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marianm803
02-09-2005, 08:22 PM
Well, I saw the ortho surgeon today, who said my pain isn't bad enough, my curve is balanced and my life isn't impaired enough for surgery. His recommendations were to take OTC meds for pain, continue with weight-bearning exercise and yoga, and whatever helps the pain.

So the questions are:

Is the risk/pain of surgery & recovery WORSE than a lifetime of mild but chronic back pain??

If the surgeon that my insurance covers says he *doesn't* recommend it, but I still want it, can I ask him to do it?


I still plan on getting a second opinion...Anyone else been through this??

Marian

LindaRacine
02-09-2005, 08:44 PM
Hi Marian...

If you push it enough, I'm sure you'll get one of the Kaiser doctors to agree to do your surgery. I'm not sure, however, if that's the right thing to do.

It's just a draft, but I'm working on a webpage to help people consider all of the elements that might go into making the decision about surgery. You can view the draft at:

http://www.scoliosislinks.com/ShouldYouHaveSurgery.htm

Let me know what you think.

Regards,
Linda

lrmb
02-09-2005, 09:43 PM
Marian... That's odd. I would have guessed at 68 and with pain they would have agreed. My surgeons also commented on the curves "balancing" each other as a good factor in my situation (although my curves are much less than yours).

I guess it goes to show that some surgeons will not have people undergo this risky procedure unless they consider it absolutely necessary.

Having experienced terrible constant pain for over a year, and still restricted in activities on a daily basis, I appreciate your frustration with the pain. Did you quantify your pain on the pain scale with your MD or surgeon? I found it useful to keep a diary of my pain. When I showed my MD the piece of paper where I had noted that I was having pain between 2-7 on the pain scale every day for at least 30% of the day, she began to take a much more aggressive attitude to dealing with my pain. I had assumed I had been describing my pain, but obviously not in the terms that were needed. I've also come to the conclusion that the word "mild" is very dangerous when describing pain to doctors. One surgeon I saw seemed to completely forget that I still have bouts of extreme pain, after I told that at that moment I would describe the pain as "mild."

Let us know what happens with the second opinion, and as always we're hear to "listen."

Take care.
Laura

letty
02-10-2005, 11:11 AM
Linda,

The link you posted is really good.

Letty

LindaRacine
02-10-2005, 11:18 AM
Thanks Letty! Can you think of anything I should add?

--Linda

Mary Lou
02-10-2005, 11:32 AM
Linda,

I agree your link is great. Although my daughter is only 13 and has already had her surgery, we took the "quiz" and it turns out we scored 12 for surgery and only 3 towards not having surgery and most of the 3 didn't really apply to her. We already knew we made the right decision, but it was helpful to be reassured.

Keep up the great work and thanks for all you do.

Mary Lou

LindaRacine
02-10-2005, 11:34 AM
Thanks very much Mary Lou.

pal
02-10-2005, 04:03 PM
Linda,

Link that you posted is really good.

Thanks,
Pal

LindaRacine
02-10-2005, 04:12 PM
Thanks Pal!