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View Full Version : Bring on the reassurance, people!



Confusedmom
03-13-2012, 04:02 PM
Hi Everyone,

I know you are all probably sick of hearing from me by now, but I have to ask for one more pre-op favor. Can you please remind me again why I'm having this surgery? I could really use some reassurance that I am doing the right thing. I must be one of those people who will be second-guessing this as they wheel me down the hall into the OR.

Anyway, got my central line placed this morning. The nurse who had me move from the bed that they carried me in on to the bed where they placed the line said: "Are you sure you need back surgery?" I told her I have scoliosis, and said she must see people like me all the time. She said: "Usually people who are about to have back surgery don't move that well." Hmpf. This is nothing new, of course. It's just difficult to see what would happen if I DIDN'T have surgery, when I am staring surgery in the face.

Ah well. I have an 80-something degree thoracolumbar curve with documented progression in recent years. That is why. But it sure doesn't get any easier as the surgery gets closer. :(

Thanks (again!) everyone,
Evelyn

Doreen1
03-13-2012, 04:57 PM
My hubby gave me the best advice the day before my surgery, "All you have to do is go to sleep tonight, wake up and go to the hospital, then go back to sleep. Dr. Lenke will take care of the hard part."

Tell Amy, your anesthesia nurse, in the morning that you do not want to be awake while going down the hall. Ask for your "special cocktail" when you see her. ;-)

Just think, in less than 24 hours you'll be on the other side! Continued prayers for you, Dr. Lenke and his team.

Warmly,
Doreen

hasteffen
03-13-2012, 06:16 PM
Hi Evelyn,
Just sent you an email...
add and calm or subside her fears/worry!
You certainly have one of the best surgeons and have prepared well for this journey. All your hard work will pay off. Dr. Lenke would not do the surgery if he didn't believe you needed it. You are in great hands. I will not tire or get exhausted hearing about your journey or posts. You are doing the right thing! Don't second guess yourself.
Best,
Heidi

TwinmomTN
03-13-2012, 07:23 PM
Just think of all the successful surgeries on the forum. And you are younger
than most and have a highly successful surgical team. You will do
great!! Keep thinking positive thoughts!

Pam

rohrer01
03-13-2012, 07:49 PM
Just remember that these people that make RUDE comments are only human. She probably just wasn't thinking, or may have been trying to lighten things up with a little of what she may have thought was "humor", who knows.

I had a nurse actually LAUGH at me when she asked me about my heart condition before being wheeled into surgery once. I asked her why that was funny and she got a stunned look on her face. I had to explain what the condition was and WHY it was so named IST. People are just thoughtless. The cardiologist that diagnosed me certainly didn't think it was funny. It's all ignorance.

Like the others have said. Dr. Lenke certainly wouldn't even entertain the thought of doing surgery on you if you did not NEED it. 80* is nothing to sneeze at. Your organs will crush. If you let it go too far, they might not be able to help you. If your curve were in the "grey area" as mine is (upper 40's), I could see you second guessing, but it's not. I hope this is reassuring. My thoughts are with you. Please rest easy, you're almost there.

Rohrer01

golfnut
03-13-2012, 08:00 PM
Evelyn,
The nurse was out of line in her comment but probably thought she was complimenting you. Dr. Lenke would absolutely not do the surgery unless he thought it was necessary. As you know, he doesn't need "the business" as it is a long wait for surgery with him, since he is one of the best. I could do everything I could possibly want to do before surgery with no pain,but I know that my future is brighter because I had surgery. Guess what? I'm back to doing everything I did before surgery and can do some things better. I no longer have to find a place to sit after standing for a long time. I can even go shopping longer thant before. I know I'm rambling on, but you are doing the right thing. You are in good hands!
Karen

nanut
03-13-2012, 09:56 PM
Evelyn
I am 8 months out of surgery. I was in great shape prior to surgery and I am making great strides in my recovery. People constantly tell me that they were shocked to hear that I had under gone spine surgery as they never knew that I had scoliosis. I have discovered that for the most part people have little knowledge of what an individual with scoliosis endures on a day to day basis, both with pain and resultant limitations but also the awareness that it is a progressive deformity. The decision and timing to have surgery is huge and we are here to support you! Best of luck tomorrow- you soon will be on the other side!
Nan
54yo
T10-L5
July 12, 2012

Doodles
03-13-2012, 09:58 PM
Evelyn--
I can't say it better than all of the above concerning reasons for surgery, Dr. Lenke's expertise, etc. etc. Think positive, deep breaths. Can't wait to see you on the other side. Janet

Confusedmom
03-13-2012, 10:08 PM
Thanks, everyone. Feeling a bit calmer. Took the first of the two showers (and the deep breaths!) and am going to bed. Thank God for you all and this Forum. Really.

My mother or husband will post for me tomorrow evening.

Best,
Evelyn

titaniumed
03-13-2012, 10:14 PM
Evelyn

You are doing the right thing.....the chances of progression and future pain are high. If you could only experience some of the pain I had to deal with years ago, you wouldn’t question this.

Hang in there....positive thoughts! Have your hubby post for you.

Ed

JenniferG
03-13-2012, 11:52 PM
You're absolutely doing the right thing Evelyn. You have the most important box ticked: You have an excellent surgeon with masses of experience. You're going to do great and you're going to be so glad you did it!

hasteffen
03-14-2012, 04:44 PM
Hi Evelyn and family,
I have been thinking about you all day. I hope all is well and can't wait for an update.
hugs and prayers,
Heidi

debbei
03-14-2012, 06:08 PM
Evelyn,

That nurse deserved a smack. Seriously. Like someone else said, she was probably trying to be helpful, but REALLY??? A medical professional at that? Tsk-tsk.

You are at the really hard part now. I also agree with whoever said to ask not to be awake going down the hall. I asked for the "Happy Juice" and I wasn't anxious at all. I do remember being wheeled away, and entering the OR but that's the last thing I recall until I woke up seeing my surgeon's face in the recovery room and him telling me that I did great.

I look forward to reading your update.

Good luck,

LindaRacine
03-14-2012, 06:19 PM
Evelyn,

That nurse deserved a smack. Seriously. Like someone else said, she was probably trying to be helpful, but REALLY??? A medical professional at that? Tsk-tsk.

Definitely! It would be entirely different if you had asked her if she thought you really needed surgery, but there's no way anyone can tell how able or disabled you are by simply watching you move around in bed. It's especially a bad thing to have said to anyone who is so close to their surgery.

I often find myself trying to talk patients out of surgery, but I usually change tactics completely when I know they've made up their mind to go ahead.

Best of luck with your surgery. You're in really good hands. While there's no guarantee of reducing and eliminating your pain, there's a good likelihood that you'll have at least some improvement. And, even if you don't get any improvement, at least you will have stopped the progression.

Regards,
Linda