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TXNationalist
05-23-2012, 03:00 PM
Hi all,

This is my first post, so first and foremost I'm glad I found a community of patients such as myself. I'm 18 years old (17 at the time of surgery) and we're nearing a July 5 anniversary of my surgery for Kyphosis. I had an awesome doctor here in Texas, but as I still recover I would like to see if any of you guys could shed some light on what I've been feeling since about October. My back feels hot when I lay down, sit in the car, sit in any piece of furniture with a lumbar support, and it is really starting to worry me. The best way to describe it is that when I'm in the car it feels like I have heated seats on (which I don't have). I told my surgeon about this and he prescribed some PT for me. When I exercise, whether it be going to the gym or swimming, I do get a little relief, but not for long. As I said earlier, I'm 18, it's time to move on and enjoy college. I got the surgery so I can put it on the back burner. Any insight would be great.

Josh

EDIT: I failed to mention that I had this burning sensation a little before the surgery.

Pooka1
05-23-2012, 03:07 PM
Hi all,

This is my first post, so first and foremost I'm glad I found a community of patients such as myself. I'm 18 years old (17 at the time of surgery) and we're nearing a July 5 anniversary of my surgery for Kyphosis. I had an awesome doctor here in Texas, but as I still recover I would like to see if any of you guys could shed some light on what I've been feeling since about October. My back feels hot when I lay down, sit in the car, sit in any piece of furniture with a lumbar support, and it is really starting to worry me. The best way to describe it is that when I'm in the car it feels like I have heated seats on (which I don't have). I told my surgeon about this and he prescribed some PT for me. When I exercise, whether it be going to the gym or swimming, I do get a little relief, but not for long. As I said earlier, I'm 18, it's time to move on and enjoy college. I got the sugary so I can put it on the back burner. Any insight would be great.

Josh

HI and welcome.

Whatever your surgeon thinks is probably right.

Maybe it is the nerves growing back and you sense that as heat when your back contacts some surface.

Good luck.

TXNationalist
05-23-2012, 03:12 PM
HI and welcome.

Whatever your surgeon thinks is probably right.

Maybe it is the nerves growing back and you sense that as heat when your back contacts some surface.

Good luck.

Thanks for your insight. Also, I'm a waiter at a pretty busy restaurant and I must say I experience a great deal of pain at times.

Pooka1
05-23-2012, 03:15 PM
Thanks for your insight. Also, I'm a waiter at a pretty busy restaurant and I must say I experience a great deal of pain at times.

Well, it was a huge surgery. What levels are fused?

I saw your mention that the same burning was present before surgery? I have no guess what it could be then.

TXNationalist
05-23-2012, 03:20 PM
Well, it was a huge surgery. What levels are fused?

I saw your mention that the same burning was present before surgery? I have no guess what it could be then.

I honestly cannot remember. Here are my x-rays before and after.

13221321

Pooka1
05-23-2012, 07:22 PM
I honestly cannot remember. Here are my x-rays before and after.

13221321

Ah I see. I have a guess... I suspect it's just you burning to see Texas secede from the Union. :-)

Just kidding. Whatever the surgeon thinks is probably okay. If it doesn't resolve then you might ask for a referral to a pain specialist.

By the way, did he rule out infection as a possible cause of the burning?

TXNationalist
05-23-2012, 08:38 PM
Ah I see. I have a guess... I suspect it's just you burning to see Texas secede from the Union. :-)

Just kidding. Whatever the surgeon thinks is probably okay. If it doesn't resolve then you might ask for a referral to a pain specialist.

By the way, did he rule out infection as a possible cause of the burning?

Haha that wouldn't be the reason. One of the PA's suggested a CAT scan the last time I mentioned it, but the surgeon didn't bat an eyebrow and told us ine is not needed. Infection hasn't even crossed my mind as we monitored it closely post-op.

Pooka1
05-23-2012, 08:42 PM
Infection hasn't even crossed my mind as we monitored it closely post-op.

I think it can be delayed and may not show up right away.

LindaRacine
05-24-2012, 09:00 AM
Infection can be very late onset, even years after surgery. It would be the first thing I'd think of with the symptom of feeling like you're sitting in a heated seat. You should mention it to your primary care physician. There are several tests that can help narrow down what the problem might be. While I think physical therapy is great, I don't see it as a cure for an overall feeling of heat.

TXNationalist
05-24-2012, 12:23 PM
Infection can be very late onset, even years after surgery. It would be the first thing I'd think of with the symptom of feeling like you're sitting in a heated seat. You should mention it to your primary care physician. There are several tests that can help narrow down what the problem might be. While I think physical therapy is great, I don't see it as a cure for an overall feeling of heat.

Since I have two people telling me this, and I'm due for a routine physical, I will do so. It's just that my surgeon is on a prestigious level of reputation, so you would think he's dealt with this before. You know?

LindaRacine
05-24-2012, 03:01 PM
You are talking about non-specific burning, right? That is, this isn't just in one spot??

TXNationalist
05-24-2012, 04:26 PM
You are talking about non-specific burning, right? That is, this isn't just in one spot??

It's pretty much my whole lower back (lumbar).

Pooka1
05-24-2012, 04:49 PM
It's pretty much my whole lower back (lumbar).

You need to have your sagittal balance checked. You may have lost normal lordosis by developing kyphosis below the fusion. Do you pitch forward when standing, even a little?

TXNationalist
05-24-2012, 05:18 PM
You need to have your sagittal balance checked. You may have lost normal lordosis by developing kyphosis below the fusion. Do you pitch forward when standing, even a little?

Everything looks good in that department, but I can still mention it. If that hypothetically is the case, what would correction entail? I just had my x-rays looked at about a month and a half ago.

Pooka1
05-24-2012, 05:23 PM
Everything looks good in that department, but I can still mention it. If that hypothetically is the case, what would correction entail? I just had my x-rays looked at about a month and a half ago.

It was just a thought. I don't know how they correct that.

TXNationalist
05-24-2012, 05:28 PM
It was just a thought. I don't know how they correct that.

This whole thing is just a freaking nuisance! I wanna get to the bottom of it.

Pooka1
05-24-2012, 05:38 PM
This whole thing is just a freaking nuisance! I wanna get to the bottom of it.

Yes of course. Your surgeon has to have a plan to figure it out that entails ruling out infection, sagittal imbalance, gremlins, or anything else it might be. You are almost at a year and things should be progressively getting better not holding or getting worse. I think that alone suggests something is amiss but what do I know?

The Titanium One may come on with some ideas.

Pooka1
05-24-2012, 09:12 PM
Hey Mr. Secessionist, check out post #5 on this thread for ideas about pain relief from the Titanium One...

http://www.scoliosis.org/forum/showthread.php?13504-Leg-pain-following-anterior-fusion-L4-S1-Need-opinions-please!

titaniumed
05-24-2012, 09:51 PM
Josh

It’s the “Titanium one” here....Good thing I didn’t pick Rod Stewart as a user name....lol

I see that you mention having this burning sensation “before” surgery....now it sounds like a lordosis issue that is separate from your kyphosis surgery....since its low, this wasn’t addressed even though kypho patients DO have sagittal curve issues. (kyphosis and lordosis in 2 places, small of back and neck) Usually the complaints are from the neck.

Surgeons have to build or re-shape these curves while on the operating table. Fusing all levels is not usually an option at your age, and many un-fused scoliosis curves do “balance” themselves after surgery. I don’t know if this is the same in kyphosis. This is a good question.

Scoliosis and Kyphosis are similar, but 2 totally different animals.

Your going to have to get your surgeon thinking about this...believe me, he will think about it. In the mean time, try to hang in there.

Ed

TXNationalist
05-25-2012, 03:33 AM
Josh

It’s the “Titanium one” here....Good thing I didn’t pick Rod Stewart as a user name....lol

I see that you mention having this burning sensation “before” surgery....now it sounds like a lordosis issue that is separate from your kyphosis surgery....since its low, this wasn’t addressed even though kypho patients DO have sagittal curve issues. (kyphosis and lordosis in 2 places, small of back and neck) Usually the complaints are from the neck.

Surgeons have to build or re-shape these curves while on the operating table. Fusing all levels is not usually an option at your age, and many un-fused scoliosis curves do “balance” themselves after surgery. I don’t know if this is the same in kyphosis. This is a good question.

Scoliosis and Kyphosis are similar, but 2 totally different animals.

Your going to have to get your surgeon thinking about this...believe me, he will think about it. In the mean time, try to hang in there.

Ed

This is all great input. I think I remember them telling me I had a lordosis before surgery. In fact, they did. That it was caused by the spine compensating for the outward curve. So if that's the case, then I pray to God thay it does fix itself. I've got a lot of life ahead of me and having to go through another fusion would terrify me.

LindaRacine
05-25-2012, 02:52 PM
I talked to a few of the docs that I work with, and they agreed that it's nothing to worry about at this point. It is most likely transitory, and if it's not, someone can hopefully get to the bottom of it eventually. At this point, a wide range of symptoms would be considered normal, and should essentially be ignored unless it starts worsening.

--Linda

TXNationalist
05-26-2012, 01:40 AM
I talked to a few of the docs that I work with, and they agreed that it's nothing to worry about at this point. It is most likely transitory, and if it's not, someone can hopefully get to the bottom of it eventually. At this point, a wide range of symptoms would be considered normal, and should essentially be ignored unless it starts worsening.

--Linda

Thanks a ton for letting me know! I feel a lot better about it. In the meantime, I'll just keep working out and icing it.

susancook
05-26-2012, 03:53 AM
It totally amazes me the amount of surgery that people with most scoliosis patients go through and then it must really be a long time for most of their bodies to adjust. I haven't had scoliosis surgery, but have cared professionally for many people who have had massive surgeries. The body doesn't always take to being twisted one way and the twisted another without needing some settling time. We are all so individual too. I found some surgical patients had virtually little pain, and the person next to him/her had the same procedure and has such a different, more painful experience. Enough.....give your body time to heal...use cold and heat....gentle massage....relaxation.....very gentle stretching if appropriate. I hope that time heals. This forum is great because we hear such a variety of experiences!
Susan