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Jean1020
12-16-2013, 08:16 PM
I have had the scoliosis since teen years... now 53 and with a degenerating disk, curve worsening, and my body twists so (apparently from instability), that I am considering scoliosis surgery. Thorasic 36, lumbar 32 but severe disk degeneration at L2-3 on concave side. Severe pain on left convex side. MRI shows a pronounced worsening of curve at L2-3 because the disk degeneration's in on one side (concave- right) only. Docs say the rather severe pain I have had since January 2013 must be from sudden disk degeneration. Also my body has twisted 3 times since summer such that without a visit to chiropractor and massage, I literally stood up crooked and faced 45 degrees to the left- falling totally into my grade 4/4 rotation. This position is excruciating. Have muscle relaxants, colonophin to relax but on my own I can not get straight (as straight as I usually am since I am crooked!!) I live in upstate NY- just another posted a Q on who to go see within a days drive. Had one consultation where a spinal surgeon said try a spinal stimulator but at Hopkins told-no because I can not go to the chiro anymore. Went to Hopkins- was put in with a lumbar degenerative scoliosis guy- partly my fault not being clear I had a thoraco-lumbar curve. Now referred to Dr. Kebaish at Hopkins. Has anyone had this severe twisting- so painful and very scary. Chiro says the disk has gone spongy so he adjusts me and it does not hold. Doc at Hopkins says I probably need surgery. Failed all conservative ideas- epidural blocks, RFNA, prolotherapy, PT. When I am straight pain is only bad-not excruciating- lots of tylenol and tramadol works, but the slightest rotation, I go into excruciating muscle spasms.

jrnyc
12-16-2013, 11:21 PM
Jean..i am so sorry that you are in so much pain...
you wanted someone within a day's drive...???
there are several top surgeons in Manhattan who are listed
in info section of this website...

i hope you find the correct surgeon for you....
QUESTION....have you tried botox injections to freeze the muscles
that are going into spasm...???? i get botox shots in upper spine
and it helps my upper spine...it has not worked on my lower spinal
problems...

jess

titaniumed
12-17-2013, 10:10 PM
Jean

Looks like you waited a long time.....Thatís a familiar story around here.

Before my surgeries, I was doing many hot soaks and massages for pain control. Did Chiro, had multiple herniationís, sciatica, degeneration, you know, the works....

Itís a good idea to see a scoliosis surgeon. It doesnít mean you have to commit, but itís a start....

Ask any questions at all, there are many of us here.

Welcome to the forum

Ed

Jean1020
12-17-2013, 11:18 PM
I tried a botox injection into lumbar muscles. It did not really help. It wore off an it frankly feels better to be able to feel the massages I get weekly and the active release therapy from physical therapist. Insurance long stopped paying but I see him weekly too. I saw one surgeon at Mayo Clinic but realized I can not fly anymore. I love Mayo. Was seen there for a bad wrist injury. So now the quest for a closer consultation.

jrnyc
12-18-2013, 07:35 PM
sorry the botox did not help you, Jean...
not surprised, though...
do not know that it helps lumbar area...thoracic area
seems more suited to the shots...i still have feeling there...
just no longer get muscle spasms in upper spine for a few months..
i get the botox shots every 3-4 months...

i got a great deal of relief from lumbar pain with SI joint injections...until i got too much steroid and my cortisol crashed...
i know others who got relief from lumbar pain with SI joint
shots as well...
not sure if you have tried those...for temporary relief.

hope you can find the surgeon best for what you need...
wishing you a better 2014 for pain relief

jess

loves to skate
12-19-2013, 07:06 PM
I have had the scoliosis since teen years... now 53 and with a degenerating disk, curve worsening, and my body twists so (apparently from instability), that I am considering scoliosis surgery. Thorasic 36, lumbar 32 but severe disk degeneration at L2-3 on concave side. Severe pain on left convex side. MRI shows a pronounced worsening of curve at L2-3 because the disk degeneration's in on one side (concave- right) only. Docs say the rather severe pain I have had since January 2013 must be from sudden disk degeneration. Also my body has twisted 3 times since summer such that without a visit to chiropractor and massage, I literally stood up crooked and faced 45 degrees to the left- falling totally into my grade 4/4 rotation. This position is excruciating. Have muscle relaxants, colonophin to relax but on my own I can not get straight (as straight as I usually am since I am crooked!!) I live in upstate NY- just another posted a Q on who to go see within a days drive. Had one consultation where a spinal surgeon said try a spinal stimulator but at Hopkins told-no because I can not go to the chiro anymore. Went to Hopkins- was put in with a lumbar degenerative scoliosis guy- partly my fault not being clear I had a thoraco-lumbar curve. Now referred to Dr. Kebaish at Hopkins. Has anyone had this severe twisting- so painful and very scary. Chiro says the disk has gone spongy so he adjusts me and it does not hold. Doc at Hopkins says I probably need surgery. Failed all conservative ideas- epidural blocks, RFNA, prolotherapy, PT. When I am straight pain is only bad-not excruciating- lots of tylenol and tramadol works, but the slightest rotation, I go into excruciating muscle spasms.

Dr. Frank Rand in Boston would be less that a day's drive for you unless you are way up North.
Sally