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LindaRacine
01-25-2013, 03:07 PM
Not sure what type of scoliosis this is, though I doubt it's idiopathic. It can really put it all in perspective for some of us.

http://www.srs.org/patient_and_family/patient_stories/caitlin.htmHi...

titaniumed
01-26-2013, 12:30 PM
Scoliosis is extremely complex.

Why curves progress into the extreme shapes that they do, and why some stand still for periods of time are just two questions in a challenging puzzle that all doctors and scientists throughout the world need to keep trying to solve.

We all have to be thankful that we have our surgeons and current technology. Nobody wants surgery, but there are times and cases when we have no choice. Caitlin’s case is one of them.

These testimonials are excellent ways to compare and see curve examples and outcomes. Just when you think your in a tough spot, someone out there like Caitlin pulls through with flying colors....An example of determination, and a will to succeed that many take for granted.

Ed

braceyourself
01-26-2013, 09:57 PM
That's incredible! It certainly reminds us that a situation can be anything you make it.

rohrer01
01-26-2013, 10:43 PM
It's amazing that poor girl even survived to get to Shriner's. I read one study where the natural progression of scoliosis was followed and the fatalities occurred at around 140*. Wow!

susancook
01-26-2013, 10:46 PM
Who let her curve get so big before someone tried surgery?
Susan

tonibunny
01-27-2013, 01:19 AM
That is an amazing correction! I have two dear friends who have/had curves of above 150 degrees - one lives in Europe, the the US. Both are Idiopathic cases, but neither of them received adequate treatment as teenagers. One had surgery in her 30s which basically saved her life as her curve was using severe problems, and corrected her main curve down to about 75 degrees; the other lady's lung function is now too poor for her to consider surgery at all, and she is on full-time oxygen.

It is very sobering to think of how severe scoliosis can get without treatment, and I know how incredibly fortunate I was to have had such good care.

titaniumed
01-27-2013, 01:38 AM
Kids that have scoliosis really need to be watched like a hawk. When curves progress as fast as they sometimes can, each day the situation gets precarious.... There are many reasons why, fear probably being the leading cause. Fear from parents and surgeons.

Some insight from Dr Nuzzio....(graphic photos)
http://www.pediatric-orthopedics.com/Treatments/Skeletal/Spine/Scoliosis/Paralytic/paralytic.html

Waiting, thinking, bracing, are all part of the process....

It was an incredible correction....and a very lucky girl.

Ed

Pooka1
01-27-2013, 09:11 AM
Some insight from Dr Nuzzio....(graphic photos)
http://www.pediatric-orthopedics.com/Treatments/Skeletal/Spine/Scoliosis/Paralytic/paralytic.html

That is just stunning. Just when I think I can't possibly be more amazed at how surgeons can help kids I get more amazed. They are literally saving lives.

titaniumed
01-27-2013, 12:50 PM
Yes it is. And I misspelled his name, its Dr Nuzzo. Sorry Doc.

It truly is about saving lives..... Scoliosis is “secondary” to many underlying disorders as you can see, so complex, that those that care to ignore these “primary” or initial problems, can or are playing with the unknown which is unwise. Treatment of spinal deformity requires a thorough understanding of the underlying disease, and of course spinal mechanics and balance.

For those that dedicate their lives studying and trying to answer questions, we owe them a sincere thank you. I do every day. Documentation is important for those that follow in the footsteps, and explaining things in a layman’s format on his webpage is greatly appreciated. His website answers many of our questions, and he keeps adding to it....Thank you.

Since I have lived my life with scoliosis, and have had loved one’s afflicted by some of the nasty disorders mentioned on the Nuzzo site, I have an interest in asking the main question. WHY?

Since my 5 year anniversary is this Tuesday, I have purchased myself some new reading material.....(Big smiley face)
http://www.sciencedirect.com/science/book/9781416033721

Of course I thank, Dr Menmuir, and all the others, Dr Rembetski, Dr Halki, Dr Uppal, Dr Kannelos, and teams for keeping me going!

I hope I didn’t forget anyone.....

Ed

rohrer01
01-27-2013, 01:56 PM
For those that dedicate their lives studying and trying to answer questions, we owe them a sincere thank you.

Ed

I second that thought!