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ANIMAL LOVER12
10-08-2004, 11:35 PM
Hi my name is Lauren. I am twelve years old. I have a double curve. 65 and 54 degrees. I am getting surgery in april or may of 2005. I am pretty worried about it. I f anybody has had the surgery or is getting it, I would love to hear from you. Thanks:p

mumof5
10-09-2004, 05:16 AM
Hi Lauren,
It's so hard to tell you everything and there are so many things to say. My daughter had a double fusion 5 months ago. My best advice for you at the moment is to read through some of the threads here and ask specific questions. Send people private messages if you don't want to post about something but still want to know.
Best wishes.
Cheryl.

ANIMAL LOVER12
10-09-2004, 11:28 AM
Cheryl,

Sorry for being not very specific.:) What i would like to know mainly is what happened on the day of surgery. i read your post "worried mom from australia". how is amber doing? i would love to hear from you . thanks:p

mumof5
10-09-2004, 04:01 PM
Hi Lauren,
Amber is going really well. There are still some restrictions on her but she is happy with what she can do. Did you actually read that whole thread? It ended up being very long. I have seen a couple of others being pointed towards it so I must have written something worthwhile.
Amber was in hospital the night before as she had to have some tests done on her heart before the surgery. All of the test are finished with by the time you get to the surgery date, so you are 'preped' just as with any other surgery. Amber was given a pre-med which was a mouthful of medicine, it made her sleepy. She is frightened of needles and we had asked for this to help her. She was taken down to the theatre where they put a mask on her face. They used this to put her off to sleep, then they put in all the needles that they needed. She doesn't remember too much for about 3 days. Looking back now she says she can hardly remember being in the hospital at all.
I hope this helps you but ask what ever else you want to know. I'm very used to trying to explain things simply, but if you don't understand something or want to know more just ask, someone here will be able to help.
Best wishes.
Cheryl.

ANIMAL LOVER12
10-09-2004, 04:19 PM
Cheryl,

i'm glad to hear that amber is doing well. yes, i did read that whole thread.you did write things worth while. i am also terrified of needles. i am giving my own blood which kind of werris me because i hate them so much. another quick question. how many days after surgery was it that amber was alowed to start walking? bye:cool:

mumof5
10-10-2004, 04:36 AM
I think it was day 3 that she got up and had a shower. 2 nurses lifted her out of bed with Amber trying to help. They helped her into a 'commode chair' and wheeled her into the shower, I washed her then she sat in a chair for awhile and then back into bed. It was hard for her and yes it did hurt her alot. But every day after that got better. By day 6 she could walk around the ward by herself and get in and out of bed with minimal help.
To try and help with the needles, practice very slow deep breathing and really concentrate on it, look away as they 'do their thing'.
Best wishes.
Cheryl.

ANIMAL LOVER12
10-10-2004, 08:55 PM
Cheryl,
Thank you for telling me that. I will definately try the breathing when they do the needles. Do you know what degree Amber's curve is after surgery . Thank you.Bye:D

mumof5
10-10-2004, 09:17 PM
Amber's curves went from both in the 60's to 20 and 15 degrees. She gained 2 1/2 inches in height as well. She thinks that is a wonderful reason to get all new clothes.!
I hope the breathing works for you. Let me know.
Best wishes.
Cheryl.

ANIMAL LOVER12
10-10-2004, 09:44 PM
Cheryl,

Glad to hear that Amber got so much correction. That is great! She grew quite a bit too. I also said to my mom that I hope I grow so much I will need new clothes. I will definately let you know how the breathing works. Did Amber lose a lot of flexibility or are you stilo not sure how much she lost? Hope to hear from you!:p

mumof5
10-10-2004, 10:03 PM
Amber is fused from T4 to L4. So none of that area will bend. She has to bend from the knees to get to the floor or pick anything up from say a coffee table. She was allowed at her 4 month check-up to gently bend forward from the hips. It sounds scary but she doesn't have to much trouble doing what she wants to. She is actually using her limitations to get out of things she doesn't want to do and I know that she can do more than she says, so it's not working for her anymore. Eg.. She will tell me she can't put her washing away because she can't reach the bottom drawer. I know she can because I saw her do it.
Best wishes.
Cheryl.

ANIMAL LOVER12
10-10-2004, 10:15 PM
Cheryl,
Thanks for replying.:) My doctor hasn't told me where I will be fused from yet.That is good that she doesn't have much trouble doing what she wants to do. Sorry to keep asking al these questions but they weren't coming to me before. The other two that iI have are about how much weight did Amber lose and how long was Amber in the hospital after her surgery. I am a little concerned with the weight because I am fairly thin to begin withand I don't want my friends to think I have an eating disorder and get all worried from the lost weight. Also, has Amber gained back the weight she lost. Hope to hear from you! Bye:p

mumof5
10-11-2004, 12:18 AM
Amber lost around 10kgs ( I think that is about 24 pounds), I wrote a started a thread called she's so thin because I was concerned about it. She has gained back 2 kgs in the last 3 weeks or so. She kept losing weight even after coming home, then it stopped and finally she is very slowly gaining. She was in hospital 9 days all up, but she went in the day before surgery so it was really 8. I think every doctor has their own time period that they like you to stay in for, and it depends on how you are.
Don't worry about how the questions come. You may find that you wake up in the middle of the night thinking of something you want to know.
Best wishes.
Cheryl.

Boo
10-11-2004, 03:49 PM
Hi I havent been comingon here much because I dont think I can be of much help. :( I had surgery in England on August 11 2004 in bout 3-4 weeks I can do every thing again! I am goin to greece in November and in december I am going to Disneyland, and yes I can go on the roller coasters! Surgery wasn't that big a deal for me but I can say it took about 2 weeks to be able to sleep without being sore.

I was stood up the morning after surgery and I sat up in intensive care( by accident) and bout 4 days after surgery I ran up the stairs.

Surgery is alot advanced in England, I think I hope it will be every where lse too very soon :D

PS i had no pain in my back at all, only my ribs seeing as tha is where they got in.

ANIMAL LOVER12
10-11-2004, 04:46 PM
Hello,

Thank you for replying Cheryl and Boo. Boo, that is amazing you can go to disney land. I won't be able to go on any roller coasters for a year which means missing on e of my favourite thing to do in the summer. The Canadian National Exhibition or as I and many others call it, the ex. Hope you continue to make a good recovery.:) Did you have an anterior or posterior spinal fusion? or did they do both? I know that I am having a posterior spinal fusion and thay are entering through my back

Cheryl, I read your thread she's so thin. I have on other question. How long was Amber's surgery? My doctor estimates that my surgery will take six hours and I will be in the hospital for six days following it. Lots of sixes!:eek: And one other question, did amber have an anterior or posterior spinal fusion, or did they do both?As I mentioned before IU will be having a posterior spinal fusoin. Hope to hear from you. Thanks for the answers:p Bye:)

mumof5
10-11-2004, 05:29 PM
Boo it's good to hear you are going so well.
Lauren,
Amber had posterier surgery, it took around 6 1/2 hours then she spent 2 1/2 hours in recovery then 19 hours in ICU. Her surgeon likes his patients to stay in a full 7 days after the surgery.
Best wishes.
Cheryl.

ANIMAL LOVER12
10-11-2004, 05:46 PM
Thanks for replying Cheryl. I won't have to be in the intensive care unit at all according to my doctor. In the hospital that i am having it at ( which is the hospital for sick children. The one in Ontario, not Boston) there is a special unit there where the nurses watch constantly to children who have come out of only orthopaedic surgery. I will spend a few hours there then to my room. Really to think about it, it is sort of liked the intensive care unit with a few small diffrences. My surgeon doesn't have an amount of days he likes all of his patients to stay. He just tells you that isn't a race to get out of the hospital so stay until you are absolutely sure you can manage at home. The major thing is that he wants all of his patients fully mobile before he sends them home.I have two more questions. Was Amber in alot of pain when she woke up and how often did they roll her? Hope to hear from you!:)

mumof5
10-12-2004, 05:06 AM
Amber was on morphine as well as having an epidural. So no she wasn't in pain when she woke up. The next day was when she started to use the PCA morphine. Rolling was very painfull and they would tell her to use the PCA 5 mins or so before they rolled her. They rolled her every 2 to 3 hours day and night.
Best wishes.
Cheryl.

lrmb
10-12-2004, 07:55 PM
Hi Boo,

It's great to hear you're doing so well!! Can I ask, where in England did you have the surgery? I am currently in the US but might need to move back to the UK and it would be good to know where you had such a good experience, and what doctor did you surgery.

THANKS!! Congratulations again on getting through the surgery so well :)
Laura

Angelwithaflute
10-12-2004, 08:50 PM
hi everyone,

I decided to look around here today, for the first time in *months*, and see what all is going on.:)

My name is Lorna. I had surgery in January of 2000, when I was 9 years old. I'm now 15, and can do everything that a normal teen does! I saw your comment, Lauren, about how long you've been told your surgery will last. My surgery was 10 hours long, and after that I spent the night in ICU.
Any questions you have, I'd be glad to try an answer them!:)

ANIMAL LOVER12
10-16-2004, 04:37 PM
Thank you everybody! I have another question for anybody who has had surgery. Did you do physio therapy. I f so for how long. Also did someone come and do breathing excersizes as well? Hope to hear from you!

Angelwithaflute
10-21-2004, 01:30 AM
I had to do phys. therapy for a few weeks, going up and down stairs. Yes, I had to do the breathing exercizes. you have to blow into a little tube thingie that blows a ping-pong ball type thing up. Is that what you're going to have to do?

ANIMAL LOVER12
10-21-2004, 07:07 PM
Hi Lorna,
It sounds like I'm going to have to do something like that. My doctor hasn't told me exactly what I have to do. How log were you in the hospital after your surgery? My doctor estimates that I will be there for six days following the surgery. Hope to hear from you!:p

Angelwithaflute
10-22-2004, 01:50 PM
I think that's about how long I was in the hospital, 6 days, a week. somewhere around that time frame!:D

ANIMAL LOVER12
10-22-2004, 09:08 PM
Hi Lorna,
Thanks for replying. Did you have an anterior or posterior spinal fusion/ I'm having a posterior spinal fusion. This question goes out to anyone who had surgery, Hoe long is your scar? Hope to haer from you!;)

jachar
10-22-2004, 10:48 PM
Hi Lauren,

My daughter (13 yrs old) had posterior surgery on Sept. 28 and her scar goes from about the base of her neck down past the middle of her back (T2 to T12) and the scar on her hip is a few inches long too.

Jaci

Angelwithaflute
10-24-2004, 12:14 AM
I actually had antirior. My scar starts about and inch above my hip, and curves upward and around to about the start of my shoulder blade. It is about 10 inches long.

ANIMAL LOVER12
10-29-2004, 06:43 PM
Hi,

Thank you for replying. According to my surgeon, the scar will be the length of my spine. He hasn't told me anything about the bone graft ( i think that is what it is called:confused: )so I don't know what is going on with that.:rolleyes: ANother question to anyone whuo has had surgery. Did you give any blood? I am giving two units.Hope to hear from you:p

ANIMAL LOVER12
11-07-2004, 04:43 PM
Hello,
Another question has popped into my mind. How long was your IV in for and how many did you have? Hopeto hear from you!

Horselover
11-09-2004, 01:20 PM
Hi, I have had surgery. I have a fusion and I had two rods in my back. I wieghed about 65 pounds when I went into surgery and i lost about 5 pounds. I didn't eat much for about a month. I was up and walking a couple days after surgery. I was not allowed to have a shower for a month. My stitches had to disolve naturally. I was not on a lot of pain medication because I have a high pain tolerancy. I have had two smaller surgeries since 2000 when I had the big one. I had the tops of my rods taken off because they popped off my spine and where protruding near my neck. And then I had one rod removed all together. Now I only have one rod and I am going back the 29th of November, 2004 to get the other rod out. I was not allowed to ride horses for a year after my fusion. It really sucked. I was told I would not be able to do somesaults either for the rest of my life. But I can still do them. I had a 96 degree curve in my upper back. luckily my lower back was fine and i still have all my flexibility down there. The only part I really dislike about surgery is the IV needle. It hurts. But don't worry. And your back will most likely be numb in places the rest of your life. But that is ok. I am glad that I am not the only one out there that had to go through this. I only wish I had found this place before now. I was 12 when I had my first surgery. I am now 16. I lost 6 inches with the curve and 15% of my right lung. I gained 4 inches back on the table and I have grown 2 inches in four years. I am 4' 9". Things will be hard but you will live through them and be able to handle them. i just hope you don't have problems and have to keep going back.
Keep your chin up.
Kimberley. If you would like to email me here is my address. kimberley_gayle1@hotmail.com(underscore in there)
PS
I was in the hospital about 1 1/2 weeks. I had my IV in for all of that time. mainly because I couldn't keep food or water down. And I didn't give any blood. I just had numerous blood tests about once a day while I was in the hospital. my scar stops about the middle of my back. And I had a chest tube so I have a small scar in my side and I had to have some ribs used for my fusion so I have a about a 6 inch scar from my shoulder blade to my side. I had physical therapy too. It wasn't that hard for me. I had to do stairs and rollovers and breathing exercises. my surgery lasted about 7 hrs and then I spent that first night in ICU. And I see you live in Canada. Me too. I will be happy to answer any questions:) Kimberley
;)

ANIMAL LOVER12
11-10-2004, 08:59 PM
Hi Kimberly,
You were twelve when you had your first surgery. I am twelve now but when I have my surgery I will be thirteen.Did you have an anterior or posterior spinal fusion. I hope to hear from you! Bye!

Horselover
11-10-2004, 10:16 PM
Hi
I have had an anterior fusion at least that is what mom says. But yeah I think that means the top part of my spine.:) well ttyl
Kimberley

Alison
11-11-2004, 01:36 AM
Hey

Fused T2 to T11, scar is 42 centimetres (I think to convert to inches you multiply by 2.5 but i'm not sure) and goes from my neck to my waist. I think I gained two centimetres in height but I'm not sure. I had two IV's one in my wrist and one in my neck. Neck one came out after two days and the wrist one on day five.

Anterior Fusion: this is where they fuse the front part of your spine, they usually go in through your side, through ribs and stuff, but the ribs can grow back so that's pretty cool

Posterior Fusion: Is where they go in through your back and fuse the back part of your spine

Alison

Peggy
11-11-2004, 09:50 AM
Hi Lauren,
My 13yr. old daughter had surgery last April and is doing very well. She had a double fusion for curves that were 50 and 60 degrees. Her correction went to 10 and 15. Her surgery took 9 hours (included a thoroscopy too). She was in Intensive Care for 6 days and went home on the morning of the 10th. She lost about 15 lbs but gained it back with a little extra! At her 6 month check up last month they removed her restrictions. She can now lift up to 40 pounds and bend at the waiste. She can resume physical activity assuming it doesn't give her any pain. She hasn't done much yet accept walking though. Still a little nervous about letting loose! She moves well. She of course isn't as flexible as she was but she doesn't look stiff or feel stiff. Her posture is excellent and she looks great. I know what a difficult time this is. There were times I thought we wouldn't make it through without going crazy. But stay positive and focus on the future, post-surgery days. You will do great and come through this a stronger person. Best wishes.

Peggy
11-11-2004, 09:51 AM
Wanted to add that she had posterior fusion and is fused from T-2 to L-2.

Horselover
11-11-2004, 12:06 PM
HI
I guess I had a posterior fusion then:) lol But they took some ribs and used them to fuse my spine. But ribs don't grow back. They can grow together but they can't grow back. So ttyl
Kimberley

Alison
11-11-2004, 09:04 PM
I don't know much about ribs, cause I had a cadaver bone graft and I read it somewhere I just thought it was an intersesting bit of stuff and sounded pretty spiffy. What it said was that if the surgeon leaves the lining of the rib in tact, it will grow back, probably means the same as growing together but I don't really know. Sometimes Australian ways of describing things don't quite describe across the same as you would say it in America :-)

Alison

ANIMAL LOVER12
11-11-2004, 09:51 PM
Hi,
Thanks everyone. You have really helped me.I am having a posterior spinal fusion. I ahven't got all the details yet though. Peggy your daughters curves were close to mine. Was it really rough on the ride home from the hospital and at home.? Hope to hear from you! Bye.

Gemma
11-25-2004, 03:54 PM
hia my name is Gemma Campbell and i have just gone 12!
I am having surgery on the 26th of January and i am scared too!
I know that if you keep on wearing your brace (that is if you still have it) it will keep your spine that little bit better until the operation. There is nothing to worry about really! People will come to see you and to support you in any way they can!
Please if you have any worries, email me on (sumarasumara@tinyonline.co.uk) and maybe we can be penpals!
Please email me back!
Yours sincerely
Gemma
p.s. don't worry i am there for you!
;)

ANIMAL LOVER12
11-26-2004, 03:44 PM
Oh, Thank you so much Gemma. Im there for you too.You are absolutely right, people will be there supporting me. It won't be as bad as I am thinking it will be. Actually, I am not even that nervous about it anymore. I mostly just want to go get it done.If you have any worries just post them on here or you can private message me and I will do my best to help you. Bye!

donkeelover
11-28-2004, 10:24 PM
Hi! I'm going to be getting surgery this coming summer, and earlier in this thread, you were talking about weight loss. I was reading some other posts on this, but I'm still really worried. I'm 14 years old, 5 foot 2, and only 85 pounds! People are already worried about my weight as it is...I look anorexic even though I'm not. I'm eating CONSTANTLY, and really healthfully too, I just have a really fast metabolism. Would weight loss after the surgery be dangerous for me? Should I try to gain weight? That sounds scary, and one of the surgeons I saw said that it's easier to do surgery on really thin people. If someone could give me their opinion, I'd really appreciate it.

--Carole

mumof5
11-29-2004, 02:31 AM
HI Carole,
Unless you are very sensible about gaining weight you will only gain 'fat'. Trying to gain some probably would be a good idea, but do it with help from a doctor or nutritionist. My daughter lost quite a bit of weight, she has gained back a little though. Her surgery was almost 7 months ago. I think the weight loss had a lot to do with her lack of stamina.
Try not to worry too much about it though because it may cause you to loose weight, which by the sound of things you definately don't want to do.
As long as you eat a healthy diet and don't skip meals you should be fine.
I doubt that your surgeon would operate if he / she thought you were to underweight.
Best wishes.
Cheryl.