View Full Version : Anyone from Alabama?

01-07-2005, 11:35 AM
I have a 4 year old born with Congenital Scoliosis also has Pulmonary Hypoplasia and some other issues going on due to a Undertermined Genetic Syndrome. We currently see Dr. Killian in Birmingham, he has braced Taylor twice and has performed 3 spinal fusings (posterior). We just had an appt that showed a weakening below the fusing and he is concerned that the spot that needs a little more glue and bone fragment will bend forward maybe causing loss of feeling below the waste. Taylor's Pulmonologist is weary of letting Dr. Killian go in through the front (anterior) because you have to deflate one lung in doing so. Her appt with the Pulmonologist is Feb 3 2005 to determine if she is healthy enough to withstand the anterior fusing and also the posterior fusing at the same time. Has anyone had this similar situation? Taylor is on oxygne 1/2 liter at all times. I look forward to a response.