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chmesh
06-03-2011, 07:27 PM
In 2008, Dr. Wood at MGH read my thoracic curves as 35 degrees and 39 degrees.
In 2009 thru 2011 Dr. Rand read my thoracic curves as 40 degrees and 47 degrees. There was no progression according to Dr. Rand from '09-'11

I know curves can fluctuate 5 or so degrees. I'm not sure which method each doctor used if there are different methods for reading curves.

Does this seem like it's accurate progression?

Thanks for reading
Christina

LindaRacine
06-03-2011, 09:55 PM
Hi...

I suspect what Dr. Rand was telling you is that there has not been a clinically significant progression of your curves. That's good news. I assume he told you that he'd like to monitor you every year or so.

Regards,
Linda

chmesh
06-04-2011, 06:37 PM
Is it possible two surgeons could read the same xray differently?

I'm trying to establish progression.

cherrylips
06-05-2011, 11:03 AM
Hi, that happened to me once. One doctor told me my curve was 48degress (he did it manually using a ruler and a pencil) and another doctor measured my curve and told me its 60degress (he measured it using a computer software). I guess its just how they measured it. Starting from which most displaced and rotated vertebrae to the least. I had no idea which one was right, but my curve looked pretty bad so the second doctor was right since he measured it in a more accurate way. How did your doctor measure your curves? Hope its the smaller number. :)

cherrylips
06-05-2011, 11:08 AM
Hi, that happened to me once. One doctor told me my curve was 48degress (he did it manually using a ruler and a pencil) and another doctor measured my curve and told me its 60degress (he measured it using a computer software). I guess its just how they measured it. Starting from which most displaced and rotated vertebrae to the least. I had no idea which one was right, but my curve looked pretty bad so the second doctor was right since he measured it in a more accurate way. How did your doctor measure your curves? Hope its the smaller number. :)

LindaRacine
06-05-2011, 11:38 AM
Is it possible two surgeons could read the same xray differently?

I'm trying to establish progression.

It's not only possible, it's probable, especially if one surgeon has a lot more experience than the other.

--Linda

titaniumed
06-05-2011, 12:04 PM
This is why its always nice to have dated copies of your x-rays in your possession. You can look at these and see the progression yourself. If you switch surgeons as the years pass, they always appreciate an older dated x-ray. Hang on to those suckers!

My curves held for many years. The curve pattern progressed in my 40s. This of course is my experience and everyone is different. Curves can hold, or progress like wildfire.

Cherry, you will do just fine. Post when you can.
Ed

judyat60
06-06-2011, 09:05 PM
that's a good question, especially for people like me who have trouble accepting diagnosis and tend to second guess my own decisions. i am fortunate to have xrays from 1980 (after car accident) as well as 2005 and 2011. The first dr. measured with ruler and said the 1980 showed about 8 degrees, yes, very mild. he also measured the 2011 and said upper was 58* lower approx 59*.
The other two doctors didn't measure, they looked at the curve, the progression on all 3, the slippage of vertabrae occuring. First and third doctor said yes, definitley progressing, need surgery sooner rather than later. The second gave no opinion, simply it was a matter ofquality of life decision for me, but if i wanted it, this is what he would do.
so...what do I ask? yes pain has been getting worse, I try different things, but maybe even more/different exercise?
I have scheduled surgery for mid july...
Does it ever stabilize itself after curving so much?

titaniumed
06-07-2011, 10:18 PM
Hi Judy

The 1980 x-rays were 31 years ago so wouldn’t really count. Your 2005 and 2011 x-rays are the ones they will take a good look at.

If you made a decision and have set a date, you must be in pain....we are familiar with that. (smiley face)

In answering your question about stabilizing, after you are fused, that area will be de-rotated, straightened (usually 50%) and stabilized.

If you are to be operated on here in mid July, the recovery will basically be all about walking. Walk, walk and more walking.....

Welcome to the forum
Keep posting, ask away.
Ed

judyat60
06-14-2011, 12:44 PM
thanks Ed for info
...ahem, a stupid question: has there ever been a case of scoliosis over 50* correcting itself without surgery? Through exercise, acupuncture, etc?

I have pain now but have modified my activity enough to still be ok, not as active but certainly not immobilized. Some people would say I am quite active, most don't know I have a problem. Generally, I just go for it (dancing, hiking, touring), hurt throughout but still go with more breaks than before, finally stop and lay down/some light meds, and go again. Yes, pain can now include more 'shooting' than experienced before, and more sciactica pain (but most people get that, yes?).

Am I in denial that if I just find the 'right' exercise I will feel fine and there will be no progression?

I am so trying to overcome my fear of the surgery.

LindaRacine
06-14-2011, 11:39 PM
thanks Ed for info
...ahem, a stupid question: has there ever been a case of scoliosis over 50* correcting itself without surgery? Through exercise, acupuncture, etc?

I have pain now but have modified my activity enough to still be ok, not as active but certainly not immobilized. Some people would say I am quite active, most don't know I have a problem. Generally, I just go for it (dancing, hiking, touring), hurt throughout but still go with more breaks than before, finally stop and lay down/some light meds, and go again. Yes, pain can now include more 'shooting' than experienced before, and more sciactica pain (but most people get that, yes?).

Am I in denial that if I just find the 'right' exercise I will feel fine and there will be no progression?

I am so trying to overcome my fear of the surgery.

Hi Judy...

Some people, who have worked very hard at it, have gotten SOME correction without surgery. My belief is that these relatively small corrections are essentially temporary, in that they will return to the original degree (or worse) when the treatment is discontinued.

On another subject, if your leg pain doesn't go away after a few months, I would recommend that you seriously consider surgery. Radicular pain can become permanent nerve damage if left uncorrected for too long.

Regards,
Linda

Confusedmom
06-16-2011, 11:29 PM
Linda,

How do you know if radicular pain is in danger of becoming permanent nerve damage?

I have had leg pain (sciatica) on and off since December, but Dr. Lenke seemed to think it was okay to wait until next March for my surgery. Just don't want to wait too long and this become permanent!

Thanks,
Evelyn

jrnyc
06-17-2011, 03:15 AM
hi judy
welcome to the forum...

yup, sounds like denial to me....
i haven't had surgery...yet...
but even i do not believe exercise would do much good as far as changing the curves...
i do think exercise might help in terms of body conditioning and pain...but not in changing the curves...

of course, i am just a lay person, so it is my opinion, and nothing else...
well, actually it is also my experience as a scoli person...
also, as a social worker, it kinda sounds like classic denial....

that said, you do sound really active to me...
my pain is such that i am not anywhere near active...

again, welcome...
you are in the right place...
and many here have had successful surgery, so i hope you find both information and support on this forum...

jess

judyat60
06-17-2011, 09:50 AM
thanks all for responses, i feel with surgery scheduled for mid July (a good time in my life if I have to do it, but also know I can always cancel), I am frantically looking for affirmation.
I've always had some pain which was increasing in past few years. My pain has increased even more in the last few months, yet on a trip to southeast asia in March, with Aleve and xanax once a day, I felt great. Was it the slow paced moving, the sitting and standing switches, the relaxed time, the heat??? I could live like that forever. But why all the pain now? Am I doing something wrong...like living a more 'normal' life that does it?
Even with the pain, it is the possibility that it will continue to get worse that frightens me. At 60, I don't have a wide window to count the degrees until the magic number. I'm 58* now.
sigh....
Judy

LindaRacine
06-20-2011, 10:30 PM
Linda,

How do you know if radicular pain is in danger of becoming permanent nerve damage?

I have had leg pain (sciatica) on and off since December, but Dr. Lenke seemed to think it was okay to wait until next March for my surgery. Just don't want to wait too long and this become permanent!

Thanks,
Evelyn
Hi Evelyn...

I think that when the pain becomes constant and does not subside when you change positions (for example, from standing to sitting), there's a danger that permanent damage has occurred.

--Linda

jrnyc
06-21-2011, 12:58 AM
hey Judy
i do not know about southeast Asia...
but i do know that when i go to the Caribbean, i feel better in the warm and moist weather, despite the fact that doctors tell me that the desert is the best place for arthritis...which i have...and for a lot of painful conditions...
it doesn't make sense...i always feel lousy just before it rains in the northeast, where i live....and the worst is the cold/rainy weather!

maybe it has something to do with being on vacation...and as you said, the slower pace...maybe because on vacation people tend to be happier....
i do not know why those weather conditions make you...and me...feel better....
but it sure does seem like a great reason to go back!

jess