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View Full Version : anyone fused t2 to pelvis???



domkam
02-16-2010, 07:25 PM
Hi Everyone,
I just went to my pre-op appointment today. There going to fuse my fromT2 to pelvis. Has anyone else been fused this much? How limited will I be in activities? Any info will be appreciated...

JenniferG
02-16-2010, 08:19 PM
I am pretty sure Ed (titaniumed) was fused T2 - pelvis. I am fused T4 - pelvis. Janet (Doodles) may also be fused T2 - pelvis. I am sure there are others.

Doodles
02-16-2010, 08:49 PM
Yes, I am T2-pelvis. I of course can't bend at the waist but I find new ways to do things--squatting, going down on one knee etc. I know age will play a huge part in this for you--the younger the better for movement. At 10 & 1/2 months I bend over about to the knees, still find putting on shoes tricky--elastic laces are really helpful and all of those little fancy sock/shoe puter onner things really help at the beginning. I still use my long-handled shoehorn though! They will probably have you purchase those at the hospital if you so choose. I am hoping to get back more mobility as time goes on. My p.t. today said some people just aren't as flexible to begin with so that might be part of it. To see me walking no one would know. It's still better than where I was and where I was headed. Some on here have lots more mobility than I who are also to the pelvis. Ed for instance--I exercise all the time but I'm not quite the Olympian that Ed is! Janet

titaniumed
02-17-2010, 03:43 AM
Hi Domkam

Welcome to the forum. I was fused T2-pelvis, just 2 years ago and had an A/P anterior first, then 2 days later the posterior. Itís a pretty nice rack.

Adaptability, acceptance, and having a positive attitude are attributes that are needed in the recovery period after one of these surgeries. All these little things like the long handled shoe horn, really are little things, and I wouldnít worry too much about it. If I can put ski boots on, you will be able to get your shoes on.

It will be a tough recovery, especially the first few days. It depends on your age. I had my A/P at age 49 and it was a challenge. The young kids seem to heal pretty quick. How old are you?

I think that my biggest problem might be clipping my toenails on my left foot. I can do it alone, but really have to pull down to reach. So if thatís my biggest handicap with all of this, thatís not too bad.

If you want, I will talk to you on the phone. Just e-mail me titaniumed@hotmail.com I can explain much more on the phone. If you did your pre-op, when is the surgery date?

Hi Janet
Im no Olympian, but sometimes I come close.LOL Glad to see that you are coming along. I had vast amounts of improvement from 10 months to 15 months, and of course 2 years out is even better. PT is a good thing.
Ed

megz
02-17-2010, 11:04 AM
Im fused to t2-pelvic..When I first came on to this forum I read a few posts about people thinking they were going to be like a tin man. I honestly feel amazing prior to after the surgery the only pain i endured was from them putting the metal and messing around in my back, but that burning feeling that was on my side is now gone!! I walk around normal. I mean I can't do much while I'm in the brace but considering having two surgeries that equaled 19hrs and being 5 weeks post op I considered being bless. I know I have looked up to titaniumed =) he has been a HUGE inspiration to me. I can't wait to start PT ((the real thing right now I have a visiting pt but she doesn't have me do anything interesting)) so I can start toning my back and stomach muscles.

lapieper
02-17-2010, 12:06 PM
I am fused T2 though S2. Have had a total of four surgeries. Think the last one was the toughest. Cut into a lot of soft tissue, removing the two pelvic screws, the lower part of both rods, and the lower left part of the rod which was broken. Sorest because of the muscle involvement, I'm sure. I was off work from Apr til mid July, at which time I returned to work part time, then retired the end of December 2008. Am currently back doing water aerobics, and lots of walking on the treadmill. Can put on shoes, but need help trimming my toenails. I can reach and do them myself, but they are a little crooked! So my hubby helps. Am still dealing with muscle spasms, but I can live with them. Ed and I had our surgeries about the same time, but I'm older! (Had to throw that in there, Ed!) It was worth the surgery. Don't have any of the pains I had before the surgery, and any pain I feel today, I call my healing pain. Keep us posted as you progress through this major life event, please.

titaniumed
02-18-2010, 02:33 AM
Meg

Just trying to help. Itís a mutual understanding that we scolis have with one another. We all climb mountains, and tackle the same goals.

Physical therapy will be a slow process in the beginning. Lots of easy stretching, and the use of very light weights will come in time. Itís a slow controlled process. They wanted me in twice per week, and I decided that I would rather go once per week, for double the time. That way I could extend my PT time, and do stretching and light exercises on my own at home. I extended my PT for 6 months total in this manner. The Doctors agreed with my logic.

I took my recovery slow and easy till I was fused. I was worried, and didnít want to push it. Better to be safe than sorry. Its great to hear that you are doing well.

Les

I lost track of all your revisions, and just remembered that you are only about 2 months out from your last revision. I hope your spasms mellow out soon, mine took a few months to settle down. Its funny, I tell people that after I die, I actually have scrap value and to cash me in when Im done. As long as I donít have to have any hardware removed, my heirs will be "full vested" LOL
Ed

Doodles
02-18-2010, 01:28 PM
Ed--I never thought of that! That's pretty funny. Janet

domkam
02-18-2010, 06:03 PM
thanks for all the encouragement guys...It's much appreciated

mbeckoff
02-28-2010, 10:39 PM
Hi, I am going to be fused T1 to sacrum March 11.

These are good things for me to think about

Melissa

jrnyc
03-01-2010, 03:55 AM
sounds like you are doing amazingly well, megz...am so happy for you, as i've followed your journey thru your posts on forum, & seen how hard it has been at times, & how far you have come!

just one question, Ed...and you other folks who have looong fusions, thoracic thru sacrum or pelvis (wow...you are all inspirations to me!)...how do the P.T. guys...or anyone else...help you to strengthen your stomach muscles if no sit up kinda' activities are possible with the fusion...what does one do instead to strengthen the stomach muscles & core of the body? couldnt sleep tonite, as usual, & have been pondering this question...& trying to imagine what would work instead...?

thanks...for any answers, & also for being so inspiring!

jess

LynetteG
03-01-2010, 05:22 AM
That's a great question Jess - I never though about not being able to do sit-ups afterwards!

titaniumed
03-01-2010, 09:45 AM
I took it real slow for the first 6 months because I wanted to know if I was fused. I didnít want to take any chances due to all the grafting that was done with my corpectomies. The large anterior cut also tend to slow you down a bit. The exercise of choice will be walking, walking and you guessed it, more walking. Preferably outside and higher frequency. Not 10 miles per week on Sunday and sleep the rest of the time. My Doc did not want me sleeping all the time.

I think I was about 8 months along when I sat up to get out of bed. I called the office to see if this was ok, and they said it was fine. I started a log roll sit up motion. I now can get out of bed faster than any fireman.

My PT was after my shoulder operation at 8 months. They move real slow in the beginning with stretches, and slowly work up to light weights. 1lb, 2lb, 5lb, that kind of thing. Arm exercises, curling etc transfer to the stomach.

I had a real hard time with the drugs. I lost 40# and had to quit before they killed me. After I quit at 6 weeks post, I started jamming nutrients, and started to recover quickly. My muscles seemed like old rubber bands, but they do come back. You guys can come out here and help me shovel rock and snow. I do this stuff alone and wont hire anyone. I would lose out on my exercise! Shovel 30,000# plus, and you will get your stomach back! I have a huge back yard.
Ed

jrnyc
03-01-2010, 12:10 PM
hey Ed....how on earth do you shovel...and use stomach muscles.....when you cant bend...i get it if you just lift from the knees.....but i dont get how the stomach muscles get exercised-ed-ed....do they contract when lifting from the knees?

i fully believe that you have regained the muscle strength.....just dont get how it happens......

for me, the mystery continues....:confused:

jess