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Three years post-op and all is well

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  • Three years post-op and all is well

    I went to New York yesterday to have my third set of annual post-op x-rays done and everything looks perfect. Afterwards, I walked 40 blocks to visit a friend in midtown Manhattan and it felt great!

    There were a lot of people in Dr. B's waiting room yesterday, and I was especially struck by one fragile-looking older woman -- probably in her late 60s -- with a huge, deforming curve. She was on oxygen and even while sitting quietly in a chair she was obviously struggling to breathe. It made me doubly grateful to have had the surgery with a good outcome, even though I have struggled at times (emotionally and physically) with some limitations. This is truly a debilitating disease and we are fortunate that so many talented surgeons choose this specialty.
    Chris
    A/P fusion on June 19, 2007 at age 52; T10-L5
    Pre-op thoracolumbar curve: 70 degrees
    Post-op curve: 12 degrees
    Dr. Boachie-adjei, HSS, New York

  • #2
    Thanks for posting this. I actually had a nightmare last night about the surgery (scheduled for September) and woke up wondering (again) if I'm doing the right thing. Posts like this make me feel better!

    And CONGRATS! 3 years is certainly a milestone!

    Comment


    • #3
      Congratulations, Chris, on your three-year milestone. I’m cornering in on two years myself. Time sure flies when we’re having fun.

      The description of the woman you saw reminds me of a photo shared with me by a friend about a year before I scheduled my surgery. My friend went to her 50-year high school reunion and one of her classmates with scoliosis was there in a wheelchair and on oxygen. This poor woman waited too long to be evaluated by a specialist, and by the time she did was told surgery was too risky. If she had come in even five years earlier, she might have been treatable. My friend told her about me and my indecisiveness about surgery, and she told her to tell me to just do it before it’s too late.

      I will always be grateful for what my surgeon was able to do for me.

      Comment


      • #4
        Chris,

        Congratulations on 3 years... Glad to see you are getting around just fine.

        Its always interesting going back and seeing your surgeon, and the place where you made your decision...I remember that day and place where I said, "Yes, I'm ready" The most critical words of my life.....

        For those that remember Alfred Hitchcock, well, that is almost how I relate to my early days, talking to surgeons in the 70s. Black and white television, and extremely critical events...

        Now, life is in color....
        Ed
        49 yr old male, now 63, the new 64...
        Pre surgery curves T70,L70
        ALIF/PSA T2-Pelvis 01/29/08, 01/31/08 7" pelvic anchors BMP
        Dr Brett Menmuir St Marys Hospital Reno,Nevada

        Bending and twisting pics after full fusion
        http://www.scoliosis.org/forum/showt...on.&highlight=

        My x-rays
        http://www.scoliosis.org/forum/attac...2&d=1228779214

        http://www.scoliosis.org/forum/attac...3&d=1228779258

        Comment


        • #5
          Chris, That's awesome how well you're doing 3 years post op! 40 blocks, I'm impressed & inspired. Thank you too for sharing about the woman in the doctor's office, I truly hope Dr. B can help her. I have an appt. with Dr. Boachie on Thursday. I am hoping I'll be able to schedule surgery. It's taken me a long time to come to this decision, but I know the longer I wait the riskier the surgery becomes.

          Debra
          Debra
          Age 45
          Pre - surgery Thoracic 69, Lumbar 48
          Post-surgery Thoracic 37, Lumbar 39 (unfused)
          Fused T4-T12
          Milwaukee braced, 11 years old to 15 yo
          Surgery Sept. 1st, 2010 Dr. Boachie

          Comment


          • #6
            Chris,

            It's so good to hear you are doing so well at your 3 year mark. Did you notice any more healing in the third year? When I look back one year, I notice a big improvement and hope that by the time I reach the 3 year mark, things will be better still. Thank you so much for sharing. I love Ed's analogy of life now being in color.

            Debra JGL, I'm glad you have decided to wait no longer. You will get through it just fine.

            Sally
            Diagnosed with severe lumbar scoliosis at age 65.
            Posterior Fusion L2-S1 on 12/4/2007. age 67
            Anterior Fusion L3-L4,L4-L5,L5-S1 on 12/19/2007
            Additional bone removed to decompress right side of L3-L4 & L4-L5 on 4/19/2010
            New England Baptist Hospital, Boston, MA
            Dr. Frank F. Rands735.photobucket.com/albums/ww360/butterflyfive/

            "In God We Trust" Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God. Painful moments, trust God. Every moment, thank God.

            Comment


            • #7
              Congratulations Chris--I'm so glad things are good for you. I am emotional when I see an advanced case in someone. I always think, but for the grace of God, that could have been me......

              Anyway, congrats again and good job on walking 40 blocks!! Isn't funny we just don't think about those things any more as 'can't do?'
              __________________________________________
              Debbe - 50 yrs old

              Milwalkee Brace 1976 - 79
              Told by Dr. my curve would never progress

              Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
              Pre-Surgury Thorasic: 66 degrees
              Pre-Surgery Lumbar: 66 degrees

              Post-Surgery Thorasic: 34 degrees
              Post-Surgery Lumbar: 22 degrees

              Comment


              • #8
                Hi Chris, So glad to hear you're feeling well and life is good 3 years later. Like Debbe, it seems as though I am noticing more people with advanced curves and it does make you stop and think about the decision that changed your life. There was a lady, I'd guess in her 60's, at the pool the other day who had a significant thoracic curve. She asked me about my surgery (since the scar is pretty obvious in a bathing suit) and she said she couldn't imagine going out of town and having the surgery that I did. I told her I never thought I'd do it either, but it was one of the best decisions of my life. The result was definitely worth the risk! Thanks for the encouragement from three years out!


                Anne in PA
                Age 58
                Diagnosed at age 14, untreated, no problem until age 50
                T4 to sacrum fusion
                63 thoracic now 35, 92 lumbar now 53
                Dr. Baron Lonner, 2/2/10
                Am pain-free, balanced, happy & an inch taller !

                Comment


                • #9
                  Thanks guys for the kind words.

                  Sally -- yes, I saw significant improvement between years two and three although at the time I was convinced that I was "done" at year two. Mostly I gained additional flexibility and endurance, in that I'm now able to spend about an hour at a time planting and weeding -- something I didn't feel like attempting last year at this time. I'm also using my grabber a lot less to get stuff off the floor although I'll never stop using it to pull stuff out of the washer and dryer. I hope you continue to heal well from your most recent surgical adventure!
                  Chris
                  A/P fusion on June 19, 2007 at age 52; T10-L5
                  Pre-op thoracolumbar curve: 70 degrees
                  Post-op curve: 12 degrees
                  Dr. Boachie-adjei, HSS, New York

                  Comment


                  • #10
                    Great news Christ!
                    Surgery March 3, 2009 at almost 58, now 63.
                    Dr. Askin, Brisbane, Australia
                    T4-Pelvis, Posterior only
                    Osteotomies and Laminectomies
                    Was 68 degrees, now 22 and pain free

                    Comment


                    • #11
                      Originally posted by JenniferG View Post
                      Great news Christ!
                      Ha ha ha -- yes, I AM very saintly....!!
                      Chris
                      A/P fusion on June 19, 2007 at age 52; T10-L5
                      Pre-op thoracolumbar curve: 70 degrees
                      Post-op curve: 12 degrees
                      Dr. Boachie-adjei, HSS, New York

                      Comment


                      • #12
                        Wow!

                        Hey Singer,
                        I remember your moniker from years ago as I love to sing too. I have recently posted on Revision Surgeries about being 5 years out and not doing so well. Seeing your post got me teary eyed. Dr B sure seems to be the poop! When you said you walked 40 BLOCKS I actually gasped! REALLY??? And are you talking just you and no cane/walker?? That is absolutely AMAZING!!! I am thrilled for you, and if you've looked around this site you'll know just how fortunate you really are. I would love to walk ONE block without any external means without discomfort. Keep up the good work and enjoy every precious day that you have. It is very inspiring to hear the positive accounts as well as eye-opening to hear the disappointing ones. We all just try to make the best decisions we know how, and run with it. I am so glad you are reaping the benefits of your bravery.

                        Regards,
                        Sharon C
                        Singing the Blues
                        Female 1951
                        A/P Surgery Oct 13th & 17th '05, from T7-L5, 46 degree curve reduced to 19 degrees. Rib hump almost gone, but I have flatback. Thought it was "normal" and I would improve over time. I developed kyphosis above the surgical area. Had surgery with Dr Menmuir in Reno, Nv on October 13, 2010.
                        Today I am still plagued with flatback, and I'm considering ALIF surgery.

                        Comment


                        • #13
                          Originally posted by Singer View Post
                          Thanks guys for the kind words.

                          Sally -- yes, I saw significant improvement between years two and three although at the time I was convinced that I was "done" at year two. Mostly I gained additional flexibility and endurance, in that I'm now able to spend about an hour at a time planting and weeding -- something I didn't feel like attempting last year at this time. I'm also using my grabber a lot less to get stuff off the floor although I'll never stop using it to pull stuff out of the washer and dryer. I hope you continue to heal well from your most recent surgical adventure!
                          Hi Chris,

                          Could you elaborate on your gaining flexibility? That I don't get. I mean, if you're fused to L5, how do you get more flexible?
                          __________________________________________
                          Debbe - 50 yrs old

                          Milwalkee Brace 1976 - 79
                          Told by Dr. my curve would never progress

                          Surgery 10/15/08 in NYC by Dr. Michael Neuwirth
                          Pre-Surgury Thorasic: 66 degrees
                          Pre-Surgery Lumbar: 66 degrees

                          Post-Surgery Thorasic: 34 degrees
                          Post-Surgery Lumbar: 22 degrees

                          Comment


                          • #14
                            Chris-- I already gave you my congrats on FB, but I'll repeat it here too. I just want to chime in on here also about the difference between years 2 and 3. I know I posted about it at some point... I thought I had achieved whatever there was to achieve at each of my annual anniversaries, at years one, two, and most recently, three, but there's a world of difference looking back at what I can do after each year's progression. I remember so well your lamenting about no more gardening. And I remembering sending you the suggestion of some raised bed gardening book for challenged people. Do you remember that? I guess this teaches us patience. That is soooo wonderful that you are able to do that again. Yay!!!

                            Since we've made improvements each year, I'm looking forward to what the future brings (I hope!!!) My only concern is the popping I've been having the past few months. It mostly happens when I reach forward, like when I'm washing dishes, cooking, making a salad, etc. Plus I'm one of the ones who has aching, and I stick to limitations. AND there was the difficulty at the end of the school year from all that blasted scanning of over 13,000 books... But even so, I consider myself a success story. I have some ups and downs, but feel fine most of the time and am in good spirits and enjoy life. What more can you ask for??? The Lord is good!!! I am very glad I had my surgery. I go for my next appt. with my surgeon in early August. Anxious to find out how I'm doing too! Take care!
                            71 and plugging along... but having some problems
                            2007 52° w/ severe lumbar stenosis & L2L3 lateral listhesis (side shift)
                            5/4/07 posterior fusion T2-L4 w/ laminectomies and osteotomies @L2L3, L3L4
                            Dr. Kim Hammerberg, Rush Univ. Medical Center in Chicago

                            Corrected to 15°
                            CMT (type 2) DX in 2014, progressing
                            10/2018 x-rays - spondylolisthesis at L4/L5 - Dr. DeWald is monitoring

                            Click to view my pics: pics of scoli x-rays digital x-rays, and pics of me

                            Comment


                            • #15
                              Sharon -- I'm truly sorry you are having such difficulties. Yes, I think Dr. B is definitely "the poop," as you say! And yes, I walked from 72nd St. to 32nd St. in about an hour under my own steam....short city blocks, not as difficult as it sounds.

                              I had a severely weakened right leg after my surgery (temporary nerve damage) and used a walker for 3 months, and a cane after that for a few months more. I had three rounds of physical therapy, including gait training, to get my leg strong again, and now it is -- but it took a long time. I walk 3-4 miles a day almost every day and am extremely grateful to be able to do so.

                              Debbe, as far as flexibility goes -- every year it seems that I can bend further from the hips. For example, I can shave my legs and cut my toenails with more ease than I could last year at this time. I can also get socks on without the sock putter=on thingie. So even though I certainly have lower-back stiffness, I have a slowly increasing range of motion there.
                              Chris
                              A/P fusion on June 19, 2007 at age 52; T10-L5
                              Pre-op thoracolumbar curve: 70 degrees
                              Post-op curve: 12 degrees
                              Dr. Boachie-adjei, HSS, New York

                              Comment

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