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mbeckoff
04-02-2010, 10:20 AM
As many of you know, my surgery was canceled on March 11 because my BS # was very high. Well, yesterday my pain level has increased so much that I am now walking with a cane.I do not have a new surgical date as of yesterday when I called and spoke with my surgeon's scheduling nurse. She has told me end of April /beginning of May. I have 3 different pain pills depending on level of pain and what I am doing. The lower level pain pills -Ultram which I have been taking for a while have really stopped working for me. I have Davocet but That puts me to sleep as does loratab so I can only take those at night.

I am not asking a question just looking for some sympathy

Melissa

Doodles
04-02-2010, 10:41 AM
Melissa--
You've come to the right spot. I'm so sorry you are dealing with this as you wait for a surgery date. I'm sure not knowing makes it all the more difficult & more stress & more pain. I had pain but not nearly what you are experiencing prior to surgery. Any relaxation tapes help at all? I know just to ease my apprehensions I used the Peggy Huddleston book and tape to get me ready for surgery. You've probably already seen that suggested on here. I'm afraid I don't have any answers but certainly have good positive thoughts and prayers coming your way for an end to your pain very soon. Janet

jrnyc
04-02-2010, 10:55 AM
oh melissa....i am so sorry you are in such pain!

i never got anything off ultram or most of that stuff...for me it was oxycontin til it got me too exhausted, and now i am back to my original hydrocodone...but i know the feeling of taking stuff and waiting for it to work and realizing it is not going to help! i am in pain all the time....with and without meds....so you have all my sympathy...

does a hot shower do anything? i stay in til prune-dom...
also, moist heating pad might help a little...? do you have one? it helps my pain somewhat...just enuf to stop the tears sometimes!

i wish there was some way to speed up your surgery date...keep telling yourself that this pain is not forever, that it will be gone eventually...and that you will survive it!

i dont know what else to say but to send you an air kiss and hug...and thoughts and prayers for some relief!

jess

RitaR
04-02-2010, 11:28 AM
Dearest Melissa,
Please hang in there. I know exactly what you are going through. My pain level prior to my surgery was getting so bad along with muscle spasms - many times waking me during the night. It's hard to endure that much pain day to day, all day. But, you just have to find a way to cope. You too will make it to the other side one of these days and you will be so proud of yourself. You are strong and I have no problem believing you ca do this. Please lean on people on this forum any time you feel the need. I would not have made it through all this if not for this forum for sure.
Hang in there.

debbei
04-02-2010, 12:17 PM
Awh Melissa Honey,

I'm so sorry your pain is so bad today. I second the suggestion for moist heat--yes it's temporary but it sure feels good.

((Hugs))

mbeckoff
04-02-2010, 04:05 PM
Thanks everyone for the suggestions and most of all the hugs and the friendship

Melissa

RitaR
04-02-2010, 04:56 PM
Heat pad was my best friend prior to surgery. When we traveled anywhere I took it with us. I remembered it before anything else.

JenniferG
04-02-2010, 05:32 PM
So sorry to hear of your pain, Melissa. Like Janet, I suspect the stress is making it worse. Vent here any time you like. We do understand. I just hope you get your surgery date before too long. The sooner the better. It sounds like it's not far off.

doodie
04-02-2010, 06:43 PM
Melissa -

I'm sorry you're in pain. If ever there was a group of people who understand pain, specifically back pain, it is us. Most of us have been where you are which is why we had surgery or are considering surgery. You can talk about it here when no one else gets it - We Do!

Have you considered 'Drink Therapy?' My hubby and I have a 'Little Black Book' of cocktail recipes that we get out sometimes for the fun of it when we need a new idea. Maybe that wouldn't work so well if you're on pain medication but it relaxed me a bit sometimes when my back muscles were screaming.

Just an idea :o

foofer
04-03-2010, 12:36 AM
Melissa,

I hope tomorrow is a better day for you. I hope your surgery will be scheduled for you very soon.

You should be so proud of yourself for doing what it takes to get your blood sugar numbers down....When I first read your post about diabetes, I really worried that it would take a long time, but here you are.

Sending cyberhugs...

P.S. One more suggestion. I was just lying on the couch unable to get comfortable (sciatica), and a goofy movie came on the TV. My daughter and I were laughing and now I feel great. Well, almost great, but do you have any funny DVD's you can watch and just relax?

titaniumed
04-03-2010, 01:09 AM
Melissa

Im sorry about your pain. I always hopped in a hot bath tub. I did the hot water therapy for many years...and followed with a massage.

If you are on meds, I would not suggest a mix with alcohol. Remember Karen Quinlan.......Besides, you donít need the sugars.....

Hang in there
Ed

JenniferG
04-04-2010, 01:46 AM
Are you feeling any better Melissa?

mbeckoff
04-04-2010, 12:07 PM
Thanks to the suggestions.

The drinking sounds good but with all the drugs I did not think it really was a good idea.

I have used the heating pad and it does help. Thanks for the suggestion.

Yes overall I am feeling better

The pain seems to have gone down to a 5/6 which I can live with.

Thanks for asking

Melissa

doodie
04-05-2010, 12:10 PM
Hi Melissa -

I'm glad you didn't take the 'Drink Therapy' suggestion seriously...I was trying to inject a bit of levity here - I didn't mean to offend anyone and I certainly was not negating your feelings...dealing with relentless pain is no joke and I completely understand it and sympathize with you.

Hope you're continuing to keep the pain at bay...
J.

gmw
04-05-2010, 04:34 PM
Melissa -- So sorry to hear you've been in so much pain. Glad it is a bit better. Will be praying you have surgery date and relief soon.:)

Glenda

mbeckoff
04-05-2010, 05:10 PM
Hi Melissa -

I'm glad you didn't take the 'Drink Therapy' suggestion seriously...I was trying to inject a bit of levity here - I didn't mean to offend anyone and I certainly was not negating your feelings...dealing with relentless pain is no joke and I completely understand it and sympathize with you.

Hope you're continuing to keep the pain at bay...
J.

I know that you were kidding although it did seem like the best suggestion offered.

The worst pain seems to be gone for a few days . I never know what the morning will bring

Thanks for asking
Melissa

RitaR
04-05-2010, 05:54 PM
I have learned to live one day at a time. Never worry about yesterday - it's gone anyway. And, don't worry about tomorrow what it might or might not be. Does any of this make sense? It came from a very dear friend of mine. I try to keep it in my mind as much as i can.

rohrer01
04-05-2010, 09:16 PM
Melissa,
((((HUGS))))
I know first hand how unpredictable pain can be. I am currently on fentanyl, percocet, klonopin and soma. Believe it or not, the meds do not always work. Much of the time I simply put ice packs on my muscle spasms and lay down. If that doesn't work, sometimes heat does. I think having people understand that you just HURT sometimes makes you feel validated and keeps the depression away. I hope they can stabilize you BS and keep it that way so you can have your surgery. I'm hoping surgery will help and I can get off the meds. I see a pain specialist on Thursday. They have never been any help in the past. Some on here swear by them, though. It can't hurt to try. Are you seeing someone who specializes in pain management until you can get your surgery? It might be worth a go. Anyway, I realize you are not looking for answers. It's just I can relate. My Dr. didn't want to do surgery right away because he's afraid of causing me more pain than I am already in. It is very frustrating. How much suffering can a person take? A lot, as we know!!! I hope you are feeling much better today.
;)

jrnyc
04-05-2010, 11:22 PM
the best help i've found has been the botox for my thoracic muscle spasms...unfortunately, nothing has really helped the lumbar pain for me...
the unpredictibility of pain forced me to retire early...even though most days i could predict that i would be in pain! :rolleyes: especially if it was damp out...rainy days are the worst!
validation of pain no longer does much for me...especially if/when the pain gets relentless! that is when i just stand in hot showers, use moist heating pads (far better than dry!) and give thanks for my puppy, who lays in bed with me...his is the validation best for me!

woof!

spinalfusion09
04-07-2010, 09:20 PM
Hi there Melissa! I along with everyone else here knows the pain you're going through. I too had some complications with pain meds. Some were good others not so much. It is going to hurt for a while but it gets better! Waiting sucks but ,at least for me, the 6th week was the magic week when everything turned around. Its not an easy recovery :{ but you will get past it. And I only remember a few things from the weeks of intense recovering so I hope thats reassuring. HANG IN THERE!!!!!! And sleep all you can
All the Best,
Maliha

mbeckoff
04-07-2010, 09:33 PM
Hi there Melissa! I along with everyone else here knows the pain you're going through. I too had some complications with pain meds. Some were good others not so much. It is going to hurt for a while but it gets better! Waiting sucks but ,at least for me, the 6th week was the magic week when everything turned around. Its not an easy recovery :{ but you will get past it. And I only remember a few things from the weeks of intense recovering so I hope thats reassuring. HANG IN THERE!!!!!! And sleep all you can
All the Best,
Maliha

Maliha ,

I have not had my surgery yet

Melissa

spinalfusion09
04-09-2010, 10:53 PM
woops my bad
Maliha