My 4 yr-old daughter has had growing rods since March of last year, and has had one extension in October. Her next extension has been scheduled for May--we were hoping for a little more time in between extensions, but she's been growing like a weed! Her last extension actually included revising the hardware a bit--switching out hooks for screws at the top, since she had grown enough that she could support the change. Her next extension will probably include replacing at least one of the rods, since her growth has been so much better than predicted. She's had some kyphosis develop just above where the rods are anchored, but the surgeon isn't sure yet if he's going to address that.
I'm finding that I'm nervous already! It's not like we haven't been through a lot with her before this--she's a diaphragmatic hernia survivor and has a g-tube. We also have a lot of faith in her surgeon. But does this ever get "routine?"
I'm finding that I'm nervous already! It's not like we haven't been through a lot with her before this--she's a diaphragmatic hernia survivor and has a g-tube. We also have a lot of faith in her surgeon. But does this ever get "routine?"
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