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Lotta51
04-15-2010, 07:57 PM
Hi Titaniumed, Just the man I'm looking for:p Just Kidding. Although you appear to have had the surgery I am facing and am terrified about although I have had many other things replaced hip,knee etc. Only one fusion in 1994T10 to L2 due to pedestrian versus truck guess who won. Now flatback and a hump on my back left side. working its 2ay to my side rib area. Your back looks straight in second pic. I am facing T2 to Sacral pelvis a/p. Does it pay off to get it done sooner? I have a 20 degree Sacral inclination.m10 cm rt/20cm frontal. Do you have much pain? I use a walker now was told I will stand straight without it. Did you use a brace post op?

titaniumed
04-16-2010, 02:29 AM
Hi Lotta

Welcome to the forum.

I believe you intended to post to my thread about rotation. No worries, this will work just fine.

I'm sorry about this accident. Wow! That must have been quite an ordeal for you. We donít see many accident victims here all that much.

I have not done a "revision" surgery. Yours would be just that since you have been fused in the past. I have just a few questions since you are new, and an accident victim.

Is you sacrum inclined due to the accident?
Were your hips and knees replaced due to the accident?
How long have you been on a walker? Since the accident?
How is your pain? 1-10 scale with 10 being unbearable.

You have to realize that even though I had a T2-Pelvis A/P, yours will be a revision, and it sounds like you have a few complex issues.

Print this out to take with you. Let us know what happens with your visit. Always remember, you donít have to make a decision right now, your surgeon will understand if you tell him that I need to think about things.

https://www.infusebonegraft.com/questions_for_your_surgeon.html
Ed

Pooka1
04-16-2010, 05:44 AM
Lotta51,

I just wanted to ask if you know you can post a response to Ti Ed's post right below his. You don't have to start a new thread with each of your responses.

Just click the button "Post reply" right below the last post on the left.

Lotta51
04-16-2010, 11:00 AM
Ed and Sharon, Thank you for your replies and help I hope I am posting inthe right place. I did have both pevis fx , sacrum also the only rep[air they did to the body was the back surg. L leg was revuilt due to accident. R knee replacxed due to arthritis. L hip I don't know if was due to wear and tear or what but all the replacement surgeries came after the accident. I have also been dx with RA since 17 and at that age i was also dx with a degenerative spine. I never asked any questions until after the repeated surgeries. The 1st year after the accident i got around with a walker then down to the cane and for a while nothing and I look at pictures and I was standing straight, but I have gone from 5'8" to 5'3". Everyone I read about that is doing so well is unbelievable and encouraging.Thank you Ed for some good questions to ask. I live in TN the 1st doc was an ortho and had limited time to answer so I went to someone listed with SF a neuro surg. From what I have read this is a product of the fusion called flatback syndrome . Will let you know. Thanks again!!

LindaRacine
04-16-2010, 02:23 PM
Print this out to take with you. Let us know what happens with your visit. Always remember, you donít have to make a decision right now, your surgeon will understand if you tell him that I need to think about things.

https://www.infusebonegraft.com/questions_for_your_surgeon.html
Ed

Leave it up to Medtronic to suggest that patients ask a question like "who manufacturers the implants?" What possible difference could that make to a patient? I know a person who once told a surgeon that she wanted him to use a specific brand of implants. The surgeon politely declined to do the surgery.

While I think most of the questions are good ones, I think it's just wrong to go in to see a surgeon with a list of questions that someone else has made up. I've seen how these types of appointments go, and they're not usually very productive. I think it's best to listen to what the surgeon is telling you, and ask questions that develop organically. You'll get a lot more out of the session.

Regards,
Linda

Lotta51
04-16-2010, 05:58 PM
Hi Linda, Thank you for the website from Ed. I got it when I got back, but I did ask most of the same questions. He suggested being I am not in much pain to do the procedure later, but not too much later. He will be doing the infusion with morphic protein instead of a graft for the fusion. The procedure will be in 2 parts a couple of days apart. 1st remove old hardware place pedicle screws , then go back in the same incision do a posterior osteotomy and place the rods. I asked if he was going to put a zipper in. I also asked about the intrathecal pump I have and showed him the Gortex placement to hold in my colon that came out the back wall of my stomach from the accident. The incision meets the other spine incision. He was concerned about both and was glad I told him. Thank you both for all your help. I will use that list and ask the rest the next time I go to see him. We decided about some time in the fall to do this.:)

Pooka1
04-16-2010, 06:01 PM
Ed and Sharon,

Oh hey glad you found the reply button. :)

By the way, although he will always graciously answer anyway, I think Ed prefers to be called either Eddie or Snookums. Just to let you know because I've been corrected more times than I can count! ;)

Lotta51
04-16-2010, 06:47 PM
Hi Sharon,I was addressing Titaniumed who signed his as ED so I don't knoqw what to do now, but surely don't want to offend anyone. Everyone on here has been so nice. Thanks, Lisa:confused:

Pooka1
04-16-2010, 06:53 PM
Hi Sharon,I was addressing Titaniumed who signed his as ED so I don't knoqw what to do now, but surely don't want to offend anyone. Everyone on here has been so nice. Thanks, Lisa:confused:

Oh sorry! I was kidding. I was hoping it was obvious. I shouldn't have done that and I apologize.

Ed jokes around a lot and I was just teasing him a little. But you are probably too new to know that so this was a bad thread to do that.

Again I 'm very sorry.

LindaRacine
04-16-2010, 07:19 PM
Dang... I was just waiting for lotta to start calling him Snookems.

Pooka1
04-16-2010, 07:27 PM
Dang... I was just waiting for lotta to start calling him Snookems.

(I KNOW!!!!!!!)

But officially... I am very sorry she misunderstood.

foofer
04-16-2010, 08:49 PM
Somehow I don't think Snookums would mind.


Lisa/Lotta....A very big welcome to you on this forum...I just started posting a few weeks ago. I've never had surgery but am thinking of it. Sounds like you have sure had a lot of rough times in your life, so you have come to the right place for lots of support and good advice.

There is a lot of joking around here which makes having scoliosis a lot more fun than just worrying about it all the time. Glad you joined....

Amy

Lotta51
04-17-2010, 01:00 AM
Hi! Sharon, Don't worry actually it would have been funny if I did fall for it Linda. As you can see the way i addressed Ed in the first place I have a bit of a sense of humor too. I have so much metal in me I have been addressed as the Bionic woman at the airport after the metal detctor went off for th 4th time over different areas of my body. That is why I picked on Titaniumed the name could be mine . I actually do a lot of exercise or I am very stiff for most of the day. I consider myself to be the Tin Man. Glad to meet all you nice people and laughter is the cure. I used to tell them when asked how I could joke about it and laugh that other wise I would cry and that creates a lot more wrinkles, laughing is like a cheap face lift.:D Amy thank you for the nice welcome. Lisa

Pooka1
04-17-2010, 09:14 AM
Lisa, you are going to be a great addition to this little sandbox. :)

As Snookems said, we don't have many traumatic scoliosis cases (there is only one other I can think of ATM) so it's great to have a broader experience base among the posters.

titaniumed
04-17-2010, 09:38 AM
Lisa

WholelottaTi would be a good user name for you. Unless you have a mix of 316.

We donít play "lets get the newbee" here. After a while we get bored, and need some entertainment!

Once again, we donít see accident victims here, and welcome. It throws a completely new twist on scoliosis.

I'm off to the mountains skiing for the weekend, I will post depending on internet connectivity which is basically dependent on line of sight. I guess they cannot place antennas everywhere.

Snookems

Lotta51
04-18-2010, 10:01 PM
Hey Ed were you seriuos about skiing. No problem with things like that. If all goes well when I do have the surgery maybe I can keep my balance without a walker and actually go bowling again to start. That would be wonderful. The omly kind I can do now is the Wii bowling whicc is pretty realistic and you don't have to wait for an alley.

titaniumed
04-19-2010, 01:43 AM
Wii is probably not a bad idea if you have trouble getting exercise. Itís a good idea to keep moving regardless of how its done. If they had a game where you could get your heart rate up and keep it up for a while, that would good.

I'm a 48 year skier, and I will never quit. It is terribly addictive...

I have not tried bowling. I donít think I would be very good at it, but then again, you donít know till you try.
Ed

jrnyc
04-19-2010, 05:18 AM
how does one bend to bowl with rods in their spine? just wondering...

jess