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aterry
03-19-2010, 01:29 PM
My 17-year-old daughter has lumbar scoliosis, currently around 26 degrees (different measures by different doctors); and a smaller upper curve of about 11 degrees. She has pain all the time but the pain has moved--it was on the lower convex side of the lumbar curve; just above her hip. She had thickened, spasming muscles there. She's been doing PT for about a year and now. The spasming muscle has improved but the pain has move to the mid back on both sides of the spine--at the same degree of pain. No thickened muscles in the mid back area that can be seen with the eye. The PT says that sometimes when there is improvement in one section of the back pain will kind of relocate. Is this typical of PT? Has anyone experienced this?

asccbodypro
03-20-2010, 11:05 PM
aterry,

Just wondering if at some point you would consider surgery for your daughter if PT isn't helping the pain. Doesn't seem that her curves are bad enough but to have pain so young must be worrysome for you as a parent. I had severe curves at age 10 and was braced but 6 years ago my curves progressed despite being a bodybuilder. Scoliosis definitely has a mind of it's own.

I did PT after having a baby two years ago and it did nothing for me but my curve was to just to bad and I opted for surgery and glad I did. I am a year post op and do still have pain due to taking care of my son but that will get better in time. All pre surgery pain is GONE :O) Especially the my pain that was very much like your daughter seems to have.

Have you consulted with a different PT? Might not be a bad idea to get another opinion.

aterry
03-22-2010, 04:11 PM
I have not consulted a different PT because my daughter really likes the person she's seeing and there doesn't seem to be a true specialization for scoliosis among PTs, although that's really what's called for (I mean for all patients who want to do PT, not just my daughter). I am considering setting up another visit with another ortho--that would be the 4th--to see if the new person, Barry Lonner is who I'm considering, might be able to give us some guidance. The other orthos have just shrugged.

asccbodypro
03-22-2010, 05:35 PM
What have these 4 doc's said about the pain that she is experiencing? I'm sure you know that their are many people that walk around with curves that are worse and either never realize they have them or, just by luck, they do not experience any pain. I'm so sorry that you have no answers. A shrug of the shoulders would infuriate me....as I'm sure it does you. Have you thought of a chiropractor for her. I saw a chiropractic sports medicine doc and he helped see me through my sons first year without having my surgery.

My toddler's lumbar spine buckles out some while he is sitting. It's not something I ever noticed my older to sons having. When he is standing it appears that it's normal but it appears to be more prominent than a year ago. I'm sure things are fine but I think we are going to ask our ped to refer him to an ortho specialist. My chiropractor has adjusted him in the early months due to a traumatic birthing experience. He told me that what my son has is caused by babies falling down on their bottom's while learning to stand and walk and it causes the spine to bow out. However, it doesn't seem to be getting any better and before re-visiting the chiro I want the ortho to have a peak.

Has your daughter tried pilates or yoga or would she if you thought she should give it a try? Different things work for different people. Swimming was also great for me as a kid. One thing my chiro told me was to stay off the heat and always use ICE. I thought it would just add to my muscle spasms but it reduces inflammation and also numbs things up. I'm sure you've heard all these things before just throwing it out there.

I sure do hope that she starts to get some relief soon. I'll be thinking of her!

flerc
03-22-2010, 06:08 PM
aterry, did you try with Global Postural Reeducation? http://sites.google.com/site/rpguk123/ My daughter has much more degrees than yours and since she begun with Gpr I could say that all the erratic pains and crumps she had some months before starting Gpr, had disappear in few months. In Gpr exists a specialization in scoliosis, but not all the Gpr Physios did it. The Pt that treat my daughter has all the Gpr's specializations and she treat adults with much more degrees that my daughter has.

Feel free for ask me what you want.

aterry
03-23-2010, 03:49 PM
ascc: The doctors we've seen had no suggestions for pain except to continue with PT but they didn't know any specialists in scoliosis to refer us to. I might have her try the yoga for scoliosis place, or maybe Marian Wade's Scroth approach. At her current PT they do heat first, before the exercises, and then ice after the massage & stim.

flerc: thanks for the suggestion about postural reeducation. I've never heard about that before. My daughter actually has excellent posture and flexibility and core strength because she is a dancer. It amazes me how flexible she is, even with the scoliosis. One of the reasons she continues with dance and PT is to try to maintain that.

And, as an update, the pain has moved back to its original place. So that shift in location of the pain only lasted about two weeks. Who knows why?

flerc
03-25-2010, 12:30 PM
Aterry, what kind of dance is your daughter doing? Antigymnastique is other Mezieres method and in the ‘Lair of the tiger’ they say in some way, that one of the worst activities we can do against our back is classic dance.
I know how difficult it could be, but I think you should to convince your daughter for stop to dance for a time. Perhaps pain stops too. I think that in the meantime, Mezieres therapies or Eutonia or Feldenkrais could help to maintain flexibility.

I could not be sure if what I’m going to say you could have or not any sense, but I think you could be sure if the curve is the cause of pain or is not. If your daughter has much flexibility, she could keep her back straight (or very with few degrees) stretching it and putting a brace. In fact it is the idea of the genial Cotrel http://www.tesisenxarxa.net/TESIS_UB...TESISILVIA.pdf
http://cat.inist.fr/?aModele=afficheN&cpsidt=15144900 that is being followed again in some countries. Probably Spinecor could be used (I wish to know it), so she should not lose flexibility for using brace.

I hope I had not increased your confusion.