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jrnyc
03-28-2013, 07:38 PM
i am wondering if anyone here has experienced this...

i have new pain...around the last 2 months or so that i've noticed
it...the pain started in my left hip...it felt like it was on fire...
then that stopped, and the pain seemed to be in right hip....
bad, deep pain/ache that was more in back of the right hip than
actually IN the right hip...
before any of the hip pain started, i noticed that just below both hips
felt numb/tingly...the kind of numb similar to when your mouth
is waking up after novocaine from the dentist....
at this point, i feel the numbness/tingliness just below both hips, and just
above that, on both sides, feels kind of bruised/sore.

i think this is all being caused by worsening of lumbar curve...
my lumbar curve was measured at 61 degrees in 2010..
2 years later, it was measured at 70 degrees...
both measurements were done with X rays.
my thoracic curve has remained 41-42 degrees since 2010.

has anyone experienced hip pain that seems to be caused by their
scoliosis...??? it seems to me to be reasonable for uneven pressure
from scoliosis curves to cause some kind of pain type symptoms in
or around the hips...
my pain is worse now on right side...and that is the side that i have
an exaggerated "waist"...my left side, same area, is completely straight.

jess...and Sparky

LindaRacine
03-28-2013, 11:23 PM
Hi Jess...

It could be your hips. It could be your back. But, it sounds like trochanteric bursitis to me. The feeling of bruising is the tip off.

--Linda

jrnyc
03-29-2013, 12:15 AM
thanks, Linda
it is gonna send me to a surgeon this spring...
i will also see what pain doc has to say at appt end of April...
this pain is BAD...and now constant...
takes swallowing NSAID...which i rarely got relief from prior to this...
and oxycontin...to get me moving...and i do not like needing
those meds on an every day basis!
this pain is relatively new.... and extremely unwelcome...

thanks for the advice...i will follow up with doctors...
am wondering if others on forum have similar pain....

jess...and Sparky

Pooka1
03-29-2013, 06:53 AM
Jess I'm so sorry to hear that. It sounds like it came on over only a few months. Maybe that is a clue?

I hope you get some relief.

Sharon

jrnyc
03-29-2013, 10:14 AM
thanks, Sharon...
i noticed today that the right hip area actually seems swollen...
the NSAID helps, which makes sense, and is first time such
a medication gave me any relief...
but it is not enuf...
i will discuss if there is something my pain doc can do for this...
i am curious to see a new X ray, too...
suspect that lumbar curve is increasing...
if nothing else, there is pressure being created on right side.

weather finally getting warmer in northeast...
it would be nice to be able to walk Spark and not
be prevented by this new pain...

happy spring...finally!
jess...and Sparky

jrnyc
04-01-2013, 09:00 PM
frustrating that doctors do not order X rays without "seeing"
existing patients...saying insurance companies balk...
i am trying to get Manhattan pain doc to order spinal X rays before
my next appt April 24th...i have to speak to someone at desk in his
office Wednesday...since the doctor sees me every month or two for
spinal pain, it might be possible...pretty sure getting hip X rays before
visit will not be, as doctor has never seen me for hip pain...
it is such rigid thinking...and delays things...
to not have X rays there when one walks into see doctor makes it more difficult...so the doctor has to say..."well, let's see what the X rays show and i'll see you next month"
thus, i expect this to take longer than should be necessary...

pardon me...just grumbling...and annoyed doctors and patients
get stuck adhering to rigid rules of insurance companies...
meanwhile, pain meds plus NSAIDs are helping, but not eliminating, the pain. (tells me inflammation is likely involved)

jess...and Sparky

Pooka1
04-01-2013, 09:18 PM
Hey Jess,

At every single surgical appointment, they took the radiographs first and then we met the surgeon who brought them into the room to show us. Don't they do that will adult patients???

jrnyc
04-01-2013, 09:58 PM
hey Sharon
office staff tell me insurance companies want to see a "note" in
the patient's chart, put there by the doctor, to "justify" the Xray
order...i am hoping there are enuf previous "notes" in my chart
at pain doc's office to allow them to mail me orders for spinal
X rays...but there is no note in my chart about hip pain...
so i am sure it cannot be "justified" to insurance company that
hip X ray is needed....
the top surgeons have X ray machines in their offices, so it is
not a problem with those surgeons...
but i will be seeing pain doc...he does not have X ray equipment...
just usual fluroscope.

am complaining about a nuisance...creates need for an extra visit
to doctor...you'd think the insurance company would want to save
the money from an extra visit....they are busy thinking doctors are
ordering "unneeded X rays"
(like we all want to glow in the dark from too many X rays)

pain makes me grumpy is what it is...
thanks for concern...
jess...and Sparky

loves to skate
04-02-2013, 12:38 PM
Jess,
I am so sorry for your hip pain. I will be seeing Dr. Hey tomorrow to determine if my hip pain is from my back or actually is my hip. He canceled on me last week so I hope he doesn't cancel me this week. Which reminds me, I'd better take my hip xrays with me for Dr. Hey to see. Fortunately my hip pain has diminished since a couple of weeks ago so I don't need to take extra pain meds. Good luck in seeing your Doctor soon.
Sally

jrnyc
04-02-2013, 12:44 PM
thanks, Sally....
i will be interested in what Dr Hey says your pain is from...
good luck with your appointment.

jess...and Sparky

JenniferG
04-02-2013, 03:54 PM
Sorry to hear this latest development Jess. I hope you don't need to wait too long to get an explanation and treatment.

Good luck Sally.

jrnyc
04-02-2013, 04:12 PM
thanks so much, Jen...
glad i have access to NSAIDS...i have no prescription for them of my own.
gave up on them helping me years ago...
thank goodness they are helping somewhat with this new pain...

jess...and Sparky

Irina
04-02-2013, 09:42 PM
Sorry to hear about your hip pain, Jess. And yes, insurance companies are all about money. Sometimes they try to cut corners here and there and then end up paying more. I hope you get answers soon and your pain goes away.

rohrer01
04-02-2013, 09:51 PM
Hi, Jess.
I'm so sorry to hear about this latest development. With a >70* lumbar curve, I can't see how your hips couldn't be involved. I have a shirt-tale relative whose scoliosis was the cause of severe hip degeneration. If the hips aren't sitting even, then they will respond to the uneven pressure on them, although you look surprisingly "level" when you stand. I hope you get your answers.

On a similar note, the shoulder surgeon wasn't convinced that much of the pain problem with my shoulder wasn't related to the scoliosis in my neck. He said it was a mess and I have a bulging C-6. He ordered a cortisone shot into the shoulder capsule to rule out nerve pain from my neck. It worked, so my pain problem is coming from my shoulder. The reason I say this is maybe there will be a way to rule in or out whether your pain is from your spine. I'm wondering if something similar could be done with you. But then again, I know what happened the last time you got cortisone. =(
I would just hate to see you "forced" into surgery before you are ready.

You are in my thoughts.

jrnyc
04-03-2013, 01:27 AM
Irina..thank you so much for your kind concern...and your thoughts are much appreciated.
i hope you recover fully from your surgery, to be pain free.

rohr...so sorry to hear that your shoulder is still causing pain, but
i am glad the shot helped for now, and that it answered your question.

my daily pain at my right hip is so severe it shocks me....
i am pretty sure inflammation is involved, but i do not know if worsening lumbar curve is causing the inflammation....
i need a new spinal X ray anyway, as my latest is from Jan 2012....
but i never have had a hip X ray...i cannot see anything on my 2012
X ray that tells me anything is going on at hip level....i do see how the curve gets worse there....
this pain only started a couple of weeks ago, so maybe a new spinal X ray will reveal something going on there.

you are right, rohr...
i am very leery about steroid shots...if a doctor told me a very small
amount of the stuff might help the hip...i still do not know if i would
risk it...only because there is a chance if my cortisol disappeared again,
it might not come back...and Addison's disease scares me.

jess...and Sparky

rohrer01
04-06-2013, 11:28 AM
you are right, rohr...
i am very leery about steroid shots...if a doctor told me a very small
amount of the stuff might help the hip...i still do not know if i would
risk it...only because there is a chance if my cortisol disappeared again,
it might not come back...and Addison's disease scares me.

jess...and Sparky

Jess,
I know someone with Addison's disease. He was pretty miserable before the diagnosis. He even slipped into a coma for about two days. No one thought to check his cortisol levels. They just thought he was a drug user because of his appearance (he "looks" the part), but he rarely even has a beer let alone using drugs. When he finally went to an endocrinologist they were finally able to diagnose him. Now he takes his cortisol and is doing fine. The only bad side effect that I've seen is weight gain. He was super skinny to start with and now he's getting kind of robust.

I would call your endocrinologists office and ask them if another steroid shot could cause your cortisol to crash again. Sometimes a shot is the best diagnostic tool there is. In my case, they were able to rule out neck problems and actually see what range of motion I do have in my shoulder. BTW, I'm set for another two months of PT. He wants to see if strengthening those muscles back up will stabilize the shoulder since the surgery is VERY difficult for him to do and even harder to recover. Ugh. =(

I certainly hope you get your pain under control. Living with shocking, severe pain is a nightmare. I feel so bad for you. It may be time for you to have surgery. At least find out what is wrong and what your options are. =(

((((HUGS))))

jrnyc
04-06-2013, 01:42 PM
hey rohr
i never went back to endocrinologist after 2 visits...
he was so eager to put me on meds....steroids...
so i could have spinal surgery!!!
ridiculous...i thought he was awful...do not care about his
"good" reputation i was told about by my GP
i am waiting to get spinal X ray orders sent to me from pain doc
in NYC....they won't give me hip X ray orders til i see him April 24th...

hope PT works for you.

jess...and Sparky

titaniumed
04-06-2013, 04:10 PM
Jess
I’m just seeing this thread and am sorry about this....You know my story with the hip and leg pain that was caused by 4 CT verified herniation’s that I battled for 6 years.....That was what drove me to my surgeon, I couldn’t take it anymore.

NSAID’s helped....Celebrex and Bextra which was stronger....(and banned due to the lawsuits) Ocean therapy helped, and so did laying on a VAX-D machine but that hurt like heck during the treatments. Hot water soaks also helped substantially for pain control.

I did my 1st session of cervical traction on a machine this morning and my arm is coming back. I want to wait a day before I post results but it proves it’s a disc protrusion issue resulting in radiculopathy. I will always believe in alternatives since they have worked for me in the past....There is a time for surgery, its knowing “when”, that’s the problem.

http://en.wikipedia.org/wiki/Radiculopathy

Lasegue’s sign for L5 herniation test.
http://en.wikipedia.org/wiki/Straight_leg_raise

Hang in there...We will both hang in there! (smiley face)

Ed

rohrer01
04-06-2013, 06:25 PM
I did my 1st session of cervical traction on a machine this morning and my arm is coming back. I want to wait a day before I post results but it proves it’s a disc protrusion issue resulting in radiculopathy. I will always believe in alternatives since they have worked for me in the past....There is a time for surgery, its knowing “when”, that’s the problem.

http://en.wikipedia.org/wiki/Radiculopathy

Lasegue’s sign for L5 herniation test.
http://en.wikipedia.org/wiki/Straight_leg_raise

Hang in there...We will both hang in there! (smiley face)

Ed

Ed,
I used to have a home cervical traction device since I've always had radiculopathy associated with my neck and left arm. If I still had it, I would send it to you. But, the point is, they do make them if this proves helpful for you. They have an anchor bar that slips between the mattress and box spring on the foot of your bed. You control how much weight to put into it. Mine used water or sand, but I used water in it. It didn't help my left arm pain much so I eventually quit using it unless I had bad flare-ups in my neck. It got left behind accidentally when I moved across country.

Jess,
I would ask them to order an MRI of your lower spine and hips. I had a hip MRI done once for some pain that I endured for over two years before finally going in. They injected some contrast dye into the hip socket. It sounds painful, but is not at all painful. They do it under fluoroscopy and then wheel you to the MRI machine. For some odd reason that I'm grateful for, my hip pain went away after that injection and never came back. My MRI showed nothing, so whatever was causing me pain either got washed away or something got pushed back into place. I'm sure yours will show "something" either relating to a disc or your hips themselves. I wish you could get answers sooner. I know it's hard to wait when you are in pain. Is there anything anyone is doing to help you with the pain while you wait? I hope it's under control. I just cringe thinking about the pain you are in. You are in my thoughts.

jrnyc
04-06-2013, 09:11 PM
hi Ed...thanks for your concern.
i am so sorry for your pain...and glad something helped you...
i hope it continues to work for you...and that no surgery is needed...
i am keeping you in thoughts and prayers that you did not inherit
any illness from your father.

rohr...thanks for your thoughts.
no one medicine is helping...
the pain doc in NYC office people were supposed to call me back
Friday about X ray orders... and they didn't call.
i herniated discs in lower spine years ago...
it doesn't feel like same pain...it feels like something in spine is
pressing on somewhere it didn't press on before...
the pain on right side is bad enuf to make me consider a SMALL dose
of steroid, it they told me it could help...am getting desperate!!!

i could see this kind of pain driving someone straight into surgery!!

jess...and Sparky

Sue
06-20-2013, 03:58 PM
Jess, Have you ever been fitted with a lumbar brace? On days when I have similar symptoms, especially while standing, wrapping the brace around really helps for a while.

JenniferG
06-20-2013, 04:49 PM
I think that's worth trying Jess. Prior to my surgery my pain was in the lumbar area and I often wore a magnetic brace, which was a wide velcro closing "belt" about 8" wide and I'd put it on tightly and it definitely helped my pain. Now while I doubt the magnets had anything to do with it, the firm fitting tightness really did help.

jrnyc
06-20-2013, 05:05 PM
thanks Jen...

the hip pain disappeared as mysteriously as it appeared...
now, occasionally i have burning pain in the hip that didn't hurt
much before...the left hip...but it doesn't last long...
i am taking the NSAID Declofenac...it helps to some degree...
hoping i do not become allergic to it, as i was highly allergic to Vioxx
and Celebrex...

the X rays i got were not much help...i made the mistake of not
going to a hospital radiology place...and the resulting X ray
was close to useless...they gave no curve numbers...
never again...need to get an X ray from a hospital radiology
place...when i get to someone who will order it again...

thanks for all the input..
i am not willing to risk any steroids at this point in time...
not worth only 3 months of relief...as nice as that is...

jess

jrnyc
06-23-2013, 02:46 PM
newer left hip pain...
sometimes like an intense burning feeling...
worse upon walking...like when walking puppy...

over the left hip...on the surface..feels numb...the numbness
has been there, i think, since before the burning pain...
strange...
since i "got over" Lyme, i am not used to numbness...
i have been ignoring this particular surface numbness for a while now...
but it is getting more noticeable to me...

jess...and Sparky

jrnyc
06-28-2013, 04:26 PM
went to pain management doctor in Manhattan and saw PA...
she gave me prescriptions and orders for MRI of left hip and lower
spine...
the left hip pain is still there...
sometimes it starts burning if i am just standing and doing something...
like washing dishes...
other times it burns when i try to walk Sparky.
she said the burning pain along with numbness on top of skin
over hip area "worries" her...

this time, i will be sure to go to radiology place affiliated with hospital...
no more X rays or MRI's at places that do not measure curves and do not
do full length X rays....

jess

rohrer01
06-28-2013, 05:19 PM
Jess,
I'm glad you finally got in to see someone. The fact that it worries a PA is no reason for immediate alarm. Sometimes they over react, in my experience. Although numbness usually means nerve involvement.

I just thought of something my doctor told me the other day. It's another diagnostic tool. My left SI joint has been really painful, but oddly enough not for the last few days which is great. Anyway, I'm considering getting a steroid SI injection but don't really know for sure if that's the problem. He said that he could inject a long acting anesthetic into the joint just to see if I get relief. If I do, then I can schedule the steroid injection. But with your new symptoms it doesn't sound like this is much helpful. However, keep it in the back of your mind if, in the future, you get localized hip pain again (without numbness).

My thoughts are with you!

JenniferG
06-28-2013, 06:36 PM
Mine too. Good luck, Jess.

jrnyc
06-28-2013, 11:16 PM
thanks, guys...
i appreciate the concern...

i am getting the MRI of left hip because the numbness on skin has
been there for awhile, but the burning pain feeling IN the hip is new...
so i want to know why it is happening...

rohr, i got great relief from SI joint injections until i was overdosed
on steroids...i do not get the shots anymore because i am fearful
of getting more steroids...my cortisol took 6 months to come back
up....it was so low the doctors were pretty shocked....it went down
to .39....and should never be lower than 5....ideally cortisol should
be around 14 or higher....i was so exhausted it took all my energy to
breathe...very scary episode...

if steroid shots lasted, it might be worth the risk to me...
but since i needed them repeated every 3 months...it is not worth
the risk...

jess

rohrer01
06-28-2013, 11:36 PM
Jess,
After what happened to you I'M scared to get steroid shots!
I hope they don't want to keep injecting my shoulder. I got some improvement in range of motion but the pain still keeps me awake at night.
I'm weaning down on the oxy for a two-fold reason. First, my lower back suddenly feels much better. Second, the shoulder surgeon was afraid of how he was going to give me adequate pain control after surgery. I don't want that to be the reason I can't get my shoulder fixed! Certainly they have to find a way to control the pain. There are people out there on a lot higher dose of oxy than I am.
I surprisingly don't feel that bad. My neck pain and some upper back pain are coming back. But I'm not having horrible withdrawals. I'm taking it slow. I'm down to 30mg a day for two days now. So happy! =)

LindaRacine
06-29-2013, 01:35 PM
Hi Jess...

I'm pretty sure that burning pain in the hip (as opposed to the groin or buttocks) is usually tronchanteric bursitis. You might want to check out some ILIOTIBIAL BAND EXERCISES (http://www.stretching-exercises-guide.com/iliotibial-band.html).

Since I started using a standing workstation in clinic, my trochanteric bursitis is bothering me again. I can control the pain somewhat by doing the standing IT band stretch. Since it's your left hip that burns, put your right foot in front of your left foot. Hold onto a table, chair, wall, etc. Then, relax your hips and push your left hip out. Stand straight in the sagittal plane (that is, bend to the right, but not forward).

Hope you get to the bottom of the issue.

--Linda

jrnyc
06-29-2013, 11:21 PM
thanks, Linda...
i will give the suggested exercise a try...
have to schedule the MRI this week...

it never occurred to me that one could have bursitis of any kind
in a hip...i know about bursitis in upper body...just never thought
it could happen in a hip...
interesting...
the pain, when it comes, is SO strong...like a fire!
never had a pain exactly like that before...
and the Diclofenac, though relieving some pain, doesn't seem to touch
the hip pain at all.
i walked Spark today for 25 minutes and the burning pain started...
we got a ride the rest of the way home!

thanks again...
and i hope your pain goes away soon!
jess...and Sparky

jrnyc
07-05-2013, 12:38 PM
have MRI of left hip and lower spine scheduled for June 9th...
i have never had burning pain like this before...intense...
even when a doctor examining me said my shoulders were
"warm to the touch" from Lyme Disease, it did not burn like this...
strange...i did not fall down or anything...
i hate not knowing what is causing it...
oxycontin is not relieving it...no pain meds seem to
touch it...
used to hurt when walking...now it is getting to the point
of hurting if i move...

jess

rohrer01
07-05-2013, 12:44 PM
Jess,
I'm so sorry to hear that this pain is getting worse. I was kind of hoping to hear that it just vanished as it did in your other hip.
I'm sure you meant July 9th, right? I hope you get some answers. I would still ask about contrast. They can see so much more. You can have it done both ways. But, why not kill two birds with one stone and get them both done on the same day? Sometimes I just don't understand the mentality of some doctors. They'll probably tell you that they need to see more and order one with contrast, anyway. Let us know how things go. I hope you get some relief!

loves to skate
07-05-2013, 01:53 PM
Jess, I am so sorry that you are having even more intense pain in your hip. Yes, I believe that lumbar scoliosis can cause hip pain because my Ortho Dr. locally would not do a total hip surgery on my until he ruled out the possibility of the pain coming from my back. I hope the MRI gives you the answer you need and that you can soon get the pain under control.
Sally

Pooka1
07-05-2013, 02:04 PM
have MRI of left hip and lower spine scheduled for June 9th...
i have never had burning pain like this before...intense...

Jess, I am so sorry about your pain. You have had more than your share of pain by a LONG shot.

If it is burning, does that mean it is nerve pain?

jrnyc
07-05-2013, 07:45 PM
whoops...have been distracted lately...
yes, meant July 9th....
i do not even want to think about any hip replacement...
it feels like the burning is IN the hip joint...
it is weird...it doesn't seem like nerve pain...it literally feels like it is on fire...
the previous hip pain was nothing like this...that was a sharp pain...that
thankfully disappeared...this pain is different...just intense burning...do not
understand why skin outside is numb over the same area as the inner burning...
maybe the numbness is from nerves...??
i sure do hope MRI gives me answers...
i am going to let it go with no contrast...i mentioned it on phone when i scheduled appt...they said the doctor should be able to see what he needs to see...
i am going to a good radiology place...connected to hospital...should have gone there for last scoli X ray!

thanks for the sympathy...much appreciated
jess...and Sparky

rohrer01
07-06-2013, 12:11 AM
Jess,
When I took my son in for hip pain, the orthopedic surgeon said that people with pain in the joint itself point toward the groin. I found that to be true for those two years that my hip hurt. Even though my son had a torn labrum (I think I said meniscus before, but am correcting myself) he reached for the outside of his hip to describe the pain. That's why the doctor gave his a steroid shot over the outside region. His pain went away and never returned. Apparently the labral tear was a finding that had nothing to do with the real cause of his pain.

With that said, is your numbness on the outside of your hip or over the inside groin area? It seems strange that there would be numbness associated with it if it's a worn hip joint. Numbness is almost always connected to pinched nerves. I would think that if it were a pinched nerve there would be more numbness down your leg and not just over the painful area. You sure are a hard nut to crack. I hope they figure things out for you. Your symptoms always seem not so straight forward. We should start a Red Herring club! I think my shoulder problem is throwing my doctors a curve. They just don't see it, but I do. I hope I'm wrong, but don't think I am.

I hope you can get some pain relief over the weekend. I know when they changed the formula of oxycontin, it no longer works for me. I have to take the quicker acting oxycodone to get relief. I wonder if that is part of the problem of why you can't get any relief with your meds. Many, many people have had the same experience. I looked it up when it didn't work at all this last time I tried it. Do hot baths make it feel any better, or is it just movement period that makes it hurt? I'm so sad for you. Hip pain is one of those really bad "I can't function with this" pains. Maybe the warmth of Sparky curling up by your hip will help. I know his cute little moral support will help you through. Scratches and tummy rubs for Sparky. I wish I could come up with a suggestion to help lessen your pain, but I can't. =(

JenniferG
07-06-2013, 01:56 AM
I hope they can give you some answers on the 9th Jess. Thinking of you.

jrnyc
07-06-2013, 08:04 PM
thank you so much for the sympathy, rohr...and Jen G

the burning pain is in the left hip...it does not run down the thigh
or left leg...pain stays in the hip, towards the outside.
it used to come on with walking...but now it comes when i am
absolutely still and doing nothing..
hope MRI this Tuesday gives answer to why this is happening...

again, sympathy is much appreciated.

have a great wkend...
jess...and Sparky

Susie*Bee
07-06-2013, 08:28 PM
Yes, I think so many of us are feeling sympathy for you, Jess, even when we don't post back. You're on our minds and in our prayers. I had heard at one time (I think from my PT) that burning was nerve related. Hope it goes well on Tuesday.

jrnyc
07-06-2013, 09:30 PM
thanks Susie...
i hope so, too...

jess...and Sparky

Confusedmom
07-06-2013, 11:48 PM
Jess,
Thinking of you. Yes, I think it could be from scoli. Funny, but my left hip is where I have my remaining pain. But mine is from a 3-4 inch screw, I think! Just has me wondering is yours could be tied into the s/I joint. Keep us posted. Have you tried a muscle relaxant?

Evelyn

rohrer01
07-07-2013, 12:30 AM
thank you so much for the sympathy, rohr...and Jen G

the burning pain is in the left hip...it does not run down the thigh
or left leg...pain stays in the hip, towards the outside.
it used to come on with walking...but now it comes when i am
absolutely still and doing nothing..
hope MRI this Tuesday gives answer to why this is happening...

again, sympathy is much appreciated.

have a great wkend...
jess...and Sparky

This sounds a LOT like what happened to my son. His pain was on the outside, too. It turned out to be tendonitis, I think. I don't know what they can do for that without a steroid shot. You've got to get the inflammation down if that's what it turns out to be. We are all eagerly awaiting your Dx. Hang in there. Just a few days to go.

Hugs

titaniumed
07-08-2013, 12:19 AM
Jess

I didn’t realize that you are this wiped out.... sigh...

They are going to MRI your lower spine right?

Ed

jrnyc
07-08-2013, 12:20 AM
Hi Ev...and rohr...
thank you both for your kind concern...

i do not have any muscle relaxers to take. taking a few hydrocodone a few hours after oxycontin seems to take the edge off the intensity of the burning pain.
also, i have been laying in bed a lot...it is waaaay too hot to walk Sparky puppy here lately....even at nite, it is still hot and humid...

Ev...i was getting sacroiliac joint injections that were giving me major
pain relief...til i was given too much steroid...i really miss those shots

rohr...i think any kind of "-itis" means inflammation....Linda Racine was guessing it might be trochanteric bursitis...guess i will find out on Tuesday...hoping i can get the radiology tech to tell me something. am not looking forward to laying on hard steel table...but we do what we gotta....

thanks again...
hugs and woofs to you both....
from jess...and Sparky

rohrer01
07-09-2013, 10:14 AM
Jess,
I'm thinking about you today. I hope your MRI goes well!

mabeckoff
07-09-2013, 04:54 PM
Jess,

I am thinking of you today. Hope all goes well

Melissa

jrnyc
07-09-2013, 10:05 PM
rohr and Melissa
thank you so much for thinking of me, and remembering my MRI today...
boy, do those metal tables feel crappy...
anyway, i had it done...took an hour and a half!
they said they did extra shots of spine because it was so curved to
their eyes that they wanted to be sure they got all of it on MRI pix...
there were 2 techs there...
not a word out of either...
they did spine for part of time and hip for rest of time...
i got the disc, and requested a copy of written report to me...
they said it takes up to 48 hours to be written...

again, thank you so much for thinking of me...
very much appreciated!

jess...and Sparky

leahdragonfly
07-09-2013, 10:45 PM
Hi Jess,

You must be sore after laying still that long!

Please let us know what you find out. Do you go back to see the ordering doctor soon?

jrnyc
07-10-2013, 10:50 AM
hi leah
i am due to see doc who ordered MRI end of August...i can call
and get appt sooner if need be...
his office is NOT good about calling people after tests...to the point that
if they do call you, you immediately guess it is bad news!

thanks for the sympathy...yes, i am more sore than usual...seemed to me
that it took a long time...had lower spine and then left hip done...
they said they took extra pix cause my spine was so curved they wanted
to be sure to get all of it in pix...but without long wait in waiting room,
i was there over an hour and a half...
felt like forever on table!

thanks again...much appreciate the concern...

woofs and a hug...
jess...and Sparky

rohrer01
07-15-2013, 10:47 AM
Jess,
Just wondering if you got your MRI report, yet, and what it says.
Thinking of you!

jrnyc
07-15-2013, 05:33 PM
rohr...thank you so much to you and others for the concern...
i JUST got the report today...there are 2 separate reports...
one for spine..long on conclusion...bad...my spine is worse than
i ever allow myself to think about...
and one on hip...two separate papers came in two separate envelopes...

bottom line on my hip....impressions were...

1. bone marrow edema in left symphysis and superior ramus most compatible with a stress injury without a discrete fracture line seen...

2. small amount of increased fluid in the trochanteric bursa compatible
with a mild bursitis.

3. no osteoarthritis of hip.

number 3 surprised me, as i have osteoarthritis of spine...
number 2 sounds like what Linda Racine suspected...trochanteric
bursitis...

not sure what number 1 means...

no call from doc who ordered MRI...the office there is AWFUL about
calling patients after tests...

anyway, i do not know how i injured my left hip...
sometimes my little angel puppy yanks me on his leash...he is amazingly
strong for a little Maltese...even my husband says so....
but i do not remember any injury or saying "ouch" while walking him
or anything...

the MRI of lower spine is unbelievably depressing to me...
it goes into detail of the "severe leftward convex scoli of lumbar
spine, apex of curvature at L2....extensive degeneration and plate changes on right side at L2 L3 and on left side at L5-S1...guess i know why i need fusion to sacrum!!!

(i have upper curve of 42 degrees that they did NOT include in MRI)

then they go into detail...on EACH level!

L1-L2 moderate to severe right sided facet arthropathy...mild foraminal
narrowing

L2-L3 mild disc bulge.... severe right sided facet arthropathy ...mild to
moderate right foraminal narrowing

L3-L4 disc bulge with severe facet degeneration....significant right
foraminal narrowing...mild narrowing of central canal

L4-L5 moderate to severe central canal stenosis with EXUBERANT (???)
facet arthropathy... moderate to severe bilateral foraminal narrowing

L5-S1 significant degenerative endplate changes....severe facet
arthropathy...narrowing of lateral recesses from bony hypertrophy
....significant left foraminal encroachment.

overall impression...
severe leftward scoliotic curvature wtih significant spondylosis at L2-L3 and L5-S1. Multilevel facet arthropathy with foraminal encroachment...moderate to severe central canal stenosis at L4-L5

whew...exhausted from looking at that...

ugh...not a spine i would wish on anyone, that's for sure!

jess...and Sparky

Doreen1
07-15-2013, 06:21 PM
Hi Jess,

I'm sorry to hear about the results but at least you know what you're dealing with to help you in deciding your next steps. I know you've consulted with different surgeon's. Did you decide on a surgeon for when the time comes?

jrnyc
07-15-2013, 07:19 PM
hi Doreen..
thank you so much for the concern...

have been told i need spinal surgery by Dr Boachie, Dr Lonner, Dr Neuwirth,
Dr Anand (flew to L.A. to see him a few years ago)
and a few other surgeons whose names escape me at the moment....
when i was planning surgery, in 2006, i chose Dr Lonner....
a problem with my left femur interrupted plans for spinal surgery...
i never went back to planning surgery....

i have different insurance now...not a great plan...a Medicare Advantage
Plan...i can change next year, if i can find something affordable (?)
that doctors take...i do not even know if Lonner takes my current advantage plan...

the time HAS come...but i have not moved forward with surgery...
i have changed my mind about having it and not having it a dozen
times...but have not been able to bring myself to go ahead with it...

i am wondering if walking differently because of spinal pain had some
impact on my hip...because i do not remember injuring it in any way...
strange....
i have heard of steroid shots for bursitis...but i had such a bad time
with an overdose of steroids that i doubt i would try them again.

hope you are feeling OK, with all you have been thru lately...

woofs from me and Sparky

tae_tap
07-15-2013, 08:23 PM
Jess,
That's an awful report! But as said earlier, you know the enemy and can now develop the right battle plan for you. Medicare advantage plan, all I can say is ugh! I can not stand them and really think they might have well been selling ocean view property in Missouri because those plans should've never exsisted. They portrayed it as a great affordable insurance and it is far from it.

Anyhow, I will be praying for a strong battle and a victory of less pain for you. Living with pain is exhausting and I wouldn't wish it on anyone! Stay strong!
Tamena

jrnyc
07-15-2013, 08:40 PM
thank you, Tamena...
but there is no battle plan i have in mind...
i had a huge cortisol crash the last time i had steroid shots..
my cortisol went down to almost zero...from too much steroid in
my system...very scary...complete and total exhaustion...
i was lucky my cortisol numbers came back up...
i think i might be offered steroid shot for bad left hip...
but probably will not try it...

there is nothing for my spine besides surgery...
and i have not gone ahead with that...

but i appreciate your kind concern and encouragement.

jess...and Sparky

Pooka1
07-15-2013, 10:18 PM
Jess! That is some report! What will you do?

jrnyc
07-16-2013, 01:19 AM
hi Sharon
thank you for your kind concern...
i do not know that i will do anything...
if i am offered a steroid shot for left hip, i am worried about my
cortisol crashing again..and if it does that again, there is no guarantee
it will come back again...
i do not think i will do anything with the spinal problems...i am not ready
to have fusion....
i think i have few options....one major one with surgery...but few
options in numbers of things that can be done.

my concern now is how i injured the hip so i do not do it again...

jess...and Sparky

JenniferG
07-16-2013, 04:17 AM
No wonder you're in so much pain, Jess. <sad face>

Susie*Bee
07-16-2013, 08:49 AM
So sorry to hear the news-- but at the same time it must be good (in a sense) to know what you are dealing with. I'm thinking of you and the decisions you are up against. (What to do, if anything...) I am so sorry you injured your hip!

rohrer01
07-16-2013, 09:59 AM
Jess,
After reading that report, it holds no surprises for me. Your left hip pain could be a combination of your hip injury, bursitis (which is extremely painful) and nerve impingement (which is also extremely painful). So it's no wonder that your hips hurt. I will try to give you my best interpretation from my layman's perspective.

To tackle these one at a time, I'll start with the hip injury. The fact that you don't remember injuring it doesn't surprise me. You were probably initially getting most of your pain from that pinched nerve in your spine. That's why the pain would go away if you rested or were able to do some things with relatively less pain. My niece was in boot camp for the Army and got stress fractures in her feet. She never injured them in one incident, per se, but they were fractured none the less. Just because the fracture didn't show up on your MRI doesn't mean that isn't what happened. It seems to me, if I recall correctly, that you had this burning pain and numbness where you ignored the numbness (probably nerve impingement) but that the burning got worse and worse. This could either be from the probable stress fracture or the bursitis. But rest may help and follow Linda's advice for the treatment of the bursitis. Steroid injections are the treatment for bursitis. But since you either can't or are afraid to get the steroid injection, I'm wondering if daily icing of your hip will help keep the inflammation and pain at bay. Ask your doctor what else you can do.

As for your back. Facet joint arthrosis is arthritis of the facet joint. Here is a nice little article that explains it pretty well:
http://www.bjj.boneandjoint.org.uk/content/69-B/1/3.full.pdf
From reading your report, I feel that you stand to have at least four complications from this condition.
1. Continuing and worsening pain
2. Continuing and worsening left nerve root impingement causing pain, numbness, and loss of function of the area that the nerve is involved with. A pinched nerve becomes inflamed and if it is pinched long enough can cause the nerve to die. This is permanent.
3. Worsening stenosis, which actually squeezes the spinal cord itself and cause pain and loss of function below the impingement.
4. Autofusion of your spine. The risk of this is sometimes you get to the point where you are inoperable. This happened to a friend of mine, as you know.

I know that you know all of these things already. I would definitely ask your doctor about them anyway. The thing that concerns me the most for you is the fact that you are back and forth about surgery. I would hate to see you opt for surgery and then be told you can't have it. My friend was willing to follow it through, but I'm not convinced that you are. I would seriously recommend talking to your doctor about it so that you know which decision is right for you. Of course, a surgeon is going to recommend surgery since that is what they do. Maybe since you are working with Dr. Lonner you can talk to him about it IF your insurance allows you to see him. If you talk to your pain doctor he may be able to come up with some alternate treatments to keep the pain under control if spinal fusion is absolutely NOT what you want.

My heart goes out to you and I wish you the very best!

mabeckoff
07-16-2013, 11:33 AM
Oh Jess. I am so sad for you. What a terrible MRI report

Melissa

jrnyc
07-16-2013, 05:30 PM
thanks, Susie, Jen G., Melissa, rohr, and others...
thanks for the caring...

i did not injure my hip that i know of...
i think it could be from uneven results from walking when my spine
is not "loaded" the same on both sides...Linda said something to that
effect...that it causes trochanteric bursitis to scoli patients often
for that reason....

the prescribed tx for bursitis when fluid is not infected is rest and ice...
ice has not helped much...i have been resting by not walking...
way too hot right now for Sparky...could only really take him out super
early or at midnite...even then the air is still thick with humidity...

i am not likely to allow a steroid injection for this hip thing...
i do not think it is worth it to risk my cortisol crashing again...
it is not a case of being afraid...it is the realistic chance of my cortisol crashing again
and not coming back a second time...
that would mean a lifetime of living on steroid meds, like a prednisone medication...
i rather avoid that, if possible...

Sparky can go to doggie play date tonite...it is Tuesday nites only near where
we live...and play in air conditioning with other little doggies...
so he will get exercise without walking...
it is 94 degrees out today...that kind of heat and humidity is not good for dog walking...no one is on the streets around here....not a dog to be seen...

the spinal report is not news...just getting worse, i guess...
i kind of put it out of my mind so i function daily...
do not function well, of course...
i have to get around to calling Lonner and checking on this awful Medicare
Advantage Plan...i can change insurance around January or whenever around
there it is allowed, but i do not know what i might change to...
can always see a doctor with a one time cash consult...just not realistic if surgery
were to happen....but i am not looking to spinal surgery for now...
and i am older....it is not something i am looking to...

thanks again for the concern and suggestions...
jess...and Sparky

jrnyc
07-16-2013, 08:20 PM
gotta find another doggie play group...my little boy, the "marker" was
kicked out of play group cause i won't make him wear a "doggie diaper"
and he "marks" even when i walk him extensively first...it is excitement,
i think...he stops after a while...
and...the guy who runs the place yelled at us...so unprofessional!!
they are worried about their precious walls being peed on...
then don't run a doggie play group!!

so...gotta find another way to get him exercise...
there is a group Sundays where they are used to such male doggie
behavior...

in mean time...midnite walks are back...
bad hip and all...

woof

titaniumed
07-16-2013, 09:40 PM
Jess

I saw your reports last year and you know what I’m going to say....I wrote a long one last night and deleted it since you are in a critical decision making state.

I do have another long post written. I think I should post here, but will leave all decisions up to you.

Poor Sparky. Did you see “The World’s Fastest Indian?” Where ground up dog’s balls were recommended to Anthony Hopkins for prostate problems? LOL Great movie about determination.....

http://en.wikipedia.org/wiki/The_World's_Fastest_Indian

Ed

susancook
07-16-2013, 09:58 PM
The decision of what to do is obviously up to you. A crystal ball would be helpful and each of us wishes that we had one. My 2 cent about surgery decision making: do lots of research about your problem and the choices available, interview enough surgeons until you find the right one, decide if surgery os the right dcision. if you choose surgery, have a quiet talk with yourself (and Sparky) and decide whether you are going to let go and TRUST your surgeon OR you are going to micromanage the process and worry about everything. Having done both at various times, I suggest the trust. I put a picture of Dr. Hu on the back of my cell phone on top of the word, "trust". I looked at the pictures a dozen times a day. Four weeks before surgery, for 5 minutes I wanted to cancel. Then 2 weeks before surgery, I stopped reading this blog (I read every thread for about 8 years past), and suddenly I just relaxed and decided to trust. A wave of hope and relaxation came over me. I felt awesome.

Whatever you decide, I wish you well. If we lived closer, I would dog sit Sparky for you!

Hugs, Susan

mabeckoff
07-16-2013, 10:09 PM
gotta find another doggie play group...my little boy, the "marker" was
kicked out of play group cause i won't make him wear a "doggie diaper"
and he "marks" even when i walk him extensively first...it is excitement,
i think...he stops after a while...
and...the guy who runs the place yelled at us...so unprofessional!!
they are worried about their precious walls being peed on...
then don't run a doggie play group!!

so...gotta find another way to get him exercise...
there is a group Sundays where they are used to such male doggie
behavior...

in mean time...midnite walks are back...
bad hip and all...

woof

Sorry Sparky

jrnyc
07-16-2013, 10:45 PM
thanks, guys...
Sparky says thank you for the sympathy...he meant no harm...little
angel guy...told him we'll go back to the further away play group this
Sunday...where they are waaay more tolerant!

Ed...ground up WHAT???!!

susan...thank you for the kind wishes and doggie offer...
been thru interviewing surgeons including flying to L.A. just to see one...
been there, done that...cannot bring myself to decide and not change
my mind...done it a dozen times...the flexible rods (mentioned on forum recently) interest me...
but i fear they are too many years away from being a reality (for lumbar
fusions) to help me...

Melissa....Sparky says "woof woof"

jess...and Sparky

Confusedmom
07-17-2013, 12:09 AM
Jess,

Nobody else is saying it, so I'm gonna. You sound like you need surgery.

Since you are still unsure (you know I can relate), you might ask your doctor how long you can wait and still opt for surgery. Like Rohrer says, what is the tipping point after which you would be inoperable?

I am not a big advocate of surgery in general and especially not in borderline cases. BUT if you are in debilitating pain and are having your daily activities limited by scoliosis, I think it is a reasonable option.

Jess, I am going to be in NYC for Labor Day weekend! I am going to have my husband and two kids with me, so I won't have a lot of time. But would you like to meet for coffee or something so you can see someone fused to the sacrum? I would be delighted to meet you in person!

Best,
Evelyn

Confusedmom
07-17-2013, 12:12 AM
P.S. Do they think your hip will heal on it's own?

P.P.S. If Rohrer is right and your spine fuses on it's own, you will still have loss of flexibility without the benefit of correction.

P.P.P.S. Surgery is terrifying and recovery is interminable, but it's better than living in agony -- I think.

titaniumed
07-17-2013, 12:38 AM
Jess

Now you are just going to have to see this film, here is a free version.
http://viooz.co/movies/5673-the-worlds-fastest-indian-2005.html

I wont tell you where the scene is at because you should watch the whole film....

Its all Sparky’s fault. (smiley face)

Ed

jrnyc
07-17-2013, 02:02 AM
hi Ev...thank you SO much for the offer to meet...
i can make it so i can be in NYC for Labor Day, i am pretty sure...
i would love to meet you in person, if it is still do-able for you!

Ed...gonna look at that when i am in better mood.....cause right now,
i feel sad for Sparky....maybe his feelings are hurt, maybe i am just
projecting...but he was definitely happy to be in play place for a quick
minute and was starting to play with other dogs when i had to yank him
out of there...
and anyone who would be mean to my dog...or value their "new" walls in
their new doggie place over my dog is crap in my book!
if they didn't want dogs going near their precious new walls in the place,
they should have opened a library and not a dog training place!
and that the owner yelled at us, in front of everyone, showed he is
not a professional...people told me they wished Spark could stay, cause
their little dogs liked my Sparky.
poor doggies...suffering due to a stupid human again.

thanks to both of you for your kindness...

jess...and Sparky

JenniferG
07-17-2013, 06:31 AM
Yaaay! I do hope you can meet Evelyn on Labour Day. I have long wondered how I can make a video of myself cleaning the bath, getting into the car, playing around with grandkids, and especially, getting dressed in the morning, walking along, etc., and send it to you so I can reassure you of what you can do post-surgery to pelvis. I do hope seeing Evelyn is a help to you. I look forward to hearing how it went (fingers crossed you two can pull this off!) When is Labour Day?

jrnyc
07-17-2013, 07:05 AM
hi JenG
Labor Day here is first Monday in September...it is "early" this year...i
think September 2nd...i should be able to make it, no problem...
i will be so grateful...so good of Evelyn to offer!
and thank you for the kind idea of making a video for me to see....
it is so thoughtful of you.
i think seeing, meeting those who are already fused to sacrum would
help immensely for people trying to make a decision....
yes, no one has a crystal ball to know how THEIR OWN surgeon will go,
but seeing it close up and watching someone move like that would
help get rid of the "robot" movements some of us have in our heads, no
matter how many patients already fused and doing well try to tell us
otherwise...
i am surprised no surgeon has such a video to show potential patients.

walked Sparky this morning just before 6 a.m. east coast time...easier
for me with the bugs...they love my "foreign" NYC blood, i swear...
i get more bites than any "natives" in CT i know of...the bugs prefer
"foreign" to "local" blood!!

thanks again, JenG
jess...and Sparky

Doreen1
07-17-2013, 09:35 AM
Don't let fear paralyze your decision.

JenniferG
07-17-2013, 05:35 PM
hi JenG
Labor Day here is first Monday in September...it is "early" this year...i
think September 2nd...i should be able to make it, no problem...
i will be so grateful...so good of Evelyn to offer!
and thank you for the kind idea of making a video for me to see....
it is so thoughtful of you.
i think seeing, meeting those who are already fused to sacrum would
help immensely for people trying to make a decision....
yes, no one has a crystal ball to know how THEIR OWN surgeon will go,
but seeing it close up and watching someone move like that would
help get rid of the "robot" movements some of us have in our heads, no
matter how many patients already fused and doing well try to tell us
otherwise...
i am surprised no surgeon has such a video to show potential patients.

walked Sparky this morning just before 6 a.m. east coast time...easier
for me with the bugs...they love my "foreign" NYC blood, i swear...
i get more bites than any "natives" in CT i know of...the bugs prefer
"foreign" to "local" blood!!

thanks again, JenG
jess...and Sparky

Yes, it is surprising that surgeon's don't have such a video for patients because you're not alone with your "robot" or "tin man" fears. But seeing Evelyn in the flesh will be even better. Roll on September!

We have midgies on the Sunshine Coast of Queensland, but I can always tell newcomers - they are covered in bites. How odd it is they pick out the holidaymakers and leave us locals alone!

JenniferG
07-17-2013, 05:36 PM
Yes, it is surprising that surgeon's don't have such a video for patients because you're not alone with your "robot" or "tin man" fears. But seeing Evelyn in the flesh will be even better. Roll on September!

We have midgies on the Sunshine Coast of Queensland, and I can always tell newcomers - they are covered in bites. How odd it is they pick out the holidaymakers and leave us locals alone!

jrnyc
07-17-2013, 06:30 PM
hi Doreen...it is not being able to change the spine once it is fused that
has me stopped in my tracks....so i guess that is fear...the known, even
pain, is easier to deal with.

JenG....i tell you, it is the "treat" of "foreign" blood of visitors that
the bugs love...they KNOW it is not the usual...like eating exotic food...
but ugh...yucky!

thanks to all who have replied...
i will not see the pain doc til end August, and the office hasn't called
about results...didn't expect them to...that is why i made sure to ask for
a copy of reports.

jess...and Sparky

Confusedmom
07-19-2013, 03:08 AM
Hi Jess,u thro

I will be there Fri. afternoon through Monday morning. A mini vacation before we have to take my son to Boston for his surgical follow up. (He tore his ACL playing football at age 9!) I'll PM you so we can make plans. My husband is the cruise director, so I need to check with him on what the best timing would be. It did help me a lot to meet Naptown78 pre-op. You will see that fused people look basically normal.

Interesting. When we were in St. Thomas the bugs were feasting on us, and the hotel manager also said they like the tourists.

Evelyn

jrnyc
07-19-2013, 03:15 AM
hi Ev
yes, i will definitely be able to meet you in Manhattan when you come
in....it would be great...thank you SO much!

let me know which of the days is good for you...
i can travel in from CT...or stay over nite in Manhattan if need
be...

i love the Caribbean...been going to the islands for years....
Jamaica, Bahamas, St Thomas...in St Thomas, we stayed
at Marriott resort...loved it.
yes, i have had my theory on bug bites for years....
i swear by it....do not know if it is scientific...but i know it is true!

did you experience all the "no see 'ems" bugs in St Thomas...?
they drive you crazy!


jess...and Sparky

loves to skate
07-19-2013, 02:06 PM
Hi Jess,
I just graduated from a walker to a cane and have missed a lot of what has been going on because it is hard for me to sit very long to use the computer. I just wanted to say how sorry I am to hear about your hip pain in addition to all of the spine pain. You also know how I feel about surgery. None of us want it but some of us very definitely need it and you and I both know you fall into that category. The only fear to fear is fear itself or words to that effect, I believe F.D Rooseveldt said it better that I did. I believe you are a women of faith, even a little faith the size of a mustard seed. Pray on that and ask God for all the faith you need to get through a big surgery. He will give it to you. You know who the good Doctors are, so you don't need to consult with anyone else. After that, you just need to get your insurance lined up.
Tamena, and Jess, not all Medicare advantage plans or bad or equal. I had Medicare Advantage in Massachusetts through Tufts and it was inexpensive and covered most of my hospital and Doctor's bills and all of my rehab hospital bills. Out of pocket, it probably didn't cost me more than $2,000.00 - $3,000.00. It's been 5 1/2 years, so I don't remember exactly. I now have a Humana Medicare Advantage plan and it cost's me $75.00 for my monthly payment, $40.00 for a specialist, $250.00/day in hospital up to 7 days, includes surgeon costs (I hope I read my contract correctly), nothing for visiting nurse and in home PT for two weeks and nothing for Physical Therapists on the outside. In addition, I received 10 free frozen meals. I also have very low co-pays for my medications. It's like Nancy Pelosi says, you have to pass it in order to know what is in it (not that I am a fan of Rep Pelosi) You just really need to find the best you can afford.
Wishing you and Sparky the very best - I gotta go, I can't sit any longer.
Love, Sally

jrnyc
07-19-2013, 03:13 PM
hi Sally
thank you so much for taking the time and effort to write and respond
to my thread when you are recovering from the hip operation you just
had...
so kind of you....
thanks so much for the words of sympathy and advice...

i hope you feel better every day...
i hope you heal quickly and uneventfully!
thanks again...
jess...and Sparky

jrnyc
08-08-2013, 12:07 AM
just noticed my report on MRI states i have a
"labral tear" of my left hip...that is the clinical information stated
at beginning of the report...

i looked up what that means...and
i read that if is does not get better, arthroscopic hip surgery to clean
out the tear is an option...(not an option i want to consider)

it seems "rest" for bursitis involves months of rest...
???????????????
i have not been doing much....but i am walking Sparky...
i am wondering if even that little bit of walking is too much...
sad...i used to walk all over Manhattan before pain got in the way...

hmmmm....it appears that 5 days of rest at the beach was not enough....
i have not gone over the report with pain doctor yet...see him end August..

jess

LindaRacine
08-08-2013, 12:50 AM
just noticed my report on MRI states i have a
"labral tear" of my left hip...that is the clinical information stated
at beginning of the report...

i looked up what that means...and
i read that if is does not get better, arthroscopic hip surgery to clean
out the tear is an option...(not an option i want to consider)

it seems "rest" for bursitis involves months of rest...
???????????????
i have not been doing much....but i am walking Sparky...
i am wondering if even that little bit of walking is too much...
sad...i used to walk all over Manhattan before pain got in the way...

hmmmm....it appears that 5 days of rest at the beach was not enough....
i have not gone over the report with pain doctor yet...see him end August..

jess
No PT? That's disappointing. This is one of those injuries that can be really responsive to PT.

jrnyc
08-29-2013, 03:02 PM
saw Manhattan pain doctor yesterday for first time since i got
the MRI of hip and spine...
he barely glanced at the reports.
insists i need a steroid shot for the hip...that nothing else will help...
i refused...he insisted the shot will "stay in the hip and not get into your
system"...that is what i was told about the spinal shots, the ones that were too much and crashed my cortisol down to almost zero!
i am not getting a steroid shot...

i waited an hour and a half for the doctor when i had a scheduled
appt...i was so disgusted.
he insisted on doing the thoracic botox shots....so i allowed it, when
all i wanted to do was get the prescriptions i needed and leave...
which i did after a record 10 minutes. never got the PT orders i
discussed with him.

medicine needs to come up with more than steroid shots...
or find steroids that have NO side effects!

jess...and Sparky

loves to skate
08-30-2013, 04:13 PM
Jess.
I hear your frustration, but you know that everything has the possibility of side effects. Your system could probably withstand one steroid shot. Don't forget that when you had the bad reaction, you had a lot of steroid injected. One shot will not do what all of the others did. Thats is why you are usually limited to three steroid shots per year. You need to find another pain management Doctor who knows that steroids get into your entire system. Life sucks when you are in a lot of pain. I wish I could help you.
Sally

jrnyc
08-30-2013, 06:37 PM
thanks for the sympathy, Sally...
it kind of shocks me that the hip still hurts...
and it is a sharp pain, too...
i really thought with enuf rest it would be gone...
i do want to find another pain doc...
sad...he used to be...different...
his office is always so crowded, too...
i wonder about what patients are coming in for...
he is not the one who overdosed me on steroids...
it was a doctor in CT who did that...
but the one in Manhattan is just getting too busy, annoying, and
dismissive....

jess...and Sparky

jrnyc
09-05-2013, 09:59 PM
a big thank you to Evelyn..."confused mom"
for meeting with me...and Terri...in Manhattan and spending over an
hour answering questions, showing us how she moves, her scar.etc...
she took time out of her vacation weekend...and was so completely
gracious, kind, considerate and understanding!

i would never guess that Evelyn has surgery from looking at her or
watching her...
the only thing that gives it away is that she cannot bend...
otherwise, there is no clue...she walks and sits as if she never had
any surgery on her spine...and she looks terrific...

thank you so much Ev...
so kind of you...and i am forever grateful...

jess...and Sparky

Confusedmom
09-06-2013, 11:34 PM
Jess,

I have not been able to get on this site since I met you until tonight. So frustrating! But, thank you so much for your kind words. I didn't realize when we met you were still having the very intense hip pain. You hide it well!! I appreciate you coming my way to meet me. I hope it was not too painful for you.

Have you tried massage or heat or cold for your hip? Or maybe one of those stick-on patches you can get at the drug store. I know these are minor things, but any relief is better than none!

Well, thinking of you and just wanted to let you know I saw your message and appreciated it. I really enjoyed meeting you & Terri.

Best,
Evelyn

jrnyc
09-07-2013, 03:31 AM
hi Ev
it was well worth the effort to come in to Manhattan to meet
you...and i was so happy to see that you walk and sit so normally...
no one would guess from watching that you had such a huge surgery...
i am so glad you had such a good outcome!

have tried rest and ice....hasn't changed the pain, which has been
going on for months...
i am thinking about trying one steroid shot...hoping my body could handle
a small dose...without any bad cortisol reaction...pain doctor swears
nothing else will help the kind of hip pain i have, with the bursitis that
the MRI found to be there...

thanks again Ev...i had a nice time...after all you have been thru,
you are fun to talk with...and have a great smile!

jess...and Sparky

jrnyc
11-13-2013, 08:55 PM
hi dixie's mom...
sorry you are in pain...
just sent you a private message

jess...and Sparky

jrnyc
11-18-2013, 03:16 PM
shocked at how much pain i am feeling without NSAID help...
see pain doc's PA tomorrow in NYC to discuss meds...
but will probably schedule steroid shot for left hip for December....
figure it is less area and will require less of the steroid...
the spine is bad but i cannot risk the amount of steroid it requires
to relieve the pain...takes alot, and i cannot risk the cortisol drop
again...no guarantee it would come back a second time...

very discouraging that the NSAID was what was causing pain reduction.
not healing of left hip...

ah well....
this is not for sissies, as i think Sally (loves to skate) wrote...
neither is aging...

jess...and Sparky

Pooka1
11-18-2013, 05:25 PM
Oh my gosh, Jess. That sounds crazy bad.

I hope they help you.

Sharon

JenniferG
11-18-2013, 06:17 PM
Sorry the pain has come back so badly, Jess. Good luck tomorrow!

titaniumed
11-18-2013, 08:35 PM
Jess

Your not taking any NSAID’s? Are you taking anything at all?

What about a warm pool. Warm water therapy?

I hope this flare up passes soon.

Ed

jrnyc
11-19-2013, 05:39 AM
hey guys...
thanks for the concern...

Ed, i reacted to the Diclofenac, as i feared would happen, about a week or so ago....so i am now allergic to Vioxx, Celebrex, and Diclofenac...
which makes NSAID's off limits to me....
i didnt realize how much pain relief i was getting from Diclofenac til i stopped taking it completely...

i have hydrocodone and oxycontin...but am needing to increase how much of it i take without an NSAID to cut the inflammation...

so the hip hurts, and spine feels worse...makes me wonder about surgery...

problem is, too much steroid and my cortisol will crash...so i have not had any steroid shot in over a year...

therefore, narcotic pain meds are all i take lately...

thanks again...Sharon, Jennifer, TiEd....for the replies..
am seeing pain doc in Manhattan today...
the train ride is not fun when in pain...
will probably cave in and ask for steroid shot in hip for next month...it is a small area to put shot in hip, compared to entire spine, as i used to
get.

i am staying over in Manhattan tonite, returning to CT Wednesday...will not be back online til Wednesday nite...
but seeing Manhattan again, especially at nite, is good for my soul...

jess...and Sparky

Pooka1
11-19-2013, 06:38 AM
That sounds like a good plan, Jess. They have to help you.

Best regards,
Sharon

Confusedmom
11-20-2013, 10:58 PM
Jess,

I'm sorry the pain is getting worse again. Is there anything you can do to modify your routine? When my back/leg pain was at its worst I used a shower chair and sat down to put on makeup, for example. I also would put one foot up when I had to stand--like to wash dishes I would put one foot on the inside ledge of the cabinet below. I would try to lay down for a few minutes frequently. Hearing pads. And what about topical pain relievers - the patches or creams? Just brainstorming here. I'm sure you've probably tried all of this already.

Thinking of you,
Evelyn

jrnyc
11-21-2013, 01:28 AM
hi Ev
thanks so much for your reply and concern.

i just got back (this afternoon) from seeing PA at the pain doc office in Manhattan...
i got a script for PT for the left hip. i was scolded for having increased
the hydrocodone just for a FEW DAYS after i reacted allergically to the
NSAID and needed relief from the increased pain... i thought it better to
increase the hydrocodone rather than the oxycontin, but was told the
opposite...that i was getting too much tylenol and would be better to
increase the oxy if i needed to take more pain meds....
so i will be going up to two oxycontin from one a day, and staying at
the previous maximum of 6 hydrocodone a day, IF needed...
was also given a script for skelactin...(splg??) have never had it before...
but will pick up prescription and see if it helps my pain.

i also agreed to a steroid injection in left hip for Dec 11th if i can be
squeezed into schedule that day....i am VERY NERVOUS about that...
it has to be the minimum amount of steroid possible...i am very scared
that my cortisol could drop to zero again...
i thought left hip would need less steroid...but PA claims it will be same
amount as if doing spinal injection....that shocked me and i said i need to talk to pain doc about it...

i mentioned to the PA that i am wondering about surgery...
as usual, she was against the idea...in my experience, pain doctors and
their staff are against fusion surgery.

thanks for the concern...
hope you are feeling well, Ev..
have a wonderful Thanksgiving
jess...and Sparky

leahdragonfly
11-21-2013, 09:24 AM
Hi Jess,

so sorry to hear about your hip pain---I hope the injection will go well and provide some needed relief.

No surprise that the pain office was against surgery--they really have no clue about fusion surgery for severe scoliosis vs. the small garden variety one or two level fusions that so many people have for simple herniated discs, many of which don't seem to help apparently. Please don't listen to their opinions about surgery.

If you are wondering at all about surgery, it seems like Lonner would be a great source of accurate info that pertains to your spine specifically.

I hope you and Sparky have a wonderful Thanksgiving. Does he get to taste any Thanksgiving treats? We have two greedy dogs with iron stomachs, so they will get to enjoy some turkey!

rohrer01
11-21-2013, 09:39 AM
Jess,
I hope you make it home safely today. I know you LOVE the city and will miss it.
I had to quit taking my NSAID (naproxen sodium) because it was ripping my guts apart. The other ones designed to be lighter on the tummy just don't have the strength to help. I didn't realize how much pain I was in until they disappeared from my diet. At least I can start them again for a little while. I can only use them for about a month at a time, then my guts hurt so badly that I can't eat and lose a bunch of weight that I can't afford to lose. I got chewed a little by my nurse for losing 4 pounds this last visit.

I don't understand why your pain management team is so against surgery for you. They aren't like that with me. Well, one doctor was, but he's gone. Do they want you to have permanent nerve damage? Don't they understand that's what can happen? It just doesn't make sense.

I hope you feel better on the upped oxycontin. Since they changed the formula and put plastic polymer in it, it just doesn't work AT ALL for me. Yes, you have to watch your acetaminophen intake. For those of us taking it regularly they don't want you going over 3,000mg/day. In fact, I think the FDA lowered it for everyone from 4.000mg to 3,000mg/day. It's a MAJOR cause of liver failure. One doctor told me that it's the most dangerous drug out there for that reason alone. My doctor told me to try to keep it down if I can.

I hope you get to feeling better soon. I'm sure December 11th can't be here soon enough... with apprehension, of course. I hope it works with no ill effects.

Take Care

jrnyc
11-22-2013, 12:12 AM
thanks Gayle and rohr, for the kind comments...
the train back from NYC left Penn Station an hour and a half late...
made for a long day...

i have never met a pain doctor yet who was in favor of fusion surgery...
they all said not to do it for pain relief, "as you may not get any"
and only to do it if the progression of curves is very fast and very bad...

am hoping the PT, the skelactin (splg?) and the steroid shot next month
will help reduce the level of pain, along with an additional oxycontin a day...i held off on increasing the oxy for as long as i could...
and will have fingers crossed that the steroid does NOT bring my cortisol down.

i hope everyone has a wonderful Thanksgiving..
Sparky is my little angel that i am so very thankful for...he will get a few little Thanksgiving treats for the holiday...

i am thankful for the people on this forum, too.

rohr, i am sorry the oxy doesn't help you anymore, but glad you can still take an NSAID,
even if it is not continuously...whatever you can do to get the meds to help, without
them ripping your stomach up..
Gayle, i hope you are well and free of pain.

jess...and Sparky

rohrer01
11-22-2013, 11:42 AM
Jess,
I've taken Skelaxin before. It's a mild muscle relaxant. I found no relief with it and coupled with the other meds I was on at the time, hydrocodone and diazepam, it made me throw up. My two muscle relaxants that I use now are baclofen and klonopin (clonazepam). This combination is much more helpful. Although, I found Soma (carisoprodol) to work quite well, my physician is not willing to prescribe it. When it's metabolized it first acts as a muscle relaxant, then breaks down into a tranquilizer type med like the benzos. He said it can be quite addicting. Honestly, I wish I could still take it now and then. I do have some left, but I'm not in to mixing all these meds! I do want to stay alive. LOL

JenniferG
11-22-2013, 05:52 PM
Good luck Jess. I hope one way or another, you can reduce this pain, safely.

jackieg412
11-22-2013, 06:15 PM
Have a great Thanksgiving--and hopefully a better feeling day!

jrnyc
11-22-2013, 11:31 PM
thanks, rohr, jen and jackie...

i started the Skelaxin tonite...it is 800 mg and says to take it
twice a day...
took it almost 2 hours ago...all i notice is i feel dizzy...
i notice nothing different in my muscles, or how my back and left hip
are feeling...
i don't like this feeling...i do not know if i will take even one more of these
pills...i really do not feel good...and i think i will not be able to take Ambien
to sleep tonite...but do not think this dizzy feeling will help me sleep...

thanks again for the good wishes, you guys...
jess...and Sparky

LindaRacine
11-23-2013, 01:03 AM
i mentioned to the PA that i am wondering about surgery...
as usual, she was against the idea...in my experience, pain doctors and
their staff are against fusion surgery.



Hi Jess...

I'm happy to read that you're finally going to try PT. I think of all the things that can help, it's the most promising. In my experience, the only thing that seemed to have helped were injections, PT, and anti-inflammatories. I was taking both oxycontin and percoset for the TB pain after my surgery. I found that narcotics were a total waste. When I stopped taking them, the pain didn't change in the slightest. Unfortunately, I couldn't take anti-inflammatories when the TB first started (because of the fusion surgery), and I can't take them now because they've torn up my stomach. Injections worked well for me, but, like you (though for different reasons) I'm concerned about repeated injections.

Are you considering surgery for the TB, or are you talking about back surgery? Unfortunately, I think back surgery has a bigger risk of making the TB worse than making it better. There is surgery for TB, but I can't really find anyone who says its worthwhile.

--Linda

jrnyc
11-23-2013, 12:35 PM
Linda, i was thinking about back surgery...
not good to hear that it could make hip pain worse..
ugh...doesn't make sense to me...
yes, i will arrange some PT sessions next week...
though i have my doubts...ever since PT in NYC told me there
was nothing they could do for my spine...

ended up that the Skelaxin made me dizzy, which i didn't
like...it did help me sleep, which was good...so i didn't need any Ambien...
AND...only time any med has helped constant neck pain...
arthritis in neck, from Lyme and a previous car accident...
supposed to get an MRI of neck...not sure why..
(already had X-ray)...

so i am pleased the Skelaxin helped severe neck pain...
and will probably just take the medication at nite...

hope you are feeling good...
your PM box is filled...

jess...and Sparky

titaniumed
11-23-2013, 01:24 PM
Linda, i was thinking about back surgery...



When our spines are in really bad shape(as adults) and we cant maintain after exhausting all efforts, that’s an indicator. I do agree with PT, it was the one thing that helped me the MOST, before and after surgery. And I totally agree with Linda about the meds being a total waste. I like using the words, “Not worth a damn” (with Copenhagen tucked in my lower lip) Hey, that was pretty funny! “Hey cowboy, does your horse use chew too?” (smiley face)

I also had MAJOR pain in my hip, 1”circle on my right side greater trochanter, and flames on my ankle.. I don’t know and cant say exactly what caused it, but I do know that that pain subsided immediately after surgery. This was most likely some sort of impingement in my lumbar. Funny how pains in specific areas can originate in other parts of the body. A classic example is sciatica pain.

Meds help, we cant do without them sometimes, but they can be destructive. Its in the fine print. Steroids are also not the safest things in the world...

I don’t like taking drugs that cause dizziness. Are they worth a damn?

That’s ok, Copenhagen isn’t worth a damn either.....

-------------------------------------------------------------------------------------------------------------------------------------------------------------------

Jess, your x-rays looked bad last year. I know, mine were a train wreck also.....Maybe a visit to one of the scoli heavies in NY again would be a good idea. I know, you have done that a few times, but I think you should go pay another visit and maybe you will hear the words you need to hear. Each surgeon will convey different thoughts...and my decision was based on these meetings, and upon hearing the words “It will help”. After hearing what could go wrong.....this is what I needed to hear, and I needed help. BAD. I was dying. I couldn’t do it anymore.

Do not influence their decision at all. I know my surgeon sent my x-rays around town, (most likely TCSC) and that’s great, but if several surgeons are looking, you cant throw a wrench in the gears. A surgical plan is a surgical plan.

Ed

jrnyc
11-23-2013, 03:23 PM
thanks for the thoughtful concerns, Ed...
i didn't feel good reading that fusion surgery could possibly make
bursitis in the hip worse...
but doctor thinks my left hip problem is really caused by
uneven loading of spine...IF that is true, i would think
surgery might help the hip, because it would correct the
uneven loading...

i have to find out if Lonner takes my "new" insurance
of the Medicare "Advantage" variety...it is no advantage...
one surgeon i wanted to see in Manhattan does not take it...
i am in the worst pain so far...and i understand how those in pain
choose surgery...
i am still so afraid of it, though....and the PA saying "what if you
come out worse" doesn't help, of course.

jess...and Sparky

WLB1
11-23-2013, 04:16 PM
Hi Jess, and Sparky,

Thanks for your comments on one of my threads. After I was referred to my pain Doc by my surgeon, I was immediately tested for SI joint pain. I drew each knee up to my chest and then turned the knee as far as I could to the outside. Ow. The hot poker burning feeling the back of my pelvis that radiated up my sides and down my legs is classic si joint pain. That is as positive a test as can be done for the SI joint, which is the semi-joint that fuses the sides of the pelvis to the sacrum. if your curves unbalance your pelvis, you will feel it in these joints, which take the brunt of the forces generated by the curves to the pelvis. The pain Doc did two SI injections, which is both the definitive diagnostic test for the SI joint and the temporary fix for the condition. If it makes you better, it is the SI joint. If it doesn't, it isn't. SI joint issues don't show up on X-ray. For me, the injections were a god send. Most of my low back pain was generated by those suckers. I wish I had the injections before my fusion. I would have had to have surgery anyway, cause I was loosing bowel control, but I would not have had to deal with the awful post op pain.

Jess if I were you, I'd think about calling the pain folks and asking them about your SI joints. It couldn't hurt to ask!

WLB1
11-23-2013, 04:34 PM
Jess, I am new to the forum and not aware of the travails you suffered from your SI joints. I tried to delete it, then to modify it. Never mind! You know as much as me. My burning pain did come from my SI joints.

jrnyc
11-23-2013, 04:43 PM
that's OK, WBL1...i was just writing to you about the overdose
i had with steroids, and how it caused my cortisol to crash to
almost zero...that makes you feel exhausted...like having mono...
took 6 months to come back...and i was so lucky my cortisol
level came back...

i am so glad you got relief from the shots...
just be careful not to get too much steroid...

i am going to risk the smallest amount of steroid possible for
a shot in left hip next month...with my fingers crossed that it
doesn't touch my cortisol level. the hip thing has been going
on since last May/June...and when i thought it was healing, it
was just the NSAID helping the pain...which was fine, til i had
allergic reaction to the NSAID...i cannot take any NSAIDs anymore.

i hope you continue to feel better from the shots...
and have a wonderful Thanksgiving holiday.

jess...and Sparky

rohrer01
11-23-2013, 05:09 PM
Hmmm... The doctors think I have left SI joint problems. I tried the knee up thing and it didn't hurt at all. Maybe it's all in my lower back?

jrnyc
11-23-2013, 05:14 PM
hey rohr
what happens if they press hard into the buttocks...individually,
one side at a time, with a thumb...? do you go thru the roof???...

the shots for SI work so well...if they can just figure it out...
i had almost every kind of shot before they figured it out...
and then... bingo..the SI shots were first shots i ever got that
relieved my back pain....wish i could still get them!

i hope your doctors can figure everything out that is going on
with you...and that they can alleviate your pain..

hugs and a tweet...
jess...and Sparky

LindaRacine
11-23-2013, 10:42 PM
your PM box is filled...

jess...and Sparky

Me? Looks like there's plenty of empty space.

rohrer01
11-24-2013, 02:51 AM
hey rohr
what happens if they press hard into the buttocks...individually,
one side at a time, with a thumb...? do you go thru the roof???...

the shots for SI work so well...if they can just figure it out...
i had almost every kind of shot before they figured it out...
and then... bingo..the SI shots were first shots i ever got that
relieved my back pain....wish i could still get them!

i hope your doctors can figure everything out that is going on
with you...and that they can alleviate your pain..

hugs and a tweet...
jess...and Sparky

They pressed my hips together and that caused pain. I think that he pushed on the little dimple area, too, which also caused pain. Now I don't remember for sure what all he did. I had a SI belt that I thought didn't help at all. Then one day when I took it off, WOWZA did that pain ever come back intensely!!! But it hasn't been like that consistently so I'm just not sure. I'm going back for another injection on the 2nd. We'll decide whether to try another epidural or the SI when I go. Things definitely radiate to the left. I couldn't get out of bed today I hurt so bad. My lower back AND my whole left leg, especially the outside of my lower leg. But it could be the muscle disease causing the leg pain. The only way to rule that out would be to get the SI injection. It's just that the very first and second epidurals that I got gave me 100% relief from the lower back pain. I thought it was a miracle! Now they don't seem to help that much at all. :(

jrnyc
11-25-2013, 04:22 PM
hey rohr
i am so sorry you are in so much pain today....i hope resting helps
and that it feels better later on tonite...

last week when i was at pain doc, the PA pressed into the back,
midway down the buttocks...i went thru the roof...the pain went
right thru me...

i never got much help from epidural shots...very first time in
Columbia Pres Hospital in Manhattan the injections helped a little
for a few weeks...that was it...the next two times...nothing...
it took a long time and alot of other injections to figure out where
to put them...and then bingo...helped right away...
but it took alot of volume of steroid to help...so i ended up with
the overdose...

just be careful with your next injections...no matter where they
put them...to not get too much of the steroid...
i am nervous about getting steroid shot in my hip Dec 11th...
and will have my cortisol and adrenals blood tested after
that, towards end of December....

jess...and Sparky

JenniferG
11-25-2013, 06:10 PM
"i am still so afraid of it, though....and the PA saying "what if you
come out worse" doesn't help, of course."

I doubt a surgeon would do your surgery if he thought there was a good chance you'd be worse. I think there's a far greater chance you'd get some, if not a lot, of relief, but I'd rely on the surgeon's advice and if he's willing to do the surgery, I think that to the best of his great knowledge, you're likely to be better off.

I understand that fear. I had it too - cancelled my first date for surgery but then, a few months later, re-booked it. I hate to hear about the pain you're in but until you're ready, it's not time to book. But still worth thinking about it, talking about it, getting used to the idea. Good luck with the steroid needle.

jrnyc
11-25-2013, 07:48 PM
thanks, Jen
you are always so helpful and supportive...

jess...and Sparky

jrnyc
01-15-2014, 10:37 PM
i have been without NSAID's since my latest allergic reaction at the beginning of December...and my left hip pain has gotten worse...
so i am caving in and having steroid shot in left hip on January 24th..
pain doc was too booked to arrange it sooner...
i am taking a chance...my cortisol showed a drop on latest blood work (end of December)...went from 14 to 10.5...no apparent reason why...
hormone doc in CA guessing it is from stress of pain...constant
hip pain, now there even without any activity on my part...

i hope the smallest possible dose does the trick...i cannot risk getting anything more than that...
i had no idea the Diclofenac (splg?) was helping me so much until i had to stop taking it.

jess...and Sparky

LindaRacine
01-16-2014, 12:12 AM
Hi Jess...

Hope the injection doesn't cause a reaction. It's been quite awhile since you've had any, so maybe you'll be OK. Wanted to let you know that I've been sleeping on a memory foam mattress for a few weeks, and my TB is a lot better. It's strange, because prior to that, I slept on a top of the line SleepNumber bed with a memory foam topper. And, I had a memory foam topper on the bed before that. I would have thought the mattress would give me the same result as the topper, but there appears to be a difference. For the record, THIS (http://www.overstock.com/Home-Garden/Select-Luxury-Medium-Firm-14-inch-Queen-size-Memory-Foam-Mattress-with-EZ-Fit-Foundation/7463839/product.html?refccid=LAK2744MOKP26PKKLPGW5CYESU&searchidx=2) is the one I bought.

--Linda

rohrer01
01-16-2014, 01:10 PM
Hi, Linda.

I would have thought a sleep number with the topper would have helped, too. I thought about getting one, but you can "try" it all you want, but until you've slept on it for a while, you just don't know if it will help.

I also read your review. You said "very soft", but the bed says "medium-firm". So is the bed itself softer than they advertise it?

My hips were hurting last night. I had an episode of my right hip hurting that lasted a good two years. When I finally, out of desperation, had the MRI w/contrast it showed up nothing. After the MRI my hip suddenly quit hurting as well. I just thought that I had a tear in the meniscus and when they injected the contrast it caused it to flip back into place. I'll never know. They wanted to do an arthroscopic exploratory surgery and I said, "No way!" As long as it isn't hurting anymore, I'm not messing with it. I hope last night wasn't a prelude to more hip pain!

The only bed that I've gotten relief from for my lower back pain is a Craftmatic Adjustable Bed (1993 model - just the base) with a memory foam mattress + egg crate that I bought from Wal-Mart for $200.00. I think it's because it raises my legs into a more comfortable position. But, this is bad because I can't sleep with the hubby when I need it. It's a twin and he can't sleep on a bed that isn't flat. :/

Are you going to sell your Sleep Number bed? I'm just curious. What size is it? I suppose the cost of shipping it more than halfway across the country would make it out of the question for me to buy it from you, anyway. Last year we bought a gently used king size Sealy Waikiki Beach Reflexion bed. It's super soft and super comfy, except my lower back still hurts when I sleep on it for too many days in a row. It did give me much greater relief than the old hard mattress that we had with the multiple egg crates, down mattress cover, and 2-1/2 inch memory foam topper. I just hate investing money into a bed just to try it. I can't get a queen size bed up my stairs because of the box springs. It has to be twin, double or king sized. Ugh!

Oh, the bed dilemma!

rohrer01
01-16-2014, 01:29 PM
i have been without NSAID's since my latest allergic reaction at the beginning of December...and my left hip pain has gotten worse...
so i am caving in and having steroid shot in left hip on January 24th..
pain doc was too booked to arrange it sooner...
i am taking a chance...my cortisol showed a drop on latest blood work (end of December)...went from 14 to 10.5...no apparent reason why...
hormone doc in CA guessing it is from stress of pain...constant
hip pain, now there even without any activity on my part...

i hope the smallest possible dose does the trick...i cannot risk getting anything more than that...
i had no idea the Diclofenac (splg?) was helping me so much until i had to stop taking it.

jess...and Sparky

Jess,
I'm so sorry you are in so much pain! My SI injection worked well enough that my oxycodone can help with the rest. Without the oxy, the lower back pain can still get quite intense.

My son had some pretty significant hip pain when he was about 16 years old. He was limping around. I took him in for MRI's of both hips. They used contrast and wanted to compare the "good" hip with the "bad" hip. He has a torn meniscus. Of course, they wanted to do surgery right away. When we went to see the surgeon and my son pointed to where it hurt, it didn't match up with where it "should" have hurt with the torn meniscus. He pointed to the outside of his hip instead of the inside, which would have been in the groin. The doctor gave him a steroid shot from the outside which worked to eliminate all of his pain. Surgery avoided! He also has congenital shallow hip sockets that could have been fixed with leg braces (congenital hip dysplasia) when he was an infant, had the doctor been on the ball and noticed it! It's been 10 years since his injection. He has some hip pain, and always will, from the dysplasia. But that shot was a one time deal and he hasn't been that bad ever since!

With my son's story in mind, I'm hoping that you'll only need one shot for this, ... ever. I didn't know that pain could lower your cortisol levels. That works against you in so many ways. I'm so sorry to hear this!

Have you figured out which surgeons take your new insurance, yet? If you can get in to see a Physical Medicine doctor, they are pretty good at figuring out where your pain is originating from. Mine has been great! They aren't surgery pushers, either. Although, they aren't like the pain doctors that will tell you it's absolutely the wrong thing to do.

Are you going to have your cortisol checked one more time before your shot? It might be a good idea for you to have your cortisol checked two to three weeks after your injection, too.

I do so hope you can get your pain under control. It's so miserable to live in constant pain!

((((HUGS)))) and Tweets

Rohrer01

jrnyc
01-16-2014, 08:51 PM
hey Linda...
thanks for the info...wow...that looks like a really thick mattress...
i like soft mattresses...i just never thought of getting a memory foam because a few people who had them told me that they were disappointed, that the ones they bought kept the memory of their shape and lost "newness" pretty fast...
i do not know if that is true of any of newer memory foam mattresses...or if it is true of top of the line ones...???

hey rohr...not sure what a meniscus has to do with hip pain...?
i have a torn meniscus in one knee, cyst in other, arthritis in both...
but that has been true since well before i got the bursitis in left hip...the knee problems started years ago...and MRI of knees showed what was going on with them....
my cortisol check was done recently...i will probably get it rechecked
within 3-4 weeks after the steroid shot...thanks for the concern.

i took Sparky to Manhattan to visit....one friend hadn't met him,
and another hadn't seen him since he was 3 months old...we walked
in Central Park...at least, they did...i couldn't walk...the left hip
burned after 3 steps...so Sparky walked with friends and kept coming back to check and make sure his momma was still there...
sweet boy had a great time sniffing sidewalks...all those thousands
of dogs who peed there before him...he was so happy. we did have
to take cabs everywhere we went...i could not walk at all.

jess...and Sparky

Pooka1
01-16-2014, 09:08 PM
Jess,

I think you are making a good decision to get a lowest dose shot. You have to do something it sounds like. I really hope it helps and doesn't affect your cortisol. Or if it does that your cortisol will rebound quickly though I know you feel terrible when it i slow as I recall.

Such a fun adventure for the baby monkey!

I wish there were more options for pain. We can send a man to the moon but can't control some pain. It's crazy.

Good luck. Hang in there.

Sharon

LindaRacine
01-16-2014, 09:56 PM
Hi, Linda.

I would have thought a sleep number with the topper would have helped, too. I thought about getting one, but you can "try" it all you want, but until you've slept on it for a while, you just don't know if it will help.

I also read your review. You said "very soft", but the bed says "medium-firm". So is the bed itself softer than they advertise it?

My hips were hurting last night. I had an episode of my right hip hurting that lasted a good two years. When I finally, out of desperation, had the MRI w/contrast it showed up nothing. After the MRI my hip suddenly quit hurting as well. I just thought that I had a tear in the meniscus and when they injected the contrast it caused it to flip back into place. I'll never know. They wanted to do an arthroscopic exploratory surgery and I said, "No way!" As long as it isn't hurting anymore, I'm not messing with it. I hope last night wasn't a prelude to more hip pain!

The only bed that I've gotten relief from for my lower back pain is a Craftmatic Adjustable Bed (1993 model - just the base) with a memory foam mattress + egg crate that I bought from Wal-Mart for $200.00. I think it's because it raises my legs into a more comfortable position. But, this is bad because I can't sleep with the hubby when I need it. It's a twin and he can't sleep on a bed that isn't flat. :/

Are you going to sell your Sleep Number bed? I'm just curious. What size is it? I suppose the cost of shipping it more than halfway across the country would make it out of the question for me to buy it from you, anyway. Last year we bought a gently used king size Sealy Waikiki Beach Reflexion bed. It's super soft and super comfy, except my lower back still hurts when I sleep on it for too many days in a row. It did give me much greater relief than the old hard mattress that we had with the multiple egg crates, down mattress cover, and 2-1/2 inch memory foam topper. I just hate investing money into a bed just to try it. I can't get a queen size bed up my stairs because of the box springs. It has to be twin, double or king sized. Ugh!

Oh, the bed dilemma!

Hi...

I'm unsure why I said it was very soft. I actually hadn't slept in it at that time. I would say the description of medium firm is about right, though I've never slept on a memory foam mattress until recently, so can't really compare it to anything. I don't intend to sell the Sleep Number bed. I recently bought a new condo and it has 3 bedrooms, so I needed to furnish the 3rd bedroom. The memory foam mattress is in the guest room, but I'm going to have them swapped.

--Linda

jrnyc
01-16-2014, 10:27 PM
hey Sharon
thanks for the encouraging words...
i decided on the shot because the pain has just been too
much, and it doesn't require that i walk for it to hit me...
i stand at the sink and wash a dish and left hip starts
burning...

yes, Sparky had a blast...he had so much fun, it was worth
the huge cost of round trip car service...you can take a dog
on a plane, but not a bus or train...there is a bill trying to go
thru Congress to change that...but the train companies...like Amtrak...
are fighting it...the old expression
"if you want a friend in Washington D.C., get a dog"
is true, but so far, Congres had not gotten this bill passed...

i could have flown round trip to CA from east coast for what
i paid for car service round trip from CT to NYC....crazy...
but Sparky made it worth it!

jess...and Sparky

rohrer01
01-20-2014, 01:08 PM
hey Linda...
thanks for the info...wow...that looks like a really thick mattress...
i like soft mattresses...i just never thought of getting a memory foam because a few people who had them told me that they were disappointed, that the ones they bought kept the memory of their shape and lost "newness" pretty fast...
i do not know if that is true of any of newer memory foam mattresses...or if it is true of top of the line ones...???

hey rohr...not sure what a meniscus has to do with hip pain...?
i have a torn meniscus in one knee, cyst in other, arthritis in both...
but that has been true since well before i got the bursitis in left hip...the knee problems started years ago...and MRI of knees showed what was going on with them....
my cortisol check was done recently...i will probably get it rechecked
within 3-4 weeks after the steroid shot...thanks for the concern.

i took Sparky to Manhattan to visit....one friend hadn't met him,
and another hadn't seen him since he was 3 months old...we walked
in Central Park...at least, they did...i couldn't walk...the left hip
burned after 3 steps...so Sparky walked with friends and kept coming back to check and make sure his momma was still there...
sweet boy had a great time sniffing sidewalks...all those thousands
of dogs who peed there before him...he was so happy. we did have
to take cabs everywhere we went...i could not walk at all.

jess...and Sparky

Maybe it was a torn labrum that he has. I think the difference is in the depth of the cartilage, the labrum being the thicker structure. The problem that causes pain is that the cartilage flips over and can cause the hip bone to rub on it, creating pain. I have a friend who is a PT and she related it to the handle of a bucket that can flip back and forth. When it is in the right position it doesn't hurt. When it flips over it hurts like the dickens! Anyway, his pain was on the outside of his hip and one steroid shot did the trick. Like I said earlier, his hip problems stem from the shallow hip sockets. It kind of makes me mad that they missed that in him as a newborn. They are supposed to specifically check for that! It's totally treatable and if NOT treated can lead to a life of hip pain and difficulties.

I'm glad to hear that you got to get together with some friends at Central Park. I'm so sad to hear that you couldn't fully enjoy your stay and your visit because you couldn't walk! That just saps the joy right out of things. I hate pain.

Sparky's a good doggie. I'm glad you have him. He seems to keep you going on days you might otherwise feel like giving up. Really good animals know when their person needs comfort and they are great at offering it. My little Juliet (Chihuahua) was very good at comforting me. I had to put her down because I think Wal-Mart put the bad dog food back on the shelves after the dog food incident. After she ate it she was so sick for weeks that I couldn't take seeing her suffer anymore. ='( I really miss her!

rohrer01
01-20-2014, 01:13 PM
Hi...

I'm unsure why I said it was very soft. I actually hadn't slept in it at that time. I would say the description of medium firm is about right, though I've never slept on a memory foam mattress until recently, so can't really compare it to anything. I don't intend to sell the Sleep Number bed. I recently bought a new condo and it has 3 bedrooms, so I needed to furnish the 3rd bedroom. The memory foam mattress is in the guest room, but I'm going to have them swapped.

--Linda

As my house empties and I try new beds, I'm doing the same thing. They go in the spare bedrooms. It's good that you keep it, actually. Sometimes one bed will be more comfortable for me than another bed. I'm glad I can switch it up if I need to. I need really soft beds. I'm so bony that anything even somewhat firm just kills me. It's horrible.

jrnyc
01-20-2014, 01:18 PM
hey rohr
i wish our pets could stay with us forever...
but know that you surely gave your little Juliet the best
doggie life possible...
that is what i want for Sparky...he is an angel in my life...
i waited decades for my own dog, until i retired...
so the fates took pity on me and gave me the best dog in
the world...i swear...the best little boy...
he is so good and sweet and i am so lucky to have him...
he is the best thing in CT that ever happened here...

more snow is coming for 24 hours...then bitter cold..
it makes everything hurt...i am so sick of winter...
am planning a visit to southern CA end of February...

jess...and Sparky

rohrer01
01-20-2014, 01:28 PM
Same thing here for the weather. It's supposed to be freezing rain/snow, then plummet to -15o with wind chills of -30o!!! Ugh, I don't mind the snow. The ice is SO pretty in the trees when the sun finally comes out. But, the bitter cold makes everything hurt!

jrnyc
01-28-2014, 06:32 AM
so far, so good....steroid shot in hip worked like magic....
different doctor...liked her...she only gave me 20 mg instead
of "minimum" of 40....regular doc i go to there prob would
have insisted on 40....

dealing with awful norovirus since late Sat nite...early Sunday...
finally getting better and husband got it...he never gets sick....
very contagious...do not need a cruise ship to catch this...
it is all over CT per internet...i blame filthy Amtrak i took to NYC
on Friday....
hoping puppy cannot catch this...no 10 pound little dog or cat
could survive this....internet claims few viruses if any pass between
humans and canines....this house is full of germs and no one well
enough to wash them away yet....
poor puppy so confused why momma hasn't been taking care of him
for 2 and a half days...now i have to get up just to care for little
sweet puppy

jess...and Sparky

Pooka1
01-28-2014, 07:42 AM
Jess, great news on the hip pain! That's great that the small dose worked. Will you get your cortisol level monitored going forward?

That norovirus sounds bad. Take care of yourself.

Hugs to the baby monkey.

jrnyc
01-28-2014, 12:02 PM
yes...will get it checked in about 3 weeks....

yes, this virus is worst...

Sparky sends hugs...

J.

rohrer01
01-29-2014, 12:31 PM
Jess,
I'm SO GLAD to hear that your hip pain is better!!!

Your virus sounds like what I had. I was so very, very sick! I caught three things back to back. The second thing I caught sounds like what you have. Fortunately, I managed to keep it out of my lungs! I could not even get out of bed for two straight days and had no voice what-so-ever. I was sick for about three weeks with that one. I hope you and hubby get better soon. My hubby never gets sick, either, and he caught a "mild" case...went to work anyway. Poor guy. =(

Let's keep hoping that your cortisol doesn't drop. If it's all good, maybe you can stretch out your shot schedule to longer than three months.

My SI shot worked, too. It took the full two weeks to take effect, though. Although, with the lidocaine in there right after the shot, I felt better. That made the doc smile. He also told me that you never have just one bad SI joint. He said they are always both bad, just one is worse than the other. He told me to expect the other one to flare up, which it did. But the symptoms aren't nearly as bad on the right as they were on the left. It's not bad enough for me to go through the pain of an injection on the right. My SI injection was very painful, but I will be repeating it...eventually.

My energy is coming back. I think it was the illness and the stress that zapped me.

My neck is a mess. I'll post on my own thread what happened. But, I think I'm in trouble and there is no medical solution. =(

jrnyc
01-29-2014, 01:23 PM
i am so sorry you have been sick...
but what i have it is impossible to leave the house...
the vomiting and diarrhea prevent going anywhere....
so does the fever and dizziness...
worst is the stomach upset....i dared not leave the
bedroom/bathroom for 3 days...and could barely drink
water...

i am so pleased with hip results with half dose...
i will get cortisol checked in a few weeks...
symptoms of cortisol drop include fatigue which i
have now just from this illness...feel weak...
so i have to see when i get better...

thanks for concerns...
jess...and sweet Sparky

loves to skate
01-29-2014, 09:15 PM
Hi Jess,
I am glad the cortisone shot worked for you. Sorry you have been so sick. My bout with C Diff sounds so similar. I had terrible abdominal pain and severe diarrhea. It certainly is not much fun. Take care of yourself and little Sparky.
Sally

jrnyc
01-30-2014, 12:04 AM
Thanks for concerns, Sally, and for good wishes...
i am so pleased with hip shot....just really thrilled...
hope blood work is OK in a few weeks...
right now all my exhaustion is remnants of this illness...
but the hip pain that was grinding me down is gone.....yaaaay

i read other patients description of the norovirus...what
lingers is being so wiped out...it just devastates...like you
were run over by a Mack truck...

so far Sparky seems OK...a little mopey that momma is not
playing with him...but he is fed and gets out to do his business
in the freezing cold...so far he is the puppy with the bday
this Sunday for Ground Hog Day...pray for early spring!!!

jess

JenniferG
01-30-2014, 04:43 AM
Happy for you Jess! Get well soon and I hope the blood work is fine in 2 weeks. I'm sure it will be.

jrnyc
03-13-2014, 10:46 PM
hi Jen...and to anyone who welcomed me back to forum recently....thank you so much...

was in southern CA for about 10 days...after a few days of rain (couldn't complain as i am well aware of their awful drought) the weather turned beautiful...and i was very relaxed, even though i missed sweet little puppy so much.

am getting blood work done in about 6 weeks, as was just put on an additional hormone (bio-identical hormones from doctor in Venice, CA) and am waiting to see how i do on it...will also be doing a 24 hour pee test, to see how i am absorbing
the new hormone...

sooooo....at that time i expect to get cortisol/adrenal function checked out...for now i feel the usual tired...which GP thinks could be from pain meds...

thanks again to anyone who wrote to say they missed me on forum....
hugs to all from jess and Sparky, the wonder puppy

JenniferG
03-14-2014, 12:14 AM
Good luck with all your tests Jess.

rohrer01
03-14-2014, 02:10 AM
hi Jen...and to anyone who welcomed me back to forum recently....thank you so much...

was in southern CA for about 10 days...after a few days of rain (couldn't complain as i am well aware of their awful drought) the weather turned beautiful...and i was very relaxed, even though i missed sweet little puppy so much.

am getting blood work done in about 6 weeks, as was just put on an additional hormone (bio-identical hormones from doctor in Venice, CA) and am waiting to see how i do on it...will also be doing a 24 hour pee test, to see how i am absorbing
the new hormone...

sooooo....at that time i expect to get cortisol/adrenal function checked out...for now i feel the usual tired...which GP thinks could be from pain meds...

thanks again to anyone who wrote to say they missed me on forum....
hugs to all from jess and Sparky, the wonder puppy

Oh, Jess! I'm SOOO glad that you got to experience beautiful weather before you came back to never-ending-winter!
I'll bet Sparky was super excited to see you! I can only imagine the little doggie dance with the tail wagging non-stop, spinning in circles and flipping over on his back for a belly rub! That's what my Juliet used to do, except she's pee all over the place, too! LOL THEN I didn't want to touch her because she'd be on her back still wiggling around and soaking her fur in her excitement pee. LOL I miss my little doggie. :'-(

So, back to business. What bio-identical hormone are they giving you? Cortisol?
I had to have the 24 hour pee test once. It's kind of gross because you have to keep it in your refrigerator. It was to check my adrenaline levels when the doctor FINALLY started taking me seriously about my heart condition. He'd had another patient that was "accused" of having panic attacks like I was when I went to the ER with my heart. It was so bad with this woman that they put her in the psych ward! She almost died in there because her heart went into out-of-control tachycardia and she went into full cardiac arrest! Honestly, they don't check people's actual physical status that much when they are in those places. It turned out for her that she had a tumor on her adrenal gland and her gland was just dumping out adrenaline like crazy. It's really sad that women, especially, have to nearly die or die before anyone will believe them that they aren't just "crazy"! It's angering and frustrating. Women react differently than men do for a lot of different things. We're not as cut and dry because we DO have normally fluctuating hormone levels, unlike men who should have pretty consistent hormone levels. I'll tell you that those sex hormones (male and female - both sexes have both in varying amounts) can wreak havoc on the other hormones or mask real symptoms. It's just sad that it's taken science this long to figure that out and STILL the majority of doctors just write us off as crazy!

I hope your energy is up and I hope your spirits are up, too! Did you find what you were looking for in San Diego? (yes or no answer will suffice or a PM)

Let us know how your tests go. I know it will be awhile before you do them or get your results.

((((HUGS)))), WOOFS & Wiggles!

jrnyc
03-14-2014, 02:48 AM
hey rohr...
you were one who said i was missed on forum...
that was so kind of you...thanks...

nope, bio identicals involving other hormones...
will send you a PM...
and it wasn't San Diego...it was beach area in Orange
County...

sending you PM now...
jess...and Sparky

Pooka1
03-14-2014, 07:35 AM
Well we did this in PMs but I'll welcome you back again on the forum. :-)

What do you think your cortisol level is? Hopefully it is in the normal range and you can continue the low dose injections, yes?

jrnyc
03-15-2014, 01:14 AM
thanks, Sharon
i am hoping cortisol level is in normal range...
and will check it in about 6 weeks when i get blood and urine tests
to see how i am absorbing hormones. if all looks good, i will be able to get low dose steroid injections, as needed, for both hips. that would be great.

thanks again Sharon....i was contacted by Linda Racine, by Jen G,
by you, by rohr, and by several other people who wanted to know how i was doing.
the kindness and caring of some on forum blows me away at times.

wishing all a warm and wonderful week end
jess...and Sparkily dog

Pooka1
03-15-2014, 01:19 AM
Well Jess, you were conspicuous by your absence! We were going to organize a search party at some point if you didn't chime in. :-)

titaniumed
03-15-2014, 07:27 AM
I'll bet Sparky was super excited to see you! I can only imagine the little doggie dance with the tail wagging non-stop, spinning in circles and flipping over on his back for a belly rub! That's what my Juliet used to do, except she's pee all over the place, too! LOL THEN I didn't want to touch her because she'd be on her back still wiggling around and soaking her fur in her excitement pee. LOL I miss my little doggie.

Rohrer, you know Sparky had that MAJOR operation on his .......so he probably doesn’t get all that excited anymore....pobrecita fido!

I always spoke to my pets in a foreign language.....its amazing how well they understand. Spanish for compassion and German for technical commands.

Jess, your back must have been trashed from the flights....I remember those days.....

Hope things are well.

Ed

jrnyc
03-16-2014, 11:20 PM
thanks Ed...
yes my back is a mess from the flights...
but worse is that i over packed...again...after swearing last
time i would never do it again!
and this time, i spent most of days in a rented house with a
washer and dryer in garage...so i could wash clothes...

i had to LIFT very heavy suit case...ALONE..into the trunk..and also
had to drag it up and down a long staircase outside the house....
it was on wheels...but getting it into and out of trunk of car, and
up and down a flight of steps was hard....it was too heavy for me
to lift...i had to try to drag it...and i could not lift it from handle...
i am just not strong enough...
i think it was the suitcase that did in my spine, in some places that never have hurt me before...very sore for quite a few days...

still jet lagged...time zones are still confusing me

hope everyone had a nice wkend

jess...and Sparky

jrnyc
03-22-2014, 06:14 PM
today i woke up with the exhaustion...
that feeling that i am too tired to BREATHE
uh-oh....it is almost 2 months since half steroid shot...
20 mg in left hip...i was so happy that it took away the pain and i didnt seem to have any dropped cortisol symptoms...
well.....spoke too soon...
i have that totally exhausted feeling again....
i am hoping against hope that i am wrong, that it is something
else....i am calling GP to get blood work orders for cortisol and adrenals...
maybe test for anemia...do not know....

i saw hormone specialist in CA...or spoke to her again on phone...
she blew my 9 a.m. appt and wanted me to come back 7 hours later...could not do it...we spoke on phone...the charge is usually same for phone consult...$350 that my insurance does not pay...i pay it out of pocket...
well, i made a fuss about flying 6000 miles round trip to see her so they didn't charge me for that consult...seriously, the least they should do....
but i got to be in beautiful southern CA...brought the rain with me to them, too...they need it desperately.
i have blood work orders to be done in 5 weeks, for all kinds of things, but cannot wait that long to check cortisol....

jess...and Sparky

Pooka1
03-23-2014, 09:42 AM
Jess, did it take 2 months last time for your cortisol to crash? Maybe this is something else.

So sorry. :-(

mabeckoff
03-23-2014, 11:39 AM
Welcome back

Melissa

jrnyc
03-23-2014, 01:44 PM
i do not remember exactly how long it took last time......
but back then, i had SO much steroid from injections, i think it happened a little sooner...maybe one month...
also, i tried to ignore the exhaustion last time..
stupid me...now i know not to do that...

the good news is i am not as exhausted today as yesterday...
am still tired, but not the "i can't breathe i am so tired" feeling...
i am very relieved about that, but am calling GP tomorrow to request
orders to check cortisol and adrenals...i will see PA if doctor has
no time, just to get orders....am supposed to get all things checked
in 4 more weeks, as i mentioned....but i want to check this now...

thanks for the concern, Sharon, and thanks for the
greeting, Melissa.
jess....and Sparky

rohrer01
03-23-2014, 03:49 PM
I'm glad things have improved a little. Hopefully, it will just be a case of a minor "bug" since your immune system is probably compromised from being sick for so long. It's still a good idea to have it checked.

I had a hunch about my potassium, so I asked the doctor to check it. Sure enough it was below normal range. That affects my arrhythmia BIG time. I'm on otc supplements right now, but it's not enough. I'm seeing a new cardiologist next month. I don't know why I'm hypokalemic. It is usually caused by chronic diarrhea or starvation. It's very hard to not get enough potassium. I did have chronic diarrhea for three years after my gallbladder was removed. But I had some pretty severe hypokalemia BEFORE that. I was on Rx strength supplements. Then, I don't know what happened. My Rx ran out and my PCP didn't refill it. Maybe I forgot to bring it up or he wasn't worried about it, I don't remember.

JenniferG
03-24-2014, 06:32 PM
Just read this Jess. Fingers crossed it's nothing serious, not Cortisol, and you feel better without treatment. Sorry you've had this scare. Let us know what you find out.

jrnyc
03-25-2014, 02:43 AM
thanks, rohr and Jen G...i am not feeling as badly today
either, but i did call my GP and her phones werent working right,
so have to try again Tuesday...but am not as scared as i was Saturday....thank goodness....
am going in to Manhattan Wednesday to see pain doc for
prescriptions for usual pain meds...the 3 hour total trip each way always leaves me exhausted...
thanks for the concern, guys...much appreciated, really.

rohr...sorry you have had so many health problems and scares
to deal with lately...hope the right meds can be worked out so
everything stabilizes.

woofs from me and Spark

jrnyc
03-29-2014, 05:07 PM
picked up blood work orders from my GP...
gonna go to lab early this week....Monday probably...she checked
off cortisol, ACTH, thyroid, B12 and a few other things...
i am really most interested in cortisol level...hoping little 20 mg
steroid shot in left hip did not cause level to drop.

rainy and still cold in northeast...miss southern CA, despite
another earthquake out there....

have a good wkend everybody.

jess...and Sparky

Pooka1
03-29-2014, 05:15 PM
How are you feeling lately? Are you still very tired?

jrnyc
03-29-2014, 06:50 PM
OH OH OH
left hip just started burning again this afternoon...

UGH....why get my cortisol checked this Monday if i will need the
rest of that steroid shot....?
doctor gave me 20 mg shot instead of full shot of 40 mg...
sooooo...i am thinking i could go in April and get the other 20 mg...
gotta call pain doc Monday...i just saw the PA for oral medications
last Wednesday...she asked me about my hip and i said it was
starting to hurt a little bit, but no burning..
uh....i went and tempted the fates!

BUT....why get my cortisol checked now if i am just gonna go
get more steroid...????

Sharon...yes, still tired...just not the worst tired of the
"i cannot breathe i am so tired" variety...just more tired than
usual....my GP thinks it is from taking oral pain meds...

i HATE this bursitis hip thing....the burning is the worst...and the
weather is not nice enough for walking Sparky....once that starts.,
i will NEED another shot!

jess

rohrer01
03-29-2014, 08:41 PM
OH OH OH
left hip just started burning again this afternoon...

UGH....why get my cortisol checked this Monday if i will need the
rest of that steroid shot....?
doctor gave me 20 mg shot instead of full shot of 40 mg...
sooooo...i am thinking i could go in April and get the other 20 mg...
gotta call pain doc Monday...i just saw the PA for oral medications
last Wednesday...she asked me about my hip and i said it was
starting to hurt a little bit, but no burning..
uh....i went and tempted the fates!

BUT....why get my cortisol checked now if i am just gonna go
get more steroid...????

Sharon...yes, still tired...just not the worst tired of the
"i cannot breathe i am so tired" variety...just more tired than
usual....my GP thinks it is from taking oral pain meds...

i HATE this bursitis hip thing....the burning is the worst...and the
weather is not nice enough for walking Sparky....once that starts.,
i will NEED another shot!

jess

Silly! So you can be assured that your cortisol is FINE and you'll be able to get another 20mg in the hip when you can't stand the pain anymore.

I've been super exhausted lately, too. I was worried about MY cortisol, but found out last night after an ambulance ride to the ER (sent you a PM) and they did blood work. My hemoglobin went from 11.8 two weeks ago to 10.6 last night!! The doctor thought my GI tract had a bleed because it's so painful to eat (this has been going on for a LONG time and already had endoscopy). There was no occult blood in the stool (gross, right?). So I'm either bleeding somewhere else or something bad is going on. He wanted me to get it checked out ASAP. That's a lot of blood loss in two weeks and I haven't had my cycle during that time. At least I know why I feel like I'm going to drop dead.

The oral pain meds can make you tired, even if you are used to them. However, you've been on them for a very long time. Is this tiredness more than when you first "got used" to the pain meds? Please say no! We worry about you.

Could the Lyme's be coming back? If they didn't kill ALL of those bacteria and just one was dormant and started to multiply,... you know the rest of that story. It seems to me that this is one of the battles that they have with Lyme's Disease. But you would know more about that than me. I'm just guessing.

I hope you feel better!

Hugs and woofs!

jrnyc
03-30-2014, 12:39 AM
thanks so much, rohr, for the kind concern...
i think tiredness is part personal stress at home and part oral meds and part ...i don't know what...but you are right...
i will get the blood work done Monday morning, then call pain doc and try to schedule an appointment as soon as i can in April...i
already have scheduled GP appt anyway, originally set for check up and blood work....now i guess i'll keep it, but RE-DO the cortisol again later, AFTER i get another steroid shot...
don't know how fast i can get into pain doc in Manhattan...he
is always so booked....there is one other doc in his office he
lets do steroid shots, and she did mine last time...maybe i can
see her sooner.

i know you have been having health problems of late and i am so
sorry...and worried for you about that blood issue...
i think you have alot of stress in your life and that always adds
to problems...or creates new ones....
sending you private message...

hugs and woofs...
jess...and Sparky

rohrer01
03-30-2014, 01:32 AM
Don't you just feel like a living pin cushion sometimes? I literally have track marks from all of the blood draws I've had over the years. I had two complicated pregnancies where they were constantly sticking me. Now that I'm "older" I'm always getting blood work done. But, actually my "older" years pain started at about age 29. I had a few great years in there, but had to be helped along with pain meds off and on. I felt strong, though. I feel weak and almost feeble now. :-(

jrnyc
03-30-2014, 07:07 AM
pin cushion...?! heck yeah...
i do not have "good" veins...and because i had to be on IV antibiotics for Lyme tx,
i had to get heparin locks in my wrists, and then i had to get catheter in chest...after they pulled...or cut...that catheter out of me, they put a longline in...
it got infected and i ended up with septesemia (splg?) which almost killed me...had 2 hours of oxygen left in my blood by the time they rushed me to ICU at midnite...
kinda miracle i came out of ICU alive, according to doctor.

rohr...you may feel weak...but i would never think of you as "feeble."
i hope the doctors figure out what is going on with those blood work numbers dropping...and they can then help you.

NOTE.....
just found out that 5.1 quake and latest 4.1 aftershock in southern CA were centered in LaHabra, where my aunt lived....
and i could have sworn i saw aunt's next door neighbor being interviewed on TV station out there....

jess

loves to skate
04-01-2014, 11:14 PM
Hi Jess,
I am so sorry for your health problems. I have been away from the forum for months. I don't spend too much time on the computer lately because I have been unusually busy. Take care of yourself and I hope your adrenals are OK.
Sally

jrnyc
04-02-2014, 12:32 AM
thanks so much for the good wishes, Sally
i hope you are feeling well and that all the things you
are busy with are happy ones...

and i hope you have not been hit with the snow we see in the south
on TV....spring has to come to NC soon.

jess...and Sparky

jrnyc
04-08-2014, 04:23 PM
my GP says my ACTH numbers are way off...and she does not
think it is from steroid shot, cause the numbers would be going
in opposite direction if it were...sending me to endocrinologist
as soon as i can get appt...i need an all day blood test of some
kind...they give you medicine and take blood every X number of hours...
she said the ACTH is why i am so tired...

also...neck MRI shows herniated disc at C6/7, endplate degenerative signal....minor posterior spurring...mild to moderate annular disc
protrusion....which causes mild mass effect on ventral aspect of spinal canal...and mild bilateral foraminal narrowing...

does not sound pretty.

jess

Pooka1
04-08-2014, 10:01 PM
Jess, that must have been somewhat surprising. Hopefully that will be sorted out and you can continue the steroid injections. I am hoping so. Are the steroids the best form of pain control you have?

jrnyc
04-09-2014, 12:15 AM
hey Sharon
yes, the steroid shots gave me the most relief...ever since doctor
found that sacroiliac area was key to relieving my lumbar pain..
and yes, it was surprising to hear my GP say she does not think the
change in ACTH level is related to steroid half dose shot i had...
but i need to hear what the endocrinologist has to say about that...
and see what the tests that doctor does will show about my cortisol
and ACTH levels...and their ability to come back...
the fear with steroid shots is that any time they cause levels to drop,
there is a very real risk that those levels might not come back.

thanks for the kind concern.
jess...and Sparky

jrnyc
04-10-2014, 10:00 PM
went to a new endocrinologist today...
she gave me orders for more blood work, including a retest of cortisol and ACTH levels...

thanks, rohr, for suggesting i get the blood work done before i ask for another steroid shot in left hip....my GP and the endo doc said it is doubtful that the injection caused my ACTH level to shoot up, but you are right that this lab work be done before i get anymore steroid stuff in my body.

thanks for steering me in the right direction.
jess...and Sparky

jrnyc
04-21-2014, 03:03 PM
newest blood work shows low cortisol again...
i knew it...i am SO tired...no matter what...just exhausted...
waiting for doc to call with exact numbers...
also do not know what ACTH is at now...

don't know if this could be from 20 mg little steroid shot i
got in hip in January...
my GP sent me to endocrinologist, whom i see again this Thursday, because she wants to know why my cortisol and ACTH numbers "fluctuate"

was supposed to have last dental implants done next week....
probably gonna postpone...it involves two extractions and one
implant put in same day...too much stress on body, i think...
rats...very frustrated with this...

this is why it is so hard for me to walk poor puppy every day....
so exhausted...but i walked him today...felt like i ran the marathon...
and that left hip is burning again...but i don't dare get another
little steroid shot....maybe my system can't even handle the little shots...

jess

rohrer01
04-21-2014, 04:13 PM
Jess,
I'm sorry to hear that your cortisol is low again.
I sent you a PM.
(((HUGS)))

jrnyc
04-21-2014, 04:51 PM
thanks so much, rohr...
will see what GP has to tell me tonite,
and what tests endocrinologist wants to do when i
see her this Thursday.

your kindness is much appreciated
hugs and woofs from me and Spark

Pooka1
04-21-2014, 05:21 PM
Jess I'm so sorry your are still dealing with your cortisol levels. How long did it take to recover them the last time?

I'm glad you will get answers tonight. It sounds like these numbers shouldn't fluctuate so maybe it isn't due to the steroid shot. I hope someone can tell you if a 20 mg shot can move the needle on a person's cortisol level. Whatever it is I hope the fix includes allowing you to safely get the steroid shots.

jrnyc
04-21-2014, 07:45 PM
thanks for the concern, Sharon
right now i am not thinking about the steroid shots, as
adrenal insufficiency is an extremely serious problem...it can
become life threatening...the hip pain is burning, but it won't kill
me...hah

i will see at endocrinology appt this Thursday when the blood
test to narrow down cause of adrenal numbers being low will
be done.
i just know they draw the blood every certain number of hours
after giving you some medication...
my GP said it could be pituitary problem instead of adrenal
glands, but the MRI of pituitary was clear...that was a few years
ago when this all started...i keep thinking a year ago, but it is
longer than that...

my cortisol is now at a low of 3.9 and ACTH at a low of 26
a month ago cortisol was 10.2 and ACTH too high at 98.
it is not even a case of levels coming back up....they keep going
up and down, repeatedly...gotta find out why.

jess...and Sparky

JenniferG
04-22-2014, 04:07 AM
So sorry to hear this Jess. I do hope it's sorted out soon. When will you have the results from Thursday's test? Wishing you the best. xx

mariaf
04-22-2014, 09:50 AM
Hi Jess,

Sorry to be chiming in late, but I just read these posts about what you've been going through :-(

So sorry to hear you've had to deal with all this - did you find out anything further?

Fingers crossed that they can get to the bottom of this and get you some answers soon!!

jrnyc
04-22-2014, 11:06 AM
to Jen and Maria
thanks so much for the concern

i was able to move endocrinology appointment forward to tomorrow...Wednesday...at urging of my GP

they have to schedule tests...blood, and possible CT scan of abdomen, which is where adrenal glands are located....i didnt even know where they are...
i will find out the rest of my basic blood test results tomorrow...but the low cortisol and very low ACTH are the most important...the test they will schedule is the all day ACTH blood test...i have to find out if that is in doc office or hospital...

thanks again for the support...very much appreciated.
jess...and Sparky

mariaf
04-22-2014, 01:53 PM
I have heard of tests, in the case of children, performed at the request of an endocrinologist where they draw blood every hour or so - I'm guessing it may be the same type of thing - I think this sort of test can be done either in the office or as an outpatient in a hospital, depending on the way the practice is set up.

Hang in there - hopefully, they can get this sorted out for you soon - you have been on this roller coaster long enough!!

xoxo and woofs from me and Jackie!!

jrnyc
04-22-2014, 02:27 PM
i think it is the same test...they have one for cortisol/ACTH
and another one for sugar...

thanks....Sparky and i send hugs and woofs back to you

jrnyc
05-04-2014, 11:57 PM
have to swing by hospital to get copy of blood test
results from cortisol test i had last week...endo doc does
not call patients...do not like her and do not expect to stay
with her past the results...
i WISH i could get steroid shots...both hips hurt now...
left one burns again with bursitis...am guessing right hip
is developing bursitis too, from uneven loading thing with
scoli

main worry now is Sparky is sick again...fear it is prostate
again or kidneys...he has vet appt tomorrow, Monday, May 5th
at 12:30....his regular vet is on vacation....seeing different
vet, same animal hospital....he drinks less and less water and it
causes big problems, but real reason for all of this is that he is
a puppy mill dog...poor baby has been sick too much in his short
7 years....

sorry off topic....but this dog helps me feel better in so many
ways....such a sweet boy.....does not deserve this...

woofs to all

JenniferG
05-05-2014, 05:48 AM
Did you get your results, Jess?

Poor Sparky. I know how much of a worry it is when our pets are unwell. Let us know how he goes as well.

Pooka1
05-05-2014, 06:52 AM
Best wishes for both you and Baby Sparky!

We can send a man to the moon but we can't shut down puppy mills. Truth is stranger than fiction.

They will figure out what is going on with your fluctuating hormone levels and then you can go from there. Have they mentioned they have seen that before?

rohrer01
05-05-2014, 06:55 PM
Jess,
So sorry to hear that Sparky is sick again.
I hope they figure it out for you both. He means a lot to you.
I don't know which would be worse. They can take the prostate out in humans.
Kidneys are tougher to deal with and dialysis is expensive, so I hope it's not that.

Woofs to Sparks. I hope you both feel better.

jrnyc
05-05-2014, 10:08 PM
to Jen, Sharon and rohr...
thank you so much for the kind words...
i didn't get over to hospital to get my cortisol results today...
going tomorrow...

today i was at vet....luckily Monday is sonogram day there...
Sparky had a sonogram....same problem again...
the cysts on prostate are getting larger....bacteria in urine,
and crystals...crystals are from not drinking enuf water...
they sent urine to outside lab to find out what antibiotic
to give him....he will probably need same surgery again...

i have to research why a dog who is fixed needs to keep prostate...
i do not know why...
i switched him back to special prescriptive food for dogs with urinary tract/kidney problems...he won't eat tonight...
i mixed it with real chicken to get him interested...NOPE...
refuses to eat it...this happened before til i caved..

haven't caved in yet....
he is giving me looks like "i waited all day to eat and you feed
me this awful looking stuff....?"

ahhhhh....no good deed goes unpunished....

thanks again for the kind concern....
jess...and Sparky

rohrer01
05-06-2014, 12:57 PM
Jess,
I know in humans, they have a problem with urinary incontinence after prostate removal. Maybe the same for dogs?
I hope he gets better. Ask the vet about removing the prostate. He/she will know.

I hope your hormone levels are okay or at least they figure out what's going on with you.
Keep us posted.

HUGS,
Rohrer01

jrnyc
05-06-2014, 01:02 PM
thanks rohr...
today is second day he won't eat food that is prescribed for him....
if he goes three days i will have to cave...vet told me not to go
beyond three with him not eating...stubborn boy...

going to hospital to get blood work results on cortisol today

jess

jrnyc
05-06-2014, 04:53 PM
picked up lab results...the way i read the numbers, it looks
to me like i do not have Addison's, but i have very low cortisol...
it appears my levels came up after they injected me...which
should mean my body is able to make cortisol...
but i will wait til i see endo doc...next week, May 13th....
after that, i expect to find a good endocrinologist in Manhattan
and try to find out why my levels are so low and i am so
exhausted all the time....
there is a chance lowering my thyroid meds might help...that will
be discussed with doctor and hormone doc in Venice CA in phone
consult...

wonder if this means i could risk another STEROID shot in hip....?
i really need one for left hip...bursitis is burning...

on other topic, i caved after Sparky did not eat canned special
food for 2 days...and gave him food he likes....he goes on
antibiotics next week and i cannot have him weak from not
eating...i will fight the "right canned food" fight another day...

jess...and Sparky

Pooka1
05-06-2014, 07:18 PM
wonder if this means i could risk another STEROID shot in hip....?
i really need one for left hip...bursitis is burning...

That would be so great!


on other topic, i caved after Sparky did not eat canned special
food for 2 days...and gave him food he likes....he goes on
antibiotics next week and i cannot have him weak from not
eating...i will fight the "right canned food" fight another day...

jess...and Sparky

You were right to use your best judgement. I did not force feed Fluffy as much as I should have because he just despised it. But I did everything else and his kidney and liver enzyme levels were back to normal but he is very anemic. I am going to try baby food.

We do the best we can.

Sharon

jrnyc
05-06-2014, 08:03 PM
thanks Sharon....yes, true...we do the best we can for the little guys....hope Fluffy feels a little better every day...

i do not know if another half dose steroid shot would drop my cortisol to zero again...
i do have dental surgery/implant to get done that i put off when i went for Addison's test.....trying to reschedule it for end May....that will be physically stressful, so i do not know that i should try steroid shot same time...
but the bursitis is causing burning pain again....so hard to take...

i never knew scoliosis had so many complications to other parts of the body....don't know why i didn't see it coming, since everything is connected....i just never did....thought pain would be limited to my spine, which was bad enough...did not see hip and neck and all the other places becoming
problems too...did not realize how much harm a crooked spine could lead to.

jess....and Sparky

JenniferG
05-09-2014, 11:37 PM
thanks Sharon....yes, true...we do the best we can for the little guys....hope Fluffy feels a little better every day...

i do not know if another half dose steroid shot would drop my cortisol to zero again...
i do have dental surgery/implant to get done that i put off when i went for Addison's test.....trying to reschedule it for end May....that will be physically stressful, so i do not know that i should try steroid shot same time...
but the bursitis is causing burning pain again....so hard to take...

i never knew scoliosis had so many complications to other parts of the body....don't know why i didn't see it coming, since everything is connected....i just never did....thought pain would be limited to my spine, which was bad enough...did not see hip and neck and all the other places becoming
problems too...did not realize how much harm a crooked spine could lead to.

jess....and Sparky

Hi Jess,

I've been away for a few days, just wondering how you and Sparky are. So sorry about that horrible burning, it must be so hard to live with.

It's amazing with animals (I have two cats.) If they don't like the food, they will starve themselves before they eat it. I think sometimes that when this happens, we suffer for them more than they suffer themselves.

jrnyc
05-10-2014, 01:16 AM
hi Jen
thanks for the kind words...i am considering asking pain doc
for another half dose steroid shot in left hip that burns so
badly...will risk my cortisol level dropping all the way down
again....

got a call today that Sparky's urine grew ZERO bacteria in the lab...
so the problem is his prostate...and he needs surgery soon...
he sees his regular vet May 12th, Monday, for more vaccinations...
so we will discuss it then...
this is something he was born with as a puppy mill dog....poor baby...
i am afraid he may need the surgery on prostate every 2 years or so...
he brightens every day for me...so i want to try to make him healthy
and happy....and keep him from pain.

have a peaceful restful wkend...
jess...and Sparky

JenniferG
05-10-2014, 05:38 AM
I wonder why it's so hard to clamp down on puppy mills? We have the same problem here. All the best to Sparky.

I can understand you wanting to take the risk with your cortisol. I can't imagine having that burning every day. Good luck Jess, with whatever you decide.

mabeckoff
05-10-2014, 11:21 PM
Jess,

I hope that both you and Sparky get better soon

Melissa

jrnyc
05-11-2014, 03:38 PM
thanks Jen...
and thank you, Melissa...
i wish the same for you...

jess...and Sparky

golfnut
05-11-2014, 07:01 PM
Jess,
I hope you and Sparky are both feeling better. I felt so helpless when I couldn't get Nicki to drink or eat. It breaks your heart.

jrnyc
05-11-2014, 10:28 PM
thanks Karen...
walked puppy today and my left hip never stopped burning...
so i want to try another half dose steroid shot...end of May
when i see pain doctor....dental implant surgery rescheduled
to June 3rd.

no one knows why Sparky does not get thirsty....i wish there
was a pill to make him want to drink water...
will see what they say about scheduling his surgery at tomorrow
nite's appointment with vet.

hugs and woofs

rohrer01
05-13-2014, 12:16 AM
thanks Karen...
walked puppy today and my left hip never stopped burning...
so i want to try another half dose steroid shot...end of May
when i see pain doctor....dental implant surgery rescheduled
to June 3rd.

no one knows why Sparky does not get thirsty....i wish there
was a pill to make him want to drink water...
will see what they say about scheduling his surgery at tomorrow
nite's appointment with vet.

hugs and woofs

Jess,
No offense, but are you nuts? Your cortisol is low, right? I would recommend pain meds until you can figure out WHY your cortisol keeps crashing. I'm really concerned about this and hope you don't do it. Can you even have dental implant surgery with low cortisol?

Very concerned,
Rohrer01

P.S. My inbox is now empty. ;-)

jrnyc
05-13-2014, 12:30 AM
thanks for the concern, rohr...
i have one dental surgery left...that should be it...
and i am sure i have had surgeries before when my cortisol was
low, since my levels seem to bounce around...
i have to call the endocrinologist in Manhattan...
keep procrastinating....upsetting when they don't take
your insurance...won't know til i call....
i see endo doc in CT tomorrow...Tuesday May 13th...
but that will be it...don't like or respect her...
i am ON pain meds...they do not do much for the burning pain.
i will discuss getting a shot with my GP, whom i respect the most.

Sparky got two scheduled vaccinations today...poor baby barked and barked at them when they were done....he was not a happy camper...
and he is now scheduled for another sonogram May 27th..this time they will do a needle biopsy with it...to see if he does need the surgery...
i expect them to say he does.

thanks again for the concern....have to find a doctor who knows
what they are doing....good endocrinologists are hard to find...

jess...and Sparky

mabeckoff
05-13-2014, 05:58 PM
Hope you get some relief and Sparky does as well

Melissa

jrnyc
05-14-2014, 11:12 AM
thanks Melissa

Sparky is rescheduled for needle biopsy/sonogram
tomorrow, May 15th....around 1:00...
i am worried about him...his breath smells bad and i
brush his teeth every nite...do not know if it could
be related to the cysts on prostate...but vet will
check his teeth tomorrow when he goes in...

he brings so much joy, the sweet puppy...

jess...and Sparky

jrnyc
05-16-2014, 12:19 AM
the vet that has done his sonograms before did today's...decided not to biopsy....the last sonogram was done by someone
who doesn't know Sparky...
the cysts are bigger than 6 months ago, but they are going to wait...i have to bring in urine sample every month and he will get another sonogram in about 3 months...
they said biopsy is so invasive...this after telling me it doesn't hurt all that much...what do they know?!!

they sedated Sparky at my request...he was shaking with fear when we got there...always does...vet said he was a very good boy....and he was too sleepy to
bark at them to tell them off when it was over...

getting his teeth cleaned next month...vet said there is some plaque on his teeth....his breath was OK today, of course, since he saw vet...

sweet boy is back home with his momma, where he belongs....

thanks to all who expressed concern...

jess...and Sparky

Karen Ocker
05-17-2014, 06:48 AM
Irina..thank you so much for your kind concern...and your thoughts are much appreciated.
i hope you recover fully from your surgery, to be pain free.

rohr...so sorry to hear that your shoulder is still causing pain, but
i am glad the shot helped for now, and that it answered your question.

my daily pain at my right hip is so severe it shocks me....
i am pretty sure inflammation is involved, but i do not know if worsening lumbar curve is causing the inflammation....
i need a new spinal X ray anyway, as my latest is from Jan 2012....
but i never have had a hip X ray...i cannot see anything on my 2012
X ray that tells me anything is going on at hip level....i do see how the curve gets worse there....
this pain only started a couple of weeks ago, so maybe a new spinal X ray will reveal something going on there.

you are right, rohr...
i am very leery about steroid shots...if a doctor told me a very small
amount of the stuff might help the hip...i still do not know if i would
risk it...only because there is a chance if my cortisol disappeared again,
it might not come back...and Addison's disease scares me.

jess...and Sparky

Jess, our hips were designed a certain way. With your large lumbar curve the mechanics of walking are way off normal and the gait is affected. This is often a cause of trochanteric hip bursitis. IMHO don't bother with more radiation to your hips. Just address your scoliosis which is impacting your quality of life and your health. Fear is your greatest enemy and spoiling your life.

I am still pain free 12 years post-op.

Susie*Bee
05-17-2014, 09:06 AM
Jess-- I don't know if this helps any or not, but I am positive that my scoli caused hip pain for me. I have never been one to wear anything but comfortable shoes past a certain young age (tee hee) but during the few years just prior to my surgery, so many of my shoes caused my hips to ache terribly that I had to give them up. They were just normal short shoes that you wouldn't give a thought to-- but the sole might have had as much as a 3/4" "heel" to them-- enough to tip you forward just a tad. After my surgery they were fine again. At least that is how I viewed it-- tipping me forward... Best wishes. And I agree with Karen. That is what my doctor said-- when your scoliosis interferes with the quality of your life and you can no longer live it the way you want to, you will know it is time to have surgery. He left it up to me, and I decided. I have never regretted it even though it is tough for awhile. It is tough not having it also, and you are not getting anywhere, but progressing backwards. Best wishes as you continue to mull over your options.

jrnyc
05-17-2014, 01:04 PM
thanks for your kind concern, guys....

must be working on my subconscious...
i had a dream i was having the surgery...woke up bothered by it...
the dream had an overall violent sense to it...

invading my dreams...not good...
one should be able to get away from troubles when asleep!

jess...and Sparky

rohrer01
05-17-2014, 03:46 PM
Jess,
Karen may be right. The longer you wait to fix the spine, the more damage that is done to your hips.
Spine surgery is scary, but so is hip replacement. That's eventually where you'll be at this rate.
Perhaps if you can fix the spine, you may be spared the hips...???

HUGS,
Rohrer01

jrnyc
05-17-2014, 09:44 PM
i don't know, rohr..
i was told i have bursitis in left hip...right hip now feels the same
as left...
but the surgery scares me...that there is no sure outcome of less
pain...if there were, i would have had the surgery 7 years ago...

thanks for the concern...
jess...and Sparky

titaniumed
05-18-2014, 02:31 AM
After waiting and living in such pain for all those years, (It was torture) I finally had scoliosis surgery, and healed wonderfully.....

When my cervical discs finally decided to become extremely painful last year after a few pain free (spine) years, I basically lectured and vented to my surgeon about pain....I didn’t want to continue on battling herniated discs anymore!!! For all those years the surgeons were telling me to have scoliosis surgery, and now with the neck, I’m as ready as can be for an ACDF surgery on my neck, but it was a different story..... He was going to manage that with steroids, and diclofenac and it worked. I have taken 2 diclofenac pills in the last 12 months, so that would be considered extremely successful pain management. How many shots does it take to realize that its not successful for the long term? I rejected shots in my lower spine in having 4 lumbar herniation’s, I’m not a doctor, but still didn’t make any sense to me, Dr Menmuir agreed. I had 20 different pain producing problems down there! A lumbar train wreck.

Jess, as you can see I have had 2 different scenarios of bravery and decision making here.....spine and neck. When I wasn’t ready I needed surgery, and when I was ready, surgery timing wasn’t ready. As far as my scoliosis surgical decision, I was too scared and paid a stiff price of major pain through my 40’s. If I could turn back time, I would have done it 10 years earlier. You are in the same exact situation I was in leading up to my scoliosis surgeries.

One of the things that helped me was watching Dr Boachie fix Juma Genda on the Discovery program “Surgery Saved my Life”. I watched that program probably 30 times (with the gore) and figured if Juma could be repaired, so could I. This kid was 15 years old, and knew he just had to do this to save his life.

Your lower spine is as bad as mine was....I wont forget your x-rays.

Ed

jrnyc
05-19-2014, 12:06 AM
thanks Ed...for explaining and sharing...

i fully sympathize with c spine stuff...my recent neck MRI shows i have herniated disc in my neck...i was blaming all the constant neck pain on classic symptom of Lyme...
and whiplash accident when undergrad in college...but i have to say, finding out i have a herniated disc in neck did not surprise me...the neck pain is with me every minute of every day...

and even though my cortisol level is still too low, i want to ask for another half dose shot of steroid in hip....bursitis burning pain is hard to take 24/7

i hate that i am allergic to NSAIDS...told to not risk trying another
one...the Diclofenac really helped eliminate at least 50% of my pain,
but i had to stop after 5 months when i had an allergic reaction.

all said...the pain in my lower back and my hips...especially left hip...
is the worst of all the pains i live with...but without NSAIDS, with
nothing but narcotic pain meds, the only other med is the shots....
and since i have a problem with adrenal function, i have to be so
very careful and sparing with those...

i am very glad for you that you were able to avoid surgery on your
neck, and that a simpler approach helped.
i hope it is lasting relief....you so deserve a break!

jess...and Sparky

titaniumed
05-19-2014, 06:12 PM
Jess

You need scoliosis surgery, you know this.....

This will probably be the only time I type this.....but your special.

Somehow, someway, I hope the needed trust and bravery will sink in.....

Ed

jrnyc
05-19-2014, 09:11 PM
thank you, Ed
i appreciate your kind words and effort to help me see things
clearly....
i know...i know i need the scoli surgery...

i realize with the pain in my neck...literally...that i live
with alot more hurting on a daily basis than i care to think
about...
i do not know that i am as brave as you...and the others
who had scoliosis surgery...i especially admire those who
are fused to sacrum...that scares me the most...

wishing you a wonderful spring and summer...
jess...and Sparky

golfnut
05-19-2014, 09:50 PM
Jess,
Think about your quality of life now with so much pain and also what your future holds without surgery. I wasn't in much pain and still opted for surgery because Dr. Lenke convinced me that I needed it for a quality of life in my later years. Fusion to the sacrum is nothing like I feared it would be. There are many of us fused to the sacrum that ski, dance, golf, play tennis, kayak, etc.

Doreen1
05-20-2014, 08:12 AM
You've let fear paralyze you for years. Has this mindset improved your situation? If not, isn't it time to try something different? I'm sure you've heard the saying: The definition of insanity is banging your head against the wall and expecting a different result.

Jess, you are a smart cookie. Life is full of tough decisions. As you've heard before, the longer a scoli patient postpones the surgery, the more challenging the surgeon's job becomes. Isn't the worst decision making no decision?

Gentle hugs!




thank you, Ed
i appreciate your kind words and effort to help me see things
clearly....
i know...i know i need the scoli surgery...

i realize with the pain in my neck...literally...that i live
with alot more hurting on a daily basis than i care to think
about...
i do not know that i am as brave as you...and the others
who had scoliosis surgery...i especially admire those who
are fused to sacrum...that scares me the most...

wishing you a wonderful spring and summer...
jess...and Sparky

jrnyc
05-20-2014, 09:33 AM
to Karen...and Doreen..
thank you so much for the concern about me and my
decision not to have surgery...or my indecision...

i do not know if i am crazy, Doreen...
because i do not expect different results...
i know my scoli will not get better...and that no tx in the world, as yet discovered, can make scoliosis reverse itself, or improve...
i do not think it can be halted in any way...without surgery...
but i am also aware...may i say painfully aware....that i have no way of knowing if i would be one of the lucky patients...one of the ones who would have successful surgery...

there is another expression...that "the devil you know is better than
the devil you don't know..."

jess...and Sparky

mariaf
05-20-2014, 10:04 AM
Hi Jess,

I haven't really checked in much during the past few weeks, and I was SOOOO sorry to read about all the troubles you and Sparky have been going through and dealing with :-(((

Big hugs to you both!!!

I know my friend's daughter sees an endocrinologist in CT and they absolutely love her. I don't have any details (where the doc is, what insurance she takes) but I'm happy to ask. I believe she treats adults too because my friend's daughter is almost ready for college and will continue with this endo so I'm guessing she's not strictly a pediatric endocrinologist.

I'll be thinking of you and Sparky!!

And yes, sometimes it's easier to deal with the devil you know! The decision to have surgery (or not have it) is a huge one - with so many uncertainties - that you have to be comfortable with your decision - and it seems that you are. If and when you are ready, you will know. Hopefully, you will be able to get some relief in the near future, maybe if they feel it's safe for you to get another shot (fingers crossed).

jrnyc
05-20-2014, 09:41 PM
hi Maria
thank you so much for such kind thoughts...
i would love to have the name of the endocrinologist...
i have to call the endocrinologist in Manhattan and see if he
takes my insurance....it would not surprise me if he
does not...
it would really help to have the name of someone closer
by who comes recommended.......CT doctors seem more familiar
with my type of Aetna insurance than doctors in other states...
i got to have a PPO because Aetna does not have my particular
insurance policy as an HMO in CT...lucky break.

Puppy thanks you for your kind concern as well...and sends
woofs to Jackie.

jess...and Sparky

mariaf
05-21-2014, 09:12 AM
I just e-mailed my friend and will let you know as soon as I hear back.

Tell our little man Sparky to hang in there!!!!

rohrer01
05-21-2014, 10:21 PM
Jess,
I'm just so concerned for you that you'll wait too long. Then you won't have a choice of whether or not to have surgery.
I have a friend with horrible spondylolisthesis and stenosis. She knowingly made the choice NOT to have surgery. She knew that her window of opportunity was closing, so was fully aware of her choice.
I'm not so sure that you are, no offense.
I think fear is dominating you and I would hate to hear that you finally want surgery and then find yourself at a point where you can't have it for one reason or another. So, please, please, at the very least keep seeing the spine doctors every couple of years so that doesn't happen to you. I would hate to hear that your indecision was your choice and caused you to have no choice. Does that even make sense?

Right now I think your priority is to find out what the heck is going on with your hormones. You can't have back surgery with low cortisol. You need to be able to heal. I'm sure someone will correct me if I'm wrong. But won't they have to supplement you if it's too low? Would that cause it not to come back? You are in a tough predicament!
I hope that doctor in CT is a really good one AND takes your insurance!

I so wish that there were better methods of pain control out there. Drugs only work for so long and have risks of their own.
So many of us on here suffer with pain of all sorts. So many of us suffer with drugs, too.
I'm glad we have this place to vent.

Keep us updated on your cortisol and what new things they find. I really hope that someone figures this out!
Keep us updated on Sparky, too! Poor little guy. He's so lucky to have found a "mom" like you!

HUGS!
Rohrer01

jrnyc
05-22-2014, 03:36 AM
to Maria....thanks so much for the information and kindness.

to rohr....thank you as well...
i understand what your concern for me is...
i really do not think i will have the surgery....at any point...i was ready to do it about 7 years ago, when i retired early, then had to stop while i took care of the tumor in my left femur....and then i moved to CT....etc...will not even go into that...

but after that, the more i read, the more the possibilities of complications and need for revision surgeries became apparent to me...i knew very little 7 years ago, when i had decided to go ahead with fusion from T4-sacrum....the more i read, the less i wanted to have the surgery, and i have not been able to talk myself into it since....the times i did, i changed my mind.

as for the cortisol...i was given cortisol pills that were low dose...but never took them....the latest endo doc i saw, whom i didn't think much of, suggested i could
take a low dose every day or every other day...but that can be a slippery slope...
i am afraid, as you mentioned, that i would have to keep taking them.
years ago, i was put on steroids for pain relief...i required too high a dose to get
relief from pain, and we stopped the tx....
but my current GP told me for low cortisol, a very low dose does the trick....
the pill tx still scares me...
this is why i need to find a top endocrinologist who can do further tests on me.,
and give me better advice.

puppy is the sweetest...he sends everyone wet kisses....and doggie hugs.

jess...and Sparky

jrnyc
05-22-2014, 02:02 PM
just as i suspected....endocrinologist in Manhattan (recommended as very good) does not take my insurance...

moving on...gotta find a good endo doc...

jess...and Sparky

mariaf
05-22-2014, 03:23 PM
Hang in there, Jess. As you now know, unfortunately, the endo my friend's daughter uses does not treat adults, but she should be able to recommend someone. She will need to transition my friend's daughter to an adult endo in a few years and has indicated that she has someone in mind. Stay tuned :-)

rohrer01
05-22-2014, 06:00 PM
Jess,

Just as my friend made an informed decision never to have surgery, I don't really think she fully understood the ramifications of that decision. It's too late for her now. She rides around in a wheelchair and lives on pain meds. But, you and I already live on pain meds. But, as you know they lose their effectiveness.

I don't want that door of opportunity to slam shut on you if you ever find yourself in a place where surgery feels like your only option. Your scoliosis may well cripple you more than you realize. I'm not trying to scare you, but your hips WILL go if your gait is uneven. The spondylolisthesis and stenosis PLUS worn out discs will cause your spine to autofuse. So, either way you will get a fusion. It's how you want your fusion. Sorry to sound so blunt, but I saw what happened to my friend and it wasn't pretty. I just want you to keep in touch with the scoli docs so you don't end up changing your mind and not being able to. I'm hoping I'm wrong about all of this. None of us deserve this. But, there are always people worse off than us. It's hard to believe sometimes until you see one. Please take care of yourself. I hope you find a great endo that you can trust.

HUGS and Woofs!

titaniumed
05-22-2014, 11:57 PM
Jess

I stumbled across a group of Dr Hey adult testimonial videos....

Grab some popcorn and watch these.....

http://www.youtube.com/watch?v=xo4Qy4vxMn8&list=PLuKdsL3fqSh-BWSGZS3NPEK07NpfmdxLY&index=1

Ed

jrnyc
05-23-2014, 12:38 AM
thanks Maria....
any info will be much appreciated...

rohr....thanks for your concern...i know you want to see me do what
is best for me...

Ed....thanks to you as well....i know what i will be watching this
Memorial Day wkend....am sure i will enjoy the videos.

a great wkend to all....
jess....and Sparky

mabeckoff
05-24-2014, 01:05 AM
Dr Hey was awesome. If I did not move to CA, I would have used Dr Hey

Melissa

jrnyc
06-09-2014, 12:58 AM
hmmmm....
i have some phone calls to make to surgeons Monday....
it is now almost 1 a.m., so that is later today....i have to
get the courage up....only because i have a sinking feeling
that no one will take my crummy insurance (i was forced
to change to by NYC bureaucracy)...from the list on Dr Hey's website
it does not look like he takes ANY form of Aetna insurance...
guess it is time i find out....

hope folks had a nice wkend...
i walked Sparky Saturday and Sunday...each day
got worse for my spine...it literally feels like my spine cannot
hold me up anymore...i am walking bent over when i walk
him...and the pain in spine and in hip is bad...very bad...
only for sweet puppy would i force myself to do it...
especially after i saw forecast for rain Monday and Tuesday...
but i do not know how much longer i will be able to continue
the walks for him.

best wishes to all for a good week.
jess...and Sparky

golfnut
06-09-2014, 02:31 AM
Please find the courage to make that phone call and see what can be done to help your spine. Don't wait until it's too late and you are out of options.

JenniferG
06-09-2014, 04:28 AM
Oh Jess, that's so sad and so awful for you. It's Monday night here, I hope you've made that call. Thinking of you and hoping there's a solution for both your and Sparky's sake.

Pooka1
06-09-2014, 07:43 AM
Jess,

Someone expert is going to take your insurance. They have to.

Did you solve your cortisol/hormone issue?

Hugs to you and baby Sparky monkey.

Sharon

jrnyc
06-09-2014, 02:48 PM
long story short...
Lonner's office checked and called me back...
the TAKE my current insurance...
i was so shocked...i could not think...
made appt for June 26th....planned for July but it wasn't
working out....so i figured why wait that long...

i do NOT know what i will do when i see the doc...
receptionist said i saw him in 2010....

thanks to all who expressed concern...
jess...and Sparky

mariaf
06-09-2014, 02:54 PM
That's great news! I also reached out to Dr. Betz as promised for a recommendation, so we'll see what he says. Look at you - now you may have several docs to choose from :-))))

I think Sparky had something to do with this - LOL!

Pooka1
06-09-2014, 03:02 PM
Very good news, Jess!

jrnyc
06-09-2014, 03:22 PM
thanks Maria...
so kind of you....

Sharon....this amazes me...i didn't expect good news from them...

Sparky is happy for me....

woofs

titaniumed
06-09-2014, 08:29 PM
i do NOT know what i will do when i see the doc...

Jess, just say, “I’m back, What am I going to do?”

Just sit back and listen....

There is a time when we all have to accept the fact that we cant go on doing what we are doing living in misery....You have to realize that its just not worth continuing on like this and that surgery is your only hope. That’s the way I felt....It didn’t matter if I couldn’t bend or ski or whatever, its not about that. Its about cutting losses, reducing pain, and getting it done before its too late.

I think that we have a tendency to get all jammed up in our minds about this.....it’s a time that we need to control our anxiety, and try to think logically.....again, breathe deep!!!

And ask him one more question....

“Will it help?”

Ed

JenniferG
06-10-2014, 12:18 AM
Great news! You're over one hurdle already. <smiley face>

springchicken
06-10-2014, 08:03 AM
That's great that you are seeing a doctor, Jess. Good luck at your appointment!

Have courage! You will surprise yourself and find you're a lot stronger than you ever thought you could be.

jrnyc
06-10-2014, 02:23 PM
to Ed, Jen and Spring Chicken...
thanks for the kind words and encouragement...

i know that it is fear of the unknown that holds me back,,,
and every time i bend down to pick up Sparky or change his
water...the boy doesn't drink....he thinks he is a camel...
or pick up his toy, i wonder how things would be if i were
fused...

i know others have done it and triumphed...just do not
know that i could be in that group...

i also might be doing it essentially alone...

jess...and Sparky

golfnut
06-10-2014, 07:34 PM
Jess,
I wish you could follow me around for a day. You would be amazed at what I do in a day, from weeding landscaping, washing windows, taking exercise classes at the Y, playing 18 holes of golf, riding my bike, etc. I was scared to death and thought my life as I knew it and enjoyed it (I wasn't in much pain) might be nonexistent after surgery. I don't bend in the middle of my back, but go down on one knee all day long to feed my dog or pick up something off of the floor or I can also do the a one legged reach. People fused to the sacrum can bend at the hips just not the middle of their backs. Surgery is no fun, however, eventually when the spine is fused, for the majority of us, our futures are soooooo much more promising than if we chose to not have surgery with a curve that would most likely increase and cause increasing pain. Watch my video again and remember that it was over two years ago. I am much more flexible now. I can also stand for as long as I have to where I used to seek a seat whenever I was out. You can do it!!!!

danicaf
06-10-2014, 08:10 PM
Hi Jess,

I'm new to the forum and considering surgery also. I have to say Karen's reply to your thread is inspiring. Today I'm in so much pain I have two lidocaine patches on my back and it killed me to walk through a garden center with my husband...and my favorite thing to do is walk through garden centers. So now I'm sitting here thinking about what else I can do to alleviate my pain; what drug, what stretch, heat, cold...you name it. I don't want this surgery either but I know that I can't stand living like this. Or more importantly...not living.

It's a big decision, but from what I've been reading on the forum you seem like a smart lady. Look to the future; sometimes that's all we can do.

I'm rooting for you!!

Diane

jrnyc
06-10-2014, 09:31 PM
thanks, Karen...
i wish i could follow you as well...
you sound amazing in that you can do so many things....
one thing you mentioned does worry me a little...
both of my knees are not good...one has a medial meniscus
tear...the other a cyst...both have arthritis...

Diane, i am glad if the lidocaine patches help you...
i hope they can do the trick and you do not need oral
meds...?

thanks to everyone on forum who has kindly expressed
concern and support for me...it is appreciated more than
i can say...
jess...and Sparky

golfnut
06-10-2014, 11:13 PM
I am fortunate that my knees are still in good shape, but I can see why it would be a concern and something to mention to the surgeon. It might be a good thread to start and ask how those have had surgery and also have knee replacements or other knee issues deal with picking up things once restrictions are lifted. I am able to pick up things off of the floor without squatting down on one knee by holding on to something with one hand and leaning over while kicking one leg out behind me. Someone on the forum called it a golfer's reach which I had never heard of before.

JenniferG
06-11-2014, 05:40 AM
One statement in this encouraging thread stood out to me: You will surprise yourself and find you're a lot stronger than you ever thought you could be.

This is so true. You have more strength and courage than you imagine. And you will come out of it the other side with a renewed confidence in yourself.

We're with you all the way, Jess.

jrnyc
06-12-2014, 07:40 PM
Jen the more i read the forum the less i am interested
in having fusion to sacrum, which is what i require...

today i read someone's post about never wearing anything
post surgery for the rest of her life except for stretchy clothing...
sounds horrible.....that is not a reason that would stop me
from having surgery.....just one more on a long list...

the need for fusion to sacrum is what has kept me away
from surgeons...
too bad there is no way to fuse the top and then fuse the
bottom and not fuse them as one...

i still do not see myself fused....it is not in my head
as my future....it discourages and terrifies and saddens
me beyond words...

i am happy for any and all who are glad they had surgery to sacrum.

jess....and Sparky
(who requires his owner bend down constantly)

JenniferG
06-12-2014, 08:47 PM
I'm sorry to hear that Jess. I'll never stop encouraging you towards surgery because I believe it will help you enormously. But I also respect your choice. When the time comes, if it comes, you'll have lots of us here, barracking for you.

Susie*Bee
06-12-2014, 09:26 PM
And I've never heard of anyone not wearing anything but stretchy clothing. Maybe that is just one person's preference. Not mine, and I'm sure not others...

jrnyc
06-13-2014, 02:21 PM
thanks, Jen and Susie Bee
i am truly touched by your concern for me and by your
encouragement..
i know one person's experience does not speak for everyone...
i think sometimes the fear takes over...
also, where i am living now is not conducive to physical recovery...
eventually i will get around to inquiring if anyone in southern CA
takes my current insurance...which i plan to change in January.
i also expect to be in southern CA in January.
past winter was the last winter in northeast for me.

thanks again...you guys are so kind.
jess...and Sparky

titaniumed
06-14-2014, 12:43 PM
Jess

On the mobility question as far as being fused to the pelvis, the very best way to know what its like is to wear a full hard brace. Regardless on if they work or not, this was worth a fortune and prepared me for my surgeries. I knew what I was getting into.

I have an idea.....I have my “post surgical” brace, which is a split clamshell setup with a front and a back attached with velco straps on the side. I could UPS this to you, and you could try it on and feel what its like to be fused to the pelvis. Its in brand new condition and I hardly wore it.....If it doesn’t fit, you can simply use a hack saw and make it fit. This is easy. Throw it out when you are done with it, or use it as a little dog house for Sparky. Its lined with foam. (smiley face)

My Copes brace is a relic....and a part of my “turbulent” scoliosis history and I wouldn’t want to part with that brace....That one was a custom fit, and is tight as a drum. Regardless of what Art Copes did, I will give him credit on his brace design....I have no regrets on the purchase of his brace.

I understand wanting to move to Southern California due to your situation. I will have to come down for a visit...

Let me know

Ed

jrnyc
06-14-2014, 01:10 PM
you are so kind, Ed...
i will let you know...
thank you...so much.

jess...and Sparky

titaniumed
06-14-2014, 02:20 PM
I wonder if there is a market for a scoliosis brace cat house?

I could mount it on a pole and tiger can sharpen his claws on it. (Entertainment value for prior brace wearers)

Do you think our nations Orthoist’s would find that depressing?

Ed

jrnyc
06-15-2014, 10:07 PM
i do not know about braces....
never seen one...
i do not think kitties need houses...
although the tiger i used to help out with in CA,
near Moorpark, had a den....he slept in there, took
naps there after he ate....

16081609

loves to skate
06-22-2014, 01:48 AM
Jess,
I have been away for my grandson's graduation up in Providence, RI. If I can give you any kind of encouragement, I would say that if you don't think you have the strength or courage to go for a fusion to the pelvis, think about this. Our strength and courage comes not from us, but from the One who made us. Most of us have been absolutely terrified prior to our surgeries, but when the time comes, peace comes to us and the power of God takes over. (Linda, you can delete this post if you must, but it is the truth.) You have told me you are a believer, so now it is time to trust in Him. I wish you all the Peace in the world. How could you possible want to live the rest of your life as an invalid in serious pain?
Blessings to you, Sally