Announcement

Collapse
No announcement yet.

New member - need some advice

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • New member - need some advice

    Dear all,

    I am a 36 years old female. I was diagnosed of Scoliosis since I was 13 years old and was told that my curve degree was 34 at that time. I wore the brace for 5 years (wore it all day long except taking bath) and did not do any PT. I don’t have any pain since then until 2006 when I was 32 years old. I cannot walk too long, otherwise my lower back will be pain. My shoulder also felt ache from time to time but it is not unendurable and I never take any pain medication.

    After I delivered my baby in 2007, I felt like my pain get worse. My pain is intensified but seems like they just comes and goes. Some days really bother me a lot and some days don’t feel anything. Apart from lower back, both my shoulders and my neck were in pain from time to time. I saw Dr Hostin at Baylor Scoliosis Center in Plano, TX in July this year. Dr. Hostin said that I am at marginal case of doing surgery but if I don’t do it now, I will have to do it at age 50 the latest as my curve will continue to progress to a point that my health will get worse. I got information from this forum and have sent my X-rays to Dr Lagrone for 2nd opinion. I am still waiting for his reply. In the mean time, I would very much appreciate if any one of you can help answer some of my queries:


    1. I am not sure if it is like Dr Hostin said that my curve will progress to a point that I will need to do surgery at age 50 if I dont do it now. He never see my X-ray when I was 13. He make this comment based on my X-ray in 2006 and 2010(July). Is it possible to make conclusion based on 2 X-rays 5 yeas apart?? How does your doctor judge whether your curve is progressing??

    2. I have the thinking that if it is true that I need to do surgery later anyways, then I of course prefer to do it younger than older. But my pain is not really serious that I can do anything I want to except I dont like the cosmetic of my body. I am debating what if I get worse after surgery.....I am the type of person if there is a cut/bruise in my skin, the wound will take longer time to recover and even a small cut will leave scar. Does it mean I will recover slower and feel more pain after surgery??

    3. I have a 3 years old that I need to take care. My hubby is concerned how long I can recover. Is it really 2 months cannot drive and 1 year to fully recover?? Will I be able to take care of my 3 years old after surgery?? We dont have any family around us can help....

    4. Dr Hostin suggested to fuse T9-L3 of my spine. Will the spine above T9 has any problem if it is not fused?? What is the pros and cons of NOT fusing to sacrum??

    5. I am very worry that for this kind of surgery, once I started, there will be never ending surgery.....under what situation will a person need 2nd and 3rd surgery?? Is this common??

    6. Under what situation that a patient need to wear a brace after surgery?? How long has to wear it??

    7. I already paid 75% of my insurance deductible this year and once I paid all the deductible, I will be covered 100% but I have additional $2500 out of pocket. I am thinking if I really have to do the surgery, it's better for me to do it before end of Dec from the financial point of view as if I do it next year, I have to pay the $2500 deductible again............I am again debating is this too rush to make such a big decision?? $5000 is a lot of money to us and we really dont want to pay it again.............even if we decide to do the surgery within this year, I am not sure if I have enough time to do all those pre-surgery testing and book the hospital. My next appointment with the Dr in early Sept.....Is there any case that after all those pre-surgery testing, they said someone is not suitable for surgery??

    8. Anyone of you has experience with Dr Hostin?? Is he good?? Any other good doctor you can recommend in TX??

    9. What is the possible complication of the surgery in the worse case??


    I know I have many questions, hope that some of you will be kind enough to help answer my long list of question.....................thanks a million

  • #2
    Welcome to the forum! I can't answer all your questions, but I will try to address the ones I have some knowledge/experience with.

    --------------------------------------------------------------------------------


    1. I am not sure if it is like Dr Hostin said that my curve will progress to a point that I will need to do surgery at age 50 if I dont do it now. He never see my X-ray when I was 13. He make this comment based on my X-ray in 2006 and 2010(July). Is it possible to make conclusion based on 2 X-rays 5 yeas apart?? How does your doctor judge whether your curve is progressing??

    If your curves are progressing, I think the chances are, they will continue to progress. There are others here who can give you a more knowledgeable answer than me. But mine progressed extremely slowly over the years then increased rapidly after age 50.

    2. I have the thinking that if it is true that I need to do surgery later anyways, then I of course prefer to do it younger than older. But my pain is not really serious that I can do anything I want to except I dont like the cosmetic of my body. I am debating what if I get worse after surgery.....I am the type of person if there is a cut/bruise in my skin, the wound will take longer time to recover and even a small cut will leave scar. Does it mean I will recover slower and feel more pain after surgery??

    My pain was not serious either but it was worsening after age 50. My surgeon told me that my curves would continue progressing until I was in serious pain with increasing disability. It wasn't a problem at your age, but I wish I'd had my surgery then, even though I was very fortunate with my outcome. I feel if I'd had surgery at your age, I would have had an easier recovery/better correction. Having it younger, I would agree, is better than older. But it is still a big decision.

    3. I have a 3 years old that I need to take care. My hubby is concerned how long I can recover. Is it really 2 months cannot drive and 1 year to fully recover?? Will I be able to take care of my 3 years old after surgery?? We dont have any family around us can help....

    This will be difficult because you will be tempted to take care of your 3 y.o. and at least for the first 12 weeks, I don't believe you should. If your husband can't take time off work, can you put your child into daycare for the first 12-16 weeks? This is definitely something you need to make plans for, because you need to put all your energy into healing in those first months. There are other mothers here who have small children and they do seem to do too much. Which is completely understandable, but not ideal. Hopefully some of them will chat to you about what they can and can't do.

    4. Dr Hostin suggested to fuse T9-L3 of my spine. Will the spine above T9 has any problem if it is not fused?? What is the pros and cons of NOT fusing to sacrum??

    There are no guarantees. It will be interesting if you can get some feedback on Dr. Hostin. Is he an SRS surgeon? I am fused up to T4 and it's possible that if I lift lots of heavy things e.g. children, or run or do any activity that puts extra workload on the unfused section, it's possible that further surgery maybe required to those vertebra above my fusion. Therefore I avoid those activities where possible!

    5. I am very worry that for this kind of surgery, once I started, there will be never ending surgery.....under what situation will a person need 2nd and 3rd surgery?? Is this common??

    As long as you have a skilled surgeon who does a good job and you don't have any complications (most don't but some do), I believe you needn't expect to require revision surgery into the future. Again, no guarantees.

    6. Under what situation that a patient need to wear a brace after surgery?? How long has to wear it??

    This seems to be a personal preference of surgeons. Some seem to require it and the timeframes varies a lot, others don't. I didn't have one.

    7. I already paid 75% of my insurance deductible this year and once I paid all the deductible, I will be covered 100% but I have additional $2500 out of pocket. I am thinking if I really have to do the surgery, it's better for me to do it before end of Dec from the financial point of view as if I do it next year, I have to pay the $2500 deductible again............I am again debating is this too rush to make such a big decision?? $5000 is a lot of money to us and we really dont want to pay it again.............even if we decide to do the surgery within this year, I am not sure if I have enough time to do all those pre-surgery testing and book the hospital. My next appointment with the Dr in early Sept.....Is there any case that after all those pre-surgery testing, they said someone is not suitable for surgery??

    Take a list of questions like this one with you in September and ensure you get satisfactory answers to them all. If you get all your questions answered then your decision will be easier. I have heard of patients getting close to surgery date then doctors pulling out. He'd want to have a good reason to do that. I think it would be very rare for this to happen.

    8. Anyone of you has experience with Dr Hostin?? Is he good?? Any other good doctor you can recommend in TX??

    I hope you get some feedback from others in your area.

    9. What is the possible complication of the surgery in the worse case??

    It sounds scary, but there is a possibility of paralysis which I would consider the worst case scenario complication, but this is extremely rare. Infection is probably the most common complication according to my surgeon but it's also reasonably rare. Statistically, you have an excellent chance of coming through surgery with a great outcome, pain-wise and cosmetically and younger people have fewer complications than older people.

    Getting the best possible surgeon would be my priority. One with plenty of current experience with adult scoliosis surgery. Talking to his patients would be good if possible. I asked, and was given the number of a woman who is a past patient of my surgeon. It was great talking with her. Wishing you the best of luck with your decision.
    Surgery March 3, 2009 at almost 58, now 63.
    Dr. Askin, Brisbane, Australia
    T4-Pelvis, Posterior only
    Osteotomies and Laminectomies
    Was 68 degrees, now 22 and pain free

    Comment


    • #3
      Hi...

      Those are some really well thought out questions. See my responses below.

      --Linda

      Originally posted by sweetgirl View Post
      Dear all,

      I am a 36 years old female. I was diagnosed of Scoliosis since I was 13 years old and was told that my curve degree was 34 at that time. I wore the brace for 5 years (wore it all day long except taking bath) and did not do any PT. I don’t have any pain since then until 2006 when I was 32 years old. I cannot walk too long, otherwise my lower back will be pain. My shoulder also felt ache from time to time but it is not unendurable and I never take any pain medication.

      After I delivered my baby in 2007, I felt like my pain get worse. My pain is intensified but seems like they just comes and goes. Some days really bother me a lot and some days don’t feel anything. Apart from lower back, both my shoulders and my neck were in pain from time to time. I saw Dr Hostin at Baylor Scoliosis Center in Plano, TX in July this year. Dr. Hostin said that I am at marginal case of doing surgery but if I don’t do it now, I will have to do it at age 50 the latest as my curve will continue to progress to a point that my health will get worse. I got information from this forum and have sent my X-rays to Dr Lagrone for 2nd opinion. I am still waiting for his reply. In the mean time, I would very much appreciate if any one of you can help answer some of my queries:


      1. I am not sure if it is like Dr Hostin said that my curve will progress to a point that I will need to do surgery at age 50 if I dont do it now. He never see my X-ray when I was 13. He make this comment based on my X-ray in 2006 and 2010(July). Is it possible to make conclusion based on 2 X-rays 5 yeas apart?? How does your doctor judge whether your curve is progressing??

      Yes, one could take the difference between the 2 sets of films and divide by 2, and assume that the curve(s) will progress that much each year. It's all still a guess, however.

      2. I have the thinking that if it is true that I need to do surgery later anyways, then I of course prefer to do it younger than older. But my pain is not really serious that I can do anything I want to except I dont like the cosmetic of my body. I am debating what if I get worse after surgery.....I am the type of person if there is a cut/bruise in my skin, the wound will take longer time to recover and even a small cut will leave scar. Does it mean I will recover slower and feel more pain after surgery??
      The cosmetic thing is definitely a factor you and your surgeon should consider. While it's not as important as pain or progression, it's important to you. I don't know if your history of slow healing will have any impact on the duration of postop pain.

      I work in a spine center where a lot of scoliosis surgeries are done, mostly on adults. One of the things we've discussed a lot is that it seems that the patients with the least amount of pain going into surgery are often the patients who are not as pleased as the rest.


      3. I have a 3 years old that I need to take care. My hubby is concerned how long I can recover. Is it really 2 months cannot drive and 1 year to fully recover?? Will I be able to take care of my 3 years old after surgery?? We dont have any family around us can help....

      To me, this is a really good reason to put off surgery for several years. Taking care of a 3yo is definitely difficult when you're trying to recover from being hit by a truck. ;-)

      4. Dr Hostin suggested to fuse T9-L3 of my spine. Will the spine above T9 has any problem if it is not fused?? What is the pros and cons of NOT fusing to sacrum??
      The downside, if the lowest instrumented vertebra ends up not being level, is that you may be more prone to adjacent segment problems. The same problem can occur at the top end of your fusion

      5. I am very worry that for this kind of surgery, once I started, there will be never ending surgery.....under what situation will a person need 2nd and 3rd surgery?? Is this common??
      It's not unheard of. In my opinion, there is currently no good evidence one way or the other. There are long-term followup studies, but they include previous generations of implants that are not comparable to today's implants. And, short-term studies don't tell you what will happen in 10-20 years. Even if there were great studies, they would only tell you the experience of a single surgeon or a specific group of surgeons. They won't tell you about the revision rate for your own surgeon.

      6. Under what situation that a patient need to wear a brace after surgery?? How long has to wear it??
      It depends entirely on the surgeon. One of the surgeons I work for rarely puts his scoliosis patients in postop braces while another puts all of her scoliosis patients in postop braces. Either way, it's usually only for about 3 months.

      7. I already paid 75% of my insurance deductible this year and once I paid all the deductible, I will be covered 100% but I have additional $2500 out of pocket. I am thinking if I really have to do the surgery, it's better for me to do it before end of Dec from the financial point of view as if I do it next year, I have to pay the $2500 deductible again............I am again debating is this too rush to make such a big decision?? $5000 is a lot of money to us and we really dont want to pay it again.............even if we decide to do the surgery within this year, I am not sure if I have enough time to do all those pre-surgery testing and book the hospital. My next appointment with the Dr in early Sept.....Is there any case that after all those pre-surgery testing, they said someone is not suitable for surgery??
      Yes, occasionally patients are not good candidates, but it's rare.

      8. Anyone of you has experience with Dr Hostin?? Is he good?? Any other good doctor you can recommend in TX??
      Sorry, I know nothing about him.

      9. What is the possible complication of the surgery in the worse case??
      Death, or if that doesn't bother you, complete neurologic damage resulting in the patient being paralyzed. Those two things happen in less than .1% of scoliosis surgeries. The more common complications include infection, dural tears, and non-union of the fusion (pseudarthrosis).

      I know I have many questions, hope that some of you will be kind enough to help answer my long list of question.....................thanks a million
      Last edited by LindaRacine; 08-11-2010, 10:50 PM.
      Never argue with an idiot. They always drag you down to their level, and then they beat you with experience. --Twain
      ---------------------------------------------------------------------------------------------------------------------------------------------------
      Surgery 2/10/93 A/P fusion T4-L3
      Surgery 1/20/11 A/P fusion L2-sacrum w/pelvic fixation

      Comment


      • #4
        Hi. I figured I'd weigh in on some of your questions. I'm 30 years old and just had a spinal fusion of T3-L3 in June.

        Originally posted by sweetgirl View Post

        1. I am not sure if it is like Dr Hostin said that my curve will progress to a point that I will need to do surgery at age 50 if I dont do it now. He never see my X-ray when I was 13. He make this comment based on my X-ray in 2006 and 2010(July). Is it possible to make conclusion based on 2 X-rays 5 yeas apart?? How does your doctor judge whether your curve is progressing??

        I was diagnosed at age 14 with two 45 degree curves. My surgeon wanted to operate then, but I said wait. He monitored me every year. In 2005, my upper curve was around 50 degrees and my lower was still around 45 degrees. My doctor said that most curves greater than 50 degrees will continue to progress, but he was comfortable monitoring me every 5 years. In January 2010, I went back (after 2 pregnancies) and my upper curve was 65 degrees. That was quite a change! When he did my surgery 6 months after that xray, he said that my upper curve was measuring 70 degrees.


        3. I have a 3 years old that I need to take care. My hubby is concerned how long I can recover. Is it really 2 months cannot drive and 1 year to fully recover?? Will I be able to take care of my 3 years old after surgery?? We dont have any family around us can help....

        I have a 4 year old daughter and a 21-month old son. I talked about my upcoming surgery for a few months in a very relaxed and simple way with my kids and we "practiced" them doing things to help. When I had my surgery, things weren't that big of a deal to them, because they were fairly prepared. I still can't lift them(at almost 2 monthes post-op), but they know they can climb up on my lap and I can hold them.

        I am very blessed to live by both my family and my husband's family. We had someone keep the children and someone stay with me for the first 4 weeks. Even if we all stayed here at the house, we still had 2 people. It was probably overkill, but the kids always had attention and I think that helped them cope with the whole situation.

        I'm still not driving, but I also had some complications and I have to return to surgery on Monday. If it weren't for that, I think I would be close to driving by now. My husband has been absolutely wonderful and has done most of the hands on child care (like baths and bedtime routines.) Our families have helped by doing laundry and grocery shopping.


        5. I am very worry that for this kind of surgery, once I started, there will be never ending surgery.....under what situation will a person need 2nd and 3rd surgery?? Is this common??

        A week and a half after my surgery, I had foul smelling drainage and my surgeon suspected an infection. I had a second surgery 12 days after the first to clean out my wound. There was also a part of a muscle that had "died" even though we weren't sure why. Just to be safe, he removed my bone graft then and I've been on IV antibiotics for since then. I go back in Monday for him to replace my bone graft. This is NOT common, though.


        6. Under what situation that a patient need to wear a brace after surgery?? How long has to wear it??

        I did not have to wear one.

        I hope my answers help. I also hope it helps to know that I'm happy I had the surgery done. Good luck!

        Comment


        • #5
          JennyRN, Good to see you back!!!

          Shari

          Comment


          • #6
            I got my life back.
            Original scoliosis surgery 1956 T-4 to L-2 ~100 degree thoracic (triple)curves at age 14. NO hardware-lost correction.
            Anterior/posterior revision T-4 to Sacrum in 2002, age 60, by Dr. Boachie-Adjei @Hospital for Special Surgery, NY = 50% correction

            Comment


            • #7
              Thanks JenniferG and JennyRN for all the advice and sharing.

              My problem here is I dont get agreement from my hubby. He thinks that he knows scoliosis and I have no serious pain now, it is not necessary to do surgery. We had arguement on the surgery many times and he said that even he does not agree, he will still support my decision. Although he said that, he always complain that he has to do everything...his work is very busy and he can predict that he comes home even have to do all the housework after working 12 hours, he does not like it............He does not believe in the saying that "if I dont do the surgery now, I have to do it later anyways. Better do it younger than old".

              My own family supports me but they are far away. So, I feel sad that my own hubby is not really supporting me. He even said I have nothing to do (I am a stay-at-home-mom) and just try to find some "project" to work on. I think this is NOT fair comment and all and this kind of accusation caused a lot of agruement between us. My hubby is basically someone dont like any trouble. I can predict that even I go ahead with my own decision, I will still have a lot of things to hear in the future. And if there is anything wrong in the surgery or my recovery, I can forsee that I will get all the blame...........

              Feel really depressed and miserable now....................

              Comment


              • #8
                Oh wow, you are in a very hard situation.

                Would it help if your husband came with you to the orthopedic surgeon so that he can ask questions? Then the surgeon can tell your husband what's correct and what's false and hopefully, your husband will then understand. We have had several testimonials here with family members who don't know a damn thing about scoliosis shaving strong opinions about the surgery. This, of course, is ridiculous.

                You should not be put in-between your surgeon and your husband.

                Good luck and stay strong.
                Sharon, mother of identical twin girls with scoliosis

                No island of sanity.

                Question: What do you call alternative medicine that works?
                Answer: Medicine


                "We are all African."

                Comment


                • #9
                  Originally posted by sweetgirl View Post

                  1. I am not sure if it is like Dr Hostin said that my curve will progress to a point that I will need to do surgery at age 50 if I dont do it now.

                  Do you know what your degree is now? I think your doctor said you are a marginal case for surgery. I am 38 and am studying a lot of the same questions you are.

                  2. I am the type of person if there is a cut/bruise in my skin, the wound will take longer time to recover and even a small cut will leave scar. Does it mean I will recover slower and feel more pain after surgery??

                  The surgeons will do lots of pre-op testing on you to make sure you don't have any problems that would complicate surgery, like clotting problems. They will be aware if you have a tendency to bleed more than others and be prepared with lots of blood on hand, as well as recycling your own blood.

                  3. I have a 3 years old that I need to take care. We dont have any family around us can help....

                  This is the biggest reason I would suggest you think about waiting. I also have a three year old, well actually she turned four last week. I was planning surgery for this fall but after seeing everything people go through from this forum, I have decided to wait for a while--most likely until she is in school all day in a year or two. I am wondering if you could also wait a couple of years, since you are not in much pain. It would give you more time to research the surgery and in the meantime your child woudl mature, plus he/she would not be around during school hours, so you could rest.

                  4. What is the pros and cons of NOT fusing to sacrum??

                  I have been reading a lot about fusing to the sacrum vs. not. It sounds like you are not even a candidate for that. Usually the debate is if they have to stop at L5, should they go ahead to the sacrum (my situation)? If they can stop above L5, then they seem to do that to preserve more flexibility. Also there is some concern that fusions to the sacrum can fracture over time. On the other hand, fusion to the sacrum seems to reduce pain and instability in the lower back vs. fusing to L5. Some surgeons seem to think it is inevitable to fuse to the sacrum if you have to go to L5.

                  5. I am very worry that for this kind of surgery, once I started, there will be never ending surgery.....under what situation will a person need 2nd and 3rd surgery?? Is this common??

                  I feel exactly the same way. I read somewhere that about 25% of people who have spinal fusions for scoliosis eventually need additional (revision) surgery. You can look up stuff like this on pubmed (just Google "pubmed" and search for scoliosis and related terms).

                  6. Under what situation that a patient need to wear a brace after surgery?? How long has to wear it??

                  Personal preference of the doctor--usually about 3-6 months.

                  7. I already paid 75% of my insurance deductible this year and once I paid all the deductible, I will be covered 100% but I have additional $2500 out of pocket. I am thinking if I really have to do the surgery, it's better for me to do it before end of Dec from the financial point of view as if I do it next year, I have to pay the $2500 deductible again............I am again debating is this too rush to make such a big decision??

                  In my opinion, you shouldn't rush to make this decision. This is a major life-changing decision, and it is probably worth the additional financial burder to take your time making it.


                  8. Anyone of you has experience with Dr Hostin?? Is he good?? Any other good doctor you can recommend in TX??

                  Look him up on the Scoliosis Research Society website. Also you can search for his name on this site.

                  9. What is the possible complication of the surgery in the worse case??

                  People have mentioned death and paralysis. These are extremely rare complications. The ones I am most worried about are 1. the need for additional surgery because the spine doesn't fuse (pseudarthorsis) 2. chronic pain after the recovery period 3. infection that requires additional surgery and hospital stays.


                  I know I have many questions, hope that some of you will be kind enough to help answer my long list of question.....................thanks a million

                  Good luck with your decision-making. Reading this website will answer a lot of your questions.

                  Best,
                  Evelyn
                  age 48
                  80* thoracolumbar; 40* thoracic
                  Reduced to ~16* thoracolumbar; ~0* thoracic
                  Surgery 3/14/12 with Dr. Lenke in St. Louis, T4 to S1 with pelvic fixation
                  Broken rods 12/1/19; scheduled for revision fusion L1-L3-4 with Dr. Lenke 2/4/2020
                  Not "confused" anymore, but don't know how to change my username.

                  Comment


                  • #10
                    Welcome Sweetgirl!

                    You will need the support from your husband. If you can get him to go with you to visit your surgeon, that will help. If you cannot, then you will have to take it slow with him, give him time to absorb...I will repeat. Slow.

                    If he doesn’t elect to go with you, then get a written statement from Dr Hostin. Explain this situation to Dr Hostin, see what he thinks. After you present this statement to your husband, just wait and give it time, don’t argue about it anymore, he will think about it.....

                    If Dr Hostin says it’s a marginal case, you have a 3 year old, and little support, it would be best to wait.

                    I waited 34 years after being a candidate in 1974. I waited for technology to improve, but mostly I was scared to death. Its serious surgery, its irreversible and my 2007 decision was based on MAJOR pain.

                    I used Chiropractic, massage, exercised, stretched etc to control my pain through the years. There are many alternatives you can use to "maintain" and continue on with your life.(Pilates, Yoga) I knew that I would need my surgery someday, it was something that I basically had to ignore, and continued on with my life. I refused to let scoliosis dominate my thoughts through the years....

                    I did come out pretty darn good and have very little pain. I don’t know what to say about this, even the best of surgeons cant help avoiding complications sometimes...

                    All your ducks have to be in a row. The main thing is to have a positive attitude. Just remember, everything will be ok....One day at a time.
                    Keep posting!
                    Ed
                    49 yr old male, now 63, the new 64...
                    Pre surgery curves T70,L70
                    ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
                    Dr Brett Menmuir St Marys Hospital Reno,Nevada

                    Bending and twisting pics after full fusion
                    http://www.scoliosis.org/forum/showt...on.&highlight=

                    My x-rays
                    http://www.scoliosis.org/forum/attac...2&d=1228779214

                    http://www.scoliosis.org/forum/attac...3&d=1228779258

                    Comment


                    • #11
                      Thanks everyone. Ed and Poka1, I think you are right. I need to get agreement from my hubby, otherwise, things will be difficult. Sometimes, although we think this surgery is very personal, to other extent, it affect the whole family so it is somewhat a family decision too.....

                      Confusedmom, thanks for the reply. I agree that for such a big decision, may be I should not rush too much, need to give it a little bit of time for myself and everyone in the family too. I got the book "scoliosis surgery" from David Wolpert. Will need to read on that.

                      Concerning my degree now, it is 55 lumbar according to Dr Hostin. He said my degree in 2006 based on the X-ray I provided is 50 so he think I am progressing 1 degree every year. The weired thing is I saw another doctor out-of-state in 2006 and he told me my degree is 30 in 2006 which is different from what Dr Hostin told me. I went through pregnancy in 2007 and if so, my curve progressed 25 degree after pregnancy. I am still waiting for a 2nd opinion from Dr Lagrone. I just dont understand why Dr Hostin did not do bending X-ray the 1st time I saw him. I think it's more accurate to do both straight X-ray and bending X-ray to see how flexible the spine is. Am I right?

                      Should it be the normal practice to have bending X-ray the 1st time see the surgeon??

                      Comment


                      • #12
                        Originally posted by sweetgirl View Post
                        Should it be the normal practice to have bending X-ray the 1st time see the surgeon??
                        Linda and others will hopefully comment but the only reason I am aware of for doing bending radiographs is to identify what the lowest instrumented vertebrae should be for fusion.

                        If there is another reason that surgeons will expose a patient to radiation by shooting a bending film, I'm not aware of it. That is, I don't think just knowing curve flexibility is going to be relevant to your treatment (or anyone' treatment apart from fusion) but I may be wrong.
                        Sharon, mother of identical twin girls with scoliosis

                        No island of sanity.

                        Question: What do you call alternative medicine that works?
                        Answer: Medicine


                        "We are all African."

                        Comment


                        • #13
                          My surgeon waited until 2 weeks prior to my surgery to do bending xrays to determine where it would be best to fuse and to determine the degree of correction he hoped to obtain. According to my surgeon, there is no need to do bending xrays for diagnostic purposes.

                          Comment


                          • #14
                            Welcome to the forum,
                            You had excellent questions and I appreciated reading the responses from our experienced ones from this forum. I hope you can gain your husband's support. When I was expressing some of my worries, my husband said, "Well, just don't do it." He will be going with me for my pre-op tests and meeting with my surgeon, so I think gaining knowledge will help. I want him to at least skim David Wolpert's book "Scoliosis Surgery". If you don't have it yet, I think it should be required reading prior to surgery. My husband hasn't tried to talk me out of it and I've told him I need his total support. I know this is going to change his life (and not in a fun way) for months following surgery with all of his extra duties. I have no other family here, but several friends who will help some. Good luck in making your decision. Maybe you can wait until your 3 year old is a little older.
                            Karen

                            Surgery-Jan. 5, 2011-Dr. Lenke
                            Fusion T-4-sacrum-2 cages/5 osteotomies
                            70 degree thoracolumbar corrected to 25
                            Rib Hump-GONE!
                            Age-60 at the time of surgery
                            Now 66
                            Avid Golfer & Tap Dancer
                            Retired Kdgn. Teacher

                            See photobucket link for:
                            Video of my 1st Day of Golf Post-Op-3/02/12-Bradenton, FL
                            Before and After Picture of back 1/7/11
                            tap dancing picture at 10 mos. post op 11/11/11-I'm the one on the right.
                            http://s1119.photobucket.com/albums/k630/pottoff2/

                            Comment


                            • #15
                              It's a difficult decision for you because you're damned if you do and damned if you don't. Your husband isn't supporting you yet he's complaining of the extra work he has to do around the house due to your pain.

                              Can you tolerate another few years of pain and your husband's complaining, or do you get it all over and done with now, without the support you need and deserve? It's a hard one. I think educating your husband might be the key.

                              Another thought: you say your family who live a long way from you, support you. If you go ahead with the surgery, could you have one of your family members come and live with you for 2-3 months? To ease the load on your husband and to ease your needing to care for your little one. Because when you think about it, if you had the surgery tomorrow, there's a good chance, providing there aren't complications, that you'd be living fairly normally again by Christmas with all this behind you. I know you can't have surgery immediately, but there are good reasons to have it younger than older. But I still think your husband needs educating and getting him onside first. Best wishes.
                              Last edited by JenniferG; 08-13-2010, 04:57 PM.
                              Surgery March 3, 2009 at almost 58, now 63.
                              Dr. Askin, Brisbane, Australia
                              T4-Pelvis, Posterior only
                              Osteotomies and Laminectomies
                              Was 68 degrees, now 22 and pain free

                              Comment

                              Working...
                              X