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Lilysaidwhat
04-03-2011, 09:59 AM
I'm just curious how many levels everyone has fused here. Can you post your number below?

I am a 14-level fusion.

Elisa
04-03-2011, 10:53 AM
My son is in the second stage of his three stage procedure and I believe he will be fused from T2 to L1.

mgs
04-03-2011, 11:10 AM
12 levels (T-3 to L-3). . .

LindaRacine
04-03-2011, 11:14 AM
15 plus an anchor in the pelvis

Susie*Bee
04-03-2011, 12:31 PM
15 T2-L4
Oops. It won't let you be that short with your message! Had to make it longer. (smile)

titaniumed
04-03-2011, 12:49 PM
16 if you count joints, 17 if you count levels.

My SI joints were not fused, but probably are now since the anchors go into my pelvis. That would add 2.

If I could have my ex-wife”s jaw fused shut, that would add 1.

To be honest, I have no idea how many levels are fused.

Ed

tonibunny
04-03-2011, 01:01 PM
16 vertebrae, T1-L4.

titaniumed
04-03-2011, 01:33 PM
Linda

How are you doing? Is the swelling down some? 10 weeks, you have to be doing much better now.

You mentioned an anchor in your pelvis. Did they do just 1?

Ed

golfnut
04-03-2011, 04:32 PM
14:t4 to sacrum

LindaRacine
04-03-2011, 07:31 PM
Linda

How are you doing? Is the swelling down some? 10 weeks, you have to be doing much better now.

You mentioned an anchor in your pelvis. Did they do just 1?

Ed
Yes, Dr. Berven almost always does only one side of the pelvis.

I'm not nearly as far along as I'd hoped at this point. I'm still having issues with lymphedema. I'm thinking that I'm not going to reach my goal of getting back to work at 3 months.

Thanks for asking.

--Linda

leahdragonfly
04-03-2011, 07:47 PM
11 levels. T8-sacrum with left iliac fixation.

How is your recovery going, LSW?

debbei
04-03-2011, 07:49 PM
I'm just curious how many levels everyone has fused here. Can you post your number below?

I am a 14-level fusion.

T3 to L3--12 levels. I don't even notice it now!

ADMoul
04-03-2011, 08:02 PM
Same as Karen - T4 to sacrum, 14 levels.

Doodles
04-03-2011, 08:13 PM
T2-Sacrum with the pelvic anchors. 16. Do I hear 17 or 18, going once, going twice... Janet

JenniferG
04-03-2011, 09:39 PM
I think you and Ed hold the record here Janet?

T4 - Sacrum, anchors to pelvis - is that 14 levels?

foofer
04-03-2011, 09:50 PM
I'm not fused yet, but my confusion level is about a 14, on a scale of 1-10.:)

Lilysaidwhat
04-04-2011, 09:00 AM
11 levels. T8-sacrum with left iliac fixation.

How is your recovery going, LSW?


I feel like it's going so slowly but my PT says I'm kicking ass, and my surgeon says I am right on target.

The pain has been a real challenge, and although I am doing more, I really pay for it either that afternoon or the next day. I walked around the block for the first time Saturday morning but spent the rest of the day in bed with spasms. I know it's a good sign, like being sore after working out, but still it *feels* like a setback.

On the bright side I have increased in flexibility in the last two weeks. The body image is killing me though. I'm tired of being swollen, tired of being underweight, and tired of being skinny-fat without muscle tone.

Somebody call 911 - I need a Wahhhbulance!

/end hijack

jChris
04-04-2011, 10:42 AM
T2 to pelvis with anchors. Also, C4,5, C5,6, C6,7.

Jacque's Mom
04-04-2011, 10:52 AM
14 - from T4 to Sacrum

titaniumed
04-04-2011, 01:43 PM
Jen
Chris and Melissa are the actives with the most levels fused. T2-pelvis with a few neck levels.

Linda
3 months is pushing it a little. I know I couldn’t have done that, or work really would have been a test. Hope you feel better soon.

Nobody thought my ex-wife joke was funny. I thought it was hilarious but then that’s me. She is one who knows quite a bit about scoliosis living with me through all the years waiting and waiting......She offered to come up and stay with me, possibly finish me off completely in my recovery. LOL In actuality, I didn’t want her around with me being in that much pain, sometimes its just best to be alone.

Ed

Susie*Bee
04-04-2011, 03:59 PM
I thought it was very funny, Ed. Just didn't respond... For some reason, none of the smile icon things show up any more on my computer. They are just question marks. Is it just me, or is it that way with others???

Regardless of who has the record (and yes, it looks like 16 is about it) it is quite obvious that there are a lot of us with almost all of our backs fused...

Sometimes the kids at school ask to see the pictures of the x-rays again, please Mrs. B! They did just the other day when one tried to get me with an April Fools' joke about my shoe being untied. I don't wear shoes that tie because it's a real strain/pain, although I could probably manage it now. But I'm still trying to be easy on L5&6, so I just don't push it.

JenniferG
04-04-2011, 04:13 PM
Oh yes, you're right Ed. Chris and Melissa win! :D

Amazing.

Susie, I think it's lovely that your students have seen your x-rays. How fascinating for them! Now that's what I call a real lesson!

My granddaughters took mine to show and tell at Day Care and apparently the littlies took it all in with interest as it was explained to them. It was the teachers who were all "ooh and ahh" about them.

Medical things were hidden from me as a child so I grew up a real woos. So I think it's important they see what can go wrong and what the treatment is from an early age. My grandchildren have often watched my partner injecting insulin. One always asks if she can do it for him. They don't bat an eyelid at these things which I think is terrific.

foofer
04-04-2011, 05:03 PM
Jen
Chris and Melissa are the actives with the most levels fused. T2-pelvis with a few neck levels.

Linda
3 months is pushing it a little. I know I couldn’t have done that, or work really would have been a test. Hope you feel better soon.

Nobody thought my ex-wife joke was funny. I thought it was hilarious but then that’s me. She is one who knows quite a bit about scoliosis living with me through all the years waiting and waiting......She offered to come up and stay with me, possibly finish me off completely in my recovery. LOL In actuality, I didn’t want her around with me being in that much pain, sometimes its just best to be alone.

Ed

Aw, Ed, I thought it was funny. I laughed ROL (right out loud). i always want everyone to respond to every one of my posts, but unless a question is asked, I guess we have to be satisfied with hoping that some forum readers are smiling around the world at our attempts to entertain.

So, did anyone think my confusion levels post was funny?

Never mind.

It's nice that your ex offered up her help, but I do understand the reluctance. My husband is not an ex, but at some point i think I will start a whole new thread about the nursing care among the non-Florence Nightingales of the world. Could be a scary movie script. FrankenNightingale. (This is a sorta funny attempt.)

Lily, You can't hijack your own thread. Maybe a re-route or a detour, but not a hijack. You're at the wheel. I've enjoyed reading your posts- You are a spicy one. I like how you just came on, had surgery a few weeks later, and then on with the show. I'll be dragging my feet, dragging my carcass around for years before I cave in. But I did have my son measure me this month and it came up 1/4 inch shorter than last month. Guess I have to breath in next time. So I'm inching closer, :):)

Susiebee, I think we all have the little blue ? marks on the side. I never used emoticons until I was writing awhile on this forum. Now I need them and it's just a little field of blue questions on the side. Hmmm....

JenniferG
04-04-2011, 05:20 PM
Amy, I bet I'm not the only one to put my hand up to laughing at your confusion level post! Very funny!

foofer
04-04-2011, 05:43 PM
Thank you VERY much, Miss Jennifer. Just what I wanted to hear.:)

jChris
04-04-2011, 06:43 PM
Ed, I thought your ex-wife joke was great. You just could't hear me laughing!

naptown78
04-04-2011, 07:16 PM
Ed and Foofer...you both are hysterical!!!

babyboomer16
04-04-2011, 07:43 PM
T2 to pelvic bone(hooks and screws) Four and ond half months out.

Jacque's Mom
04-05-2011, 10:37 AM
Ed - hilarious!

Amy - you must start the non-Florence Nightingale thread! I'm sure there will be many stories, and we could all use a laugh or two or three or..... My husband is a great guy, been with me through all my surgeries BUT....... All I can say is thank God my daughter is an OT and lives home!

Thanks for the laughs.
Lynn

backissues
04-05-2011, 04:22 PM
Ed, Your posting was a LOL.

I'm fused 9 levels (T10 - Sacrum).

I guess that is the lower amount from what I've seen in the postings. It is 4 months and I'm still hurting in my upper abdomen and had a thoracic epidural yesterday. It is not constant but with activity. The intercostal nerve blocks didn't work. I think the rearrangement of my body really did a number on the rest of me. It's not my back that hurts that is the weird part. I guess I should be happy about that, but pain is pain and this doesn't respond to anything except lying down.

You all inspire me that there will be an end to the pain and I will go back to a new normal life. I already know I can walk and stand without pain.

Regards,

KathK
04-05-2011, 06:30 PM
I'm a "perfect 10"......just had to throw that in (smiles).....T9 to sacrum....

Ed, Amy...still smiling at your posts....

Elisa
04-06-2011, 09:24 AM
I'm a "perfect 10"......just had to throw that in (smiles)


Good one!

If Elias is going to be fused from T2-L1, is that 12 levels or do they count below the highest level and above the lowest level. Will he be a perfect '10' too? :-)

mgs
04-06-2011, 12:46 PM
I'm too tired to count that, Elisa, but. . .my understanding is that a level is the "in between" the vertebrae, where the surgeon does the work. . .so, if you are fused from L-1 to L-2, you are fused 1 level (2 vertebrae involved). . .In my case, I am fused from T-3 to L-3, so 12 levels (as said the 4th year resident who was present at my surgery, and did my follow-up while I was hospitalized).

Bueller?

mbeckoff
04-07-2011, 04:31 AM
[QUOTE=titaniumed;119845]

Jen
Chris and Melissa are the actives with the most levels fused. T2-pelvis with a few neck levels.

Do we win a prize for having the most levels fused? I could use a prize these days

Melissa

sarahcant
04-07-2011, 08:22 AM
I found my paperwork here goes posterior spine fusion T-3-S-1 iliac wing fixation, transforminal lumbar interbody fusion L-5-S-1, instrumentation, allograft, autograft. So can anyone explain what it all means?




Sarahcant
March 15 Dr. Errico

Lorz
04-07-2011, 08:49 AM
I am not fused yet, but will be soon, either T3 or T4 to S1, so I guess I will be in the 14 range.

Amy- I am with you, I am definitely con-fused! Your post are hilarious, I love to read them. Always makes me smile!

Ed- I liked your ex joke too. I think it is a testimony to what a great guy you are, if yours offered to take care of you.(one way or another!) If you ever move to PA, I have a terrific single friend I'd love for you to meet...!!

titaniumed
04-07-2011, 05:06 PM
Thx Guys. I will try to keep up some of the humor...

Lori,
I grew up in NJ and moved out west for skiing 31 years ago. Its doubtful that I would move back.

After you are fused, you seem to get cold often for some reason.

If anything, I would move to a warmer place in the future. Fly south for good. I have my “bear traps” right now, and I’m playing hookie today from work. A winter storm has moved in. Once it passes, I’m good.

Amy
Confusion. No way.... Scared? Maybe a little. I could see it when you came out here, we all have that special look.

Scoliosis surgery can be a scary thing. Maybe not as bad as when Josie Wales deals with Ten Bears in the movie “The Outlaw Josie Wales”, but still pretty unnerving.

http://www.youtube.com/watch?v=U4e3-YK3rVA

I guess we are all warriors sometimes.
Ed

kennedy
04-07-2011, 05:30 PM
11 vertebrae T4-L2

mgs
04-07-2011, 06:19 PM
[QUOTE=titaniumed;120000]Thx Guys. I will try to keep up some of the humor...

Lori,
I grew up in NJ and moved out west for skiing 31 years ago. Its doubtful that I would move back.

My husband is from NJ. . .Livingston, to be exact. Where are you from? I LOVE NJ!!

And, of course I am cold :) . . .I live in the friggin' tundra. I was cold before I was fused, I am cold since I've been fused. . .and I will die cold(unless my husband retires, and we move to Boca). ..

Lilysaidwhat
04-08-2011, 08:52 AM
[QUOTE=titaniumed;120000]Thx Guys. I will try to keep up some of the humor...

Lori,
I grew up in NJ and moved out west for skiing 31 years ago. Its doubtful that I would move back.

My husband is from NJ. . .Livingston, to be exact. Where are you from? I LOVE NJ!!

And, of course I am cold :) . . .I live in the friggin' tundra. I was cold before I was fused, I am cold since I've been fused. . .and I will die cold(unless my husband retires, and we move to Boca). ..

And this is why, when my husband had a residency interview in Ann Arbor, I told him to cancel it or be prepared to receive a rent check in the mail each month from somewhere warmer from me.

titaniumed
04-08-2011, 08:26 PM
I grew up in Wayne, about 10 miles north of Livingston.

And talking about cold, I am being talked into going to Alaska in June, and I have noticed that there is a SRS Doc up there. Dr James Eule. WOW!
Sure would be nice to hear from somebody in Alaska.

SRS will meet up there in 2014.
http://www.conventionplanit.com/article.php?sid=3512


Ed

mgs
04-08-2011, 09:11 PM
I grew up in Wayne, about 10 miles north of Livingston.



Ed

When Paul's parents were alive, we went to Livingston annually. Every year, I'd buy another large serving bowl at Fortunoff's in Wayne. It's been 12 years since our last visit - funny what a person remembers.

I wonder if that one SRS doc in Alaska has a busy practice.

foofer
04-09-2011, 10:22 AM
Hey everyone...

Thanks for all the positive feedback- makes me feel fun again!

Lori- I'm feeling kinda sad that we won't be roomies with Dr B this June. Actually, my out-of-network insurance is not working with him at all, so I'm having to recalculate my strategy. Always a challenge. Wah.

Lynn- Definitely need to start that thread soon. Yes, thank God for daughters. Mine informed me that she would set up office wherever I end up, surgeon location-wise, and that my husband was only allowed there for a week - then he had to go home and she would take over completely. She's actually just like him- looks like him, has the same bio make-up and is the only one who can order him around. It's really funny. If I end up at HSS, maybe I can ask Lilysaidwhat to be another advocate.

Ed, Okay, busted. Dazed, confused, AND scared. Mostly scared that my outcome will be worse than I am now. Seems like most of the docs I've seen have all encouraged me to wait, which is different than most advice I've read on the forum. My work sched would allow for spring of any year to be an "easy" time for surgery, and this being the first spring that disability insurance kicked in, and now that it's here...well, maybe next spring, when I'm 57, the magic year for scoli surgery in women.

I feel like Josie Wales this winter, and "Ten Bears" is my job, but they are not giving blood- only me....a half high-five. Everyone else at work is struggling big-time. It's like "They Shoot Horses, Don't They?" and we are at the final scene. Two more weeks to go, and then lay off til June. :D:D:D

Kristy, when you had your revision, did you have Harrington rods, and did they replace them? I just ran into an acquaintance last night who is about to have a third scoli surgery, and they will fuse one more level- L5, but she said they will use more harrington instrumentation?! (Rather than re-do it all?) This was one of those situations where I wanted to butt in and give advise- go get a second opinion, go to a revision specialist-please, but I kept quiet...?? Scary.

Irene- you are in my thoughts and prayers.

KathK- Love the perfect 10. Yes!

*Sorry about the hijack*

LisaB
04-09-2011, 12:00 PM
I'm fused 12 levels, I believe. T3-L1 and L4-S1.

theizzard
04-10-2011, 12:39 PM
t6 to sacrum however many that is. but I also have two artificial hips and that must count for something right?
avis

jrnyc
04-10-2011, 01:02 PM
Amy, are you having surgery?
from your signature, i thought you were just "thinking" about it...
is it a definite now?

jess

foofer
04-10-2011, 03:04 PM
Amy, are you having surgery?
from your signature, i thought you were just "thinking" about it...
is it a definite now?

jess

Jess,
At this point, I have not scheduled surgery. When I joined the forum, I had been advised by a local orthopedic guy that I needed fusion soon. So I went to three other doctors in the last 3 years, and all three advised waiting since I did not seem to be progressing (I have regressed according to some x-rays but I put no stock in this- it just tells me I am not currently progressing). The last time I saw Dr Boachie last October, I had been in some relentless neck pain, and he told me to think about having surgery since "it's a quality of life matter and this will only worsen." So I initiated the insurance queries and my new insurance will only cover 6% of out-of-network. Not enough. So it's back to checking w/ other doctors, and since the best time for me is in the spring, and since I am again feeling well, and since I would rather go outside and play this spring- :), I will probably wait another year. But I am ready if I need to be.

What feels good to me about the waiting process is that Dr B has since changed up how he would proceed- he would no longer do A/P and just do posterior due to advances in the surgery. So for me, I'm glad to have waited. The other doctors are also advocating posterior only. That being said, sometimes I think the waiting and wondering is an agony of its own and would be easier just to go do it.

So we are still in the same corner, Jess :), and thank you for asking.

jrnyc
04-10-2011, 03:36 PM
well, that's good....progress keeps marching on...
personally, i think in a few years, minimally invasive will be much more widely accepted for ALL kinds of scoli surgery...regardless of where on the spine it is needed...

years ago, not that long, Boachie used to collapse one lung...he did back and front surgery and collapsed a lung for better access...he doesn't do that anymore...so you see what i mean about medical progress!

best of luck
jess

Lorz
04-11-2011, 07:13 PM
I am disappointed also, that we won't be roomies in June, misery does love company. It is really sad that insurance companies dictate our health care choices. And, I agree, the waiting, watching, and decision making is agony, and exhausting. It was a large part of why I finally scheduled the surgery. I was also scared that Dr. Boachie would retire, before I made my decision!