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mbeckoff
07-04-2010, 02:08 PM
I had surgery 2 months ago today- May 3rd and I am feeling worse than I did before I had the surgery . On my left side, I am having the same pains going down my leg and my back .It is just as painful as it was when I came out of surgery if not worse.The pain is going down my left arm to the point where I cannot type on the keyboard with my fingers or use my hand for anything.The pain is causing me to wake up again at night 2 or more times. I cannot get comfortable to sleep anymore. I am just miserable. I am seeing my surgeon on Wednesday.

Melissa

jrnyc
07-04-2010, 02:48 PM
hi Melissa
i am so sorry that you are suffering this way!

when you say the pain goes down your arms to your hands, etc...do you think there is a chance the pain is nerve related? is there numbness and tingling stuff going on?

i am so glad you're seeing your doctor Wed...i know it cant come soon enough!

are the pain pills not effective with this pain..?

jess

mbeckoff
07-04-2010, 03:10 PM
There is nerve and tingeing going down to my hands yes and the pains pills help but I only have a few left

Melissa

Back-out
07-04-2010, 04:22 PM
Very sorry to hear this, Melissa! That you are not only in severe pain, but left suffering without a clear diagnosis and not even enough pain pills, sounds like a special kind of hell - ambiguity and lack of pain control on top of feeling all that pain...

I hope all can be resolved soon!

From reading this site, I have been struck many times by how much surgeons hate to be confronted by post surgical problems. There ARE so many kinds and sources of post -surgical pain. Most are "just" a natural result of so much invasion, foreign bodies and structural changes. However, some are early signs of processes that should not be happening.

Naturally, surgeons don't want to call in the "fire brigade" for pain in the first category and when in doubt (most of the time), they have a strong preference for a wait and see approach. Guess they figure anything serious will be diagnosed first by the fact that it didn't "just go away".

This is very, very hard on the patient. The problem is. there is SO much pain involved in this surgery and the underlying conditions. Though agonizing, most is not intrinsically dangerous . I feel awful for you that you've been left in this gray area for so long. That's especially rough since your pain is worse than before and because of your isolation (described elsewhere).

I agree with Jess (implied) for whatever it's worth - it sounds like nerve pain. If you have a neurome chart handy, it might help to come to the appt prepared with one downloaded (and after checking whether your limb pain seems to follow any of the nerve root paths).

Wishing you strength, faith and good fortune in dealing with this pain and stress! :(

mbeckoff
07-04-2010, 05:20 PM
If it is nerve pain what does that mean to me?

Can I be helped?

Was this the biggest mistake I have made in my life then?

Am I just going to have to suffer with this pain then?

elissa

jrnyc
07-04-2010, 05:37 PM
Melissa
no i do not believe that for one minute! it is too early to even think that!

nerve pain is custom made to be helped with epidural injections...every doctor, every surgeon told me the same thing...so if this does not resolve with time, i would check into that.. a pain management doctor is your best bet...

but BEFORE anything like that, i think you need to call your surgeon and let them know what is going on! you must get the pain meds...no one expects you to cope with this without help!!
and there are meds that treat nerve pain as well...

i'm also thinking maybe you should private message some surgery folks on forum who've had similar fusions to yours...

you sound so full of despair...but i know it will get better!

jess

JenniferG
07-04-2010, 06:46 PM
Roll on Wednesday, you poor thing. You need answers, so ensure he gives them to you, or at least does the appropriate tests to discover the answers. In the meantime have you got enough meds to get you through to Wednesday? If not, give him a ring asap.

So sorry to hear this Melissa, but I still feel this will resolve, just based on the pain others have had, that came good in time. I've got everything crossed for you.

Back-out
07-04-2010, 06:59 PM
Melissa,

You did nothing wrong. A main point I was trying to make is that most severe spinal pain is not the sign of anything "dangerous", However, we're primed to regard pain as a sign of something endangering us, while it is mostly NOT - except for the pain itself. It is shocking how different life looks when the pain no longer exists - which CAN happen almost like turning off a switch.

IMO nerve pain (following the path of a nerve, which can mean a nerve is entrapped at the vertebra) is one of the least dangerous and MOST painful reasons to feel severe suffering. The last surgeon I saw had me given a ten+ page questionnaire (part of his research protocol) and the main point made over and over was the lack of direct association between severity of pain and danger. (Also that exercise can help).

I think a CT myelogram (I just had one - much easier than I'd feared) is pretty much the best way to check where pain is coming from. Maybe you can have one. A radio-opaque dye is injected (usually) in the lumbar spine and a cat scan traces how it moves in the cerebrospinal fluid - blockages, pinching, herniations, stenosis, etc.

Jess is right. Injections and nerve block (she ought to known!) can greatly relieve nerve pain, especially once the exact path is identified.

Hang in there. There IS a pain-free world out there, still!!! You can inhabit it. Life looks completely different with and without severe pain. You'll see, Don't draw conclusions. What you feel now is just that - the present tense, NOT the future.

mbeckoff
07-04-2010, 07:45 PM
Melissa,

You did nothing wrong. A main point I was trying to make is that most severe spinal pain is not the sign of anything "dangerous", However, we're primed to regard pain as a sign of something endangering us, while it is mostly NOT - except for the pain itself. It is shocking how different life looks when the pain no longer exists - which CAN happen almost like turning off a switch.

IMO nerve pain (following the path of a nerve, which can mean a nerve is entrapped at the vertebra) is one of the least dangerous and MOST painful reasons to feel severe suffering. The last surgeon I saw had me given a ten+ page questionnaire (part of his research protocol) and the main point made over and over was the lack of direct association between severity of pain and danger. (Also that exercise can help).

I think a CT myelogram (I just had one - much easier than I'd feared) is pretty much the best way to check where pain is coming from. Maybe you can have one. A radio-opaque dye is injected (usually) in the lumbar spine and a cat scan traces how it moves in the cerebrospinal fluid - blockages, pinching, herniations, stenosis, etc.

Jess is right. Injections and nerve block (she ought to known!) can greatly relieve nerve pain, especially once the exact path is identified.

Hang in there. There IS a pain-free world out there, still!!! You can inhabit it. Life looks completely different with and without severe pain. You'll see, Don't draw conclusions. What you feel now is just that - the present tense, NOT the future.

Thanks

I did find some pain meds from that should last until I see the doctor

Melissa

mbeckoff
07-04-2010, 10:40 PM
Do You think that using my tens units will help me?

jrnyc
07-05-2010, 01:47 AM
i dont know whether a tens unit helps nerve related pain...

jess

debbei
07-05-2010, 07:34 AM
Do You think that using my tens units will help me?

I was told that I could no longer use the tens units now that I have spinal implants.

I hope you see some improvement and that your pain is just temporary.

rohrer01
07-05-2010, 09:58 AM
Melissa,
So very sorry you are going through this. I agree about the TENS. I would at least call your doctor's office this morning and ask them if it is okay. I was told that TENS interrupts the nerve signals, so it might be worth a try if it is deemed safe.

mbeckoff
07-05-2010, 10:15 AM
I was told that I could no longer use the tens units now that I have spinal implants.

I hope you see some improvement and that your pain is just temporary.


That is strange as I was using my TENS unit at rehab after my surgery

Melissa

jrnyc
07-05-2010, 02:29 PM
hi Melissa
is the pain any different today than yesterday...?

hope you are feeling a little better...

jess

Confusedmom
07-05-2010, 08:27 PM
Melissa,

I do remember reading in the Wolpert and Neuwirth books that post-surgical pain tends to ebb and flow, and that it isn't a straight line down. I'm hoping yours is a flare-up, maybe from becoming more active, and that it will recede in time.

Also, if it is nerve pain, some doctors have told me that sometimes surgery causes nerve pain but that it often resolves over time. So, do not despair! I think there is every reason to hope that your surgery was actually a very good thing you did for yourself--and not a mistake. Your doctor should be able to shed some light.

Evelyn

mbeckoff
07-05-2010, 10:39 PM
I am still in pain and it is still the same. All I did today was sleep and stay in bed. As I said, I found some pain pills from when I came home from rehab and I am slowly using them up until Wednesday. They do help but I do not want to be back on the now 8 weeks out

Thanks for all your good wishes

Melissa

jrnyc
07-06-2010, 02:24 AM
hi Melissa
i am so sorry that you are still in so much pain...but i am glad tht you found a few more pills to tide you over...i hope you can get an appointment soon after Wednesday! maybe if you let the office know how badly you are hurting!

i'd rather get relief from severe pain than worry about being on meds...that's just how i feel...i know everyones's different...

hope you feel better...and can get in to see the doctor really soon...
jess

fashionista
07-06-2010, 04:19 AM
hope you feel better and this goes away soon..

mbeckoff
07-06-2010, 07:07 AM
hi Melissa
i am so sorry that you are still in so much pain...but i am glad tht you found a few more pills to tide you over...i hope you can get an appointment soon after Wednesday! maybe if you let the office know how badly you are hurting!

i'd rather get relief from severe pain than worry about being on meds...that's just how i feel...i know everyones's different...

hope you feel better...and can get in to see the doctor really soon...
jess

No. I have an appt tomorrow at 4p

Melissa

jrnyc
07-06-2010, 08:32 AM
great! :)

jess

JenniferG
07-06-2010, 04:16 PM
I hope you get some answers Melissa.

mbeckoff
07-06-2010, 11:33 PM
Thanks I will let everyone know as soon as I get home from the doctor

Melissa

rohrer01
07-06-2010, 11:36 PM
I hope you get some relief and find out what's going on. Hang in there, we are all here for you.

Back-out
07-07-2010, 10:36 PM
Looking forward to hearing, Melissa, and hoping the news was good!

mbeckoff
07-07-2010, 10:42 PM
Sorry to take so long but my computer is old and slow like me
Well, he took Xrays and he said that it still looks good . He thinks that it is a disc in my neck that is giving me problems. So He is trying me on 6 days of MethylPrednisolone . He is going away for the last two weeks in July.
If this doesn't help, then when he gets back,then He'll send me for a MRI of my neck for further study. The reason that he thinks it is my neck is that when he touched me with his little feather , where I could not feel it fits in with the neck disc .

He also gave me a script for Darvocot

Melissa

jrnyc
07-08-2010, 12:45 AM
hey Melissa
glad he could see you and offer some hlelp..hope if works!

sounds like a steroid..? and pain meds...hope the 2 together kill the pain! and that youn get some sleep...and feel better every day!

jess

mbeckoff
07-08-2010, 01:04 AM
Yes it is a steroid .he felt that since he did see signs of fusion he felt comfortable giving me steroids now.

I hope that I can get a good night sleep tonight for more than 4 hours

Thanks for the good wishes

Melissa

jrnyc
07-08-2010, 01:19 AM
i hope so too!

good nite! :)

jess

mbeckoff
07-08-2010, 01:20 AM
Hope you have a good night as well

Melissa