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View Full Version : Anyone in St. Louis Sept. 19th?



Confusedmom
08-21-2012, 10:50 PM
Hi all,

I'll be seeing Dr. Lenke for my six-month followup on Sept. 19th. Will any of you be there? Always love to meet a fellow Forum user!

Evelyn

KathK
08-22-2012, 04:40 PM
Yes! I have my 2-year follow-up at 7am on September 19th. I would love to chat with you, Evelyn! I will be there with my dear aunt who lives in St. Louis and always accompanies me to appointments. What time is your appointment?

Kathy

jane d
08-22-2012, 08:09 PM
We will be flying in on the 18th for a 3:40 appointment on the 19th with Dr. Lenke for my 7 weeks checkup. Would love to see both of you. Wish my appointment was earlier in the day. I imagine he will surely be running late by that time in the afternoon.Jane

hasteffen
08-22-2012, 09:37 PM
I have a 10 am appointment with Dr. Lenke on the 19th for my pre-op. My husband and I will be flying in at 6 pm on the 18th. Would love to meet you Jane and Evelyn!!!!!
Jane- I just returned from a 2 week vacation and received your message. Tried calling you at the lake house, left a message but I suppose you are already home. Give me another call when you can.
Best, Heidi

Confusedmom
08-22-2012, 10:23 PM
Awesome! Well, my appointment is at 5:20 p.m., so unless you are staying over, Kathy, I'll probably miss you. Heidi, you'll probably be there the whole day. Can you PM me your cell phone number and I'll try to find you when I get there? I'm thinking I'll be there about 3 p.m. St. Louis time (have to drive from Indy), so I should be able to see you, too, Jane. My mother is driving me--I still don't like driving that long--so I'll message you all when I get final travel details. Maybe I can get there a little earlier and meet you all. Kathy, let me know your plans.

Cheers,
Evelyn

babyboomer16
08-23-2012, 01:18 PM
Hi,
I have my pre-op appt. Sept. 19th starting at 8:40am. Sounds like it will take me all day! I don't know if it's possible to get together that day as they are going to keep me pretty busy from the sounds of it. My surgery is Oct.29th. Anyway, we'll see how things play out that day. I would love to touch base. We'll all be so close, yet so far away!! Darn~~~ anyway, I'll stay in touch as it draws closer. I forgot who said their surgery is in Oct?? Bye for now~~~ Linda.
P.S. I just saw it is You Heidi, that is having your surgery in Oct. What day in Oct?

hasteffen
08-25-2012, 07:12 PM
Evelyn... I will PM you my cell phone number!
My surgery is October 12th

golfnut
08-28-2012, 08:31 PM
I live about 30 miles from St. Louis and wish we could all meet for lunch. Maybe Gardenia could meet, as well. I think she is living at her daughter's in St. Louis before her surgery. Any suggestions of a time and place that the majority of you with appointments in the morning or late afternoon could make?

tae_tap
08-28-2012, 08:55 PM
I live about 30 miles from St. Louis and wish we could all meet for lunch. Maybe Gardenia could meet, as well. I think she is living at her daughter's in St. Louis before her surgery. Any suggestions of a time and place that the majority of you with appointments in the morning or late afternoon could make?

Karen,
30 miles from St. Louis? My family goes down to visit family we have in Godfrey. Have you ever visited Raging Rivers water park?

Tamena

Confusedmom
08-28-2012, 10:40 PM
Hi Karen,

As of now I won't be able to get there in time for lunch. My mother is driving me, and she has to come from Ohio to pick me up in Indiana. So unless she can come earlier, I won't be there until around 3 pm. I could meet for a late dinner or coffee, though. Do you think it's safe to assume Dr. Lenke will be done with me by 7 pm from a 5:20 appointment? Surely the man can't stay past that and still do surgery the next day! Anyway, if others can meet for lunch, don't worry about me. I am going to find a way to track down Heidi & Jane (and Kathy if she's still around). If I can rearrange travel plans, I'll post.

Best,
Evelyn

golfnut
08-29-2012, 08:34 PM
Tamena,
I used to go to Godfrey to visit a college roomate when we were both teaching our first few years, but I've never been to the water park. I am about 40 miles south of Godfrey.

I wish it wouldn't be so complicated to get everyone together with so many of you being in Dr. Lenke's office the same day, but different times. I've met Kathy and Evelyn in person, and would love to see them again and meet the rest of you. It's really hard to plan something around an appointment, because Dr. Lenke is usually running way behind.

hasteffen
08-30-2012, 03:01 PM
I will still be in St. Louis on the 19th...but Karen called today and told me they needed to move my date to Oct. 5th, which is a full week before my scheduled date. I am hoping that the airlines will be generous and not charge me change fees. I also hope that everything/ everyone will be able to accommodate the schedule change. I don't know if I should be mad or happy! I am a little frustrated and a bit overwhelmed that I have to change everything. I am trying to take deep breaths....

tae_tap
08-30-2012, 03:47 PM
Remember everything happens for a reason and now you will be on the road to recovery even faster than you first anticipated. I will be watching for updates to see how you do, for I follow a couple weeks after you. : )
Praying for strength and clamness for you.

Tamena

hasteffen
08-30-2012, 05:36 PM
Tamena,
So true. God is in control. I just wanted to let you (and others) know that my face book page will be updated by a friend and will have progress reports about my surgery and recovery. If you are on FB and want me to keep in touch... friend me. I am guessing it will be a few weeks after my surgery before I get back on the forum, but who knows? Prayers and kind words are always appreciated!

Best,
Heidi Steffen

babyboomer16
08-30-2012, 08:07 PM
Tamena,
So true. God is in control. I just wanted to let you (and others) know that my face book page will be updated by a friend and will have progress reports about my surgery and recovery. If you are on FB and want me to keep in touch... friend me. I am guessing it will be a few weeks after my surgery before I get back on the forum, but who knows? Prayers and kind words are always appreciated!

Best
Heidi SteffenI just said the same thing yesterday about God being in control. I was having a panick attack just thinking about 10 hrs on the surgery table. And then I reminded myself that it was God that led me to Dr. Lenke, and He shall see me through this whole thing His way, as He is in control. I felt much better. Warmest thoughts to you~~~ Linda

jane d
08-30-2012, 08:33 PM
When Dr. Lenke moved my surgery up by 3 weeks I had mixed feelings at first. Now my surgery is 5 weeks behind me and all has continued to go very well. God is in control and I'm sure all will go well for you. I will be praying for you. Today I haven't had anything for pain or a muscle relaxer since midnight last night! I walked over a mile today, rested for one hour this afternoon, and have up doing things around the house all day. Heidi, you will do very well and it will be good to have it all behind you.
Jane

hasteffen
08-31-2012, 05:32 PM
Jane, you are doing so awesome! You are definately an inspiration. I am still waiting for final confirmation as to the Oct 5th date... I explained that I didn't want to be moved again and have to rebook airlines and childcare and so forth. I'm not sure as to why it is taking so long to confirm. I believe everything happens for a reason... Even if I do not und
erstand. Happy labor day weekend
Best,
Heidi

gardenia
08-31-2012, 08:01 PM
I live about 30 miles from St. Louis and wish we could all meet for lunch. Maybe Gardenia could meet, as well. I think she is living at her daughter's in St. Louis before her surgery. Any suggestions of a time and place that the majority of you with appointments in the morning or late afternoon could make?

I am back in Mexico since the beginning of August to get ready for my mid-october surgery. I somehow missed this entire thread.

Initially I came back to see Dr Bridwell for the second time even after a very first frustrating first visit when I did not get any after consultation but the assitant calling to schedule a flouroscopy for July. I went back for 3 weeks and could not make my flight back becuase of more tests. United Airline charge me $150 penalty for changing the reservation which we had to pay but they claimed that if we have a doctor's letter justifying the need to change the return flight, they would refund me $100 not in money but in paper money good for my next flight.

My scheduled date was for mid October but as soon as I got back, got a call from Bernie the nurse that they just received a document from my insurance UHC denying any surgery which involves the use of BMP. She said that now my date is ON-HOLD or delayed until they can fight it. It has been already almost a month and each day is more impossible to wait any news. Dr Bridwell has not submitted my pre-approval form and Bernie told me not to call the insurance in order to not raise a red flag. In the meantime, I do not know what the office is doing. When talking to Bernie her answers are vague and circular.

I got into such depression, lack of life and all shut down on me for a bit. Even my wonderful massages caused so much pain that I told the lady to cut short the session. Then went to see a local friend and whatever she asked, I teared. She then insisted on giving me REIKI, she had before and we not believing it would help with my pains. Since that day, I have had 3 sessions and it brought back myself. I back to being myself, she said it was because my energy was going wild in every direction and I had lost my balance. She initiate all visits as she insists that I need to balance my chakras. Well, I am starting to see her point.

I don't know what it was my me and the stress but whatever Reiki did, it was welcomed. Apparently, Reiki givers are not supposed to do that for money but to pass the teaching and to help others balance themselves and eventually the world.

Who knows, so far so good. I am counting on surgery on schedule but if it does not happen then it will be another time. I was freaked out that BMP had some studies revealing a 1-3% cancer in the group study. It freaked me out. But, now I see it as 97%-99% being much better than OK.

Thanks for thinking about me and lunch.

Confusedmom
09-17-2012, 10:13 PM
Bumping up this thread. Hoping to see you all! Look for me--40 years old, 5 ft 3, long brown hair, glasses and kick-ass posture. (Hee, hee.) I will be with my mother, age 69. Seriously, say hello!!

Best,
Evelyn

golfnut
09-18-2012, 07:53 PM
I love it, Evelyn . . . "kick-ass posture". I hope that somehow many of you girls can meet each other tomorrow. I'll be thinking of you girls and looking forward to your reports about your appointments with Dr. Lenke.

KathK
09-20-2012, 06:37 PM
Hi,

I am anxious to hear about everyone's visits with Dr. Lenke yesterday. I arrived at the x-ray department at 6:45am and was leaving Dr. Lenke's office by 9:30am. So, I think I missed many of you, unfortunately!

This was my 2-year follow-up visit. At the 2 year visit, Dr. Lenke requests a bunch of x-rays to check for fusion. He looked at my x-rays and pointed out the "fusion lines". He said that although he could never claim that a fusion is 100% complete, he feels that my fusion is 99% complete. Yeah! He also did not see any signs of junctional kyphosis at the top of my fusion. Yeah! He said to 'keep up the good posture" and to come back in 3 years!

Dr. Lenke also requested that I have Pulmonary Function Tests done prior to this visit. When I asked about those results, he said that my overall lung capacity had improved 20% over my pre-op Pulmonary Function Test. That really surprised me since my curve only went up to T9. Interesting!

It was such a lovely day in St. Louis yesterday! I hope everyone got to enjoy the skyline view from Dr. Lenke's new office on the 12th floor of the Center for Advanced Medicine (CAM).

Please let us know how your visits went!!! I know that those of you having pre-opt testing had a really LONG day! I hope it went well.

Best Wishes,
Kathy

golfnut
09-20-2012, 06:54 PM
Congratulations, Kathy, on such a good report from Dr. Lenke. I hope and pray to hear the same in January!

Confusedmom
09-20-2012, 08:25 PM
Kathy,
That's awesome!!! I didn't know they could see it on xrays. Something to look forward to, hopefully!

Sorry I missed you. We got delayed by traffic, and my mom took a wrong turn. Sonwe didn't get there until 4:30. I DID get to meet hsteffen (Heidi), Nanlo (Nancy), Jane & Cherili (not sure of spelling), though! That was really great. All of you are lovely ladies, and it is so inspiring to see people farther along as well as good to chat with those looking forward to surgery. I'm sonthankful for this forum that I got to meet you all!!

My visit was good. All the hardware is in place and Dr. Lenke said everything looks good. He said time should improve my various aches and pains, and also prescribed physical therapy to help. He released me to take Advil (yay!), which he said might help with my leg pain, and he said I can do the elliptical now. Don't know if I'm ready for that just yet, but maybe soon. I left the office after 7 pm and got back to Indianapolis after 1 am! Ugh. Took a long nap today.

Heidi & Cherili, I'll be thinking of you as October gts closer. Jane, so glad you're doing so amazingly well!! Nanlo, tell us how your 2-year went!!

Best,
Evelyn

golfnut
09-20-2012, 08:44 PM
Evelyn,
Congratulations on a good report! I have definitely improved even after a year. I am jealous that you got to meet so many of the wonderful ladies from the forum. What a great group we have on this forum!

JenniferG
09-21-2012, 04:13 AM
What a long day Dr. Lenke had on the 19th!

Congrats to all those who received good reports.

TwinmomTN
09-21-2012, 10:18 AM
Evelyn - So glad your appointment went well and you are able to proceed with p.t. and Advil.

Heidi - Sounds like your pre-op went as well as could be expected. At very best it is an exhausting and stressful day. I will certainly be thinking about you as your date nears. Best of luck to you and you will do
beautifully I am sure.

hasteffen
09-21-2012, 02:20 PM
Thanks Pam!

nanlo
09-22-2012, 01:58 PM
Wow, it was so much fun to meet Evelyn, Heidi and Jane at Dr Lenke's office!
Evelyn, it is encouraging to hear that Dr Lenke thinks your pain might work itself out in time. I hope the PT makes a big difference!
My two year check up went really well. Had a bunch of xrays - I am healing well, and won't go back for three years. I also showed improvement w/ my pulmonary function (15%) from my pre op days. I didn't mind the long wait at all... since my surgeon is a rock star (hello!!)!
I got to spend Thursday walking around Forest Park and the zoo with my friend (I gave my husband a break from the St Louis routine), and we did have a gorgeous day. I was on my feet for 7 hours (!) w/ a few rests - but I just can't get over the fact that I can do that! Pre surgery, I was good for about 25 minutes before I would have to rest.
I'm inspired to keep in touch better on the forum - what a wonderful support group.
Nancy

golfnut
09-22-2012, 05:11 PM
Congratulations on a good report. You have lots of good advice for forum people and were a big suppport for me in my presurgery days. Also, I'm sure many would enjoy your Blog. Can you add a link to your signature?