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jeneemohler
02-04-2011, 06:57 PM
Someone was mentioning the upcoming surgeries...here they are again. Good luck to SarahCant and Mariposateach-you are almost there, ladies!!! And I'm glad Lilysaidwhat is on the other side now... Anyone else that we need to add to our list for good wishes??

There seems to be a whole new group out there with surgeries scheduled just recently. I like how golfnut kept a running list with the people and the dates. We don't want to forget anyone! So if everyone who wants to could list your surgery date and place, etc., to this thread, that would be great. I'm afraid if I try to list everyone, someone would be left out. I don't want that mistake haunting me!!!
Here it is so far, I will add as I get more dates:



Feb 23 - Lilysaidwhat Dr Grauer at Yale.


March 15 - Sarahcant , NYU, Dr. Errico, full fusion with pelvis fixation


March 15 - Mariposateach, UCSF, anterior
March 17- posterior


March 22- Elisa's son, Shriners- Portland, Or Dr. Krajbich, anterior, halo applied, circular bed until April 19
April 19 - posterior surgery fusion and instrumentation

April 19- ColdBricks, HSS in NYC, Dr. Boachie -changed to the 27th


April 5 - cathydrew, Dr. Lonner, T4-S1 with pelvic fixation-postponed to next year


June 7- lorz, Dr. Boachie at HSS, T4-S1

Lorz
02-05-2011, 12:17 PM
Thanks for thinking of us! My surgery is scheduled for June 7th, with Dr. Boachie, at HSS. The proposed procedure is T4 or 5- S1, all posterior. Just got the ok from my insurance co. yesterday, so it is becoming frighteningly real! Lori Z.

Elisa
02-05-2011, 01:56 PM
I can 'finally' add to the list!

My 14 y/o son will be having two surgeries. The first one will be on March 22nd 2011. I believe it is an anterior surgery to loosen up his spine as well apply the halo to his head and will be in traction as well as a circular bed until April 19th. 2011 when he'll have posterior surgery with instrumentation. I'm not sure how long his fusion will be but I'm guessing mostly thoracic as that's where his huge curve is.

golfnut
02-05-2011, 03:15 PM
Thanks, Jenee', for doing this.

cathydrew
02-05-2011, 08:42 PM
Barring any unforeseen delays, April 5th, Dr. Lonner, T4 to S1 w/fixation

jeneemohler
02-05-2011, 09:33 PM
Karen-you were the one with the wonderful idea of organizing it. I'm just being a copycat!! Full credit goes to you.. Another day down, another day closer to full recovery! No more waking up in the shower, right???

mariposateach
02-07-2011, 09:11 AM
I'm the other Cathy with an upcoming surgery -March 15 anterior and 17 posterior. I'll be in San Francisco at UCSF Medical Center. So, while I'm recovering in the hospital my family can enjoy the beautiful city. We live 4 hours away in the mountains, so time in the city is a real treat. Like the other Cathy, I say "Let's get on with this" - worrying does no good. I'm just trying to be as prepared and educated as I can be -

sarahcant
02-07-2011, 05:35 PM
Thats how I feel! This anticipation sucks! I'll be having my surgery on March 15th with Dr. Errico at NYU Hosp. for Joint diseases in nyc. Thorasic is 38 Lumbar is 70 with nerve pain, tingling and weakness and lots of pain. Full fusion with pelvic fixation. I just gave up my job because I work with little kids and am not chancing getting sick. I wish all of us luck and love through this ordeal. Will keep posting!

jeneemohler
02-07-2011, 08:28 PM
Sarah, that is actually a great idea.
My entire family came down with a head and chest cold the week before my surgery, I don't know how I didn't get it. I seem to be naturally immune to a lot of the colds that go around. Thank Goodness! They almost postponed my surgery because I woke up with a sore throat on Friday before my Monday surgery. I was scared to death they were going to postpone it- I was psyched up for just getting it done after all the years of waiting, and 6 months of having a surgery date! But all went as planned, as I had no fever and no more symptoms over the weekend.

I wish all of you the best of luck on your upcoming "adventure"!

mariposateach
02-07-2011, 09:55 PM
Sarah,
We have the same surgery date - from one coast to the other!
I am an elementary school teacher and I plan to work all the way until surgery. I've been teaching for 33 years and rarely catch the germs from the kiddos - but I am taking lots of vitamin C and washing my hands constantly! I think it probably is smart to do whatever it takes to stay healthy.
Take care and lets stay strong and positive.
Cathy

cathydrew
02-09-2011, 09:02 AM
Hi other Cathy! I wish you blessings and luck with your surgery, please keep us informed of your progress when the time comes =) I am also a teacher, but I teach 6th grade in the middle school where we change classes each period. I am planning to work til as close to my surgery date as I can as well - gotta save those days! I am also planning to return in September for the new school year. I am hopeful my administration will go easy on my schedule for next year and not have me running up and down stairs with three minutes between classes as I do this year! When are you planning to return to school?

Lilysaidwhat
02-09-2011, 09:31 AM
Thanks Jenee - I'm Feb 23 with Dr Grauer at Yale.

If someone wants to join my facebook group for updates, PM me and I will send you info.

Pooka1
02-09-2011, 10:15 AM
Karen-you were the one with the wonderful idea of organizing it. I'm just being a copycat!! Full credit goes to you.. Another day down, another day closer to full recovery! No more waking up in the shower, right???

Actually, some credit should go to Susie*Bee who maintained the list for quite a while prior to Golfnut. And there might have been someone before Susie*Bee.

Anyone and everyone kind enough to step up the plate to organize these threads deserves credit and thanks.

jeneemohler
02-09-2011, 12:00 PM
Thanks to everyone else who has maintained a list before I was here. It helps to keep everyone straight. I don't want to miss anyone, and make them feel left out or unimportant. If I do, it is completely unintentional!

Lilysaidwhat, you are coming right up, aren't you? How are you doing? Is it getting any easier the closer you get? When I was finally resolved to getting it done, I was afraid I would get worse and have a set back the couple weeks before, but I didn't. Then I was worried that the last few days would be hard-but they weren't. THEN I was afraid that I would be afraid the morning of- getting up early and grabbing my bags and driving to the hospital, but I wasn't!! I hope this holds true for all of you coming up. I was afraid of being afraid, and it was all for nothing! And most importantly, it has all been so worth it. Tomorrow is my one month post-op. And it is all good. Good luck, EVERYONE!

mariposateach
02-10-2011, 03:20 PM
Jenne -
Happy one month! I am so impressed that you are feeling well enough, and of clear enough mind, to be organizing and updating our list! How are you doing in your recovery?

Lily - I hope you're feeling peace and strength as your day gets closer. I loved what Jenne said about not being nearly as nervous and afraid as she thought she would be when the day finally arrived.

Cathy (other Cathy) - I also am planning on returning to school in the fall. Our fall schedule actually begins the third week of August - hopefully I'll be ready to hang out with 30 or more 8 and 9 year olds by then. If not, I'll take another month off.

Lilysaidwhat
02-10-2011, 07:05 PM
Thanks everyone. So far I feel despair and panic, which is tempered by ever increasing dosages of xanax. I've deleted the rest of what I wrote here. It's not worth publishing in public.

Good luck everyone and I hope you're in a better place than I am.

jeneemohler
03-09-2011, 03:03 PM
Good Luck to Sarahcant and Mariposateach. You are almost there and the stress of worrying and wondering about surgery will be all over with! We are cheering for you ladies!!

Elisa
03-09-2011, 03:15 PM
We're leaving in 10 days! It is going SO slow right now though and I have no energy, poor concentration and have spent most of the day lying in bed thinking about what all to pack. Everything was moving super fast but it's painfully slow right now.

golfnut
03-09-2011, 04:24 PM
Best of luck to Cathy and Sarah on the 15th and Elias on the 22nd. If there are any other March surgeries, please let us know. Trust me . . . the worrying before the surgery is worse than the recovery.

jeneemohler
03-09-2011, 04:31 PM
Elisa, it has to be the hardest thing to be dealing with this when it is your child. It is much worse than dealing with it ourselves. I would do it again before I ever would want to deal with it being my child. You are a tough lady! Please let us know how Elias is doing when you are able. The very best of luck to all of your family!!!

Elisa
03-09-2011, 06:20 PM
Elisa, it has to be the hardest thing to be dealing with this when it is your child. It is much worse than dealing with it ourselves. I would do it again before I ever would want to deal with it being my child. You are a tough lady! Please let us know how Elias is doing when you are able. The very best of luck to all of your family!!!
Thanks Jenee' appreciate the well wishes. It is hard to watch my son turn into a pretzel and have pain and then know he'll sliced open TWICE as well as have that contraption bolted into his skull for weeks. It does kinda creep me out b/c this is a boy who's never had any other health issues to the point he hasn't even been on antibiotics ever so this is a LOT of intervention about to happen to his virgin body.

On the other hand: Where the hell would we be without Shriners stepping in and bailing us out!? I see a collapsed spine and organ issues and that is so much harder to handle than surgeries/traction etc. That's what keeps me somewhat strong or at least somewhat sane.

ColdBricks
03-22-2011, 01:33 PM
hi ! My surgery has been moved to April 27. Everything else is the same....good luck everyone

jeneemohler
03-22-2011, 07:09 PM
I've been thinking about you and your son today, Elisa. I'm sure many others are with you guys in spirit, too. That first step is the toughest. Now you are on the road to a better future. Let us know how everyone is doing!!

JenniferG
03-22-2011, 10:02 PM
hi ! My surgery has been moved to April 27. Everything else is the same....good luck everyone

Hope the next 5 weeks goes quickly for you ColdBricks!

Elisa, thinking about you and your son. Hope you are both calm.