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View Full Version : Welcome back, everyone! Hooray!



Susie*Bee
10-03-2013, 04:04 PM
I thought we were all done, it's been so long! Glad to see we are up and running again. Missed you all. (smile)

JenniferG
10-03-2013, 04:53 PM
Same here Susie.

Been thinking about all those who were coming up for surgery, had recently had surgery, etc. who were unable to post. I hope everyone's doing well!

tae_tap
10-03-2013, 06:50 PM
I am so glad to see you all back! It was like part of my family (virtual) was taken away from me and locked away! Hope everyone is well!
Tamena

golfnut
10-03-2013, 07:37 PM
I am so happy to see that the forum is up and running again. I have email addresses of some of my forum friends, but hated the thought of never touching base with so many of you again.

scooter950
10-03-2013, 08:01 PM
oh my gosh SO GLAD TO BE BACK!
I've been checking every day- hello to my scoli friends! hope all is well ! Jamie in TX

babyboomer16
10-03-2013, 11:50 PM
Hi all~~~I am so glad to see we are up and running again! I felt pretty lost there for a while.
Hope everyone is doing well. I am healing every day. I just passed my fourth month of the second revision surgery Dr. Lenke preformed. I am doing good. NO FALLS!! I am walking so much better this time than the first go around. He did some extra work and put more reinforcement in my back this time. Much better.
I look forward to being able to staying in touch!! Hugs to all, Linda

JenniferG
10-04-2013, 12:03 AM
That's great Linda. I was thinking of you and hoping all was going well this time.

JuliaAnn
10-04-2013, 12:34 AM
Oh I'm so glad to see the forum back! It was so sad and distressing to think that all those valuable old posts were lost! So many times I've done a search on this site to find answers to questions. Thank you so very much to all the techies who got the site back up running! You have my eternal gratitude.

I don't post often but I check posts here a couple times a week just to see how various folks are doing and praying for you. I've missed everyone! I just started posting on another board online and was really happy to see a couple names there that I recognized. But this board feels like home. You all were there when I needed it most in the months right after my surgery. So glad.

Irina
10-04-2013, 11:57 AM
I am so happy to see this forum back! I missed it so much - it became a home for me too. Glad to see all the familiar "faces" again and I am always happy to welcome new folks. Thank you for fixing it!

PeggyS
10-04-2013, 02:01 PM
Yea!!! I've missed this forum!

Peg

titaniumed
10-04-2013, 06:49 PM
Me three, me three!

Ed

titaniumed
10-04-2013, 07:02 PM
Since the forum was down, I was down in Panama on Coiba Island teasing the local wildlife.....

I was so fat from the food, if I would have jumped on "Tito" I would have crushed him......

Had no problems diving except that I had a little trouble getting back into the boat.

The captain kept repeating, "Mucho comida!, mucho comida!"

Ed

tae_tap
10-04-2013, 07:10 PM
, "Mucho comida!, mucho comida!"

Ed
What in the world does this mean? I know mucho but is comida fish?

Tamena

titaniumed
10-04-2013, 07:51 PM
http://translate.google.com/?tl=es#auto/en/mucho%20comida

Much food

Ed

Pooka1
10-04-2013, 09:54 PM
Since the forum was down, I was down in Panama on Coiba Island teasing the local wildlife.....

Great pic Ti Ed!!!!! Love it!

sha

Lorraine 1966
10-04-2013, 10:56 PM
I did not know what was going on, have had so much going on in my life and when I finally went to log on, no one was here anymore, so sad but very glad you are all back.

Lorraine.

JenniferG
10-05-2013, 05:11 PM
Anybody heard from Melissa?

WLB1
10-05-2013, 07:57 PM
Hooray! Happy virtual Dance!

titaniumed
10-06-2013, 04:11 PM
Great pic Ti Ed!!!!! Love it!

sha

I knew you would get a kick out of that.

This is the only time running is recommended for full fusion patients!

There was a fisherman there throwing frozen fish at him to keep him happy...... His stomach was frozen but he was happy. These guys are fishing the “Hannibal banks” on the edge of the park, which is a VERY productive fishery....... They come by helicopter.....

Ed

tae_tap
10-06-2013, 06:49 PM
Ed, My husband wants to know how fast did you run when you noticed the man eating creature so close? Hehe!

titaniumed
10-06-2013, 11:42 PM
Tito is the main attraction and is fed by the fisherman all the time.....I don’t think he would want to jeopardize being turned into a handbag.......If he ever ran after anyone, the scientists down there would simply move him. He is the main draw and keeps the money flowing in, so they keep him fed......He is actually the CFO down there, with the bonus being free fish dinner every evening. That’s not a bad deal for a crocodile. (smiley face)

It was a great trip and had no spine related issues I couldn’t handle. I cant see down and keep my secondary in my left hand. I also do water entries and remove gear in the water so there is no lifting of anything heavy. The people on the boat also strap my BC on since I cannot look down at all being fused. I did drop my fin once and the captain dove straight down to around a 50ft depth to retrieve it. These guys dive deep without any equipment. Its amazing....

We saw whales breeching everywhere, scarlet macaw’s in the wild, monkeys, birds, etc. Dove with a huge whale shark, and a 20 foot manta ray, and other associated large pelagic’s. Ecotourism works....Glad to see someone putting this to good use.
Now we just have to get the rest of the planet to think the same way. If we destroy our oceans, everyone will be eating jellyfish sandwiches soon. Destroying old growth tropical rain forests leaves no chance that our scientists can answer questions and possibly find things of extreme value.

Funny how we have to go broke before we learn......and this doesn’t have to happen.

Ed

susancook
10-07-2013, 01:15 AM
I called Irina tonight and found out the the forum was alive, which made my day.

My friends are back, my friends are back, I need my friends!

I checked for the forum every day for a while and then kind of gave up. I did not realize how much the forum meant to me. I missed so many people that I did not have other email addresses for. I also decided to put my diary of my scoliosis surgery on the forum. When it went down, it was lost. I thought that I would download my thread at my 2 year postop point and put it in a notebook, but will do that soon in case it is lost agin. Actually....is there something other than this? I have not checked if my old bread is there.

Anyway, glad that we are back!

Susan....and her ever growing menopause baby

jrnyc
10-07-2013, 10:17 AM
hey TiEd
Tito looks like one of those big shot CFO's...the ones who eat
and sleep where ever they want to!!
glad you had a great time...
you are very brave...i would have been at the nearest Mariott...

jess...and Sparky, the wildest creature i ever spend time with

kennedy
10-08-2013, 01:23 AM
So glad this is back. Hey everyone I been ok. Thinking about you all latey .

Nancy Joy
10-08-2013, 06:27 PM
Well, I have no idea how long this was down but sure would have been disappointed yesterday to find that! Susie Bee- I see you are still on. You were always such an encourager for me. I hope you are doing well. Ed, you are still traveling! What wonderful stories you have. Are you still snow skiing? That was unbelievable for me. I scuba dived (from shore) last year at St. Thomas. I tried to stand up with the tank on my back and couldn't do it. OK- I hadn't told them about my surgery so the family was all looking at me to see what I would do. Brave one that I am (stubborn?) I asked the instructor if he could please support it while I walked to the water- that I am just tiny and weak. He did! LOL!!! loved it. So great to share here.

titaniumed
10-08-2013, 09:15 PM
Hi Nancy

Good to see you chiming in again.....I hope your spine is fine....I see you are 5 years today!

I will also shore dive like you mentioned, but I drag my BC and tank out into water around 4 feet deep and strap in. With boat diving, I’m very upfront about what I can and can’t do (no lifting and no back rolls out of boats) and what I expect from the people on the boat. I have never had any problems as divers are a great bunch of people...... I also flooded my computer, and my regulator was screwing up, but still had a blast.....If your trained correctly, you don’t need these things anyway.
I started diving because of scoliosis in 1995....(Maui dive shop) Intro dives were a cheap $52 back then!

I think it is wise to be open and communicate about our spines.....Years ago, I would never ask for a hand at anything, but going through major surgeries teaches you this. The ICU nurses teach you this at the most critical time...... It only makes sense, we shouldn’t have to lift anything, after all, we paid our dues.....
I will communicate with strangers about it, it promotes awareness, makes people think, and can be of some benefit. If a parent just learned about an Adams bend test from me, and checks his or her 11 yr old out and sees something, I guess that’s a good thing. I also feel that people should be aware of others afflictions.....Some of these young kids these days, I have to straighten them out....they don’t even know who Elvis is. (Are you kidding me?)

I ski when it snows, but the last 2 seasons out here were the worst in 30 years.....Hopefully, the winds of Thor will be blowing cold this winter......

The forum went down for about a month, and yes, it was kind of sad in a way to think “Wow, I don’t have the support of my scoli friends out there”It was like the old days..... I always knew that Joe would finally get it back up and running at some point.....servers and software are not cheap and can be a royal pain sometimes. Thanks Joe.

Ed

PeggyS
10-09-2013, 08:08 AM
I think it is wise to be open and communicate about our spines.....Years ago, I would never ask for a hand at anything, but going through major surgeries teaches you this. The ICU nurses teach you this at the most critical time...... It only makes sense, we shouldn’t have to lift anything, after all, we paid our dues.....
I will communicate with strangers about it, it promotes awareness, makes people think, and can be of some benefit. If a parent just learned about an Adams bend test from me, and checks his or her 11 yr old out and sees something, I guess that’s a good thing. I also feel that people should be aware of others afflictions.....Some of these young kids these days, I have to straighten them out....they don’t even know who Elvis is. (Are you kidding me?)

Ed[/QUOTE]

Ed,

Your post about learning to ask for help is something I've struggled with, too. I haven't had my scoliosis surgery, yet, but I've started learning to ask for help during my recovery from our motorcycle accident this summer. The accident was north of Gerlach, NV on our way to Oregon. I noticed you're from Reno. We spent the month of July with our friends who live there. We're in Ohio.
It's getting easier to ask for help. I think this recovery has been my 'dress rehearsal' for my future scoliosis surgery. Then I'll think this one was easy! I keep telling God that I really didn't need to practice ahead of time!
My husband & I are former scuba divers - we took the class in college ( in the 70's) & dove in quarries. We quit that right after we experienced diving in the Caribbean! I'm amazed that you (& Nancy) can dive! I tried about 8 years ago & felt like I'd been run over by a semi for the following week!
I'm still dr shopping! Your posts have been very helpful!

Peg

JuliaAnn
10-09-2013, 12:20 PM
I better make time soon to copy and save useful threads from this board. I had a couple questions when the board was down and just knew the answers were here somewhere. This board is so very valuable. I really appreciate it being here. Thanks to all who keep this board running! And like others, this board was the only place I wrote some details about my post-op. So losing it was like losing a journal.

Ed, I did a double take with your photo! The location is beautiful, you're so fit for having so many surgeries. I saw the beautiful scene and then I thought WHAT? WHAT??? is that a crocodile?. And you're standing there so nonchalant, like this is no biggie for you to face. ha ha Really a fun photo.

Irina
10-09-2013, 07:59 PM
Peggy,

Asking for help is hard for some of us, especially if you're not used to it. Talk to your husband and friends about what the surgery entails, what restrictions will you have and why. It's important for them to understand why you can't bend or lift. They need to be educated. Give your husband David Wolpert book to read. When people around you understand the magnitude of the surgery, you would not even have to ask for help much - they'd be willing to help.

Good luck with a doctor shopping and recovery from your motorcycle accident.

loves to skate
10-09-2013, 09:10 PM
Looks like that alligator (or is it a crocodile) has his eyes on you Ed for mucho comida! Ha ha!

titaniumed
10-09-2013, 09:22 PM
Peg

So sorry about the crash, I hope you are recovering from that....I’ve been through those parts, the Northern Nevada, Southern Oregon area is one of the few spots in the US where you can drive for a very long time and not see anyone else.....desolation for sure.

As far as your scoliosis surgery is concerned, you will need an “adult scoliosis specialist”. I wouldn’t pick someone unless they were active and only doing scoliosis surgery. If someone trains and is completely focused on the spine, this person wouldn’t do shoulders or knees. The spine is complex enough to keep a scoliosis surgeon extremely busy for an infinite amount of time.....I don’t know how to stress how important this is.

Decision making is difficult. There are so many parameters involved that its hard for the layman (us) to make a decision......The best advice I can give is to keep reading and posting, ask any questions at all. Read David Wolpert’s book, and take your time. This will be the most important decision you will ever make, you want to have a good knowledge of the topic matter, and also know about the “C” word. Complications. I know, it grim, but you need to know because its serious surgery. Surgeons usually pop this on us right before we go in, because they have to. My urologist popped the old, “you know what a stent is” on a laser lithotripsy procedure I had years ago. There is always some sort of information that gets your full attention. That got my attention. (smiley face) Knowledge is a good thing. Knowledge combined with faith is better.

Julia

I didn’t realize how classic that croc photo is till Sharon mentioned it, but it is hilarious because you can see that stress in my face. I’m thinking that he couldn’t possibly chance attacking his food supply......at least for the single second I turned my head and yelled “snap the photo”. Thoughts of the massive migration of the
wildebeest in the Serengeti crossing the Mara river did cross my mind. Discovery used to run those croc attack programs years ago quite often.....maybe to keep the ratings up? Combined with British narration, it has that seriousness that really grabs your attention. Ohhh...man!

Croc marketing.

Ed

debbei
10-10-2013, 05:22 AM
I'm so glad we're back too! I was also worried it was the end of our group. I'm coming up on 5 years myself next week, and I feel so normal!

PeggyS
10-11-2013, 04:37 PM
Hi All, Thanks for the advice on dr shopping & good wishes for healing. I read David Wolpert's book & intend to re-read it. There is a lot of real info. in there, just like on this board!

Peg

jackieg412
10-12-2013, 04:07 PM
Just like everyone else, I am so glad that we are fixed!!!Both our web site and some of our spines. We really do learn from each other and so much more than a Doctor has time for or a book can tell us. I am happy that Ed is back SAFE!!!
I am finally able to post---due to a workers comp claim{that Just settled} I had to remain silent or just ask questions. I will very soon share what it was like to have untreated scoliosis and a very severe work related injury.I am just not to sure where to put it. I do know that workers comp laws are different in each state--but I do think the whole process{all six very long years} is some what the same.
I should be jumping for joy{not that I can jump} but not only did I have to deal with multiple doctors,lawyers,judges--I had to have 3 seperate surgeries and some of us know what that means.
I thank Ed and Linda for the information that they sent me that helped bring this to a settlement.
I will say more as soon as I know where to put the thread.
Ed, I will call you soon and share the details. Some details, I never will be able to share--I actually had to sign a gag order in the settlement.
Let me know where I should post a thread about this subject.

titaniumed
10-13-2013, 03:28 PM
Jackie

I’m so glad that everything worked out in court. When you read about a particular subject for years and years, its funny how information that is stored way back in your memory can suddenly be “stirred”, and I guess my memory isn’t completely shot yet. (smiley face)

Glad to have been of some assistance.

Ed

Doodles
10-15-2013, 11:36 AM
Wow--you are all back! Hi everyone. I just happened to give it a try today. I was afraid you all found a new forum and I couldn't get to you! Nice to see you all are here again. Janet