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Is that to all syndromic (marfan) people that their bones are soft and not strong and suffers from fractures... ??
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I am more stronger than scoliosis. And I will not allow it to control my life. -
Hi Fatimah,
Osteogenesis imperfecta. It is a type of connective tissue disorder I believe, and there are various types and severities.Last edited by leahdragonfly; 11-29-2012, 08:07 AM.Gayle, age 50
Oct 2010 fusion T8-sacrum w/ pelvic fixation
Feb 2012 lumbar revision for broken rods @ L2-3-4
Sept 2015 major lumbar A/P revision for broken rods @ L5-S1
mom of Leah, 15 y/o, Diagnosed '08 with 26* T JIS (age 6)
2010 VBS Dr Luhmann Shriners St Louis
2017 curves stable/skeletely mature
also mom of Torrey, 12 y/o son, 16* T, stable
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