G-tube surgery needed

[dare2care2005]

Hey all,

I got bad news. i'm gonna need to have a G-tube put in me. Lately ,it's been very difficult for me to swallow food or liquids, and my doc wants a tube in me before i end up choking. The tube will be put in on monday. It's gonna be done surgically, put directly into my stomach. The hospital stay will be relatively short and the procedure will be short as well. I'll get back with you all soon.


Ginny


Hopefully after my scoli surgery, the tube can be taken out. but for now, this is how it's going to be.

[Alison]

Good luck Ginny :-),

I hope it all goes well......I know its a pretty gross prospect being fed into a tube that goes directly into your stomach yicky yuck (Quite a few of the CP kids i know have them), but if it makes you more comfortable and stops you choking them its a step in the right direction. And hopefully its only a short term thing, keep focus on that :-)

My very best wishes and good luck with everything

Alison

[ANIMAL LOVER12]

I am so sorry to hear that Ginny! Good luck with the surgery. Everything will go okay! I will be praying for you!

[dare2care2005]

swallowing isn't really the MAIN problem. it's directing that food and liquids to my stomach instead of my lungs. I've been taking it slow and in small protions, to decrease that risk of choking. This has just been so hard for me to come to terms with, but i'll get used to it i guess.

[Joe's Mom]

Another thing to consider is that you may get better nutrition with the G tube and will become stronger so that ultimately a lot of aspects of your life, including a stronger swallow, may happen. Just curious . . .did they have you consult with a speech pathologist/swallowing specialist for swallowing therapy at any point?

[dare2care2005]

Just wanted to let everyone know the g-tube surgery went great. It's been hard to adjust, but i will get used to it.

While i was in the hospital though, i found out something else.....and it's bad. I've got neuromuscular disorder called isaac's syndrome.

i'm being put on meds to help relieve the symptoms, but that's all that can be done.

This is to Joe's Mom: right now, we haven't talked about going to a speech pathologist or swallowing therapy yet. i should be able to come off the tube within a few months after surgery.

[lin515]

Ginny,

My thoughts and prayers are with you, hang tough, you will prevail.


Linda