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LynetteG
02-11-2010, 01:16 AM
Hi everyone,

Well the doctor that I wanted so much to operate on me, works with Dr. Cronen from time to time to do the bigger more complicated surgeries because Dr. Cronen apparently is an excellent scoliosis surgeon, and has trained under Dr. Lenke. Thanks to David on here who gave me some advice about Dr. Cronen, I called his office today and they take Humana Insurance, so I've booked an appointment, earliest they could get me in is Feb 24th. I will bring my x-rays with me that I got from Dr. Moreno's office, and more than likely try to set up a date for surgery some time at end of April early May if I can.

I'm so relieved that I'm covered for insurance and that this doctor seems to have a great reputation.

I'm extremely nervous about surgery, and keep thinking I'm looking at somebody else's life instead of mine, can't believe that I'm faced with this predicament, that this is actually my spine that is so deformed - why why why? Anyway, I have come to a place of acceptance, but nevertheless I'm still terrified about surgery, and the pain afterwards and how long it will take me to recover in order to be able to get back to taking care of my sons without having to ask my mum who is 77 to have to do too much for too long. I just hope it won't be too much for her! Thank God she adores my sons and spends every day with us anyway because she can't bear to be away from them for more than one day :)

Anyway, that's my good news, that at least I can move forward with this. Thank you all again for all your great support and info with my journey so far.

Jimbo
02-11-2010, 01:23 AM
:)

I knew it would work out for you.

Congratulations.

JenniferG
02-11-2010, 03:13 AM
That is very good news Lynnette!

I felt the same way you do, i.e. How did this happen to me? How could I be facing this huge surgery? Believe me, it's scary for us all. But you have a better life ahead. I realise how difficult this is going to be, being apart from your boys and not being able to take care of them. Is there someone who could back up your Mom, a friend, cousin, an Aunt? Because it really will be hard for a 77 y.o. being fully responsible for two boys. What are their ages?

I really feel for those with kids, it must be incredibly difficult. I am glad I did not need to do this surgery until I was a grandparent!

The best of luck to you Lynnette, it's going to be a big year , but there's a great life ahead and it will be worth it.

debbei
02-11-2010, 04:16 AM
Great news Lynette! I am thrilled for you. Let us know what happens at the appointment.

LynetteG
02-11-2010, 05:26 AM
Jim - Thank you - hope your pain is lessening every day!

Jennifer- Unfortunately for the most part it truly will be just my mum who can help me - a cousin from England is coming over as soon as she hears when my surgery date is, she'll book her flight to be here, but she'll only be here for two weeks altogether. My brother will probably come over when he can but he's in the process of opening up a new business which will take up a lot of his time. My ex just sent me such a horrible threatening email, telling me not to expect he or his wife to help me (I wouldn't want him to help), and threatened about reducing my money etc., taking away my medical insurance etc., just what I needed to see right now. I've learnt to let his horrible words to ride over me now though, because I have so much love and support from my family - which he does NOT have, and having people who love and care about you is worth way more to me than anything else in life :)

Debbei - I will definitely let you know how the appointment goes :)

Now that I know I'm moving ahead with this surgery, I've become an insomniac and find myself staying awake a lot through the night feeling nervous, and then when I do fall asleep I have nightmares. Did any of you have these issues once you started moving toward surgery?

Vali
02-11-2010, 06:16 AM
Lynette,
that's great news! Sorry to read about your ex though. Must say, some people just don't have an empathetic bone in their body. I hope everything goes well for you at your appointment. I had trouble sleeping for a few months before surgery due to pain, but after the consult with my surgeon, all i kept thinking about was the hardware i was getting in my back, how i got to be in these shoes and the one everyone probably asks - why me? I hope your thoughts calm a little after your appointment. Best wishes.

LynetteG
02-11-2010, 06:53 AM
Vali - Thank you! It's actually very comforting to hear that pretty much everyone else on here has had the same thoughts go through their heads. One thing I'll be also very happy about is that I won't feel or look so deformed anymore. Whenever we've gone to the pool with my sons, I've always looked at everyone else wishing I had their straight spines, at least my spine will be straighter than it is right now afterward. :)

debbei
02-11-2010, 07:27 AM
Now that I know I'm moving ahead with this surgery, I've become an insomniac and find myself staying awake a lot through the night feeling nervous, and then when I do fall asleep I have nightmares. Did any of you have these issues once you started moving toward surgery?

Sleeplessness and nightmares? YES YES and YES again. I remember one vivid nightmare where I had the surgery and woke up in HORRIBLE pain. When I woke up from that nightmare, I remembered how bad the pain was. You know what? When I actually had the surgery and woke up, the pain was not nearly as bad as it was in my dream.

I'm sorry your ex is being such a jerk and that you have to put up with all of his garbage.

LynetteG
02-11-2010, 09:02 AM
Debbe - In a way that nightmare worked out to be in your favor :) - thank goodness the pain after your real surgery was not as bad as that nightmare - that's very encouraging actually :). As far as my ex is concerned - I'm just really happy that I'm no longer the one married to him listening to his controlling ways and not having to put up with his mental abuse anymore - so YAY for me :). His present wife I'm sure will see straight through him one of these days. It took me many many years to really see hold cold-hearted and soulless he is, sad really!

Doodles
02-11-2010, 02:10 PM
Lynnette--I'm so happy you are now able to move ahead with your decision. And yes, sleeping was difficult and often marred with nightmares! I had a horrible one that haunted me for days about surgery and thought I'd never forget--I just realized I have definitely forgotten it! Some of our fears are way beyond reality. However, I always thought it best to be prepared for the worst and hope for the best. Good luck as you move forward. Janet

LynetteG
02-11-2010, 02:24 PM
Janet - Thank you for your kind words. Yes I agree, I always like to know everything I can find out about the surgery so that I'm also prepared :)

JenniferG
02-11-2010, 04:13 PM
Are you able to exercise Lynnette? If so, and you are not in too much pain, my advice to help you sleep is to exercise, exercise, exercise. For me, whereas I could not stand for more than 30 seconds without pain, I could walk quite a distance. So every day I walked, harder and faster and longer and I also kayaked without any problem. This helped knock me out at night. I think the best thing about sleep is, that it reduces stress. If you're tired, everything seems worse. So sleep is important.

Apart from that, you may consider an anti-anxiety medication. Even if you're not keen on taking meds, I believe there's a time and place for everything and knowing how much it helped me, I would recommend it.

LynetteG
02-11-2010, 06:01 PM
Thanks Jennifer for your advice, actually you're right, I need to exercise more now than ever to prepare my body for good health for this surgery. I have been in a depression for the last four weeks or so, and have had no energy to do ANYTHING, however, I've moved passed that, and I'm rearing to go. So I have actually (funny that you mention it), set up my schedule each day till surgery now for practicing my meditation, hypnosis for surgery, kundalini yoga (which is active yoga with cardio), and swimming. I'm about 20 pounds overweight, so I want to get that down also, and yes, I know you're right, it will definitely help me sleep better at night.

I suddenly have this passion to prove to the world, that all the crap I'm going through will make me stronger, more determined, and more passionate about life and my future career. I will show the world, and I'll show my ex that NOTHING will get me down, especially not him :) :) :)

jrnyc
02-11-2010, 06:43 PM
Hi Lynette
so glad for you that the insurance has worked out with a good doctor...that should hopefully put your mind at ease...that you will have a skilled surgeon to take care of you!

it sounds as if you have been dealing with alot lately...the situation with your ex sounds like alot just in itself!! have you talked to a therapist or doctor about depression...cause i know how paralyzing it can be...& there are medications that can really help! i think the "why me" thing is not good for anyone! it leads to more depression.....i just try to think that it could be worse...that others have just as big or bigger problems than mine...but i know that when one is depressed, a black cloud can descend that covers everything & limits perspective!! that is why medication can be so helpful...

once you get comfortable with your decision, i bet you start to sleep better...

best of luck
jess

ADMoul
02-11-2010, 07:02 PM
That's fabulous news Lynette--so good that you've got a great surgeon that your insurance will cover. I can so relate to your comment about straight spines and being at the pool with your sons. I have been a lifelong swimmer and always have to wear high-back suits to cover up the curve. You're just so envious looking at those bodies with normal spines. I have obssessed over this back for so long and spent many sleepless nights worrying about surgery, what to do, etc. Before I made the surgery decision, my Dr. had put me on a low dosage of amitriptyline which really helped with getting to sleep and pain mgmt. In fact, the visiting nurse today suggested we start it again since being in bed is painful right now. Cheers for your good news--lean on this forum --it's wonderful.

debbei
02-11-2010, 07:26 PM
I suddenly have this passion to prove to the world, that all the crap I'm going through will make me stronger, more determined, and more passionate about life and my future career. I will show the world, and I'll show my ex that NOTHING will get me down, especially not him :) :) :)

THERE YOU GO!! That's the exact attitude you need. I know you can do it, and you'll be JUST FINE! Remember we are here for you to help you get through.

RitaR
02-11-2010, 09:00 PM
Lynette, I know what you mean about feeling deformed. The first time my back was seen someone asked me, "what are you deformed or something?!" I hadn't really thought about it that way, but yeah I guess so. I can't imagine not having to feel that way any more. I'd even welcome the pain postoperatively (can you tell I'm a transcriptionist here?) because at least you know that pain will get better. Not like this pain we endure every day all day that drags on day after day!

Shari
02-11-2010, 09:59 PM
Way to go Lynette,

You are already a survivor for many reasons!!!:) Don't ever give up on you!!!;)

Shari

LynetteG
02-11-2010, 10:40 PM
Oh my goodness - I'm so overwhelmed with all the wonderful people on here, your messages just brought tears to my eyes. I feel so cared for here, you are an amazing fantastic bunch of people - thank you thank you thank you!!!

David - Yes I'll definitely let you know everything I find out. I'm going to put together a list of questions for him, such as how many scoliosis surgeries has he done; has anything bad ever happened in any of them; can I contact some of his former patients; what kinds of procedures will he operate on me in comparison to what Dr. Moreno had told me. What I DO know David is that Dr. Moreno is considered one of the best scoliosis surgeons in my area, and apparently whenever he has a major complicated surgery to do, he always does it in partnership with Dr. Cronen due to Dr. Cronen's expertise - plus the fact that Dr. Cronen trained under Dr. Lenke who is renowned to be an expert in the scoliosis field. That was enough to give me confidence right there, so I've set my mind and heart to definitely arrange a date of surgery when I go see him, as I want to put this behind me while I'm a little younger rather than later on when I would have little or no possibility of correction due to my lumbar being at 85 degrees right now, and then the world will be my oyster again :)

Dr. Moreno had told me that what he does every time with his patients, is put in a filter through the groin to the heart about a week prior to surgery, to ensure against blood clots during surgery, is this normal practice with most of the surgeons? I'm hoping Dr. Cronen does this too - even though I hate the thought of facing yet another procedure before the big procedure, but I'd rather be safe than sorry.

Shari
02-13-2010, 06:11 PM
Lynette,

I didn't have a filter, maybe someone else on here has. All Doctor's have different thoughts and procedures. I can see where that wouldn't be a bad thing though. They put some kind of wraps on my legs that were supposed to help me not get clots, my nursing staff forgot to hook the machine up to them for the first 2 days.:confused:

My Mother has a filter in her vena cava to catch clots to her lungs.

Do you have history of blood clots?

Shari

debbei
02-13-2010, 06:49 PM
I know that several people here have had them, but I did not. It sounds like a good thing. If I had heard about it prior to my surgery I'm sure I would have asked my surgeon about it. I also had the wraps on the legs that squeezed them whenever I was in bed.

LynetteG
02-13-2010, 09:32 PM
Shari - No there is no history of blood clots in my family. However when I had talked to Dr. Moreno about having to have surgery, I got tearful and afraid and told him that I needed to come through this because of my sons. So that's when he had told me that he does that procedure as he likes to cover every aspect of safety through surgery.

loves to skate
02-14-2010, 03:13 PM
In addition to the leg wraps, I got post-op heparin shots in the abdomen to prevent clots.
Sally

JenniferG
02-14-2010, 03:38 PM
Yes, I wore very tight, white stockings and was given Heparin injections daily.

debbei
02-14-2010, 05:02 PM
In addition to the leg wraps, I got post-op heparin shots in the abdomen to prevent clots.
Sally

OMG Sally--was it horrible? I can't imagine getting a shot in the belly.

loves to skate
02-14-2010, 09:44 PM
OMG Sally--was it horrible? I can't imagine getting a shot in the belly.
No, it wasn't horrible. Remember, I was on drugs and barely felt them.:)

JenniferG
02-15-2010, 12:21 AM
Actually I found the Heparin needles horrible. I'm a bit needle phobic to start with and initially I had two epidurals in place so didn't feel them. But I was there 19 days and eventually asked them to use my buttocks instead, my belly was so bruised and some of the nurses made it VERY painful. Truly, some were hardly felt, others I nearly went through the roof and once I cried. The last few days I was there, I refused them. I was walking several times a day which I hoped would be enough to prevent blood clots.