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jeneemohler
01-06-2011, 03:36 PM
Alright, my friends. I need your help and encouragement. I've always been known as a Pollyanna... but these last couple days have been hard.

My surgery is Monday, and I had my preop yesterday. I had bend films done a little over a year ago. My doc was very pleased with the flexibility of my spine, and was confident of a good correction. I postponed surgery for a year, due to financial reasons and life being hectic at that particular time. I had a wedding planned to a wonderful new husband and we moved due to his job transfer to a different community. We had two house payments because of it. I didn't want to have surgery until we sold the old house. I also was stuck with a lot of debt that my ex left me when he quit paying his bills that my name was still attached to. So I waited a year until all that was straightened out and I could afford to be off work long term.

I shouldn't have waited...

Now, I have shrunk 3" in the past year, and my curve progression has been swift. My new bend films taken yesterday were not good news. It showed lumbar correction from 70+ degrees to approximately 58 degrees. Not nearly the flexibility I had just over a year ago, before my shrinkage. I have a lot of arthritis and spurs in there, too. I also have to have pelvic fixation now. Due to lack of flexibility, my rib hump will not be decreased as much as we hoped. So I was given the option of thorcoplasty. This has really thrown me for a loop. So much to digest with surgery only 4 days away... I was really prepared and psyched up for the pain and recovery, with the benefit down the road of a straighten body and a missing rib hump. (Or mostly so- I AM realistic.) Now my mind is like a hamster in a wheel...it won't stop analyzing, wondering, regretting, finding ways to think positive. It needs to just be quiet!!

Lesson learned- If you are having pain issues and thinking of surgery. Don't put it off too long! PLEASE monitor your curves. If I had just done it a year ago, it would have been so much better off. That dang hindsight... BUT, looking at the bright side, it will still stop the progression, and not get worse like it has done. I have to stay positive! And my husband and I are the same height, so I probably won't be much taller than him. I thought I might tower over him. So that's one good thing...

My wonderful hubby has been so nervous these last few weeks. But he keeps hugging me, handing me tissues and tells me he loves me, hump and all. I am so lucky. He feels so helpless these last few days, knowing how upset I was with the news, and knowing there isn't much he can do, besides be there for me. He keeps telling me "I'll take care of you, baby."

Well, I feel a little better. I hope I've planted a seed in the heads of anyone on the verge and wondering about waiting versus just going ahead and doing it. You know you will have to have surgery someday, anyway.

Any thoughts/information on thorcoplasty would be appreciated! I hear the recovery isn't too pleasant with the addition of it. But in for a penny, in for a pound, right??? Might as well do it only once, get it over with, and hope for the best possible results. She gave me the option, and we decided that I give her permission to do it or not, depending on what she finds once she is in there. IF there is a good possibility of a lot of correction with it, she can go ahead. If it is only a little correction, we will opt out. I trust she will do whatever is best for me.

Thanks for listenting to the long venting!!!

Jenee'

jeneemohler
01-06-2011, 03:39 PM
P.S. ... and I will STILL be a ballerina!!!

(see my previous post on "a new perception" if you don't get it....)

peachrush7
01-06-2011, 05:16 PM
oh wow. How hard for you! So sorry that you learned this last minute. your poor head must be spinning.

scoliosis is so insidious. it just sneaks up on us, so quietly for a while, and then BAM...

I have no advice, just well wishes for you. I hope you are able to figure everything out before next week!!!

titaniumed
01-06-2011, 07:08 PM
Jenee

Your going to be fine.....and I expect to ski with you at some point.

I cannot remember any thorocoplasties on the board here since I’ve been reading...Anyone? Is your surgery still next Monday?

Wow, the statement “I love you with the hump” is such a killer. Anybody got a hanki?What a great guy!

Ed

jeneemohler
01-06-2011, 08:48 PM
I would really love to come down there and visit and hit the slopes with you. If only it wouldn't be so darn far away.... Spring skiing next year, spring 2012??? I wouldn't want to hold you up... I have been wanting to take Andy to Tahoe ever since we met.

Ok, that is biggie goal #2 in my book.

Biggie goal #1-Andy bought me tickets to see U2 in Seattle in June, so my goal is to be able to travel, sightsee, sit through a concert, and walk around comfortably 6 months post op.

Yes, surgery is Monday morning. BUT....I woke up this morning with a sore throat, headache, neckache, and congestion. Crap!! We are playing the waiting game to see if we have to postpone it. I really wanted to watch the BCS football championship Monday night, but postponing surgery is a little bit extreme...

I am in much better spirits this evening. I am one of those people that get very emotional when hit with unexpected things. But I am also very analytical too. So once I sit down with the facts and process everything in my head, I'm fine. It felt good to vent, though.

And I'm imagining a ballerina on skiis.... It's a beautiful thing.

JenniferG
01-06-2011, 08:59 PM
Jenee' sorry to hear the disappointing news. Hindsight is a marvellous thing. Still, it's being done now, not next year, so you're going to get better results than then!

You're well informed and have great support, obviously. You're going to do great. You'll be so glad you did it!

foofer
01-06-2011, 09:21 PM
Jenee'

I really have felt kinda mad about this, but I guess I have to be a big girl like you and move on! I really wish now that I lived closer, so I could take you out to the longest lunch that ever was.

But...in the end, of course it will all come out in the wash and all will be well. Whether it's Monday, or you have to take a few days off to have the ol' fashioned flu- I'm doing that tomorrow- been sewing with my head about an inch away from sewing machine and just Holding ON until tomorrow when I can cash in a couple sick days. Wah. Okay, how about I have the flu in lieu of YOU!? No need for two to take it on....

Keep in touch and keep up your great attitude. Scoli Ski Olympics 2012- I'm coming...whether it's here there or in between, invited or not. I guarantee I will be in last place...:)

Hugs.

Doodles
01-06-2011, 09:40 PM
Jenee
I don't know how much help I will be but I'm sorry you're faced with this so close to surgery time. As far as thorcoplasty...I have much more of a rib hump since surgery than I thought I would. It wasn't noticeable so much at first maybe due to swelling but is moreso now. I asked Dr. Lenke about sometime doing thorcoplasty and he said No! Pretty much case closed. I'm sure everyone is different. I think the fact that your surgeon could make the call at the time if she felt there was a chance of better correction is a good one. I know it's a tough one. Glad you are feeling a little better about things. One way or another--rib hump or not--you will have a much better back. Me too. Good luck. Janet

Singer
01-07-2011, 06:32 AM
Ugh, sorry about all this Jenee! I had a thoracoplasty, and yes it hurt more than my back. I still have stiffness and tenderness -- I suppose it's scar tissue -- around the rib area, but I wouldn't call it pain any longer -- I just know it's there. In terms of discomfort and recovery time, I hope you don't have the thoracoplasty, but I did manage to get a fantastic correction because of it. So, like most things, it's a trade-off.

Good luck getting it all sorted out and hope you feel better soon!!!

jeneemohler
01-07-2011, 11:30 AM
Thanks again, everyone.

PeachRush, I'm still amazed at how well you did, so soon. You are my inspiration...

Ed, you are full of wisdom and support, as usual. I can't wait to meet you someday...

Jennifer, you are so right. Better to do it now than later! Always a bright side to contemplate. Imagine living with this with no option of surgery like some folks have...

Doodles, my surgeon is very pro non-invasive, unless it comes down to health and quality of life. I know she will do what is best in her opinion. She will only do it if she feels it is worth it. I am even more thankful than before that I have so much trust and faith in her.

Singer, thanks for the first hand information. Yes, I hope the trade off is worth it. I really get aggravated with the feeling of being compressed and having my ribs sitting on my hip bones. It can be so uncomfortable. Especially when driving. I've made up my mind that even if I don't get a lot of correction of the curves, I will be very happy with just getting the ribs off my pelvis and some nerve pain reduction. That alone will increase my quality of life greatly. I won't be greedy!

Amy, I so want to drive out and visit you when this is all done and overwith. I feel such a bond with you. Strange for someone I haven't even met in person. I just have that gut feeling. I'm pretty good at intuition and judging people. Scoli Olympics? Great idea! Lets meet up with Ed. Maybe we can gang up on him. It will take two of us to keep up with the man!!!

I am going to try to attach an article that was written about my doc. Not sure how to do it, so I hope it works. She and her husband have a nonprofit organization that does complicated surgeries on children with scoliosis who have no insurance.

903

mbeckoff
01-07-2011, 11:35 AM
Thanks again, everyone.

PeachRush, I'm still amazed at how well you did, so soon. You are my inspiration...

Ed, you are full of wisdom and support, as usual. I can't wait to meet you someday...

Jennifer, you are so right. Better to do it now than later! Always a bright side to contemplate. Imagine living with this with no option of surgery like some folks have...

Doodles, my surgeon is very pro non-invasive, unless it comes down to health and quality of life. I know she will do what is best in her opinion. She will only do it if she feels it is worth it. I am even more thankful than before that I have so much trust and faith in her.

Singer, thanks for the first hand information. Yes, I hope the trade off is worth it. I really get aggravated with the feeling of being compressed and having my ribs sitting on my hip bones. It can be so uncomfortable. Especially when driving. I've made up my mind that even if I don't get a lot of correction of the curves, I will be very happy with just getting the ribs off my pelvis and some nerve pain reduction. That alone will increase my quality of life greatly. I won't be greedy!

Amy, I so want to drive out and visit you when this is all done and overwith. I feel such a bond with you. Strange for someone I haven't even met in person. I just have that gut feeling. I'm pretty good at intuition and judging people. Scoli Olympics? Great idea! Lets meet up with Ed. Maybe we can gang up on him. It will take two of us to keep up with the man!!!

I am going to try to attach an article that was written about my doc. Not sure how to do it, so I hope it works. She and her husband have a nonprofit organization that does complicated surgeries on children with scoliosis who have no insurance.

903

What great doctors they are . Hope all goes well with the surgery. How are you feeling today? Is the surgery still on for Monday?

Melissa

jeneemohler
01-07-2011, 12:12 PM
Yes, I feel better today, so unless I call my Dr. and tell her I have a fever, it is still on.

Thank goodness I have some Zicam left. I've been using it the last couple days. I'm one of those middle of the road people that believe that both mainstream medical and natural remedies have a place in our health care. I believe 100% in some of the natural remedies, but am also cautious of grandiose claims. I was skeptical of Zicam, but my husband, who is a pharmicist, (and is much more mainstream), swears by it, so I tried it. It has worked to stop a cold dead in its tracks everytime. Too bad it was pulled from the market because of people abusing it....

I am in a much better place mentally since my preop Wednesday. I've sorted though everything in my brain, prioritized what I really hope to gain, and look forward to whatever improvements I will have.

I posted the attachment about my doc, because I imagine there are a lot of people out there who may think I should go to someone more well known.

Dr Moore did her fellowship at Twin Cities Spine Center, and was working with some of the best docs out there. She is such a caring, compassionate, and gentle soul. She has a stellar reputation here in Oregon. It is not very often that you never hear any negativity about a doc from patients, nurses, or pharmacists. My husband is in the medical field and I have several nurse friends, and they hear ALL the gossip. And they haven't had anything bad to say about her. So I do feel very confident about her doing my surgery. She specializes in scoliosis, and is not just a general orthopedic. And for OHSU to send patients down to her-that is a pretty good recommedation! She is a great alternative for people in this area that may not have the option of flying to appointments and having surgery so far away.

Again, thanks to eveyone for the concern and help. You have been such an important part of my life, and helped so much with the decisions I've made. I feel so comfortable being armed with all this knowledge you have shared with me. I know what to expect, I have ideas of how to deal with some of the issues and common complications. No one knows more than the people who have gone through it themselves. Medical articles just don't cut it! I can't imagine going into this Monday without all this ammunition. You guys have been lifesavers!

foofer
01-07-2011, 12:41 PM
Jenee'...

Yes, I feel the same. It's a curious thing, yes? Let's put it on the "Make it Happen" list!

Glad you are feeling better. It sounds like you have fully processed the whole challenge and are good to go. Makes me happy.

Have you taught your husband or kids how to get on this forum and post for you, because we need to know! I will be haunting the forum for news and praying all day on Monday. Can't wait to hear.

Blessings to you, girlfriend...

jeneemohler
01-07-2011, 01:20 PM
Yes, I have left Andy with instructions. He is pretty stressed out worrying about me, so I don't know how long it will take him to post.... He is also going to try to post on my FB and his, so you could go there, too. Maybe you should request him as a friend now, so you can get the news ASAP, and you could post on our forum if he forgets... I think he will be preoccupied with all that is going on. But he is on his FB and posts everyday. He has lots of family and friends waiting and wondering, so I think he will hit FB first....

I hope you are feeling better today!

Talk to you soon...

titaniumed
01-07-2011, 02:01 PM
Jenee

Have you made a decision on the thoracoplasty?

Ed

foofer
01-07-2011, 03:29 PM
Yes, I have left Andy with instructions. He is pretty stressed out worrying about me, so I don't know how long it will take him to post.... He is also going to try to post on my FB and his, so you could go there, too. Maybe you should request him as a friend now, so you can get the news ASAP, and you could post on our forum if he forgets... I think he will be preoccupied with all that is going on. But he is on his FB and posts everyday. He has lots of family and friends waiting and wondering, so I think he will hit FB first....

I hope you are feeling better today!

Talk to you soon...

I made the request and will keep checking. Tell him if he doesn't have time/energy to forum post, I will copy and paste his news. Might be one less thing for him. When I was with my mom and her surgery, that part was a timefilling occupation! , especially with the older folks who wanted to call me. Gave my cellphone a workout, I can tell you.

I am home from work and feeling better mainly because I am home...I can cough and sneeze as much as I want and need. Thanks for asking.:D

Cyberhugs, blessings, and high-fives!

jeneemohler
01-07-2011, 05:52 PM
Ed, I think we are just going to see if she can get enough correction doing it to make it worthwhile. I am giving her permission to go ahead, if she feels that it is the right thing to do, once she is in there and sees how much correction I actually get. I'm hoping I won't need it, but am prepared for it just in case. Keeping my fingers crossed!

KathK
01-09-2011, 05:29 PM
Jenee,
I'll be thinking of you bright and early tomorrow. I also had a very stiff spine, so I understand your frustration. Your doctor may be able to get a greater correction than she predicts. Either way, you will be fine and on your way to recovery after tomorrow!