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dolores a
06-10-2012, 06:32 AM
Have not posted in awhile, but check in almost everyday to see how everyone is. I have been great, really no issues with pain, very active working, riding my bike, and walking a lot. One problem I do have is when I trip and loose my balance, I go down like a pole falling. Yesterday, I was walking my dog, I must have hit a crack in the sidewalk and down I went, smashed my face terribly (I look like I was in some kind of bar fight!). I guess my question is for anyone who is also fused all the way, does this happen to you also, because this is the third time it,s happened, and unbelievably, everything hurts but my back.

LindaRacine
06-10-2012, 11:36 AM
Hi Dolores...

I have the same issue. I think the problem is that our center of balance is screwed up, so when we are thrown off balance, we have no way of correcting the problem. I've fallen quite a few times, including planting my face once like you just did. It's all very embarrassing.

Regards,
Linda

norab
06-10-2012, 11:49 AM
Hello Delores,

I have also fallen on my face after tripping on a tiny bump in the street. Fell over like a tree and broke my nose, front teeth and arm! I'm fused from T-6 to L-4 and can't adjust my back to avoid falling forward if I get too much off balance. Could have been worse.

Nora

titaniumed
06-10-2012, 11:58 AM
unbelievably, everything hurts but my back.

Thatís the problem with successful scoliosis surgery, you find out everything else is shot! What are you going to do? (I just keep smiling, Iím not going to worry anymore....Iím done with that)

In being fused all the way down to the pelvis, there is slight lack of flexibility, or lazyness possibly? in being able to ďtiltĒ the hips, to lift a leg...I have noticed this, its very slight, and have tripped, but recovered before falling. Tripping on a regular basis is not something to take lightly...and self diagnosis on a neuro issue is IMPOSSIBLE. It takes multiple doctors a long, long time to diagnose, and they are trained....Another thing I have noticed is that looking down, or the lower periphery vision is lacking some. Is that because I walk like a model now (head up), my eyes taking a dump from old age, or from my protruding belly?

Its probably the belly.....(This question is not on the United States Medical licensing exam) Chuckle,chuckle...
http://www.usmle.org/

Walking slower is a good thing.....Iím trying myself to focus on this since I have always walked faster than most. Changing sidewalk heights require us to look down slightly, and preserving the neck has been my focus lately.

Its great to hear that things are great Dolores, Its nice to be over the pain of scoliosis and the gall attacks. Nice to be a few years out...

Ed

titaniumed
06-10-2012, 12:11 PM
Wow Nora!

Those are substantial injuries!

I didnít realize that everyone has been crashing so hard.

We might as well be playing football! Practice starts next week! Bring your braces!

Ed

dolores a
06-10-2012, 12:43 PM
Hi Linda, as usual you always have a way of putting things into perspective, that is exactly what I felt, not being able to correct the fall, and knowing this when you go down is very scarry!

Hi Nora, I see you know that feeling also, but I guess like Ed says we should walk a little slower, I tend to be a fast walker also, even when I was walking down the isle on my wedding day my father had to hold me back a bit.

hi Ed, no it's not the belly because I don't have much of one, I think it's the model thing going on, sounds good anyway. You mentioned preserving your neck, what kind of issues are you having? As I said, no pains with the back, but am having issues w/my neck above my fusion.

JenniferG
06-10-2012, 06:20 PM
Hi Dolores, nice to hear from you again but sorry to hear about your nasty fall.

I agree with Linda's centre of gravity thing and the inability to adjust sideways or backwards to correct the tilt as we go down. I haven't fallen yet, but have come close many times. I walk fast and I don't lift my feet properly so trip quite a lot. I've come so close to hitting the ground it's not funny.

jrnyc
06-10-2012, 06:49 PM
hmmmm....just a note...
i wonder if most people with scoli....at least, pronounced
curves....have a good center of gravity....????
i never have...couldn't seem to learn to ride a bike, though
i didn't try to learn til i was an adult...
had awful lack of center of gravity when studying ballet
as a kid, though i didn't know what was going on back then....
(no pun intended)

if you think about it, a substantial curve is likely to throw
off center of gravity...even sense of balance, at times... at
least, that is my own experience...

hope you feel better soon, dolores...
jess

dolores a
06-10-2012, 07:49 PM
Hi Jennifer, I'm always in awe of how well you've come along and your positive attitude. Your right though, it is a scary thing because I have no problems with walking, I can walk for long distances, so when it happens it's very startling.

Hi Jess, hope your pain level is ok for now! I know I always kind of had two left feet growing up, couldn't touch my toes and all, but this is a little different, when you feel yourself going down, there's no stopping it.

rohrer01
06-10-2012, 10:12 PM
Oh my gosh, that fall sounds horrifying! I don't have a substantially huge curve and am not fused. I do have some problems with correcting my balance when I trip. The PT said it was because I'm not flexible in the spine. I usually fall at least a few times each year, but thankfully never actually broke anything. It just triggers massive back pain for me. I hope you feel better soon. Are they going to have to cap your teeth or are they gone? So, so sorry to hear.

Jenna.KB
06-11-2012, 03:55 AM
Gosh Dolores that fall sounds painful and scary, hope your recovering.

I'm slightly worried by all the comments in this thread. I'm awaiting full fusion with possible pelvis fixation and I wasn't aware of balance problems after surgery and how easy it is to fall. I'm so going to have to get used to taking my time and walking slower. It scares me to think I might fall and really hurt myself.

I'm learning new things about full fusion everyday though on this forum which will help me after surgery :-)

Ed, you mention not being able to tilt your pelvis. I thought even with pelvis fixation you would be able to tilt your pelvis forward and backwards to sort of stick out your bottom. Is this not the case after full fusion?

Jenna

jrnyc
06-11-2012, 03:58 AM
oh dolores, i know it is different...
it sounds terrifying, like a nitemare, feeling
yourself falling and not being able to stop it...
i was just thinking how scoli seems to rob people
of ever having had a true center of gravity or of balance...

hope you heal quickly...and remain on your feet....
sorry you are hurting...

jess...& Sparky

dolores a
06-11-2012, 03:10 PM
Hi Jena, I'm sorry if I scared you a bit about my fall, but I had my surgery in June of '09 (wow, I just realized I just passed my 3 year anniversary!), but anyway it's not my balance that's off, actually it's pretty good. It is only if I trip on something or other I have to be more aware. It's been three years now since my surgery, and as you can see from my signature, I had just about the same levels you are about to go through, and at three years post op I don't even think about it anymore. Of course I don't have the flexibility for some things, I have adapted. My pain, especially the sciatica is completely gone and live a relatively normal life. believe it or not, after awhile after post op, you just get on with your life, with some minor limitations. I'll be following your posts to see how you are doing!

dolores a
06-11-2012, 03:12 PM
Hi Jena, I'm sorry if I scared you a bit about my fall, but I had my surgery in June of '09 (wow, I just realized I just passed my 3 year anniversary!), but anyway it's not my balance that's off, actually it's pretty good. It is only if I trip on something or other I have to be more aware. It's been three years now since my surgery, and as you can see from my signature, I had just about the same levels you are about to go through, and at three years post op I don't even think about it anymore. Of course I don't have the flexibility for some things, I have adapted. My pain, especially the sciatica is completely gone and live a relatively normal life. believe it or not, after awhile after post op, you just get on with your life, with some minor limitations. I'll be following your posts to see how you are doing!

Dolores

Karen Ocker
06-11-2012, 03:28 PM
I have actually seldom fallen in the last 10 years since my surgery. The times I have fallen were related to conditions which would cause most persons to slip: a wet floor in Walmart= I fell on my back(nothing happened-just sore. Another time it was black ice by my mailbox and on a carpeted stairs my slippers slipped and I went down on my rear. I never fall forward.

In the general population the normal weakening of muscles as we age are listed as causative factors. I find keeping fit at the gym and resistance training really help me catch myself before falling. I am more careful with footwear. "Slides" have to fit snugly so I do not slide. I do not wear excessively high heels. In that Wallmart fall I was wearing Sketchers which are very slippery when wet.

Confusedmom
06-11-2012, 04:55 PM
Jenna,

I am fused to the sacrum with pelvic fixation, and I cannot tilt my pelvis. In fact, my entire abdomen is pretty much fixed in place except my shoulders. I am fine with that, though, if I end up with less pain and deformity in the long run.

Best,
Evelyn

titaniumed
06-12-2012, 01:24 AM
Ed, you mention not being able to tilt your pelvis. I thought even with pelvis fixation you would be able to tilt your pelvis forward and backwards to sort of stick out your bottom. Is this not the case after full fusion?



Nope, no tilting......but I could probably hula hoop!

The soft tissues around the spine and pelvis allow for quite a bit if movement..its amazing actually. It would be interesting to stand in front of a flouroscope, and do range of motion studies looking at the spine and bones. It would prove that the spine is actually over engineered.....and not necessary for the most basic of movements.

Iím the same as Dolores. The tripping is a little scary, but otherwise after 4 1/2 years, I can safely say that having my surgery was the right thing to do. You cannot come to a determination for at least a year.....it does take a long time to heal and adapt. My balance is excellent....

Dolores
My C5/C6 disc is showing signs of age related wear and tear. I am ready for whatever it takes as long as there is no pain or extreme stiffness. My surgeon who is also a neck specialist was not even thinking about fusing my neck, and it seemed that he was very hesitant.....shots would be the next move if my neck pain gets out of control. Last January, I had terrible neck pain and stiffness and my Chiros had to adjust it about 5 times to loosen things back up. I was a true Tin man with no movement at all. I think that the position of the neck while sleeping has quite a bit to do with problems in the neck. I do use very soft down pillows so I can easily adjust the height to keep the neck straight.

Ed

Jenna.KB
06-12-2012, 03:25 AM
Hi Jena, I'm sorry if I scared you a bit about my fall, but I had my surgery in June of '09 (wow, I just realized I just passed my 3 year anniversary!), but anyway it's not my balance that's off, actually it's pretty good. It is only if I trip on something or other I have to be more aware. It's been three years now since my surgery, and as you can see from my signature, I had just about the same levels you are about to go through, and at three years post op I don't even think about it anymore. Of course I don't have the flexibility for some things, I have adapted. My pain, especially the sciatica is completely gone and live a relatively normal life. believe it or not, after awhile after post op, you just get on with your life, with some minor limitations. I'll be following your posts to see how you are doing!

Dolores

Hi Dolores

Its good to know your doing so well and I'm having similar fusions to you.
I'm definately going to take note though and walker slower and more carefully after surgery but if I trip there is nothing I can do about it. That's going to be weird I must say.

Fingers crossed not much more waiting. Started a thread yesterday because I was upset after calling the hospital to be told there were 3 people in front of me for surgery but everything is getting delayed. I'm trying to be positive though and everyday I'm one step closer to surgery :-)

Jenna x

Jenna.KB
06-12-2012, 03:26 AM
Hi Evelyn & Ed

Thanks for your reply to my pelvis question. Good to know I wont be able to tilt it anymore. My body is going to change so much, its going to be so strange for quite a while. I haven't got a choice though, I need to surgery and like Evelyn says if it stops the pain and deformation I'm all for it too.

Jenna x

lray
06-13-2012, 12:36 PM
Oh wow, I had no idea others had this problem with their center of gravity post-surgery. I am the same way - I haven't fallen - yet but I do trip easily or lose my balance. When I walk, often I can't seem to walk a straight line - people behind me might think I'm drunk! I find that I need to concentrate when I walk sometimes. I guess it just takes time for our bodies to reconfigure itself, almost like rebooting a computer!? I'm 1-1/2 years postop and I'm still rebooting!

jane d
06-13-2012, 04:34 PM
The personal trainer that I have been working with for the past 3 years as I await my surgery (will be 8/ 08/12 with Dr. Lenke) suggested I use walking poles to ease the pain in my back when I walk. It has helped as I can't walk any distance without them. They have kept me from falling more than once. I got my first pair at Target and then for my last birthday my daughter bought me a really nice, very light weight pair. (brand name:Leki). As a side benefit, this style of walking is also supposed to burn more calories. I take one with me when shopping too. Plan to use them after my surgery.
Jane

debbei
06-15-2012, 09:07 PM
Hi Dolores!! It's been a long time! I've had one fall, but it was backwards and landed on my big old butt! LOL It's very scary when we fall. I was actually more scared then hurt. I don't really notice anything about my center of balance.

debbei
06-15-2012, 09:08 PM
and how fantastic that your back doesn't hurt from the fall! :D

dolores a
06-16-2012, 10:09 AM
I'm a little confused (which is not that unusual for me), but what do you all mean by tilting, I can bend over in what they call a flat back position, but I can't bend down to pick up something without going into a squat position.

Hi Debbie, How are you doing now after tat pain issue you were having awhile back, hopefully it's cleared up. I actually fell at work shortly after I return from my surgery, but that time I fell back and not on my butt, I fell like a tree like the other day, and like youno pain, just scared me that I might have broken something.

debbei
06-16-2012, 11:35 AM
Hi Dolores,

(knock-on-wood) that injection that Dr. Neuwirth gave me in Feb really did the trick. I felt almost instant relief, and within a month or so felt totally back to normal. Somehow I irritated the muscles around a screw, and hopefully it won't happen again!

Falling is just plain scary for those of us who have had this surgery. I remember Pam saying she fell the day she came home from the hospital, and she was just fine.