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LynetteG
04-27-2010, 04:56 PM
My surgeon has tried many meds on me for my chronic pain in my right quadricep - none of which have worked. I just text messaged him telling him that I'm now feeling very depressed, the pain is not going away, walking is getting harder and harder, all I want to do is sleep, and my quality of life is not good right now. I asked him should I have a CT scan? He answered back immediately and said that he is getting his secretary to set up a CT scan for me when he sees her tomorrow. My question to anyone on here that may know - what worries me is - if no meds are working - does that mean that they may have to open me up again? What can a CT scan tell them? I mean if no meds are working what else can help me at this stage? I don't think I could stand it if I was told that I had to go back in to hospital to be re-opened up and have something else done. Any input from any of you knowledgeable people on here would be most appreciated right now. Thanks in advance.

rohrer01
04-27-2010, 05:48 PM
Can't you go to the ER and get some stronger IV meds, or re-admit to the hospital for pain control until they figure this out? I'm so sorry you are going through this. I hope they figure it out SOON!

LynetteG
04-27-2010, 06:54 PM
But that's the whole point - I don't want to go near a hospital again. I don't mind going round the corner to the MRI place to get the CT scan to find out what's going on, but I can't stand this constant searing pain in my quadricep to the point that I can't bend my knee. Sitting reading stories to my kids or helping them with homework brings tears to my eyes because of the pain in my leg. I don't want to go to the ER to not only to end up with IV's again (I hate them) but also the high cost of ER visits too. I don't want to be away from my kids again. Just hoping and praying my doc won't need to open me up again for whatever reason they may find on CT scan.

rohrer01
04-27-2010, 09:18 PM
I'm sorry you are having such a bad experience. I know you don't want to go to the ER, but that doesn't mean you have to stay there. Maybe they could just give you something to get you through the night until you can have your CT scan tomorrow. Surely the poke of a shot isn't as bad as what you are enduring. You don't have insurance to help pay for the ER? They still can't refuse you. I surely hope you get through this okay. Hugs to make you feel better ((((HUGS)))).

JenniferG
04-27-2010, 09:25 PM
Very, very sorry to hear this Lynette. Wish I knew what to suggest. I hope you get some answers soon or better still, a sudden or even gradual reduction in the pain. It's hard not knowing what it is, but the ct scan should at least solve that problem.

joyfull
04-27-2010, 09:34 PM
Lynette, I'm so sorry that you're struggling with this. There has to be something that will relieve the pain, an injection or some other procedure. I'm glad that Dr. Lenke responded so quickly to your text. I hope the night is easier for you. Keep us posted! Joy

titaniumed
04-27-2010, 10:30 PM
Lynette

Some cts do require an IV. I had to have one where they used visiplaque, so they can see things like nerves better. I was in and out in about an hour.

This is so unexpected, but then again scoliosis surgery is serious surgery and complications can occur. Hopefully, the complications are small, and delt with quickly and easily. You will get this ironed out..

I donít blame you about going back to a hospital again. It can grow old. Sometimes we have to do what we have to do and in the end it always works out.
Ed

Back-out
04-27-2010, 11:40 PM
So sorry, Lynnette!

Did he at least rule out a DVT (embolism)? I think it can be done by ultrasound. VERY out-patient and not too pricey nor any radiation.

Best of luck and sympathies about your little ones. I remember being quite sick when my first son was two and we both cried for each other when I was away.

Amanda

Shari
04-28-2010, 02:07 AM
Hi Lynnette,

Is your brace still digging into your leg? I had some weird painful areas for the first few months.

Don't let yourself get too depressed. Tell your Dr. that you are depressed, please don't let it go as long as I did. It's not good for you mentally or physically, and I think it can slow down the healing process.

Just my opinion.
Shari

LynetteG
04-28-2010, 02:22 AM
Shari - it's not from the brace. It's right on my quadricep in one spot. My surgeon remembers me waking up from anaesthesia in severe pain in the same spot - and it's just never gone away. I'm lying awake right now in pain. Dr. Cronen has been great with responding immediately to me each time. I just wondered if anyone on here like Ed, or Linda has ever heard of anything like this before. Where the pain is severe in one spot on the quad and never goes away, and what the solution has been? Has it required perhaps more surgery? Or perhaps some other kind of therapy?

JenniferG
04-28-2010, 02:46 AM
Hi Lynette. It's probably the wee hours where you are and you're lying awake in pain, which is awful. I'm sure it's impossible to look past this and see that this too, will pass. But it will. I know that's no help right now. Good luck with the ct scan. I'm glad you've got a good surgeon who's willing to help you overcome problems. I hope that's very soon.

dianeh
04-28-2010, 07:59 AM
Hi Lynette,
I see that your surgery is very recent and although my pain was not in my thigh I was in excruciating pain after surgery and in the first 4 weeks. It still scares me. Nothing was wrong with any part of the surgery. Apparently the Oxycodone family of drugs did not work for me and that was what I was discharged on It was recommended I go to a pain specialist, and he prescribed a Fenatanal patch. I immediately felt better but after the 3rd patch I became delusional according to my family and visiting nurse and did have to be readmitted for 3 days to regulate and change my meds. The hospital had their pain management group see me and that worked. Turned out morphine and hydrocodones worked best for me and I had seen a very nasty pain control DR in my town. After waiting 3 hours in his waiting room I had to be placed on a stretcher and he probably prescribed too high a dose. My surgeon prescribed for me once I was off the morphine (about
2 months) and then my primary took over. On the morphine my pain was relieved and I felt great. They did do x-rays while I was in the hospital to rule things out but everything was fine. I do wish I had some one sleep in the room with me during this hospitalization because I was terrified, but it all worked out well. I think you need to see a pain management group recommended by your surgeon or DR you trust. Intractable pain is the worst!!! Hope this helps.
Diane

rohrer01
04-28-2010, 02:06 PM
Hi, Lynette.
I'm just checking in on you. I hope you are getting things resolved today. I hope you are getting the pain relief you need and are just resting... You have a wonderful family there with you that cares about you. Children, at least from my experience, can be the best "nurses". My kids have always been GREAT little helpers when I was down. And with your mom there to supervise things. Don't feel bad, and I know you do. But you would do the same in taking care of any one of them. That's what families do for each other. Rest well, I hope!
:)

gmw
04-28-2010, 02:57 PM
Lynette -- I'm looking forward to hearing how things went for you today. I do hope you got some answers and some relief.

Glenda

LynetteG
04-28-2010, 04:02 PM
I found out today that I'm going to be getting a Myelogram CT scan to find out what's going on - they are just waiting to get the go-ahead from my insurance to and then they can set up the date and time. Anyone else on here ever had a myelogram before? My brother thinks that either it's just swelling in my back causing the nerve in my sciatic to cause this pain which in a few weeks will go away, or else it could be something more serious which could mean more surgery which I hope and pray is not the case. He thinks it will just be swelling, and that in a few weeks time, the pain will go away, I hope that is the case. So anyway, that is what's going on right now. I hate feeling so low in myself, and I hate that can do so little exercise right now and so little walking due to the pain in my leg. I feel like a helpless blob :). I'm still going to let my mum go home this weekend and try to take care of my boys on my own at the end of this coming weekend, as the boys (even though they love my mum) are fed up of her being here, they resent her telling them what to do. She tends to take over being like their mum, and they hate that when I'm around, and of course I appreciate everything she does for me, and I try to teach them how we need to appreciate everything that nana does for us, but at this point, I need to try to get on with taking care of the boys, and giving my mum a break and getting as much normalcy back in my home as I can. The hard part is the fact that I'm so tired all the time, however, the boys will now have to help me a lot more than they were before, and now they'll really see how much nana was doing for us :)

Hope everyone else is doing well, and recovering well after your surgeries if you've just had your surgeries, and I wish you all the best of luck if you're about to have your surgeries coming up.

Take care for now.

jrnyc
04-28-2010, 04:07 PM
yes, Lynette...there is stuff on myleogram on thread here somewhere...very recent...anyway, i had one 4 years ago...no big deal, you just have to stay still and lay the way they tell you to afterwards so you dont get the dreaded spinal headache...BUT...i am not fused....yet...so i dont know if it is any different going thru a myleo after fusion....
i hope it is not more difficult for you...a myleogram does give great diagnostic information...

hope you feel better soon!

jess

mbeckoff
04-28-2010, 04:31 PM
Lynette,
Hope you find out soon what your problem is and get it taken care so you can get on with your healing and your life

Melissa

gmw
04-28-2010, 08:39 PM
Hi Lynette -- I have had a myleogram/CT scan. It wasn't bad, but I hadn't just had fusion surgery. I'm sure they will make you as comfortable as they possibly can to do it. Hope they can do it soon so you can get on with your healing. Wishing you all the best with your boys when your mum leaves this weekend.:)

Glenda

Nitram
04-28-2010, 09:59 PM
Hi Lynette, I'm so sorry your having a tough time with pain in your leg. I pray that they are able to determine the problem soon and get you comfortable again.

Rich

rohrer01
04-29-2010, 08:01 AM
Lynette,
I have had the myelogram and CT scan. Just make sure that they do the CT scan FIRST. The don't want you laying completely flat after a myelogram, otherwise you can get the "headache". When they did mine, they explained this all to me after the myelogram, then promptly wheeled me in to CT where they layed me flat. I got the most terrible headache. Not trying to scare you. Just make sure they get the order of operations right and you will be fine. I hope it's nothing serious. Best wishes!

Remember: CT and THEN the myelogram. :)

Back-out
04-29-2010, 02:39 PM
Jess, I thought the CT scan was to read the radiographic dye which was injected during the myelogram, in which case the order is fixed. Maybe I misunderstood?

jrnyc
04-29-2010, 03:15 PM
wow...i really didnt remember stuff in order or anything...but i found the write up of my myleogram..it was in april 2004...i thought it was more recent than that...

here is some of it...

"the lower back was sterilely prepped and draped. The soft tissues overlying the L2-3 level were localized and anesthetized . The subarachnoid space was punctured using a 22 gauge spinal needle and 180 Iohexol was instilled under fluroscopic observation.
The needle was removed. The patient tolerated the procedure well. Multiple radiographs of the thoracic and lumbar spine were obtained. The patient then went for CT examination of the thoracic and lumbar spine. Sagittal and coronal reformated images of the thoracic spine were generated."

after that, the spine and all the problems i have were described...all kinds of nasty stuff :rolleyes:...scoli, disc disease, foraminal narrowing of this and protrusion of that, disc bulges...etc etc etc!

i barely remember going for the CT scan after laying on the table for the myleogram, but there it is in black and white!

i do remember having to lay flat and still, with my head raised on pillows, for hours...but i didnt move cause i was so scared of the dreaded headache! and thank goodness i didnt get one!

hope the description helps...

jess

rohrer01
04-29-2010, 07:24 PM
Maybe I'm wrong then. If they have to have the dye in there for the CT then they would have to do the myelogram first. All I know is they told me NOT to lay flat after they myelogram and then layed me flat for what seemed like about 30 mins or more in the CT machine, which contradicted what they told me about not laying flat. I'm sure they know what they are doing. I'm just an ameteur.:o That's my experience.

rohrer01
04-29-2010, 07:27 PM
Maybe I'm wrong then. If they have to have the dye in there for the CT then they would have to do the myelogram first. All I know is they told me NOT to lay flat after they myelogram and then layed me flat for what seemed like about 30 mins or more in the CT machine, which contradicted what they told me about not laying flat. I'm sure they know what they are doing. I'm just an ameteur.:o That's my experience.

Another problem for me, too, may have been that they were doing it for my cervical spine. They didn't want the dye getting into my head. It was hard to avoid in my particular case because they had to get the dye all the way up to my head. :eek:

LynetteG
04-29-2010, 08:58 PM
Rohrer01 - that wouldn't make any sense to me whatsoever. They have to put the dye in first I would think - it's been ordered to be put in from the thoracic to my pelvis, and then then give you the CT scan so they can see what the problem is. My brother had this done and never experienced any headache.

jrnyc
04-29-2010, 09:15 PM
Myelograms are done the way the write up from the doctor at Columbia Hosp Eastside Radiology Center in Manhattan wrote it, i believe (see post in this thread).....myelogram with dye, then CT scan....then lay down with head on pillows and stay still for a few hours...

jess

rohrer01
04-29-2010, 11:22 PM
Rohrer01 - that wouldn't make any sense to me whatsoever. They have to put the dye in first I would think - it's been ordered to be put in from the thoracic to my pelvis, and then then give you the CT scan so they can see what the problem is. My brother had this done and never experienced any headache.

Oh, they did put the dye in first. But because they had to lay me flat, it must have gotten into my head. Anyway, that is what they told me they were trying to avoid, but it seemed impossible. They said the headache was caused from the dye getting into the brain cavity. I don't know. I was only 16 and just went with what they told me. My headache lasted about 5 days. I don't think Lynette has anything to worry about because of the region. I don't want to scare her. Besides the leg pain is probably far worse than the headache. I survived to tell the story. I hope to hear from her soon. Has anyone heard any news, either way?

rich1752
04-29-2010, 11:58 PM
Lynette, I also have pain in my quadracep, on the side of my anterior incesion. My surgeon said that it is nerve pain and prescribed neurotin. Sometimes the pain gets pretty bad. Whats wierd is that all around my quadracep is numb except for the front, where I get the nerve pain. I don't know if this is the same for you. I had my surgery on December 9th and still have it. Went to check up last month and surgeon said that it could be permanent. I would hate that..
rich

jrnyc
04-30-2010, 12:01 AM
Hey Rich
i am so sorry to hear that you are dealing with pain from nerves...how are you feeling besides that...are you in pain elsewhere?

hope you are feeling better every day...

jess

LynetteG
04-30-2010, 09:33 PM
Hi Rich - Sorry to hear you're having pain in your quad also. You said that sometimes the pain gets pretty bad. I wondered how does the pain normally feel? For me I had no anterior incision, only posterior incision. The pain in my quad is constantly severe, no letup. For instance, in the shower if I want to wash under my right foot, I try to bend my right leg, and I can't bend my leg more than an inch without excruciating pain. I can't sit on the toilet seat (sorry to be graphic) without excruciating pain, or sit on the bed to read stories to my boys without excruciating pain, or sit anywhere for that matter. I can't walk without excruciating pain, it's getting worse by the day. So now I'm finally getting this myelogram on Tuesday morning, and hopefully I'll find out what's causing this horrible pain, I just hope to God I'm not told this pain will never go away, I couldn't stand it - I could not live with this pain forever. It affects my every day in everything that I do. I have a high pain tolerance, and nothing has ever hit me this bad.

rohrer01
05-01-2010, 07:18 AM
Hi Rich - Sorry to hear you're having pain in your quad also. You said that sometimes the pain gets pretty bad. I wondered how does the pain normally feel? For me I had no anterior incision, only posterior incision. The pain in my quad is constantly severe, no letup. For instance, in the shower if I want to wash under my right foot, I try to bend my right leg, and I can't bend my leg more than an inch without excruciating pain. I can't sit on the toilet seat (sorry to be graphic) without excruciating pain, or sit on the bed to read stories to my boys without excruciating pain, or sit anywhere for that matter. I can't walk without excruciating pain, it's getting worse by the day. So now I'm finally getting this myelogram on Tuesday morning, and hopefully I'll find out what's causing this horrible pain, I just hope to God I'm not told this pain will never go away, I couldn't stand it - I could not live with this pain forever. It affects my every day in everything that I do. I have a high pain tolerance, and nothing has ever hit me this bad.

It's great to hear from you. I'm really upset that they can't give you SOMETHING to alleviate this pain until you get your test done! It's frustrating to hear about. There are meds out there I'm sure that can at least take the edge off. They have some pretty powerful stuff nowdays. Even if you only took it at night so you could get some good rest. :(

foofer
05-01-2010, 09:10 AM
Really, really sorry about this, Lynette. Wish we were all there to help you out. Please know that you are on my mind and in my prayers.

Big Hugs, carefully

mbeckoff
05-02-2010, 09:00 PM
Oh Lynnette, i wish there was something that could give you relief from your pain.I hope Tuesday brings us both pain relief

Melissa

Back-out
05-02-2010, 09:36 PM
SO sorry, Lynnette! Sounds like hell - the pain and worry, too! And so hard to be a mom of lively youngsters at the same time. I remember having terrible Urinary tract infections after my first child was born, and trying not to cry in front of him...:(

LynetteG
05-03-2010, 10:56 AM
Thanks everyone for all your sweet supportive words - it all helps :). Tomorrow I will hopefully find out more after my myelogram. When my kids hug me and tell me they love me, that helps :) Luckily I have a high pain tolerance, so I can deal with this pretty well most of the time :).

Melissa I'll be thinking of you tomorrow, you'll be sleeping of course most of the day tomorrow :)

mbeckoff
05-03-2010, 01:17 PM
Thanks everyone for all your sweet supportive words - it all helps :). Tomorrow I will hopefully find out more after my myelogram. When my kids hug me and tell me they love me, that helps :) Luckily I have a high pain tolerance, so I can deal with this pretty well most of the time :).

Melissa I'll be thinking of you tomorrow, you'll be sleeping of course most of the day tomorrow :)

Thanks lynette Hope they find the reason for your pain and help you

melissa