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  • Welcome back, everyone! Hooray!

    I thought we were all done, it's been so long! Glad to see we are up and running again. Missed you all. (smile)
    71 and plugging along... but having some problems
    2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
    5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
    Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

    Corrected to 15°
    CMT (type 2) DX in 2014, progressing
    10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

    Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

  • #2
    Same here Susie.

    Been thinking about all those who were coming up for surgery, had recently had surgery, etc. who were unable to post. I hope everyone's doing well!
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

    Comment


    • #3
      I am so glad to see you all back! It was like part of my family (virtual) was taken away from me and locked away! Hope everyone is well!
      Tamena
      Diagnosed at age 12 with a double major curve

      Braced till age 15

      SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

      Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

      Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

      Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

      Comment


      • #4
        I am so happy to see that the forum is up and running again. I have email addresses of some of my forum friends, but hated the thought of never touching base with so many of you again.
        Karen

        Surgery-Jan. 5, 2011-Dr. Lenke
        Fusion T-4-sacrum-2 cages/5 osteotomies
        70 degree thoracolumbar corrected to 25
        Rib Hump-GONE!
        Age-60 at the time of surgery
        Now 66
        Avid Golfer & Tap Dancer
        Retired Kdgn. Teacher

        See photobucket link for:
        Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
        Before and After Picture of back 1/7/11
        tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
        http://s1119.photobucket.com/albums/k630/pottoff2/

        Comment


        • #5
          I missed everyone every day !!!

          oh my gosh SO GLAD TO BE BACK!
          I've been checking every day- hello to my scoli friends! hope all is well ! Jamie in TX
          57 years old.
          thoracic curve 68 degrees
          lumbar-sacral curve +/- 41 degrees
          Cspine C3- C7 fusion Nov. 2011 <done! success!!>, then scoli surgery T2- L4 or maybe to sacrum.
          Discogram/ myelogram pending. Surgery to be scheduled, maybe fall 2015. <scared but I know this is not going to get better>
          THANKS TO EVERYONE FOR SHARING EXPERIENCES AND KNOWLEDGE!

          Comment


          • #6
            Just checked in~~~

            Hi all~~~I am so glad to see we are up and running again! I felt pretty lost there for a while.
            Hope everyone is doing well. I am healing every day. I just passed my fourth month of the second revision surgery Dr. Lenke preformed. I am doing good. NO FALLS!! I am walking so much better this time than the first go around. He did some extra work and put more reinforcement in my back this time. Much better.
            I look forward to being able to staying in touch!! Hugs to all, Linda
            Linda Brozik~~60 yrs. old at time of Lenke's first surgery. 62 now!
            Surgery 2006 L3/4 L4/5 double fusion/ instumentation/ With 2 cages
            This started adult onset scoliosis
            July 1st, 2010/ surgery ~~fused T10 to pelvis (long rods/ screws)
            Oct.20th 2010, extended rods to T4 / did osteotomy at L3
            Oct. 29th 2012 Dr. Lenke St. Louis Mo. T4 to sacrum osteotomy anterior cage L3/4 titanium rods
            May 30th 2013 revision
            May 8th cervicle surgery 2016
            May 31st Dr. Gupta revision 2017

            Comment


            • #7
              That's great Linda. I was thinking of you and hoping all was going well this time.
              Surgery March 3, 2009 at almost 58, now 63.
              Dr. Askin, Brisbane, Australia
              T4-Pelvis, Posterior only
              Osteotomies and Laminectomies
              Was 68 degrees, now 22 and pain free

              Comment


              • #8
                Oh I'm so glad to see the forum back! It was so sad and distressing to think that all those valuable old posts were lost! So many times I've done a search on this site to find answers to questions. Thank you so very much to all the techies who got the site back up running! You have my eternal gratitude.

                I don't post often but I check posts here a couple times a week just to see how various folks are doing and praying for you. I've missed everyone! I just started posting on another board online and was really happy to see a couple names there that I recognized. But this board feels like home. You all were there when I needed it most in the months right after my surgery. So glad.
                1973 Age 15 diagnosed with scoliosis but told too old for surgery.
                2001 age 43 told too old for surgery, did physical therapy & traction.
                2001 to 2008 Intermittent use of home traction machine and TENS unit.
                2009 traction no longer effective - physical therapy.
                2011 More physical therapy. 2012 Collapsing scoliosis - MRI before surgery
                At age 53, surgery on October 2nd, 2012 with Dr Hey
                Fusion with titanium rods and bolts from T1 to pelvis.
                Post op x-ray

                Comment


                • #9
                  I am so happy to see this forum back! I missed it so much - it became a home for me too. Glad to see all the familiar "faces" again and I am always happy to welcome new folks. Thank you for fixing it!
                  I am stronger than scoliosis, and won't let it rule my life!
                  45 years old - diagnosed at age 7
                  A/P surgery on March 5/7, 2013 - UCSF

                  Comment


                  • #10
                    Yea!!! I've missed this forum!

                    Peg
                    Peg
                    61 yrs old
                    75 degree lumbar curve with thoracic kyphosis
                    T3 - S1 surgery with Dr. Buchowski in St. Louis, on 10/27/14
                    Working on healing in Columbus, Ohio!

                    Comment


                    • #11
                      Me three, me three!

                      Ed
                      49 yr old male, now 63, the new 64...
                      Pre surgery curves T70,L70
                      ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                      Dr Brett Menmuir St Marys Hospital Reno,Nevada

                      Bending and twisting pics after full fusion
                      http://www.scoliosis.org/forum/showt...on.&highlight=

                      My x-rays
                      http://www.scoliosis.org/forum/attac...2&d=1228779214

                      http://www.scoliosis.org/forum/attac...3&d=1228779258

                      Comment


                      • #12
                        Since the forum was down, I was down in Panama on Coiba Island teasing the local wildlife.....

                        I was so fat from the food, if I would have jumped on "Tito" I would have crushed him......

                        Had no problems diving except that I had a little trouble getting back into the boat.

                        The captain kept repeating, "Mucho comida!, mucho comida!"

                        Ed
                        Attached Files
                        49 yr old male, now 63, the new 64...
                        Pre surgery curves T70,L70
                        ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                        Dr Brett Menmuir St Marys Hospital Reno,Nevada

                        Bending and twisting pics after full fusion
                        http://www.scoliosis.org/forum/showt...on.&highlight=

                        My x-rays
                        http://www.scoliosis.org/forum/attac...2&d=1228779214

                        http://www.scoliosis.org/forum/attac...3&d=1228779258

                        Comment


                        • #13
                          Originally posted by titaniumed View Post
                          , "Mucho comida!, mucho comida!"

                          Ed
                          What in the world does this mean? I know mucho but is comida fish?

                          Tamena
                          Diagnosed at age 12 with a double major curve

                          Braced till age 15

                          SSBOB T12-L2 Anterior age 34. (October 22,2012) Dr. Robert Gaines Jr. ( Columbia, MO)

                          Revision Surgery T2-Sacrum with Pelvic Fixation Prosterior age 35 (November 13,2013) Dr. Michael Kelly (St. Louis, MO)

                          Revision Surgery L4/L5 due to BMP Complication age 36 (November 20,2014) Dr. Michael Kelly (St. Louis, Mo)

                          Revision Surgery due to broken rod scheduled for October 19, 2016 with Dr. Michael Kelly (St. Louis, MO)

                          Comment


                          • #14
                            http://translate.google.com/?tl=es#a...mucho%20comida

                            Much food

                            Ed
                            49 yr old male, now 63, the new 64...
                            Pre surgery curves T70,L70
                            ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                            Dr Brett Menmuir St Marys Hospital Reno,Nevada

                            Bending and twisting pics after full fusion
                            http://www.scoliosis.org/forum/showt...on.&highlight=

                            My x-rays
                            http://www.scoliosis.org/forum/attac...2&d=1228779214

                            http://www.scoliosis.org/forum/attac...3&d=1228779258

                            Comment


                            • #15
                              Originally posted by titaniumed View Post
                              Since the forum was down, I was down in Panama on Coiba Island teasing the local wildlife.....
                              Great pic Ti Ed!!!!! Love it!

                              sha
                              Sharon, mother of identical twin girls with scoliosis

                              No island of sanity.

                              Question: What do you call alternative medicine that works?
                              Answer: Medicine


                              "We are all African."

                              Comment

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