:04 PM
Congratulations Tamena. Hope the easy recovery continues. Be very careful not to overdo things. Don't worry if you have a setback.

More and more, I'm seeing people recover like you. I wish I knew why some people have it so easy and others don't.

By the way, you have the wrong year for your surgery date in your signature.

--Linda

tae_tap
11-28-2014, 09:32 PM
Linda,
I updated my signature. I am never surprised with set backs now, especially with the back and it's sensitive nature. I think the reason recovery is so much easier is that once you've had a long fusion everything is easier and this time it was removing a bone to allow the nerves to breathe so no fusion was taking place. Plus the incision was half the size of the long fusion. I am listening and taking it easy even though I'm ready to run back to work (because the pain isn't there) and see my patients. But I shall be patient and wait till after the holidays.

Peg,
You sound like you're doing great! Take your time. You don't want to mess with fusion and your body is in triple drive compared to mine. You had major surgery, mine was routine. Praying you keep moving up the hi with not too many set backs.

Tamena

LindaRacine
11-29-2014, 12:38 AM
Linda,
I updated my signature. I am never surprised with set backs now, especially with the back and it's sensitive nature. I think the reason recovery is so much easier is that once you've had a long fusion everything is easier and this time it was removing a bone to allow the nerves to breathe so no fusion was taking place. Plus the incision was half the size of the long fusion. I am listening and taking it easy even though I'm ready to run back to work (because the pain isn't there) and see my patients. But I shall be patient and wait till after the holidays.

Peg,
You sound like you're doing great! Take your time. You don't want to mess with fusion and your body is in triple drive compared to mine. You had major surgery, mine was routine. Praying you keep moving up the hi with not too many set backs.

Tamena
I think you're right about the revision surgery issue. For many years before I had my own revision surgery, a lot of people told me that they thought their revision surgery was much worse than the original surgery. But, I think most of those people had their initial surgeries as teenagers, so the comparison is more apples and oranges than apples and apples. I think that revision surgery early recovery can be relatively easy because they're usually fixing a very specific problem. Also, there have been a lot of preop and periop pharmaceutical advances in recent years.

--Linda

jackieg412
11-29-2014, 08:12 AM
Hi, so glad that you are doing so well. I found revision surgery much easier. Maybe it is because it is more localized? Mine went well and I was amazed at how quickly I felt better.