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View Full Version : 3.5 months post-op



king14
12-24-2012, 01:43 PM
Lets start with my lean... It's still there... Dr seems to think it will straighten over time... I'm still quite skeptical. So I avoid mirrors and tight clothing. Something that I thought was a thing of the past, but alas, here I am. What is good is that I am able to shift myself over (since I'm only fused to L1) when I do this... I look quite normal... So for short periods of time... I can "fake my straightness" as I like to call it.
Pics are of me regular, and holding myself straight.
Pain-- pain seems to have found me... Being painless before and after surgery, I thought I was a lucky one... Unfortunately it has caught up with me... Just between the shoulder blades. Aching, some shooting, burning, but mostly aching and quite uncomfortable. I think it's also the rainy cold weather.
Plus side of surgery- I really don't feel limited in my flexibility because they were able to stop at L1- I feel really fortunate to have had the surgery now, instead of later with more levels fused.
Overall- I'm sad about my overall appearance but I was sad about that before surgery so I seem to be back at square one. If it straightens out, awesome, if not, I'm not any worse off now then I was before...
Just trying to get back to positive thinking.
-sara

1413 1412

mabeckoff
12-24-2012, 05:34 PM
Hope you and yours have a merry Christmas

susancook
12-25-2012, 01:38 AM
Sara: It must be hard to sort this out. I would suggest giving it some time and see what happens. Maybe things will straighten out by themselves, or PT might help you. I wish you the best and a very Merry Christmas and the best for the new year.
HUGS to you, Susan

king14
02-26-2013, 01:02 AM
well, let's see. Next week I'll have my 6 month visit with the doctor...
I'm still very much crooked... my rotation seems to be coming back with a vengence. Rib hump, coming back slowly, but the lumbar (which was not fused) seems to be worse than before surgery. Seems the rotation is causing the curve to come back... I thought there was STEEL in there!!!
I look horrid. Still leaning to the side. Honestly worse than before surgery, at least before i was 'balanced'
So- next week we will go over the fact that I still have no feeling in my Lumbar... the part that was NOT fused. Left Lumbar still swollan.
Right shoulder blade winging again, and front of shoulder rounded back to its old position.
The fact that I'm still crooked and its NOT straightening,
The fact that i'll be told, that I'm ONLY 6 months out and I can still change... Well. I'm not changing. if anything i'm getting worse...
The upside. I have no pain.

Sorry- this was more of a rant. I'm done ranting. I'll let you know what the doctor says on Wednesday...

Is there any adult on this forum that isn't fused to sacrum that can relate? Or parent of a kid that can relate?
thanks

JenniferG
02-26-2013, 03:16 AM
I'm so sorry about your disappointment. I don't blame you for being disappointed given the rotation is returning etc. But I'm glad you don't have pain now, I think earlier in the thread, you did. I will be interested in hearing what the doctor says. I hope he doesn't just fob you off again. I don't think he should, there's obviously a reason your rotation is returning. Good luck!

Pooka1
02-26-2013, 06:21 AM
King14, I think you deserve some answers. You should be evening out, not getting worse at this point. Your case is so unusual though and I have to wonder if your surgeon has ever seen another like it to know what would happen. Certainly trying to save your lumbar is a noble task and worth the shot in my opinion.

Good luck at the appointment.

Sharon

golfnut
02-26-2013, 07:01 PM
I know how disappointed you must be. I hope you get some answers from your surgeon.

king14
06-19-2013, 03:58 PM
Well lets see..... 9 month appt today. ;/ - I did straighten out some...(I was leaning after surgery) i'm not perfect, but I wasn't before hand.... So that's good. BUT I am rotating more. I am twisting above and below my fusion. I was already rotated below, but i'm now rotating above. Head tilted to the side. etc, etc.
So - that's where I'm at. My pelvis is tilted, but so is my sacrum, so fusing lower, unless i go to my pelvis won't correct anthing. The rotation in my pelvis is causing my hip to be SO tight.

The rib hump is coming back becuase I'm rotating more.... Alas- what to do... nothing really.

I haven't posted in the happy or not happy thread because there's no point in changing whats already passed. My selective fusion didn't really correct anything - it corrected my T-spine, but has caused more rotation, and I still have the residual curve in the Lumbar.

Dr is now thinking shoe lift (again), he threw that around at 3 months) Not sure what to do or who to listen to. Shoe lift may or may not cause problems in my T-spine...

Ahh- we'lll see what happens at 12 month post op.

Pain level - varies from nothing to 8/9 - depends on the day.

And WHY doesn't insurance cover body work, massage myofascial work, the oNLY thing that makes me feel better. No they only cover Narcotics....

king14
08-22-2013, 11:05 AM
Not sure where to start so ill dive right in. Pre surgery 50/50
Post surgery(fused T4-L1) 16 over 30 with severe lateral shift.
Yesterday fusion still good and intact spine at 16 over 19... Significant change from June (where I was still 16/30) I don't know what happened in the last 3 months but ill take it .... I'm hoping that ill be one of those cases that continues to get better as the years go on.
Now... Visually - still sporting my shift... But it has improved since the surgery. So... Slowly but surely??? Who knows...
Had an appt with dr hey about a month ago and he is under the watch and wait because my shift is so large may effect other things as time goes by.
Saw my surgeon yesterday and comparatively from start to finish I have had drastic changes so he is not worried about the shift at all- and is happy we preserved so much of the L spine.
Ill update in a year as it seems that's when everything will really sort itself out...
So to all of you who said I takes TIME--- I concede--- it does (smiley face)

Pooka1
08-22-2013, 11:15 AM
Wow that's some good progress! The unfused portion wants to balance the fused portion so I am not surprised it decreased to near where the T curve is.

I would have invited you to lunch if I knew you were in town. :-)

Last, for the remaining shift, have you trying somatic shifting? It's a subset of somatic healing. :-)

tampamom
08-22-2013, 08:49 PM
So glad to hear things improved. I can only imagine how relieved you must feel. Thanks for the update!

Confusedmom
08-24-2013, 10:27 PM
Great news, King! Happy for you!!!

Irina
08-24-2013, 11:04 PM
I am happy for you too!

susancook
08-27-2013, 06:48 PM
King, I read your entry and it brought to mind a thought that I had earlier in the day. I am 5months postop and some things work so much better than before surgery, and others....not so well. In general, I am
Improving s-l-o-w-l-y...much slower than in want. Call me impatient too.

I have decided that there are 2 choices: chose to believe that I will improve over the next year OR chose to believe that I am stuck in a body with limitations that I do not want.

I am choosing the former.

Wishing you the best of luck in healing.
Susan

golfnut
08-27-2013, 08:43 PM
You will not only improve (gradually) during your first year, but even after year one and year two. I really figured that I had maxed out at a year, but not so. It takes the body a long time to heal after this major surgery and even longer to regain muscle strength and some flexibility.

ScoJo
02-23-2014, 10:17 AM
Lets start with my lean... It's still there... Dr seems to think it will straighten over time... I'm still quite skeptical. So I avoid mirrors and tight clothing. Something that I thought was a thing of the past, but alas, here I am. What is good is that I am able to shift myself over (since I'm only fused to L1) when I do this... I look quite normal... So for short periods of time... I can "fake my straightness" as I like to call it.
Pics are of me regular, and holding myself straight.
Pain-- pain seems to have found me... Being painless before and after surgery, I thought I was a lucky one... Unfortunately it has caught up with me... Just between the shoulder blades. Aching, some shooting, burning, but mostly aching and quite uncomfortable. I think it's also the rainy cold weather.
Plus side of surgery- I really don't feel limited in my flexibility because they were able to stop at L1- I feel really fortunate to have had the surgery now, instead of later with more levels fused.
Overall- I'm sad about my overall appearance but I was sad about that before surgery so I seem to be back at square one. If it straightens out, awesome, if not, I'm not any worse off now then I was before...
Just trying to get back to positive thinking.
-sara

1413 1412

Hi Sara,

I am evaluating Dr. Bederman as a potential surgeon. My fusion will be from the sacrum with pelvic fixation to T4. Do you have any information you would be willing to share about Dr. Bederman.

Thank you!

Scojo

ScoJo
02-23-2014, 10:22 AM
Hope you and yours have a merry Christmas

Hi Mabeckoff,

I see from you signature that Dr. Bederman was your surgeon. Would you kindly share your experience with him? He is one of the surgeons I am evaluating for my case which is a sacrum (with pelvic fixation) to t4 fusion for my scoliosis.

Thanks!

Scojo

JenniferG
02-23-2014, 03:56 PM
Scojo, I don't think Melissa comes to the forum any more. But I can tell you she held Dr. Bederman in very high esteem.

ScoJo
02-24-2014, 09:11 AM
Scojo, I don't think Melissa comes to the forum any more. But I can tell you she held Dr. Bederman in very high esteem.

Thanks, Jennifer!

3sisters
10-05-2015, 05:25 PM
Hi Sara,
I'm an occasional reader and an even less-frequent poster, but your story gave me a lot to think about. I hope you are doing well and after more time have continued to straighten!